Methodological considerations for researching the financial costs of family caregiving within a palliative care context.

abstract：OBJECTIVES:This study explores the narrative accounts of chronic obstructive pulmonary disease (COPD) to identify events that potentially could act as triggers for provision of supportive and palliative care. Trigger events must have meaning for the patient/carer, be visible to professionals, and have value in provokin...

journal_title：BMJ supportive & palliative care

authors： Cawley D,Billings J,Oliver D,Kendall M,Pinnock H

更新日期：2014-06-01 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：OBJECTIVES:As a rose geranium in sesame oil spray product has been anecdotally noted to improve nasal vestibulitis symptoms, this study was designed to assess whether patients with nasal vestibulitis associated with cancer-directed therapy experienced symptomatic improvements from it. METHODS:Patients with breast canc...

journal_title：BMJ supportive & palliative care

authors： Cathcart-Rake EJ,Smith D,Zahrieh D,Loprinzi CL

更新日期：2020-12-01 00:00:00

abstract：OBJECTIVES:Prognostication is an essential ability to clinicians. Nevertheless, it has been shown to be quite variable in acutely ill patients, potentially leading to inappropriate care. We aimed to assess the accuracy of physician's prediction of hospital mortality in acutely deteriorating patients referred for urgent...

journal_title：BMJ supportive & palliative care

authors： Ramos JGR,Dias RD,Passos RDH,Batista PBP,Forte DN

更新日期：2020-03-01 00:00:00

abstract：:There has been rapid progress in palliative care in Africa since the World Health Assembly in 2005 which identified palliative care as an urgent humanitarian need. Palliative care is now recognised as a basic human right, and momentum has gathered to translate this into action. From being significantly present in only...

journal_title：BMJ supportive & palliative care

authors： Grant L,Downing J,Namukwaya E,Leng M,Murray SA

更新日期：2011-09-01 00:00:00

abstract：BACKGROUND:In healthcare, many service evaluation questionnaires use free-text boxes without formal mechanisms for analysis. Patients and carers spend time documenting concerns that are often ignored or managed locally in an ad hoc manner. Currently, palliative care experiences of patients and carers in Wales are measu...

journal_title：BMJ supportive & palliative care

authors： Bowyer AV,Finlay I,Baillie J,Byrne A,McCarthy J,Sampson C,Snow V,Nelson A

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Over time, palliative care has become "professionalised", placing a burden on health care systems to manage the suffering of individuals and families with advancing, life-limiting illness. The need to develop resources, infrastructure and policy to enhance the capacity for communities to facilitate and suppo...

journal_title：BMJ supportive & palliative care

authors： Whitfield K,LaBrie M

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVES:Dyspnoea in patients with chronic obstructive pulmonary disease (COPD) is frequent and often persists despite conventional treatment. This study aimed to evaluate the efficacy and safety of oral morphine for dyspnoea in Japanese COPD patients. METHODS:We conducted a multi-institutional, prospective, before-...

journal_title：BMJ supportive & palliative care

authors： Matsuda Y,Morita T,Matsumoto H,Hosoi K,Kusama K,Kohashi Y,Morishita H,Kaku S,Ariyoshi K,Oyamada S,Inoue Y,Iwase S,Yamaguchi T,Nishikawa M

更新日期：2019-11-15 00:00:00

abstract：BACKGROUND:In Ireland, weekend and night medical cover for community based patients is largely provided by general practice co-operatives. Doctors working in this service do not have direct access to patients' medical records which challenges continuity of care. OBJECTIVES:This study investigates the opinion of genera...

journal_title：BMJ supportive & palliative care

authors： Kiely F,Murphy M,O'Brien T

更新日期：2013-12-01 00:00:00

abstract：BACKGROUND:Undergraduate teaching currently fails to adequately prepare doctors to deliver 'end-of-life' care. Despite much evidence supporting simulation-based teaching, its use in medical undergraduate palliative and 'end-of-life' care curricula remain low. AIM:This study assesses whether simulation can improve the ...

