What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.

abstract：BACKGROUND:The study examined the knowledge and attitudes to personal genomics testing for complex diseases among Nigerians and identified how the knowledge and attitudes vary with gender, age, religion, education and related factors. METHODS:Data were collected using qualitative method in 2 districts of the Federal C...

journal_title：BMC medical ethics

authors： Fagbemiro L,Adebamowo C

更新日期：2014-04-27 00:00:00

abstract：BACKGROUND:Patient outcome after serious brain injury is highly variable. Following a period of coma, some patients recover while others progress into a vegetative state (unresponsive wakefulness syndrome) or minimally conscious state. In both cases, assessment is difficult and misdiagnosis may be as high as 43%. Recen...

journal_title：BMC medical ethics

authors： Weijer C,Peterson A,Webster F,Graham M,Cruse D,Fernández-Espejo D,Gofton T,Gonzalez-Lara LE,Lazosky A,Naci L,Norton L,Speechley K,Young B,Owen AM

更新日期：2014-05-20 00:00:00

abstract：BACKGROUND:Care-dependency constitutes an important issue with regard to the approval of end-of-life decisions, yet attitudes towards assisted suicide and euthanasia are understudied among care-dependent older adults. We assessed attitudes towards assisted suicide and euthanasia and tested empirical correlates, includi...

journal_title：BMC medical ethics

authors： Stolz E,Mayerl H,Gasser-Steiner P,Freidl W

更新日期：2017-12-07 00:00:00

abstract：BACKGROUND:In todays' super-diverse societies, communication and interaction in clinical encounters are increasingly shaped by linguistic, cultural, social and ethnic complexities. It is crucial to better understand the difficulties patients with migration background and healthcare professionals experience in their sha...

journal_title：BMC medical ethics

authors： Würth K,Langewitz W,Reiter-Theil S,Schuster S

更新日期：2018-07-04 00:00:00

abstract：BACKGROUND:Mobile applications and socio-sexual networking websites are used by outreach workers to respond synchronously to questions and provide information, resources, and referrals on sexual health and STI/HIV prevention, testing, and care to gay, bisexual and other men who have sex with men (GB2M). This explorator...

journal_title：BMC medical ethics

authors： Fantus S,Souleymanov R,Lachowsky NJ,Brennan DJ

更新日期：2017-11-03 00:00:00

abstract：BACKGROUND:Various forms of Clinical Ethics Support (CES) have been developed in health care organizations. Over the past years, increasing attention has been paid to the question of how to foster the quality of ethics support. In the Netherlands, a CES quality assessment project based on a responsive evaluation design...

journal_title：BMC medical ethics

authors： Van Baarle EM,Potma MC,van Hoek MEC,Hartman LA,Molewijk BAC,van Gurp JLP

更新日期：2019-11-01 00:00:00

abstract：BACKGROUND:Public satisfaction with policy process influences the legitimacy and acceptance of policies, and conditions the future political process, especially when contending ethical value judgments are involved. On the other hand, public involvement is required if effective policy is to be developed and accepted. M...

journal_title：BMC medical ethics

authors： Sato H,Akabayashi A,Kai I

更新日期：2005-01-20 00:00:00

abstract：BACKGROUND:When a new intervention or drug is developed, this has to pass through various phases of clinical testing before it achieves market approval, which can take many years. This raises an issue for drugs which could benefit terminally ill patients. These patients might set their hopes on the experimental drug bu...

journal_title：BMC medical ethics

authors： Raus K

更新日期：2016-10-18 00:00:00

abstract：BACKGROUND:Moral Case Deliberations (MCDs) are reflective dialogues with a group of participants on their own moral dilemmas. Although MCD is successful as clinical ethics support (CES), it also has limitations. 1. Lessons learned from individual MCDs are not shared in order to be used in other contexts 2. Moral learni...

journal_title：BMC medical ethics

authors： Hartman LA,Metselaar S,Molewijk AC,Edelbroek HM,Widdershoven GAM

更新日期：2018-12-22 00:00:00

abstract：BACKGROUND:DNR decisions are frequently made in oncology and hematology care and physicians and nurses may face related ethical dilemmas. Ethics is considered a basic competence in health care and can be understood as a capacity to handle a task that involves an ethical dilemma in an adequate, ethically responsible man...

journal_title：BMC medical ethics

authors： Pettersson M,Hedström M,Höglund AT

更新日期：2018-06-19 00:00:00

abstract：BACKGROUND:Efforts to improve patients' understanding of their own medical treatments or research in which they are involved are progressing, especially with regard to informed consent procedures. We aimed to design a multisource informed consent procedure that is easily adaptable to both clinical and research applicat...

