Why is high-quality research on palliative care so hard to do? Barriers to improved research from a survey of palliative care researchers.

abstract：: Background: Research on what children wished they had done differently after their sibling's death has not been reported. Objective: Examine what children wished they had/had not done, and their coping after a sibling's neonata...

journal_title：Journal of palliative medicine

authors： Youngblut JM,Brooten D

更新日期：2020-07-08 00:00:00

abstract：BACKGROUND:Persons with cystic fibrosis (CF) experience high morbidity and mortality, yet little is known about their palliative care needs and how clinicians may address these needs. OBJECTIVES:(1) To identify palliative care and advance care planning needs of patients with CF and their families; and (2) to identify ...

journal_title：Journal of palliative medicine

authors： Hobler MR,Engelberg RA,Curtis JR,Ramos KJ,Zander MI,Howard SS,Goss CH,Aitken ML

更新日期：2018-04-01 00:00:00

abstract：INTRODUCTION:Percutaneous stenting is established in the palliation of malignant biliary obstruction. We examined the indications, success rate, complications, and long-term postoperative course of patients undergoing this procedure. METHODS:All patients undergoing percutaneous transhepatic cholangiography (PTC) and m...

journal_title：Journal of palliative medicine

authors： Sut M,Kennedy R,McNamee J,Collins A,Clements B

更新日期：2010-11-01 00:00:00

abstract：: Background: Patients with pulmonary hypertension (PH) experience distressing symptoms that can undermine quality of life (QoL) and treatment adherence. Complementary health approaches are known to help manage symptoms of chronic conditions and may have therapeutic benefits...

journal_title：Journal of palliative medicine

authors： Von Visger TT,Thrane SE,Klatt MD,Dabbs AD,Chlan LL,Tan A,Happ MB

更新日期：2020-05-01 00:00:00

abstract：BACKGROUND:Families with young children often struggle to talk about and cope with a parent's life-threatening illness and potential death. Adult interdisciplinary palliative medicine teams often feel unprepared to facilitate the open communication with these children that has been shown to reduce anxiety, depression, ...

journal_title：Journal of palliative medicine

authors： Sutter C,Reid T

更新日期：2012-12-01 00:00:00

abstract：:Chinese family members play an important role in end-of-life decision making. Culturally, they may believe that a patient's awareness of a poor prognosis could harm his or her well-being, and thus they may avoid telling the truth to the patient. To examine this cultural belief empirically, this study aimed to explore ...

journal_title：Journal of palliative medicine

authors： Chan WC

更新日期：2011-09-01 00:00:00

abstract：BACKGROUND:Surgical patients most commonly receive palliative care services within 24-48 hours of death, and reasons for this delay are poorly understood. Research with nonsurgeons suggests that physician characteristics and beliefs about death and dying may contribute to late referral. OBJECTIVE:To describe surgeon p...

journal_title：Journal of palliative medicine

authors： Dillon BR,Healy MA,Lee CW,Reichstein AC,Silveira MJ,Morris AM,Suwanabol PA

更新日期：2019-02-01 00:00:00

abstract：OBJECTIVE:The objective was to explore the utility of a new three-item depression screening tool concerning time and life perception (TLP-3), compared with the DSM-IV criteria. METHODS:This was a cross-sectional study of 63 Portuguese terminally ill patients, from May 2010 to November 2012. Patients were eligible if t...

journal_title：Journal of palliative medicine

authors： Julião M,Oliveira F,Nunes B,Barbosa A

更新日期：2013-11-01 00:00:00

abstract：CONTEXT:Research shows an increased symptom burden in young adult (YA) cancer patients compared with their older adult counterpart. OBJECTIVES:The purpose of this study was to identify differences in clinical characteristics and related outcomes between YA and older adult cancer patients admitted for cancer-related pa...

journal_title：Journal of palliative medicine

authors： Devlin SM,Murphy JD,Yeung HN

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Our objective was to provide a contemporary analysis of the prevalence, types, and impact of advance health care directives in critically ill cancer patients. METHODS:We retrospectively reviewed all intensive care unit (ICU) admissions (January 1, 2006 to April 25, 2008) at an oncologic center and identifie...

journal_title：Journal of palliative medicine

authors： Halpern NA,Pastores SM,Chou JF,Chawla S,Thaler HT

更新日期：2011-04-01 00:00:00

abstract：: Background: Providers often use birth plans to document parents' wishes for their fetus with a life-limiting condition. Objective: The objective of the study was to (1) discover important components of a birth plan for parents ...