journal_title：BMJ supportive & palliative care

authors： Wells G,Montgomery J,Hiersche A

更新日期：2019-08-28 00:00:00

abstract：BACKGROUND:Resistance training (RT) is an effective way to increase muscle mass but little is known about its role to prevent sarcopenia in advanced cancer. Furthermore, the preferred setting for this training is not known. Considering home is frequently the place of care and death preferred by cancer patients, it is i...

journal_title：BMJ supportive & palliative care

authors： Ribeiro C,Santos R,Correia P,Maddocks M,Gomes B

更新日期：2020-08-13 00:00:00

abstract：:The COVID-19 pandemic is expected to surpass the healthcare system's capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during pandemic when resources are scarce. Healthcare providers will need to acquire ne...

journal_title：BMJ supportive & palliative care

authors： Fadul N,Elsayem AF,Bruera E

更新日期：2020-06-11 00:00:00

abstract：OBJECTIVE:Evaluate the internal consistency and temporal stability of advance directives (ADs) generated by an interactive, online computer program. METHODS:33 participants completed the program at three visits, 2 weeks apart. Agreement rates were calculated for the General Wishes component of the AD. The test-retest ...

journal_title：BMJ supportive & palliative care

authors： Schubart JR,Camacho F,Green MJ,Rush KA,Levi BH

更新日期：2017-03-01 00:00:00

abstract：:Adrenocortical carcinoma (ACC) comprises approximately 0.02% of all malignant tumours, which are a very small fraction of a group of cancers that affect in 0.7 to 2 in 1 000 000 people per year. Recurrence is very common even after complete resection and prognosis is poor. We report a case of a sporadic form of ACC fo...

journal_title：BMJ supportive & palliative care

authors： Shuayb M,Das A,Uddin MN

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Breast cancer is becoming the most common cancer among women of Indian origin. However, little is known about the psychological impact of the disease and its treatment among this population. AIM:To improve understanding of psychological symptoms among Indian women with breast cancer. DESIGN:This is a syste...

journal_title：BMJ supportive & palliative care

authors： Daniel S,Clark J,Gnanapragasam S,Venkateswaran C,Johnson MJ

更新日期：2020-05-11 00:00:00

abstract：BACKGROUND:Many scholars claim that recent changes to Chinese society since economic reform have challenged longstanding forms of informal social care, such as filial piety. For instance there is a societal tension at work in contemporary Chinese society today. On the one hand decreasing co-residence in multi-generatio...

journal_title：BMJ supportive & palliative care

authors： He L

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVES:Education and training are seen as 'absolutely essential parts of providing palliative care'. As part of a larger study to explore the extent of palliative care need in two acute hospital settings, we report the perceptions of healthcare professionals regarding their training and educational needs. METHODS:...

journal_title：BMJ supportive & palliative care

authors： Ingleton C,Gardiner C,Seymour JE,Richards N,Gott M

更新日期：2013-06-01 00:00:00

abstract：INTRODUCTION:The incidence of some fatal diseases, including HIV/AIDS, accompanied by depression has become a significant concern in developed, developing and underdeveloped countries. A great deal of time and money are spent on controlling and reducing the complications of this infection across the world. Accordingly,...

journal_title：BMJ supportive & palliative care

authors： Rezaei S,Ahmadi S,Rahmati J,Hosseinifard H,Dehnad A,Aryankhesal A,Shabaninejad H,Ghasemyani S,Alihosseini S,Bragazzi NL,Raoofi S,Kiaee ZM,Ghashghaee A

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high ser...

journal_title：BMJ supportive & palliative care

authors： Barkham A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Malignant pleural effusion (MPE) results in breathlessness and impairment of health-related quality of life (HRQOL). This study reviews the existing literature on HRQOL following invasive interventions in MPE. METHODS:Five electronic databases were systematically searched and assessed three times during the...

journal_title：BMJ supportive & palliative care

authors： Sivakumar P,Saigal A,Ahmed L

更新日期：2020-03-01 00:00:00

abstract：OBJECTIVE:This study examined whether the choice of pain-related outcome to represent opioid efficacy influenced findings in a genetic association study. Data from the European Pharmacogenetic Opioid Study, which used opioid dose as the outcome, were analysed in respect of six alternative outcomes: average pain intensi...

