Abstract：
OBJECTIVE:To describe the growth and outcomes of the Palliative Care Research Cooperative Group (PCRC). BACKGROUND:Despite advances, significant gaps remain in the evidence base to inform care for people with serious illness. To generate this needed evidence and bolster research capacity, the Palliative Care Research Cooperative (PCRC) group was formed. METHODS:The PCRC supports investigators in the conduct of multisite clinical studies. After developing a governance structure and completing a proof of concept demonstration study, the PCRC expanded its infrastructure to include additional resource cores (Clinical Studies; Measurement; Data Informatics and Statistics; and Caregiver Studies). The PCRC also supports an Investigator Development Center as many palliative care investigators valued opportunities to advance their skills. Additional key aspects of PCRC resources include a Scientific Review Committee, a Publications Committee, and initiatives to purposefully engage investigators in a community of palliative care science. RESULTS:The PCRC has grown to over 300 members representing more than 130 distinct sites. To date, the PCRC has supported the submission of 51 research applications and has engaged in 27 studies. The PCRC supports investigator research development needs through webinars and clinical trials "intensives." To foster a sense of community, the PCRC has convened biannual meetings, developed special interest groups, and regularly communicates via a newsletter and its website. CONCLUSION:With a particular focus on facilitating conduct of rigorous multisite clinical studies, the PCRC fosters an engaged multidisciplinary research community, filling an important void in generating and disseminating evidence that informs the provision of high-quality care to people with serious illness.
journal_name
J Palliat Medjournal_title
Journal of palliative medicineauthors
Ritchie CL,Pollak KI,Kehl KA,Miller JL,Kutner JSdoi
10.1089/jpm.2017.0138subject
Has Abstractpub_date
2017-06-01 00:00:00pages
584-591issue
6eissn
1096-6218issn
1557-7740journal_volume
20pub_type
杂志文章abstract：CONTEXT:In 2008, the Centers for Medicare & Medicaid Services (CMS) required U.S. hospices to implement comprehensive quality improvement programs. CMS contracted with the Quality Improvement Organization in North and South Carolina to develop quality measures and instruments to assess hospice and palliative care quali...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2010.0238
更新日期：2010-12-01 00:00:00
abstract：PURPOSE:There have been no studies to date that examine physicians' decisions to withdraw life-sustaining treatment for patients based on their surrogates' financial gain. The authors' objective was to ascertain physician attitudes about withdrawing life-sustaining treatment when financial considerations are involved. ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2013.0361
更新日期：2014-05-01 00:00:00
abstract：BACKGROUND:Improving access to palliative care is an important priority for hospitals as they strive to provide the best care and quality of life for their patients. Even in hospitals with longstanding palliative care programs, only a small proportion of patients with life-threatening illnesses receive palliative care ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章,多中心研究
doi：10.1089/jpm.2011.0301
更新日期：2012-02-01 00:00:00
abstract：INTRODUCTION:The World Health Organization (WHO) explicitly recommends the integration of palliative care (PC) early in the disease trajectory as part of the WHO definition of PC. Our comprehensive cancer center decided: (1) to include this recommendation in the administrative directives for principles of cancer care a...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2010.0016
更新日期：2010-10-01 00:00:00
abstract：:Hypercalcemia of malignancy affects 2%-2.8% of cancer patients and is associated with an increased risk of mortality and other symptom-related complications. Standard treatment consists of fluid resuscitation, intravenous bisphosphonates, and calcitonin. Little is known, however, about the benefits of treatment of mal...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0343
更新日期：2020-06-01 00:00:00
abstract：OBJECTIVES:To review studies that used direct observation (i.e., videotaping or audiotaping) methods in palliative/end-of-life care communication research. DESIGN:Descriptive thematic analysis. SETTING:Multinational studies were conducted in both the outpatient and inpatient setting. MEASUREMENTS:Extensive bibliogra...
