Patenting human genes: Chinese academic articles' portrayal of gene patents.

abstract：BACKGROUND:Social media and Internet technologies present several emerging and ill-explored issues for a modern healthcare workforce. One issue is patient-targeted Googling (PTG), which involves a healthcare professional using a social networking site (SNS) or publicly available search engine to find patient informatio...

journal_title：BMC medical ethics

authors： Chester AN,Walthert SE,Gallagher SJ,Anderson LC,Stitely ML

更新日期：2017-12-04 00:00:00

abstract：BACKGROUND:Donepezil, an acetylcholinesterase inhibitor used in the treatment of Alzheimer's disease, has been widely cited in media and bioethics literature on cognitive enhancement (CE) as having the potential to improve the cognitive ability of healthy individuals. In both literatures, this claim has been repeatedly...

journal_title：BMC medical ethics

authors： Wade L,Forlini C,Racine E

更新日期：2014-05-12 00:00:00

abstract：BACKGROUND:Biomarker research is gaining increasing attention focusing on the preclinical stages of the disease. Such interest requires special attention for communication and disclosure in clinical contexts. Many countries give dementia a high health policy priority by developing national strategies and by improving g...

journal_title：BMC medical ethics

authors： Alpinar-Sencan Z,Schicktanz S

更新日期：2020-05-11 00:00:00

abstract：BACKGROUND:A requisite for ethical human subjects research is that participation should be informed and voluntary. Participation during the informed consent process by way of asking questions is an indicator of the extent to which consent is informed. AIMS:The aims of this study were to assess the extent to which pare...

journal_title：BMC medical ethics

authors： Rajaraman D,Jesuraj N,Geiter L,Bennett S,Grewal HM,Vaz M,TB Trials Study Group.

更新日期：2011-02-15 00:00:00

abstract：BACKGROUND:Health checks or health screenings identify (risk factors for) disease in people without a specific medical indication. So far, the perspective of (potential) health check users has remained underexposed in discussions about the ethics and regulation of health checks. METHODS:In 2017, we conducted a qualita...

journal_title：BMC medical ethics

authors： Stol YH,Asscher ECA,Schermer MHN

更新日期：2018-06-22 00:00:00

abstract：BACKGROUND:There is continued need for enhanced medical ethics education across the United States. In an effort to guide medical ethics education reform, we report the first interprofessional survey of a cohort of graduate medical, nursing and allied health professional students that examined perceived student need for...

journal_title：BMC medical ethics

authors： DeFoor MT,Chung Y,Zadinsky JK,Dowling J,Sams RW 2nd

更新日期：2020-04-08 00:00:00

abstract：BACKGROUND:Family members are often required to act as substitute decision-makers when health care or research participation decisions must be made for an incapacitated relative. Yet most families are unable to accurately predict older adult preferences regarding future health care and willingness to engage in research...

journal_title：BMC medical ethics

authors： Bravo G,Arcand M,Blanchette D,Boire-Lavigne AM,Dubois MF,Guay M,Hottin P,Lane J,Lauzon J,Bellemare S

更新日期：2012-01-05 00:00:00

abstract：BACKGROUND:Few studies have examined factors associated with willingness of people living with HIV (PLHIV) to participate in HIV treatment clinical trials in Sub-Saharan Africa. We assessed the factors associated with participation of PLHIV in HIV treatment clinical trials research at a large urban clinical and researc...

journal_title：BMC medical ethics

authors： Sebatta DE,Siu G,Nabeta HW,Anguzu G,Walimbwa S,Lamorde M,Bukenya B,Kambugu A

更新日期：2020-08-24 00:00:00

abstract：BACKGROUND:When a new intervention or drug is developed, this has to pass through various phases of clinical testing before it achieves market approval, which can take many years. This raises an issue for drugs which could benefit terminally ill patients. These patients might set their hopes on the experimental drug bu...

journal_title：BMC medical ethics

authors： Raus K

更新日期：2016-10-18 00:00:00

abstract：BACKGROUND:HIV prevention research in resource-limited countries is associated with a variety of ethical dilemmas. Key amongst these is the question of what constitutes an appropriate standard of health care (SoC) for participants in HIV prevention trials. This paper describes a community-focused approach to develop a ...

