Abstract:
BACKGROUND:Few studies have focused on men as caregivers at the end-of-life. The objective of this secondary data analysis was to examine the experiences of men involved in end-of-life caregiving, focusing on caregiver strain. METHODS:We used a random sample of Oregon death certificates to telephone survey family caregivers of Oregonians who had died 2 to 5 months earlier in private homes, nursing homes, and other community-based settings. Measurements included single-item indicators and embedded scales to measure caregiver strain and perceived decedent symptom distress. For the 25 husbands, sons, wives, and daughters who reported the highest levels of strain, we also analyzed caregivers' description of the decedent's last few days of life. RESULTS:The sample included 1384 caregiver interviews from a pool of 3048 death certificates. Men constituted 29% of the caregivers, including 15% sons, 9% husbands, and 5% others. In a linear regression model, male gender was a significant predictor of lower caregiver strain (p < 0.001). The strongest predictor of high end-of-life caregiver strain was the severity of the decedents' symptom distress. The qualitative analysis revealed that men used fewer words than women did to describe their experiences, and, despite subsequently reporting the highest levels of caregiving strain, only 15% of men spontaneously mentioned their own struggles. CONCLUSIONS:As caregivers at the end of life, men are less common and less likely to report caregiver strain and decedent symptom distress. Health care professionals should actively ask men about these issues and listen carefully, as their responses may be brief and understated.
journal_name
J Palliat Medjournal_title
Journal of palliative medicineauthors
Fromme EK,Drach LL,Tolle SW,Ebert P,Miller P,Perrin N,Tilden VPdoi
10.1089/jpm.2005.8.1167subject
Has Abstractpub_date
2005-12-01 00:00:00pages
1167-75issue
6eissn
1096-6218issn
1557-7740journal_volume
8pub_type
杂志文章abstract:: Background: Lung transplant recipients who experience serious illness could benefit from specialty palliative care (SPC), but evidence suggests that referral has been rare. Objective: Examine the characteristics of post-transpl...
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pub_type: 杂志文章
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journal_title:Journal of palliative medicine
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doi:10.1089/jpm.2013.0589
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pub_type: 杂志文章,评审
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journal_title:Journal of palliative medicine
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更新日期:2014-11-01 00:00:00
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doi:10.1089/jpm.2012.0150
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abstract::A faculty development course was offered at the Medical College of Wisconsin to bolster existing medical student and housestaff training opportunities in palliative medicine. An 8- week, 12 contact-hour course was designed to provide up to 15 faculty members training in the practice and teaching of end-of-life care. F...
journal_title:Journal of palliative medicine
pub_type: 杂志文章
doi:10.1089/jpm.1998.1.35
更新日期:1998-04-01 00:00:00
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journal_title:Journal of palliative medicine
pub_type: 杂志文章
doi:10.1089/jpm.2011.0225
更新日期:2011-12-01 00:00:00
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journal_title:Journal of palliative medicine
pub_type: 杂志文章
doi:10.1089/jpm.2005.8.975
更新日期:2005-10-01 00:00:00
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journal_title:Journal of palliative medicine
pub_type: 杂志文章
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journal_title:Journal of palliative medicine
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更新日期:2019-11-01 00:00:00
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pub_type: 杂志文章
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更新日期:2017-10-01 00:00:00
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journal_title:Journal of palliative medicine
pub_type: 杂志文章
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更新日期:2011-06-01 00:00:00
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pub_type: 历史文章,杂志文章,评审
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