Research with bereaved families: a framework for ethical decision-making.

Abstract:

:Theoretical debates about the nature of grief and bereavement draw attention to the sensitivity of carrying out research with bereaved people, the possible threats that this may pose and the ethical considerations required to ameliorate potentially damaging outcomes. The authors of this article present a framework for ethical decision-making that has been successfully developed in the context of research with bereaved families. The discussion focuses on application and evaluation of the framework during research with family members who were approached about the donation of a deceased relative's organs and/or tissues for transplantation. Practical strategies of relevance to the processes of participant recruitment, the interview encounter and follow-up care in the post-interview period are identified and discussed. Concerns about the possible impact of bereavement research are balanced with the views of family members who gave credence to the therapeutic and cathartic benefits of participating in sensitive, death-related research.

journal_name

Nurs Ethics

journal_title

Nursing ethics

authors

Sque M,Walker W,Long-Sutehall T

doi

10.1177/0969733014521097

subject

Has Abstract

pub_date

2014-12-01 00:00:00

pages

946-55

issue

8

eissn

0969-7330

issn

1477-0989

pii

0969733014521097

journal_volume

21

pub_type

杂志文章
  • Ethical challenges for school nurses in documenting schoolchildren's health.

    abstract::This study explored Swedish school nurses' experiences of school health record documentation. Fifty per cent of a representative sample of Swedish school nurses (n = 129) reported difficulties with documenting mental and social health problems in family relationships, schoolchildren's behaviour, and school situations....

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733007083933

    authors: Clausson EK,Köhler L,Berg A

    更新日期:2008-01-01 00:00:00

  • Ethical considerations of doll therapy for people with dementia.

    abstract::The use of doll therapy for people with dementia has been emerging in recent years. Providing a doll to someone with dementia has been associated with a number of benefits which include a reduction in episodes of distress, an increase in general well-being, improved dietary intake and higher levels of engagement with ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733013518447

    authors: Mitchell G,Templeton M

    更新日期:2014-09-01 00:00:00

  • The development of ethical guidelines for nurses' collegiality using the Delphi method.

    abstract:BACKGROUND:Nurses' collegiality is topical because patient care is complicated, requiring shared knowledge and working methods. Nurses' collaboration has been supported by a number of different working models, but there has been less focus on ethics. AIM:This study aimed to develop nurses' collegiality guidelines usin...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733015617342

    authors: Kangasniemi M,Arala K,Becker E,Suutarla A,Haapa T,Korhonen A

    更新日期:2017-08-01 00:00:00

  • Professional self-concept and professional values of senior students of the nursing department.

    abstract:AIM:This study was carried out in order to determine professional self-concept and professional values in the students, who were studying in the final year of the nursing department in schools providing undergraduate education in the Inner Anatolia Region. METHOD:This cross-sectional study was conducted on a total of ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733018761171

    authors: Çöplü M,Tekinsoy Kartın P

    更新日期:2019-08-01 00:00:00

  • Reasons behind providing futile medical treatments in Iran.

    abstract:BACKGROUND:Despite their negative consequences, evidence shows that futile medical treatments are still being provided, particularly to terminally ill patients. Uncovering the reasons behind providing such treatments in different religious and sociocultural contexts can create a better understanding of medical futility...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733016638142

    authors: Aghabarary M,Nayeri ND

    更新日期:2017-02-01 00:00:00

  • A care ethics approach to the Gender Kidney Donation Gap.

    abstract::Many studies have shown that women are more likely than men to be living kidney donors, and the discrepancy is particularly marked in heterosexual couples: wives are more likely than husbands to donate a kidney to their spouse. This 'Gender Kidney Donation Gap' can be understood in terms of Carol Gilligan's claims abo...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733018806337

    authors: Hodson N

    更新日期:2019-11-01 00:00:00

  • Empathic profile of nursing freshmen.

    abstract:OBJECTIVE:To analyze the empathic profile and the empathy scores of freshmen of the nursing course. DESIGN AND PARTICIPANTS:Descriptive study involving 399 freshmen students of two modalities of nursing courses: Bachelor and Bachelor and Teaching Diploma, in the period from 2012 to 2015. A sociodemographic questionnai...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733018780532

    authors: Mendes IAC,Trevizan MA,Souza MC,Souza-Junior VD,de Godoy S,Ventura CAA,Santos SSD