journal_title：BMC medical ethics

authors： Vallely A,Shagi C,Lees S,Shapiro K,Masanja J,Nikolau L,Kazimoto J,Soteli S,Moffat C,Changalucha J,McCormack S,Hayes RJ

更新日期：2009-10-09 00:00:00

abstract：BACKGROUND:Surgery for intersex infants should be delayed until individuals are able to decide for themselves, except where it is a medical necessity. In an ideal world, this single principle would suffice and such surgeries could be totally prohibited. Unfortunately, the world is not perfect, and, in some places, inte...

journal_title：BMC medical ethics

authors： Behrens KG

更新日期：2020-10-29 00:00:00

abstract：BACKGROUND:The progress of electronic health technologies and biobanks holds enormous promise for efficient research. Evidence shows that studies based on sharing and secondary use of data/samples have the potential to significantly advance medical knowledge. However, sharing of such resources for international collabo...

journal_title：BMC medical ethics

authors： Bernasconi L,Şen S,Angerame L,Balyegisawa AP,Hong Yew Hui D,Hotter M,Hsu CY,Ito T,Jörger F,Krassnitzer W,Phillips AT,Li R,Stockley L,Tay F,von Heijne Widlund C,Wan M,Wong C,Yau H,Hiemstra TF,Uresin Y,Senti G

更新日期：2020-01-21 00:00:00

abstract：BACKGROUND:In todays' super-diverse societies, communication and interaction in clinical encounters are increasingly shaped by linguistic, cultural, social and ethnic complexities. It is crucial to better understand the difficulties patients with migration background and healthcare professionals experience in their sha...

journal_title：BMC medical ethics

authors： Würth K,Langewitz W,Reiter-Theil S,Schuster S

更新日期：2018-07-04 00:00:00

abstract：BACKGROUND:Efforts to improve patients' understanding of their own medical treatments or research in which they are involved are progressing, especially with regard to informed consent procedures. We aimed to design a multisource informed consent procedure that is easily adaptable to both clinical and research applicat...

journal_title：BMC medical ethics

authors： Cervo S,Rovina J,Talamini R,Perin T,Canzonieri V,De Paoli P,Steffan A

更新日期：2013-07-30 00:00:00

abstract：BACKGROUND:The study examined the knowledge and attitudes to personal genomics testing for complex diseases among Nigerians and identified how the knowledge and attitudes vary with gender, age, religion, education and related factors. METHODS:Data were collected using qualitative method in 2 districts of the Federal C...

journal_title：BMC medical ethics

authors： Fagbemiro L,Adebamowo C

更新日期：2014-04-27 00:00:00

abstract：BACKGROUND:In studies publishing identifying personal information, obtaining consent is regarded as necessary, as it is impossible to ensure complete anonymity. However, current journal practices around specific points to consider when obtaining consent, the contents of consent forms and how consent forms are managed h...

journal_title：BMC medical ethics

authors： Yoshida A,Dowa Y,Murakami H,Kosugi S

更新日期：2013-11-25 00:00:00

abstract：BACKGROUND:In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and the associated treatment ("liberation therapy") received little more than passing interest in the international scientific and medical communities, hi...

journal_title：BMC medical ethics

authors： Pullman D,Zarzeczny A,Picard A

更新日期：2013-02-12 00:00:00

abstract：BACKGROUND:Since 2010, the European Journal of Anaesthesiology has required the reporting of five items concerning ethical approval in articles describing human research: ethics committee's name and address, chairperson's name, study's protocol number and approval date. We aimed to assess whether this requirement has h...

journal_title：BMC medical ethics

authors： Zoccatelli D,Tramèr MR,Elia N

更新日期：2018-06-08 00:00:00

abstract：BACKGROUND:As genetics technology proceeds, practices of genetic testing have become more heterogeneous: many different types of tests are finding their way to the public in different settings and for a variety of purposes. This diversification is relevant to the discourse on ethical, legal and societal issues (ELSI) s...

journal_title：BMC medical ethics

authors： Bunnik EM,Schermer MH,Janssens AC

更新日期：2011-06-14 00:00:00

abstract：BACKGROUND:Various forms of Clinical Ethics Support (CES) have been developed in health care organizations. Over the past years, increasing attention has been paid to the question of how to foster the quality of ethics support. In the Netherlands, a CES quality assessment project based on a responsive evaluation design...

