Abstract：
AIM:The aim of this study was to explore the information needs of parents of infants with an intellectual disability in the first year of life. BACKGROUND:Parents whose infant has an intellectual disability need access to information if they are to facilitate optimal care for their child. A lack of timely, accurate information provision by health professionals, particularly nurses and midwives, can increase parental stress and hinder access to the supports they and their infant require. DESIGN:A qualitative descriptive methodology was used for the study. METHODS:Qualitative interviews were undertaken with parents of 11 children with intellectual disabilities in Victoria, Australia in 2014. Data were analysed using descriptive thematic analysis. FINDINGS:Parents experienced challenges accessing quality information during the first year of their child's life. Parents required incremental information provision to build a strong knowledge base to facilitate optimal care for their infants. Three types of knowledge were identified as crucial for parents: knowledge about (1) the infant's condition; (2) the infant's specific needs and (3) available supports and services. Health professionals were the key resource to access this information. CONCLUSION:Health professionals' responsibilities include providing relevant, timely information to parents of infants with intellectual disabilities. This study conceptualises three types of information parents need to develop a strong knowledge base to guide their infant's care and provides guidance concerning the optimal timing for the delivery of information.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Douglas T,Redley B,Ottmann Gdoi
10.1111/jan.13321subject
Has Abstractpub_date
2017-11-01 00:00:00pages
2600-2608issue
11eissn
0309-2402issn
1365-2648journal_volume
73pub_type
杂志文章abstract：AIM:This paper is a discussion of the use of a systematic approach to explore researcher subjectivity and how this enhanced the rigour of a qualitative study. BACKGROUND:The need for rigour in qualitative research is widely documented; the means by which it is enhanced are varied and numerous. Although most qualitativ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.2007.04306.x
更新日期：2007-08-01 00:00:00
abstract：BACKGROUND:Many patients experience anxiety during treatment in an intensive care unit, but intensive care patients are often not able to respond to existing validated measures of anxiety such as the Brief Symptom Inventory. We have developed a new single item Faces Anxiety Scale made up of drawings of five faces. AIM...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2003.02508.x
更新日期：2003-01-01 00:00:00
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,多中心研究
doi：10.1111/j.1365-2648.2006.04024.x
更新日期：2006-11-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,meta分析,评审
doi：10.1111/jan.12485
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.1986.tb01272.x
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1996.tb02926.x
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.1999.01048.x
更新日期：1999-07-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,meta分析,评审
doi：10.1046/j.1365-2648.2003.02767.x
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.13545
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.1996.tb01030.x
更新日期：1996-12-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.13526
更新日期：2018-06-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.14658
更新日期：2020-11-22 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
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更新日期：2011-11-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：
更新日期：2000-10-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1994.tb01140.x
更新日期：1994-04-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2005.03612.x
更新日期：2005-12-01 00:00:00
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2003.02627.x
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.2001.01910.x
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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更新日期：2018-06-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章,多中心研究
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更新日期：2001-07-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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更新日期：1996-03-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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