journal_title：Journal of palliative medicine

authors： Cortezzo DE,Bowers K,Cameron Meyer M

更新日期：2019-11-01 00:00:00

abstract：OBJECTIVE:It is not known how often physicians use metaphors and analogies, or whether they improve patients' perceptions of their physicians' ability to communicate effectively. Therefore, the objective of this study was to determine whether the use of metaphors and analogies in difficult conversations is associated w...

journal_title：Journal of palliative medicine

authors： Casarett D,Pickard A,Fishman JM,Alexander SC,Arnold RM,Pollak KI,Tulsky JA

更新日期：2010-03-01 00:00:00

abstract：:Relief of adverse events induced by chemotherapy is an important issue for patients, especially those with a poor prognosis, such as with pancreatic cancer. There are no reports of the relationship between gastroesophageal reflux disease (GERD) and chemotherapy, so we investigated the incidence of chemotherapy-induced...

journal_title：Journal of palliative medicine

authors： Uwagawa T,Misawa T,Iida T,Sakamoto T,Gocho T,Wakiyama S,Hirohara S,Yanaga K

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:The role of emergent palliative surgery in the setting of advanced malignancy remains a subject of controversy. OBJECTIVE:The purpose of this study was to identify clinical predictors of outcome in patients with cancer who undergo nonelective abdominal surgery. SETTING/SUBJECTS:Individuals who underwent ur...

journal_title：Journal of palliative medicine

authors： Roses RE,Tzeng CW,Ross MI,Fournier KF,Abbott DE,You YN

更新日期：2014-01-01 00:00:00

abstract：OBJECTIVES:Many deaths occur among persons without insurance coverage for hospice care. We examined the patient and agency characteristics associated with receiving unreimbursed hospice care in a national survey. RESULTS:We examined the receipt of unreimbursed care using the 1998 National Home and Hospice Care Survey ...

journal_title：Journal of palliative medicine

authors： Lorenz KA,Rosenfeld KE,Asch SM,Ettner SL

更新日期：2003-08-01 00:00:00

abstract：: Background: Aggressive care at the end of life (EOL) is a persistent issue for patients with stage IV nonsmall cell lung cancer (NSCLC). We evaluated the use of concurrent care (CC) with hospice care and cancer-directed treatment simultaneously within the Veteran's Health ...

journal_title：Journal of palliative medicine

authors： Presley CJ,Han L,O'Leary JR,Zhu W,Corneau E,Chao H,Shamas T,Rose M,Lorenz K,Levy CR,Mor V,Gross CP

更新日期：2020-08-01 00:00:00

abstract：INTRODUCTION:Fatigue is one of the most frequent symptoms in patients with cancer. No adequate term in Spanish has been defined to describe the English concept of fatigue. AIM:To identify the most suitable Spanish words that define the concept of fatigue and to check psychometric characteristics. METHOD:Consensus wit...

journal_title：Journal of palliative medicine

authors： Centeno C,Portela Tejedor MA,Carvajal A,San Miguel MT,Urdiroz J,Ramos L,De Santiago A

更新日期：2009-05-01 00:00:00

abstract：BACKGROUND:There is heightened emphasis on teaching end-of-life (EOL) care in the medical school curriculum, but a relative paucity of tools focused on assessing key attitudinal changes due to curricula. OBJECTIVE:We sought to evaluate the responsiveness of two validated measures of relevant attitudes to changes cause...

journal_title：Journal of palliative medicine

authors： Schwartz CE,Clive DM,Mazor KM,Ma Y,Reed G,Clay M

更新日期：2005-10-01 00:00:00

abstract：BACKGROUND:Despite the growing use of opioids to treat cancer pain and the probability of opioid aberrancy in the cancer setting, clinical practice guidelines (CPGs) or recommendations for active screening and monitoring of opioid compliance are lacking. OBJECTIVES:To evaluate the current practices and attitudes clini...

journal_title：Journal of palliative medicine

authors： Liebling D,Mehta N,Gulati A

更新日期：2019-01-01 00:00:00

abstract：:Approximately 21 million noninstitutionalized Americans with physical disabilities will ultimately face end-of-life [EOL] issues. Studies have documented disparate care and poorer outcomes for persons with preexisting disabilities who have life-limiting illnesses, which raises the question of how EOL experiences may d...