journal_title：BMC medical ethics

authors： Cervo S,Rovina J,Talamini R,Perin T,Canzonieri V,De Paoli P,Steffan A

更新日期：2013-07-30 00:00:00

abstract：BACKGROUND:Health checks or health screenings identify (risk factors for) disease in people without a specific medical indication. So far, the perspective of (potential) health check users has remained underexposed in discussions about the ethics and regulation of health checks. METHODS:In 2017, we conducted a qualita...

journal_title：BMC medical ethics

authors： Stol YH,Asscher ECA,Schermer MHN

更新日期：2018-06-22 00:00:00

abstract：BACKGROUND:Although informed consent is an integral part of clinical practice, its current doctrine remains mostly a matter of law and mainstream ethics rather than empirical research. There are scarce empirical data on patients' perceived purpose of informed consent, which may include administrative routine/courtesy g...

journal_title：BMC medical ethics

authors： Hammami MM,Al-Gaai EA,Al-Jawarneh Y,Amer H,Hammami MB,Eissa A,Qadire MA

更新日期：2014-01-10 00:00:00

abstract：BACKGROUND:The individual informed consent model remains critical to the ethical conduct and regulation of research involving human beings. Parental informed consent process in a rural setting of northern Ghana was studied to describe comprehension and retention among parents as part of the evaluation of the existing i...

journal_title：BMC medical ethics

authors： Oduro AR,Aborigo RA,Amugsi D,Anto F,Anyorigiya T,Atuguba F,Hodgson A,Koram KA

更新日期：2008-06-19 00:00:00

abstract：BACKGROUND:Since 2010, the European Journal of Anaesthesiology has required the reporting of five items concerning ethical approval in articles describing human research: ethics committee's name and address, chairperson's name, study's protocol number and approval date. We aimed to assess whether this requirement has h...

journal_title：BMC medical ethics

authors： Zoccatelli D,Tramèr MR,Elia N

更新日期：2018-06-08 00:00:00

abstract：BACKGROUND:Several charters of rights have been issued in Europe to solemnly proclaim the rights of children during their hospital stay. However, notwithstanding such general declarations, the actual implementation of hospitalized children's rights is unclear. The purpose of this study was to understand to which extent...

journal_title：BMC medical ethics

authors： Bisogni S,Aringhieri C,McGreevy K,Olivini N,Lopez JR,Ciofi D,Merlo AM,Mariotti P,Festini F

更新日期：2015-05-13 00:00:00

abstract：BACKGROUND:Despite the growing recognition for the need to improve the health of prisoners in Canada and the need for health research, there has been little discussion of the ethical issues with regards to health research with prisoners in Canada. The purpose of this paper is to encourage a national conversation about ...

journal_title：BMC medical ethics

authors： Silva DS,Matheson FI,Lavery JV

更新日期：2017-04-27 00:00:00

abstract：BACKGROUND:Ethics committees typically apply the common principles of autonomy, nonmaleficence, beneficence and justice to research proposals but with variable weighting and interpretation. This paper reports a comparison of ethical requirements in an international cross-cultural study and discusses their implications....

journal_title：BMC medical ethics

authors： Goodyear-Smith F,Lobb B,Davies G,Nachson I,Seelau SM

更新日期：2002-04-19 00:00:00

abstract：BACKGROUND:There is a permanent need to evaluate and develop the ethical quality of scientific research and to widen knowledge about the effects of ethical issues. Therefore we evaluated whether informed consent is related to implementation and success in a lifestyle intervention study with older research participants....

journal_title：BMC medical ethics

authors： Länsimies-Antikainen H,Pietilä AM,Laitinen T,Kiviniemi V,Rauramaa R

更新日期：2010-06-08 00:00:00

abstract：BACKGROUND:The progress of electronic health technologies and biobanks holds enormous promise for efficient research. Evidence shows that studies based on sharing and secondary use of data/samples have the potential to significantly advance medical knowledge. However, sharing of such resources for international collabo...

journal_title：BMC medical ethics

authors： Bernasconi L,Şen S,Angerame L,Balyegisawa AP,Hong Yew Hui D,Hotter M,Hsu CY,Ito T,Jörger F,Krassnitzer W,Phillips AT,Li R,Stockley L,Tay F,von Heijne Widlund C,Wan M,Wong C,Yau H,Hiemstra TF,Uresin Y,Senti G

