Understanding the needs of people using a cancer information service in Northern Ireland.

Abstract:

:A retrospective analysis of first-time enquirers using a cancer information service in Belfast, Northern Ireland, is presented. Our results show that women are three times more likely to use the service than men, with relatives and friends more likely to seek information on behalf of cancer patients than patients themselves. Unlike patients with cancer at other sites, the number of enquiries from breast cancer patients [standard incidence rate (SIR) = 1.5] was greater than incidence figures for the general population would suggest. Individuals without a cancer diagnosis but with potentially cancer-related symptoms accounted for 30% of all enquiries. Breast changes accounted for 49% of calls, testicular abnormalities 19% and concerns about cervical smear test results 13%; prostate problems (12%) and changes in skin pigmentation were the other main sources of caller concern. Our results also demonstrate that cancer patients often have a poor understanding of commonly used medical terms. This analysis shows that individuals using a cancer information service are not representative of the population that develops the disease, highlights how media campaigns can encourage the awareness and reporting of new and pre-existing symptoms, and exposes some of the confusion and misconceptions about cancer that are experienced by sections of the Irish population.

authors

Manning DL,Quigley P

doi

10.1046/j.1365-2354.2002.00299.x

subject

Has Abstract

pub_date

2002-06-01 00:00:00

pages

139-42

issue

2

eissn

0961-5423

issn

1365-2354

pii

299

journal_volume

11

pub_type

杂志文章
  • Capturing users' experiences of participating in cancer trials.

    abstract::Randomized controlled trials are accepted to be the research design of choice to evaluate the effectiveness of health care interventions and are commonly used to evaluate cancer treatments. There are concerns, however, that levels of recruitment to trials are often much lower than anticipated, particularly in cancer t...

    journal_title:European journal of cancer care

    pub_type: 杂志文章,meta分析

    doi:10.1046/j.1365-2354.2002.00341.x

    authors: Donovan JL,Brindle L,Mills N

    更新日期:2002-09-01 00:00:00

  • Patient understanding of research: developing and testing of a new questionnaire.

    abstract::Lack of understanding or knowledge of research among patients participating in randomized clinical trials (RCTs) is common. However, there is a lack of validated measures to assess the extent of the problem. The aim of this study was to develop and pilot a questionnaire to assess knowledge and understanding of RCTs in...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2006.00732.x

    authors: Hutchison C,Cowan C,Paul J

    更新日期:2007-03-01 00:00:00

  • Palliative nursing care in Spain.

    abstract::This paper describes the practice of palliative nursing care in Spain. The management of palliative hospital and home care is presented. Nursing roles in the multidimentional aspects (physical, psychological, social, cultural and spiritual) of patient and family care are provided. Nursing participation in informing an...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1046/j.1365-2354.2001.00289.x

    authors: Zabalegui A

    更新日期:2001-12-01 00:00:00

  • Expectations and perspectives of ovarian cancer patients about cancer management in Romania. The international NOGGO-ENGOT trial: EXPRESSION III.

    abstract::We have investigated a relational model of expectations and preferences among ovarian cancer patients centred on physician-patient communication, treatment approach, and the need for information. Consecutive patients anonymously filled in the EXPRESSION III questionnaire between 2009 and 2012. Following descriptive st...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12566

    authors: Achimaş-Cadariu P,Iancu M,Kubelac P,Pop F,Braicu I,Vlad C,Oskay-Özcelik G,Sehouli J

    更新日期:2017-11-01 00:00:00

  • The effect of a whole body exercise programme and dragon boat training on arm volume and arm circumference in women treated for breast cancer.

    abstract::The purpose of this study was to examine the effect of a whole body exercise programme and dragon boat training on changes in arm volume in breast cancer survivors. A total of 16 female breast cancer survivors with no clinical history of lymphoedema volunteered. The 20-week exercise programme consisted of resistance a...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2005.00595.x

    authors: Lane K,Jespersen D,McKenzie DC

    更新日期:2005-09-01 00:00:00

  • Cancer survivors' experiences of discharge from hospital follow-up.

    abstract::Discharge from hospital follow-up is a key time point in the cancer journey. With recommendations for earlier discharge of cancer survivors, attention to the discharge process is likely to become increasingly important. This study explored cancer survivors' experiences of discharge from hospital follow-up. Survivors o...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2011.01312.x

    authors: Harrison SE,Watson EK,Ward AM,Khan NF,Turner D,Adams E,Forman D,Roche MF,Rose PW

    更新日期:2012-05-01 00:00:00

  • Chemotherapy and healthcare utilisation near the end of life in patients with cancer.