journal_title：Journal of palliative medicine
pub_type： 杂志文章,评审
doi：10.1089/jpm.2009.0388
更新日期：2010-05-01 00:00:00
abstract：: Background: Despite positive outcomes associated with specialist palliative care (PC) in diverse medical populations, little research has investigated specialist PC in surgical ones. Although cancer surgery is predominantly safe, operations can be extensive and unpredictab...
journal_title：Journal of palliative medicine
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1089/jpm.2019.0130
更新日期：2019-09-01 00:00:00
abstract：BACKGROUND:This case report describes a patient whose persistent hiccups significantly improved with the use of vinegar. CASE PRESENTATION:A patient with an adenocarcinoma of the colon and hepatic metastases developed hiccups the day following chemotherapy with FOL-FOX (folinic acid (leucovorin), 5-fluorouracil, oxali...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2014.0391
更新日期：2015-05-01 00:00:00
abstract：BACKGROUND:The provision of complementary therapy in palliative care is rare in Canadian hospitals. An Ontario hospital's palliative care unit developed a complementary therapy pilot project within the interdisciplinary team to explore potential benefits. Massage, aromatherapy, Reiki, and Therapeutic Touch™ were provid...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2013.0295
更新日期：2013-10-01 00:00:00
abstract：: Objective: To systematically capture patient- and family-centered data to understand variability and opportunities in end-of-life care delivery across settings in an integrated health care delivery system. Background: Improving...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0265
更新日期：2020-06-01 00:00:00
abstract：: Background: End-of-life dreams and visions (ELDVs) are prevalent experiences that provide comfort and meaning to dying individuals. Limited research has examined the impact of ELDVs on the bereaved. Objective: This study aimed ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0093
更新日期：2020-01-01 00:00:00
abstract：: Objective: This report describes a pilot hospice inpatient unit dedicated to individuals experiencing distressing behaviors from dementia. Background: Patients with dementia who experience distressing symptoms cannot be well ma...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2020.0436
更新日期：2020-11-09 00:00:00
abstract：OBJECTIVE:Describe the establishment of the palliative care quality network (PCQN) with guidance on how teams can develop similar collaborations. BACKGROUND:In the current healthcare environment, palliative care (PC) teams must be able to demonstrate value and provide efficient care while supporting the clinicians who...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2016.0514
更新日期：2017-08-01 00:00:00
abstract：PURPOSE:To clarify physician- and nurse-reported effects of intravenous hydration therapy on symptoms of terminally ill patients with cancer. METHODS:A cross-sectional questionnaire survey of Japanese physicians and nurses. The respondents were requested to report their clinical observations about improvement or deter...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2004.7.683
更新日期：2004-10-01 00:00:00
abstract：BACKGROUND:When identifying patients for palliative care, medical specialists find it necessary to disclose "hidden" patients: the patient's relatives. The issue has been discussed sporadically in Bulgaria; the present study was part of a larger investigation that examined the opinion of medical specialists, patients, ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2013.0333
更新日期：2014-01-01 00:00:00
abstract：INTRODUCTION:Spiritual needs play an important role in palliative care as both a clinical dimension and a therapeutic strategy. However, recent studies have shown that the management of this dimension still remains a challenge at the clinical level of palliative care. GOALS:Our goal was to evaluate the spiritual needs...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2013.0569
更新日期：2014-05-01 00:00:00
abstract：: Background: Life review, a narrative-based intervention, helps individuals organize memories into a meaningful whole, providing a balanced view of the past, present, and future. Examining how the content of memories contributes to life's meaning improves some clinical outc...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2020.0020
更新日期：2020-09-03 00:00:00
abstract：: Background: Many older adults with serious illness who depend on others for care have symptoms that are difficult to manage. Supporting caregivers in symptom assessment (SA) may reduce suffering. Objective: Pilot an SA-Toolkit ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2020.0103