更新日期：2020-01-21 00:00:00

abstract：BACKGROUND:The boundaries between health-related research and practice have become blurred as initiatives traditionally considered to be practice (e.g., quality improvement, program evaluation) increasingly use the same methodology as research. Further, the application of different ethical requirements based on this di...

journal_title：BMC medical ethics

authors： Ondrusek NK,Willison DJ,Haroun V,Bell JA,Bornbaum CC

更新日期：2015-07-07 00:00:00

abstract：BACKGROUND:The patenting of human genes has been the subject of debate for decades. While China has gradually come to play an important role in the global genomics-based testing and treatment market, little is known about Chinese scholars' perspectives on patent protection for human genes. METHODS:A content analysis o...

journal_title：BMC medical ethics

authors： Du L

更新日期：2018-04-24 00:00:00

abstract：BACKGROUND:The ethical principle of justice demands that resources be distributed equally and based on evidence. Guidelines regarding forgoing of CPR are unavailable and there is large variance in the reported rates of attempted CPR in in-hospital cardiac arrest. The main objective of this work was to study whether loc...

journal_title：BMC medical ethics

authors： Ozer J,Alon G,Leykin D,Varon J,Aharonson-Daniel L,Einav S

更新日期：2019-12-26 00:00:00

abstract：BACKGROUND:Researchers are required to seek consent from Indigenous communities prior to conducting research but there is inadequate information about how Indigenous people understand and become fully engaged with this consent process. Few studies evaluate the preference or understanding of the consent process for rese...

journal_title：BMC medical ethics

authors： Fitzpatrick EFM,Macdonald G,Martiniuk ALC,D'Antoine H,Oscar J,Carter M,Lawford T,Elliott EJ

更新日期：2017-05-11 00:00:00

abstract：BACKGROUND:Expanded access is the use of investigational drugs (IDs) outside of clinical trials. Generally it is performed in patients with serious and life-threatening diseases who cannot be treated satisfactorily with authorized drugs. Legal regulations of expanded access to IDs have been introduced among others in t...

journal_title：BMC medical ethics

authors： Borysowski J,Górski A

更新日期：2020-11-18 00:00:00

abstract：BACKGROUND:Differences in perception and potential disagreements between parents and professionals regarding the attitude for resuscitation at the limit of viability are common. This study evaluated in healthcare professionals whether the decision to resuscitate at the limit of viability (intensive care versus comfort ...

journal_title：BMC medical ethics

authors： Papadimitriou V,Tosello B,Pfister R

更新日期：2019-10-22 00:00:00

abstract：BACKGROUND:Community engagement (CE) models have provided much needed guidance for researchers to conceptualise and design engagement strategies for research projects. Most of the published strategies, however, still show very limited contribution of the community to the engagement process. One way of achieving this is...

journal_title：BMC medical ethics

authors： Musesengwa R,Chimbari MJ

更新日期：2017-12-13 00:00:00

abstract：BACKGROUND:Financial relationships between physicians and industry are extensive and public reporting of industry payments to physicians is now occurring. Our objectives were to describe physician recipients of large total payments from these seven companies, and to examine discrepancies between these payments and conf...

journal_title：BMC medical ethics

authors： Norris SL,Holmer HK,Ogden LA,Burda BU,Fu R

更新日期：2012-09-26 00:00:00

abstract：BACKGROUND:Studies on informed consent to medical research conducted in low or middle-income settings have increased, including empirical investigations of consent to genetic research. We investigated voluntary participation and comprehension of informed consent among women involved in a genetic epidemiological study o...

journal_title：BMC medical ethics

authors： Marshall PA,Adebamowo CA,Adeyemo AA,Ogundiran TO,Strenski T,Zhou J,Rotimi CN

更新日期：2014-05-13 00:00:00

abstract：BACKGROUND:The increased use of human biological material for cell-based research and clinical interventions poses risks to the privacy of patients and donors, including the possibility of re-identification of individuals from anonymized cell lines and associated genetic data. These risks will increase as technologies ...

journal_title：BMC medical ethics

authors： Ogbogu U,Burningham S,Ollenberger A,Calder K,Du L,El Emam K,Hyde-Lay R,Isasi R,Joly Y,Kerr I,Malin B,McDonald M,Penney S,Piat G,Roy DC,Sugarman J,Vercauteren S,Verhenneman G,West L,Caulfield T

更新日期：2014-02-03 00:00:00