journal_title：BMC medical ethics

authors： Van Baarle EM,Potma MC,van Hoek MEC,Hartman LA,Molewijk BAC,van Gurp JLP

更新日期：2019-11-01 00:00:00

abstract：BACKGROUND:The individual informed consent model remains critical to the ethical conduct and regulation of research involving human beings. Parental informed consent process in a rural setting of northern Ghana was studied to describe comprehension and retention among parents as part of the evaluation of the existing i...

journal_title：BMC medical ethics

authors： Oduro AR,Aborigo RA,Amugsi D,Anto F,Anyorigiya T,Atuguba F,Hodgson A,Koram KA

更新日期：2008-06-19 00:00:00

abstract：BACKGROUND:Patient outcome after serious brain injury is highly variable. Following a period of coma, some patients recover while others progress into a vegetative state (unresponsive wakefulness syndrome) or minimally conscious state. In both cases, assessment is difficult and misdiagnosis may be as high as 43%. Recen...

journal_title：BMC medical ethics

authors： Weijer C,Peterson A,Webster F,Graham M,Cruse D,Fernández-Espejo D,Gofton T,Gonzalez-Lara LE,Lazosky A,Naci L,Norton L,Speechley K,Young B,Owen AM

更新日期：2014-05-20 00:00:00

abstract：BACKGROUND:Expanded access is the use of investigational drugs (IDs) outside of clinical trials. Generally it is performed in patients with serious and life-threatening diseases who cannot be treated satisfactorily with authorized drugs. Legal regulations of expanded access to IDs have been introduced among others in t...

journal_title：BMC medical ethics

authors： Borysowski J,Górski A

更新日期：2020-11-18 00:00:00

abstract：BACKGROUND:Biobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. To establish this relationship, it is necessary to assess the attitude of different groups towards this concept. The objective of this work is to a...

journal_title：BMC medical ethics

authors： Abdelhafiz AS,Sultan EA,Ziady HH,Ahmed E,Khairy WA,Sayed DM,Zaki R,Fouda MA,Labib RM

更新日期：2019-08-09 00:00:00

abstract：BACKGROUND:Ethics committees typically apply the common principles of autonomy, nonmaleficence, beneficence and justice to research proposals but with variable weighting and interpretation. This paper reports a comparison of ethical requirements in an international cross-cultural study and discusses their implications....

journal_title：BMC medical ethics

authors： Goodyear-Smith F,Lobb B,Davies G,Nachson I,Seelau SM

更新日期：2002-04-19 00:00:00

abstract：BACKGROUND:Evidence concerning how Japanese physicians think and behave in specific clinical situations that involve withholding or withdrawal of medical interventions for end-of-life or frail elderly patients is yet insufficient. METHODS:To analyze decisions and actions concerning the withholding/withdrawal of life-s...

journal_title：BMC medical ethics

authors： Bito S,Asai A

更新日期：2007-06-19 00:00:00

abstract：BACKGROUND:The use of empirical research methods in bioethics has been increasing in the last decades. It has resulted in discussions about the 'empirical turn of bioethics' and raised questions related to the value of empirical work for this field, methodological questions about its quality and rigor, and how this int...

journal_title：BMC medical ethics

authors： Wangmo T,Provoost V

更新日期：2017-12-22 00:00:00

abstract：BACKGROUND:Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and fur...

journal_title：BMC medical ethics

authors： D'Abramo F,Schildmann J,Vollmann J

更新日期：2015-09-09 00:00:00

abstract：BACKGROUND:Care-dependency constitutes an important issue with regard to the approval of end-of-life decisions, yet attitudes towards assisted suicide and euthanasia are understudied among care-dependent older adults. We assessed attitudes towards assisted suicide and euthanasia and tested empirical correlates, includi...

journal_title：BMC medical ethics

authors： Stolz E,Mayerl H,Gasser-Steiner P,Freidl W

更新日期：2017-12-07 00:00:00

abstract：BACKGROUND:With a growing number of genetic tests becoming available to the health and consumer markets, genetic health care providers in Canada are faced with the challenge of developing robust decision rules or guidelines to allocate a finite number of public resources. The objective of this study was to gain Canadia...

journal_title：BMC medical ethics

authors： Adair A,Hyde-Lay R,Einsiedel E,Caulfield T

更新日期：2009-06-18 00:00:00