A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.

Abstract:

BACKGROUND:Little is known about the composition, availability, integration, communication, perceived barriers, and work load of pediatric palliative care (PPC) providers serving children and adolescents with cancer. OBJECTIVE:To summarize the structure and services of programs to better understand successes and gaps in implementing palliative care as a standard of care. METHODS:Cross-sectional online survey about the palliative care domains determined by the Psychosocial Care of Children with Cancer and Their Families Workgroup. SUBJECTS:A total of 142 surveys were completed with representation from 18 countries and 39 states. RESULTS:Three-fourths of sites reported having a PPC program available for the pediatric cancer population at their center. Over one-fourth (28%) have been in existence less than five years. Fewer than half of sites (44%) offered 24/7 access to palliative care consultations. Neither hospital-based nor local community hospice services were available for pediatric patients at 24% of responding sites. A specific inpatient PPC unit was available at 8% of sites. Criteria for automatic palliative referrals ("trigger" diagnoses) were reported by 44% respondents. The presence of such "triggers" increased the likelihood of palliative principle introduction 3.41 times (p < 0.003). Six percent of respondents perceived pediatric oncology patients and their families "always" were introduced to palliative care concepts and 17% reported children and families "always" received communication about palliative principles. The most prevalent barriers to palliative care were at the provider level. DISCUSSION:Children and adolescents with cancer do not yet receive concurrent palliative care as a universal standard.

journal_name

J Palliat Med

authors

Weaver MS,Rosenberg AR,Tager J,Wichman CS,Wiener L

doi

10.1089/jpm.2017.0405

subject

Has Abstract

pub_date

2018-04-01 00:00:00

pages

452-462

issue

4

eissn

1096-6218

issn

1557-7740

journal_volume

21

pub_type

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