Identifying benefits and barriers to respite for carers of children with complex health needs: A qualitative study.

Abstract:

UNLABELLED:Abstract Background: Increasing numbers of children with complex health needs (CWCHN) are being cared for in their own homes. Caring for a child with complex health needs is an enormous task for a family and so access to suitable respite is critical for the wellbeing of all members of the family. AIM:The aim of this study was to explore the concept of 'suitable' respite from the perspective of the carer and whether suitable respite is currently available. METHOD:A qualitative descriptive approach was used. Five people who acted as a carer for a child with complex health agreeing to participate in the study. Semi-structured interviews were conducted in the home of the carers and interview data analyses with a thematic analysis. RESULTS:This study identified some of the barriers and enablers for families when accessing respite services for CWCHN. Carers describe optimal respite for these children to be similar to a family home with suitable facilities, equipment and activities for children. Flexible respite services and enthusiastic competent staff were considered very important by the family carers. CONCLUSION:Further research is needed to better understand the complexities of care for CWCHN and to identify effective strategies to support family carers.

journal_name

Contemp Nurse

journal_title

Contemporary nurse

authors

Welsh R,Dyer S,Evans D,Fereday J

doi

10.5172/conu.2014.48.1.98

subject

Has Abstract

pub_date

2014-01-01 00:00:00

pages

98-108

issue

1

eissn

1037-6178

issn

1839-3535

journal_volume

48

pub_type

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