journal_title：Journal of palliative medicine

authors： Volker DL,Zolnierek C,Harrison T,Walker J

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:Prognostic tools are available to predict if terminally ill cancer patients have days or weeks to live. Tools for predicting the prognosis in ambulatory patients at an earlier stage are lacking. The Number of Risk Factors (NRF) score developed in ambulatory cancer patients receiving palliative radiation ther...

journal_title：Journal of palliative medicine

authors： Glare P,Shariff I,Thaler HT

更新日期：2014-07-01 00:00:00

abstract：: Background: The lack of consumer knowledge and misconception of services could impede requests for and acceptance of palliative care. YouTube has been widely used for health information dissemination. Objective: To explore the ...

journal_title：Journal of palliative medicine

authors： Liu M,Cardenas V,Zhu Y,Enguidanos S

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:In advanced dementia, many difficult decisions may arise as the disease progresses, including whether to use feeding by tube. Several recent articles question the benefit of percutaneous endoscopic gastrostomy (PEG) tube placement in persons with advanced dementia. However, patients with advanced dementia are...

journal_title：Journal of palliative medicine

authors： Shega JW,Hougham GW,Stocking CB,Cox-Hayley D,Sachs GA

更新日期：2003-12-01 00:00:00

abstract：BACKGROUND:Acupressure is a widely used adjunct for various symptoms in patients with nonchronic kidney disease. However, its role for symptom management in end-stage renal disease (ESRD) populations is not clear. OBJECTIVE:To summarize and critically evaluate the evidence available from randomized clinical trials (RC...

journal_title：Journal of palliative medicine

authors： Kim KH,Lee MS,Kang KW,Choi SM

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Key to high-quality care of dying hospice patients at home is whether the hospice provides adequate training so the caregiver can safely care for the patient. OBJECTIVE:The study objective was to develop and validate a survey of hospice training for caregivers to ensure safe, high-quality care in the home s...

journal_title：Journal of palliative medicine

authors： DiBiasio EL,Teno JM,Clark MA,Spence C,Casarett D

更新日期：2016-06-01 00:00:00

abstract：:Caring for a child with a potentially fatal medical condition is a challenge for parents or caregivers. The ability to measure parental self-efficacy in pediatric palliative care may be an important component of targeting supportive services that address individual needs of families. Therefore, the goal was to develop...

journal_title：Journal of palliative medicine

authors： Bingen K,Kupst MJ,Himelstein B

更新日期：2011-09-01 00:00:00

abstract：OBJECTIVE:To describe the growth and outcomes of the Palliative Care Research Cooperative Group (PCRC). BACKGROUND:Despite advances, significant gaps remain in the evidence base to inform care for people with serious illness. To generate this needed evidence and bolster research capacity, the Palliative Care Research ...

journal_title：Journal of palliative medicine

authors： Ritchie CL,Pollak KI,Kehl KA,Miller JL,Kutner JS

更新日期：2017-06-01 00:00:00

abstract：INTRODUCTION:Spiritual needs play an important role in palliative care as both a clinical dimension and a therapeutic strategy. However, recent studies have shown that the management of this dimension still remains a challenge at the clinical level of palliative care. GOALS:Our goal was to evaluate the spiritual needs...

journal_title：Journal of palliative medicine

authors： Vilalta A,Valls J,Porta J,Viñas J

更新日期：2014-05-01 00:00:00

abstract：:Celiac plexus block (CPB) has been widely used as a treatment option for chronic intractable abdominal pain resulting from intra-abdominal malignancies as well as benign conditions. Complications resulting from CPB have been long reported and include diarrhea, back pain, paraplegia, postural hypotension, pneumothorax,...

journal_title：Journal of palliative medicine

authors： Gupta R,Madanat L,Jindal V,Gaikazian S

更新日期：2021-01-04 00:00:00

abstract：BACKGROUND:Clinical experience and a limited number of studies suggest that a cancer diagnosis confers a high risk of accidental falls. The negative sequelae of falls in older persons are well documented; risk factors for falls in this population have been extensively investigated and evidence for the efficacy of inter...

journal_title：Journal of palliative medicine

authors： Stone CA,Lawlor PG,Kenny RA

更新日期：2011-02-01 00:00:00