journal_title：BMJ supportive & palliative care

authors： Fladvad T,Fayers P,Skorpen F,Kaasa S,Klepstad P

更新日期：2012-12-01 00:00:00

abstract：OBJECTIVES:This study aimed to identify gaps in palliative care (PC) provision across the National Cancer Grid (NCG) centres in India. METHODS:We performed a cross-sectional validated web-based survey on 102 NCG cancer centres (Nov '17 to April '18). The survey questionnaire had seven sections collecting data relating...

journal_title：BMJ supportive & palliative care

authors： Damani A,Salins N,Ghoshal A,Chowdhury J,Muckaden MA,Deodhar J,Pramesh CS

更新日期：2020-06-09 00:00:00

abstract：OBJECTIVES:Evidence-based communication skills training for health and social care professionals is essential to improve the care of seriously ill patients and their families. We aimed to evaluate the self-reported impact of 'Difficult Conversations', a multidisciplinary half-day interactive workshop, and gain feedback...

journal_title：BMJ supportive & palliative care

authors： Brighton LJ,Selman LE,Gough N,Nadicksbernd JJ,Bristowe K,Millington-Sanders C,Koffman J

更新日期：2018-03-01 00:00:00

abstract：:Conscience objection is a proposed way of ensuring that medical practitioners who object to physician-assisted suicide may avoid having to be involved in such a procedure if this is legalised. This right on the part of healthcare professionals already exists in certain circumstances. This paper examines the ethical an...

journal_title：BMJ supportive & palliative care

authors： Willis D,George R

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:To develop and implement a methodology for capturing complete haematological malignancy pathway data and use it to identify variations in specialist palliative care (SPC) referrals. METHODS:In our established UK population-based patient cohort, 323 patients were diagnosed with acute myeloid leukaemia, diffus...

journal_title：BMJ supportive & palliative care

authors： Howell DA,Wang HI,Roman E,Smith AG,Patmore R,Johnson MJ,Garry AC,Howard MR

更新日期：2015-12-01 00:00:00

abstract：INTRODUCTION:The collaboration between palliative care and neurology has developed over the last 25 years and this study aimed to ascertain the collaboration between the specialties across Europe. METHODS:This online survey aimed to look at collaboration across Europe, using the links of the European Association for P...

journal_title：BMJ supportive & palliative care

authors： Oliver D,Borasio GD,Veronese S,Voltz R,Lorenzl S,Hepgul N

更新日期：2020-07-10 00:00:00

abstract：OBJECTIVES:Impending death is poorly recognised. Many undergraduate healthcare professionals will not have experience of meeting or caring for someone who is dying. As death can occur in any setting, at any time, it is vital that all healthcare students, regardless of the setting they go on to work in, have end-of-life...

journal_title：BMJ supportive & palliative care

authors： White N,Oostendorp LJ,Minton O,Yardley S,Stone P

更新日期：2019-11-20 00:00:00

abstract：:Effective communication is a prerequisite to the delivery of good palliative care. The increasing use of web-based technologies and social media challenges us to reassess traditional communication styles and to define appropriate applications of evolving technologies. The use of Skype, blogging and webcams by patients...

journal_title：BMJ supportive & palliative care

authors： Battley JE,Balding L,Gilligan O,O'Connell C,O'Brien T

更新日期：2012-06-01 00:00:00

abstract：OBJECTIVES:This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs assessment. METHODS:Health and social care professio...

journal_title：BMJ supportive & palliative care

authors： Shaw KL,Brook L,Mpundu-Kaambwa C,Harris N,Lapwood S,Randall D

更新日期：2015-09-01 00:00:00

abstract：:This case report discusses the problems encountered with dystonia in a teenage boy with end-stage calcifying leucodystrophy. It records the successful use of prolonged continuous subcutaneous clonidine and the change to thrice weekly transdermal clonidine. ...

journal_title：BMJ supportive & palliative care

authors： McCluggage HL

更新日期：2018-12-01 00:00:00