    abstract::The quality of medical care delivered to patients with cancer near the end of life is a significant issue. Previous studies have defined several areas suggestive of aggressive cancer treatment as potentially representing poor quality care. The primary objective of current analysis was to examine chemotherapy and healt...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12796

    authors: Schulkes KJG,van Walree IC,van Elden LJR,van den Bos F,van Huis-Tanja L,Lammers JJ,Ten Bokkel Huinink D,Hamaker ME

    更新日期:2018-03-01 00:00:00

  • Changing current practice in urological cancer care: Providing better information, advice and related support on work engagement.

    abstract::There is a growing body of evidence on the importance of work following a diagnosis of cancer and the need to provide better information, advice and related support to patients on work engagement. The aim of this study was to better understand the nature of those needs and to identify better ways to meet these for tho...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12756

    authors: MacLennan SJ,Murdoch SE,Cox T

    更新日期:2017-09-01 00:00:00

  • Screening of physical distress in breast cancer survivors: Concurrent validity of the Distress Thermometer and Problem List.

    abstract::Several studies support the validity and psychometric properties of the DT&PL for measuring psychosocial distress in breast cancer survivors (BCSs). However, next to psychosocial problems, it is equally important to identify distress caused by limitations in physical functioning. Validity of the DT&PL for the identifi...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12880

    authors: Robbeson C,Hugenholtz-Wamsteker W,Meeus M,Devoogdt N,Nijs J,De Groef A

    更新日期:2019-01-01 00:00:00

  • The perceptions of teenagers, young adults and professionals in the participation of bone cancer clinical trials.

    abstract::The reasons why teenagers and young adults (TYA) with cancer do, or do not, participate in clinical trials is not wholly understood. We explored the perceptions and experiences of young people with bone cancer, and health professionals involved in their care, with regard to participation in two clinical trials. We con...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12476

    authors: Pearce S,Brownsdon A,Fern L,Gibson F,Whelan J,Lavender V

    更新日期:2018-11-01 00:00:00

  • The management of cytotoxic chemotherapy extravasation: a systematic review of the literature to evaluate the evidence underpinning contemporary practice.

    abstract::Management of cytotoxic drug extravasation remains contentious, with differing views on the most effective management strategy. With the increasing drive to provide effective, evidence-based healthcare, while ensuring the patient experience of the treatment provided plays a significant part in the development of clini...

    journal_title:European journal of cancer care

    pub_type: 杂志文章,评审

    doi:10.1111/ecc.12363

    authors: Harrold K,Gould D,Drey N

    更新日期:2015-11-01 00:00:00

  • Presentation and outcome of 93 cases of craniopharyngioma.

    abstract::We studied a series of 93 patients diagnosed with craniopharyngioma during a 15-year period with respect to presenting symptom, clinical course and management. The majority (62%) of patients were men, and had presented with neurological symptoms (75%), with headaches (82%) being the most common presenting symptom. The...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2003.00433.x

    authors: Larijani B,Bastanhagh MH,Pajouhi M,Kargar Shadab F,Vasigh A,Aghakhani S

    更新日期:2004-03-01 00:00:00

  • Satisfaction with mammography in the National Cancer Screening Programme participants of age 40s in Korea.

    abstract::The aim of this study was to evaluate satisfaction with the National Cancer Screening Programme of mammography in Korea and to examine the association between subscales of satisfaction and general satisfaction. We conducted a cross-sectional telephone survey for women who had obtained a National Cancer Screening Progr...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2010.01210.x

    authors: Jeon BY,Lee HY,Park EC,Choi KS,Jun JK,Kim Y,Han MA,Yoon NH,Kim EJ,Jeon SM

    更新日期:2011-11-01 00:00:00

  • Evaluation of 99m Tc-resveratrol as a colon cancer targeting probe.

    abstract::The study aimed to evaluate cancer-targeting potential of a newly synthesised radiopharmaceutical, 99m Tc-resveratrol in vivo, using colon cancer model. Colon cancer was induced in 20 male Sprague-Dawley rats by subcutaneous administration of 1,2-dimethylhydrazine (DMH), dissolved in 1 mM EDTA-normal saline, at a dose...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12504

    authors: Kamal R,Dhawan DK,Chadha VD

    更新日期:2017-09-01 00:00:00

  • Reliability, validity and responsiveness of the Mandarin (Simplified) Chinese version of the EORTC QLQ-OH45 among cancer patients.

