Abstract:
:To identify the views of health professionals working in childhood cancer on seeking consent to tissue banking from potential donors. Self-completion questionnaires sent to 553 UK paediatric oncology health professionals. The response rate was 60%. Respondents (100%) were in favour of using tissue samples from children with cancer for research. A substantial minority (30%) had concerns about the impact of the law on their professional role in relation to tissue banking. Almost all (90%) reported that both the parent(s) and the child, if able, should be asked for consent, though the UK Human Tissue Act provides that a competent child's consent is sufficient. Most (94%) supported 'generic' rather than 'specific' consent. Barriers to obtaining consent included: (1) timing of the approach to families; (2) availability of suitable staff; (3) sensitivity of the issues; (4) difficulties of managing the process; and (5) problems of maintaining a paper trail. Many would welcome training on seeking consent. Personal knowledge and relationships with families are often seen as important in guiding the proper approach to consent rather than formalized rules. There is widespread support among health professionals for tissue banking in childhood cancer. In sensitive situations, disciplined exercise of professional discretion might better deliver on aspirations for regulation than rigid procedures.
journal_name
Eur J Cancer Care (Engl)journal_title
European journal of cancer careauthors
Jackson C,Dixon-Woods M,Tobin M,Young B,Heney D,Pritchard-Jones Kdoi
10.1111/j.1365-2354.2008.01033.xsubject
Has Abstractpub_date
2009-07-01 00:00:00pages
391-400issue
4eissn
0961-5423issn
1365-2354pii
ECC1033journal_volume
18pub_type
杂志文章abstract::Management of cytotoxic drug extravasation remains contentious, with differing views on the most effective management strategy. With the increasing drive to provide effective, evidence-based healthcare, while ensuring the patient experience of the treatment provided plays a significant part in the development of clini...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.12363
更新日期:2015-11-01 00:00:00
abstract::The purpose of this study is to document infection and to better understand current practice relating to antibiotic use and its effect in terminal cancer patients. We retrospectively reviewed patients with terminal stage cancer who were admitted to Seoul National University Boramae Hospital for symptom control only, a...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2005.00603.x
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abstract::The fear of cancer recurrence is cited as a motivator of women's preferences between routine monitoring and contralateral prophylactic mastectomy (CPM) as methods of managing ongoing breast cancer risk. We conducted a discrete choice experiment among a general community sample of women who completed 12 hypothetical ch...
journal_title:European journal of cancer care
pub_type: 杂志文章,随机对照试验
doi:10.1111/ecc.13058
更新日期:2019-07-01 00:00:00
abstract::Cancer-related pain (CRP) is common and many patients continue to experience pain in spite of advances in pain management modalities. The lack of knowledge, inadequate assessment of CRP and/or organisational factors, such as lack of time due to heavy workload, can be a barrier to effective pain management of healthcar...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.12625
更新日期:2017-11-01 00:00:00
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journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.2000.00189.x
更新日期:2000-03-01 00:00:00
abstract::Patients at risk of developing lymphoedema following local treatment for cancer will also have compromised local immunity. Inflammation or infection may be the precipitating factor for the development of chronic swelling. A small group of breast cancer patients, who identified venepuncture as a significant event in th...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.1998.00089.x
更新日期:1998-06-01 00:00:00
abstract::Research indicates there is confusion in the minds of patients and the public surrounding the issue of 'informed consent'. This confusion is compounded when patients are asked to participate in a clinical trial. This study aimed to survey, by self-completed postal questionnaires, the experiences and opinions of 100 ra...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.1994.tb00037.x
更新日期:1994-12-01 00:00:00
abstract::To investigate health professionals' perspectives about factors that impede or facilitate cancer care for Indigenous people. Semi-structured interviews with 22 health professionals involved in Indigenous cancer care. Data were interpreted using an inductive thematic analysis approach. Participants presented their pers...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12467
更新日期:2016-03-01 00:00:00
abstract::Psychosocial transitions were assessed in the long-term survivors of bone marrow transplantation (BMT). A combination of quantitative and qualitative data from 91 survivors led to the identification of several psychosocial phases and transit points after the transplant. Throughout the years post-BMT survivors were con...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.1997.00018.x
更新日期:1997-06-01 00:00:00
abstract:OBJECTIVE:To examine follow-up procedures after men are discharged into primary care following prostate cancer and highlight any areas for service improvement. METHODS:Patient record data from two Greater Manchester boroughs were retrieved retrospectively to investigate discharge instructions and monitoring adherence....
