Initial counselling for cleft lip and palate: parents' evaluation, needs and expectations.

Abstract:

:During the first counselling after the birth of a child with cleft lip and palate (CLP) information about the malformation should be delivered and a long-standing relationship between the cleft team and the affected family must be established. The present study was conducted to evaluate the parents' experiences, needs and expectations with this first consultation. A questionnaire was sent to 105 parents at the cleft clinic, which could be answered anonymously. It collected demographic data, data on the parents' pre-existing level of information and the parents' assessment of the counselling at the cleft centre. Seventy percent of the questionnaires were returned. In 16% the clefts were diagnosed prenatally, in 32% there were relatives with clefts. Seventy-one percent of the parents received detailed counselling, 89% of which occurred in the first week. The parents requested that information about surgery (80%), feeding the child (63%) and the aetiology of clefts (44%) should be given. The quality of the consultation was rated very good or good by 87% of families. This study confirms the importance of initial counselling for CLP. The exceptional psychological situation of the family has to be considered and a close collaboration between cleft centre and maternity hospitals is mandatory.

authors

Kuttenberger J,Ohmer JN,Polska E

doi

10.1016/j.ijom.2009.12.013

subject

Has Abstract

pub_date

2010-03-01 00:00:00

pages

214-20

issue

3

eissn

0901-5027

issn

1399-0020

pii

S0901-5027(09)01202-8

journal_volume

39

pub_type

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