    abstract:PURPOSE:The goal of our study was to evaluate the reliability, validity, responsiveness and acceptability of the Mandarin (simplified) Chinese version of the EORTC QLQ-OH45. METHODS:From October 2017 to February 2018, 393 cancer patients were enrolled from three different hospitals in China. A forward and backward tra...

    journal_title:European journal of cancer care

    pub_type: 杂志文章,多中心研究

    doi:10.1111/ecc.12987

    authors: Liu J,Gao J,Wu CX,Bai DX,Li X,Guo XX,Yu JY,Xiao QQ,Bao XR,He LC,Zhong YZ,Chen S

    更新日期:2019-03-01 00:00:00

  • Seeking consent to tissue banking: a survey of health professionals in childhood cancer.

    abstract::To identify the views of health professionals working in childhood cancer on seeking consent to tissue banking from potential donors. Self-completion questionnaires sent to 553 UK paediatric oncology health professionals. The response rate was 60%. Respondents (100%) were in favour of using tissue samples from childre...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2008.01033.x

    authors: Jackson C,Dixon-Woods M,Tobin M,Young B,Heney D,Pritchard-Jones K

    更新日期:2009-07-01 00:00:00

  • No evidence of association between psychological distress and pain relief in patients with bone metastases from castration-resistant prostate cancer treated with 223Radium.

    abstract:OBJECTIVE:Painful bone metastases cause reduced quality of life (QoL) in patients with castration-resistant prostate cancer (CRPC). Alpha-emitter 223Radium is associated with a clear survival benefit and significant bone pain palliation in CRPC patients with symptomatic bone metastases. The aim of this study was to eva...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.13112

    authors: De Vincentis G,Frantellizzi V,Follacchio GA,Farcomeni A,Pani A,Samaritani R,Schinzari G,Santini D,Cortesi E

    更新日期:2019-09-01 00:00:00

  • Awareness of cervical cancer and socio-demographic variations among women in Libya: An exploratory study in Az-Zawiya city.

    abstract::Cervical cancer is still a public health problem worldwide, and almost 80% of cervical cancer cases occur in developing countries. In Libya, cervical cancer ranks as the third most frequent cancer among women. This paper presents the results of a study conducted to assess women's awareness of the symptoms and risk fac...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12750

    authors: Hweissa NA,Su TT

    更新日期:2018-01-01 00:00:00

  • Psychological distress of cancer and clinical trial participation: a review of the literature.

    abstract::The House of Commons Select Committee on Science and Technology 2000 state that currently less than 5% of adult patients with solid tumours are entered into clinical trials. They recommend that increasing the number of adult cancer patients entering clinical trials must become a high priority. Health-care providers ne...

    journal_title:European journal of cancer care

    pub_type: 杂志文章,评审

    doi:

    authors: Kelly C,Ghazi F,Caldwell K

    更新日期:2002-03-01 00:00:00

  • Patients' preferences for video cassette recorded information: effect of age, sex and ethnic group.

    abstract::The emotional turmoil patients endure following a diagnosis of cancer can impair their ability to retain complex treatment-related information. Manoeuvres which increase the intensity of information have been shown to increase the amount retained. Providing details of treatment in a video format is one method of inten...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1046/j.1365-2354.1999.00123.x

    authors: Thomas R,Deary A,Kaminski E,Stockton D,De Zueew N

    更新日期:1999-06-01 00:00:00

  • Physical activity levels and supportive care needs for physical activity among breast cancer survivors with different psychosocial profiles: a cluster-analytical approach.

    abstract::The transition from breast cancer patient to survivor is associated with many treatment-related and psychosocial factors, which can influence health behaviour and associated needs. First, this study aimed to identify clusters of treatment-related and psychosocial factors among breast cancer survivors. Second, clusters...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2012.01362.x

    authors: Charlier C,Pauwels E,Lechner L,Spittaels H,Bourgois J,DE Bourdeaudhuij I,VAN Hoof E

    更新日期:2012-11-01 00:00:00

  • Swedish nurses' estimation of fatigue as a symptom in cancer patients--report of a questionnaire.

    abstract::Many studies show that chronic fatigue is the most frequently reported symptom related to cancer and its treatment. In order to evaluate the problem in Sweden, a questionnaire was mailed to 442 registered nurses in the autumn of 1995 with the aim of determining cancer nurses' views of the nature and causes of cancer-r...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1046/j.1365-2354.1997.00024.x

    authors: Magnusson K,Karlsson E,Palmblad C,Leitner C,Paulson A

    更新日期:1997-09-01 00:00:00

  • A review of 61 cases of ocular tumours seen over a 3-year period in Benin City, Nigeria: a 3-year descriptive retrospective study (1998-2000).