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13389
更新日期:2020-12-18 00:00:00
abstract::There has been a recent increase in research considering the perceptions of the term "cancer survivor" held by individuals who have or have had cancer. This article explores the meaning of the term to young women living with a history of breast cancer. Twenty women participated in semi-structured interviews about thei...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12847
更新日期:2018-05-01 00:00:00
abstract:OBJECTIVE:To evaluate the efficacy of a reinforcement message (RM) administered by a hospital pharmacist on adherence, through a randomised study involving patients undergoing oral chemotherapy from which an objective outcome measure and patients' subjective opinions were collected. A secondary aim was to detect which ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13336
更新日期:2021-01-01 00:00:00
abstract::The aim of this study was to describe the information and support needs of women who have primary relatives with breast cancer. The Information and Support Needs Questionnaire (ISNQ) was developed and revised from previous qualitative and pilot studies. The ISNQ addressed concepts of the importance of, and the degree ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.2003.00330.x
更新日期:2003-03-01 00:00:00
abstract::This narrative review of the literature examines the issues influencing chemotherapy treatment of older patients with cancer. Increasing age is associated with physical, social and psychological changes, but the rate of change differs widely between people, such that chronological age is not a good determinant of fitn...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/j.1365-2354.2011.01294.x
更新日期:2012-01-01 00:00:00
abstract::Many studies show that chronic fatigue is the most frequently reported symptom related to cancer and its treatment. In order to evaluate the problem in Sweden, a questionnaire was mailed to 442 registered nurses in the autumn of 1995 with the aim of determining cancer nurses' views of the nature and causes of cancer-r...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.1997.00024.x
更新日期:1997-09-01 00:00:00
abstract::Invasive procedures, such as the lumbar puncture, can cause anxiety and pain in children undergoing treatment for acute lymphoblastic leukaemia (ALL). We investigated the safety and efficacy of two different protocols for analgo-sedation in 20 children with ALL undergoing lumbar puncture. We have conducted a prospecti...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2008.01006.x
更新日期:2010-03-01 00:00:00
abstract::Mirtazapine and olanzapine are easy-to-use psychiatric drugs with potent antinausea effects. Ondansetron and later members of the 'setron class are currently standard treatments for cancer chemotherapy-related nausea and emesis. They are potent 5-HT3 blockers, but it is often not appreciated that mirtazapine and olanz...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2006.00760.x
更新日期:2007-07-01 00:00:00
abstract:OBJECTIVE:Painful bone metastases cause reduced quality of life (QoL) in patients with castration-resistant prostate cancer (CRPC). Alpha-emitter 223Radium is associated with a clear survival benefit and significant bone pain palliation in CRPC patients with symptomatic bone metastases. The aim of this study was to eva...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13112
更新日期:2019-09-01 00:00:00
abstract:AIM:To assess the use of methadone in patients with cancer pain who fail to respond to increasing doses of other opioids or experience intolerable side-effects from them. METHOD:Inpatients of a specialist palliative care unit were titrated onto oral methadone. The dose was calculated as 10% of the previous morphine eq...
journal_title:European journal of cancer care
pub_type: 临床试验,杂志文章
doi:10.1046/j.1365-2354.1999.00133.x
更新日期:1999-03-01 00:00:00
abstract::Previous reports on the patient perspective of daily life during a 1-year high-grade glioma (HGG) trajectory from the time of diagnosis are sparse. The aim of this longitudinal mixed methods study is to identify the specific needs and preferences for rehabilitation and supportive care and how it links with physical ac...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12806
更新日期:2018-03-01 00:00:00
abstract::Pathologic bone fractures are usually confined to the trunk in multiple myeloma (MM). But bilateral trochanteric fractures have not been reported in patients with MM before. Radiographic, histological and immunoelectrophoresis revealed typical features of MM. This report points out the importance of physical rehabilit...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2005.00570.x
更新日期:2005-05-01 00:00:00
abstract::Patients commonly develop shoulder disability and reduction in quality of life (QOL) following neck dissection surgery. There is a lack of studies investigating the impact of preventative rehabilitation to prevent shoulder disability in this population. An exploratory trial was undertaken to investigate this gap in th...
journal_title:European journal of cancer care
pub_type: 杂志文章,随机对照试验
doi:10.1111/j.1365-2354.2009.01149.x
更新日期:2011-01-01 00:00:00
abstract::The House of Commons Select Committee on Science and Technology 2000 state that currently less than 5% of adult patients with solid tumours are entered into clinical trials. They recommend that increasing the number of adult cancer patients entering clinical trials must become a high priority. Health-care providers ne...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:
更新日期:2002-03-01 00:00:00
abstract::The aim of this study is to explore, from a medical sociological perspective, the use of complementary therapies by palliative care nurses. This paper shows how the conceptual vocabulary developed by Giddens [Giddens A. (1990) The Consequences of Modernity. Polity Press, Cambridge; Giddens A. (1991) Modernity and Self...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.2003.00381.x
更新日期:2003-06-01 00:00:00
abstract::The objective of this study was to clarify the term 'palliative' in clinical oncology. A qualitative study design with in-depth interviews was applied. The study sample included 30 cancer patients and 16 physicians. In clinical oncology, the use of the term 'palliative' to describe both anticancer treatments and palli...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2004.00481.x
更新日期:2004-07-01 00:00:00
abstract::Breast cancer is the most common neoplasm among women worldwide. Improvements in early detection and treatment have resulted in improved survival rates; however, the continuation of unhealthy behaviours after diagnosis can increase the risk of second primary tumours. The aim of the study was to evaluate the effectiven...
journal_title:European journal of cancer care
pub_type: 杂志文章,随机对照试验
doi:10.1111/ecc.12854
更新日期:2018-07-01 00:00:00
abstract::This study evaluated the patterns of care and health care resource use (HCRU) in patients with metastatic squamous cell carcinoma of the head and neck (SCCHN) who received ≥3 lines of systemic therapy in the United Kingdom (UK). Oncologists (n = 40) abstracted medical records for patients with metastatic SCCHN who ini...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12862
更新日期:2018-09-01 00:00:00
abstract::Close monitoring of chemotherapy toxicity can be instrumental in ensuring prompt symptom management and quality care. Our aim was to develop a brief clinical tool to enable daily assessment of chemotherapy toxicity and investigate/establish its content validity, feasibility/applicability, internal consistency and stab...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12890
更新日期:2018-11-01 00:00:00
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journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13116
更新日期:2019-09-01 00:00:00
abstract::Giant intrascrotal recurrent seminomas are rare in the surgical literature, probably due to widespread information about self-detection. A recent European study has reported a reduction in the primary tumour size at presentation. These findings are at variance with the situation in sub-Saharan Africa. We present a 32-...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2008.01034.x
更新日期:2009-05-01 00:00:00