更新日期：2020-12-01 00:00:00
abstract：BACKGROUND:Entrustable professional activities (EPAs) are routine tasks considered essential to a professional practice. An EPA can serve as a performance-based outcome that a clinical supervisor would progressively entrust a learner to perform. OBJECTIVE:Our aim was to identify, develop, and validate a set of EPAs fo...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2014.0392
更新日期：2015-08-01 00:00:00
abstract：:Central pain syndromes are a complex, diverse group of clinical conditions that are poorly understood. We present a patient with progressive, debilitating central pain and co-existing mood disorders that was refractory to multimodal pharmacologic and nonpharmacologic therapies, but that ultimately responded to electro...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2017.0344
更新日期：2018-02-01 00:00:00
abstract：BACKGROUND:In 2002, Means to a Better End: A Report of Dying in America Today, a Robert Wood Johnson Foundation (RWJF) report, was issued that included grades for each state on their ability to provide end-of-life care. Most states, including California, rated as mediocre and the report called for extensive efforts at ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2007.0291
更新日期：2008-09-01 00:00:00
abstract：BACKGROUND:Pain, dyspnea, and depression are highly troubling near the end of life. OBJECTIVE:To characterize factors associated with clinically significant pain and the presence of dyspnea and depression during the last year of life in a nationally representative sample. DESIGN:Retrospective cohort study. SETTING:H...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2015.0391
更新日期：2016-10-01 00:00:00
abstract：:Methadone use as a second-line agent for severe cancer-related pain is increasing in the field of hospice and palliative care. It has a number of qualities that make its use favorable, including lack of known active metabolites and presumed relative safety from adverse effects such as opioid-induced neurotoxicity (OIN...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2016.0502
更新日期：2017-09-01 00:00:00
abstract：BACKGROUND:The oral food intake of terminally ill cancer patients is known to gradually decrease, but there are few reports about how oral intake changes around the terminal stage. It is important to clarify changes in oral food intake, as such changes affect the support and care of terminally ill cancer patients. OBJ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2015.0495
更新日期：2016-08-01 00:00:00
abstract：: Background: Patients with pulmonary hypertension (PH) experience distressing symptoms that can undermine quality of life (QoL) and treatment adherence. Complementary health approaches are known to help manage symptoms of chronic conditions and may have therapeutic benefits...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0359
更新日期：2020-05-01 00:00:00
abstract：: Objectives: To identify patient perceptions of how and when palliative care (PC) could complement usual heart failure (HF) management. Background: Despite guidelines calling for the integration of PC into the management of HF, ...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0451
更新日期：2020-07-01 00:00:00
abstract：: Background: Pharmacovigilance studies in hospice/palliative care provide extra information to improve medication safety. Combination controlled release oxycodone-naloxone offers an alternative opioid with less risk of opioid-induced constipation. O...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0226
更新日期：2020-05-01 00:00:00
abstract：: Background: End-of-life (EOL) care in neonatal intensive care units (NICUs) can vary depending on religious beliefs of health care providers and families as well as the sociocultural environment. Although guidelines exist for EOL care in NICUs, most are based on Western st...
journal_title：Journal of palliative medicine
pub_type： 杂志文章,评审
doi：10.1089/jpm.2018.0304
更新日期：2019-07-01 00:00:00
abstract：: Background: Research on what children wished they had done differently after their sibling's death has not been reported. Objective: Examine what children wished they had/had not done, and their coping after a sibling's neonata...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2019.0538
更新日期：2020-07-08 00:00:00
abstract：: Background: Involvement of the palliative care service has potential for patient and family benefit in critically ill patients, regardless of etiology. Anecdotally, there is a lack of involvement of the palliative care (PC) service in the neuro-intensive care unit (neuro-I...
journal_title：Journal of palliative medicine
pub_type： 杂志文章
doi：10.1089/jpm.2018.0428
更新日期：2019-05-01 00:00:00