    abstract::The aim of this study is to ascertain the tumour type, sex variation and mean age of presentation of ocular tumours, as well as to update the available literature on the prevalence of the common ocular neoplasms in our environment. In this study, we analysed the data of 61 ocular biopsy specimens received between Janu...

    journal_title:European journal of cancer care

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2354.2009.01069.x

    authors: Nzegwu CO,Nzegwu MA,Aligbe JU,Oghre E,Waziri-Erameh MJ

    更新日期:2010-03-01 00:00:00

  • 'It's hard to take because I am a man's man': an ethnographic exploration of cancer and masculinity.

    abstract::This paper reports on a study into male participation in cancer support groups, which elicited data on the impact of cancer on masculinities. This small qualitative pilot study, which took place in Belfast in Northern Ireland, involved semi-structured interviews with eight men with a history of cancer who were no long...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2009.01085.x

    authors: Cecil R,Mc Caughan E,Parahoo K

    更新日期:2010-07-01 00:00:00

  • Development of multi-disciplinary breast cancer care in Southern Malawi.

    abstract::The Edinburgh Malawi Breast Cancer Project, a collaborative partnership project between the Queen Elizabeth Central Hospital (QECH) Oncology Unit, Blantyre, Malawi and the Edinburgh Cancer Centre, UK, was established in 2015. The principal objective of the project is to help to develop high quality multi-disciplinary ...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12658

    authors: Brown ER,Bartlett J,Chalulu K,Gadama L,Gorman D,Hayward L,Jere Y,Mpinganjira M,Noah P,Raphael M,Taylor F,Masamba L

    更新日期:2017-01-01 00:00:00

  • Translation and validation of the Polish version of the EORTC QLQ-OPT30 module for the assessment of health-related quality of life in patients with uveal melanoma.

    abstract::The purpose of this study was to translate into Polish and validate the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire Ophthalmic Module (QLQ-OPT30). The QLQ-OPT30 was translated and pilot-tested according to EORTC guidelines. Patients were qualified based on the histo...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12001

    authors: Chmielowska K,Tomaszewski KA,Pogrzebielski A,Brandberg Y,Romanowska-Dixon B

    更新日期:2013-01-01 00:00:00

  • Meeting breast cancer patients' information needs during radiotherapy: what can we do to improve the information and support that is currently provided?

    abstract::Previous research has reported that patients require specific information relating to radiotherapy; however, these studies fail to describe patients' specific information needs over time. The aims of this study were to determine the specific information needs of breast cancer patients who are receiving radiotherapy an...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/j.1365-2354.2009.01090.x

    authors: Halkett GK,Kristjanson LJ,Lobb E,O'Driscoll C,Taylor M,Spry N

    更新日期:2010-07-01 00:00:00

  • The road less travelled: Australian women's experiences with vulval cancer.

    abstract::Despite advances in surgical treatments and the availability of more conservative treatment options, women treated for vulval cancer still experience significant complications such as urinary incontinence, lymphoedema, pruritus, sexual and intimacy issues. These issues can profoundly impact a woman's quality of life. ...

    journal_title:European journal of cancer care

    pub_type: 杂志文章,多中心研究

    doi:10.1111/ecc.12465

    authors: Philp S,Mellon A,Barnett C,D'Abrew N,White K

    更新日期:2017-01-01 00:00:00

  • Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents.

    abstract:OBJECTIVE:Surgery for paediatric cancer presents many stresses on patients and families. The authors aimed to understand the long-term impact of childhood cancer surgery on survivors and parents. METHODS:The study recruited participants from 11 Australia/New Zealand hospitals for telephone interviews. The authors used...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.13116

    authors: Gabriel MG,Wakefield CE,Vetsch J,Karpelowsky JS,Darlington AE,Cohn RJ,Signorelli C,ANZCHOG Survivorship Study Group.

    更新日期:2019-09-01 00:00:00

  • The Quality of Working Life Questionnaire for Cancer Survivors: Sufficient responsiveness for use as a patient-reported outcome measurement.

    abstract::To assess the responsiveness and interpretability of the Quality of Working Life Questionnaire for Cancer Survivors (QWLQ-CS). A cohort study was conducted in which 130 (self-)employed cancer survivors completed the QWLQ-CS at baseline and 107 at follow-up and six single-item external anchors to measure change. Cancer...

    journal_title:European journal of cancer care

    pub_type: 杂志文章

    doi:10.1111/ecc.12910

    authors: Tamminga SJ,de Jong M,Frings-Dresen MHW,de Boer AGEM

    更新日期:2018-11-01 00:00:00