    更新日期:2019-11-01 00:00:00

  • Legislating for advocacy: The case of whistleblowing.

    abstract:BACKGROUND:The role of nurses as patient advocates is one which is well recognised, supported and the subject of a broad body of literature. One of the key impediments to the role of the nurse as patient advocate is the lack of support and legislative frameworks. Within a broad range of activities constituting advocacy...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733015600911

    authors: Watson CL,O'Connor T

    更新日期:2017-05-01 00:00:00

  • Practising virtue: a challenge to the view that a virtue centred approach to ethics lacks practical content.

    abstract::A virtue centred approach to ethics has been criticized for being vague owing to the nature of its central concept, the paradigm person. From the perspective of the practitioner the most damaging charge is that virtue ethics fails to be action guiding and, in addition to this, it does not offer any means of act apprai...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1191/0969733005ne832oa

    authors: Begley AM

    更新日期:2005-11-01 00:00:00

  • Nurse Activism in the newborn intensive care unit: actions in response to an ethical dilemma.

    abstract::Nurses working in a newborn intensive care unit report that treatment decision disagreements for infants in their care may lead to ethical dilemmas involving all health-care providers. Applying Rest's Four-Component Model of Moral Action as the theoretical framework, this study examined the responses of 224 newborn in...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733012475254

    authors: Settle PD

    更新日期:2014-03-01 00:00:00

  • Suicide: a statement of suffering.

    abstract::This article is designed to focus on the provision of nursing care in general medical wards following the admission of persons who have attempted suicide or who have a previous history of attempting suicide. The authors explore, analyse and synthesize how nurses, as key players in the health care team, may begin by re...

    journal_title:Nursing ethics

    pub_type: 杂志文章,评审

    doi:10.1177/096973309800500102

    authors: Long A,Long A,Smyth A

    更新日期:1998-01-01 00:00:00

  • Moral obligations of nurses and physicians in neonatal end-of-life care.

    abstract::The aim of this study was to explore the obligations of nurses and physicians in providing end-of-life care. Nineteen nurses and 11 physicians from a single newborn intensive care unit participated. Using content analysis, an overarching obligation of creating the best possible experience for infants and parents was i...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733010373009

    authors: Gingell Epstein E

    更新日期:2010-09-01 00:00:00

  • Implied consent and nursing practice: ethical or convenient?

    abstract::Nursing professionals in a variety of practice settings routinely use implied consent. This form of consent is used in place of or in conjunction with informed or explicit consent. This article looks at one aspect of a qualitative exploratory study conducted in a Day of Surgery Admission unit. This article focuses on ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733011436028

    authors: Cole CA

    更新日期:2012-07-01 00:00:00

  • Self-care as an ethical obligation for nurses.

    abstract::As members of the largest and most trusted healthcare profession, nurses are role models and critical partners in the ongoing quest for the health of their patients. Findings from the American Nurses Association Health Risk Appraisal suggested that nurses give the best patient care when they are operating at the peak ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733020940371

    authors: Linton M,Koonmen J

    更新日期:2020-07-28 00:00:00

  • Ethical perspectives in communication in cancer care: An interpretative phenomenological study.

    abstract:BACKGROUND:In cancer care, many clinical contexts still lack a good-quality patient-health professional communication about diagnosis and prognosis. Information transmission enables patients to make informed choices about their own healthcare. Nevertheless, disclosure is still an ethically challenging clinical problem ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733020916771

    authors: Melis P,Galletta M,Gonzalez CIA,Contu P,Herrera MFJ

    更新日期:2020-09-01 00:00:00

  • Nurses' perception of ethical climate, medical error experience and intent-to-leave.

    abstract::We examined nurses' perceptions of the ethical climate of their workplace and the relationships among the perceptions, medical error experience and intent to leave through a cross-sectional survey of 1826 nurses in 33 Korean public hospitals. Ethical climate was measured using the Hospital Ethical Climate Survey. Alth...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733013486797

    authors: Hwang JI,Park HA

    更新日期:2014-02-01 00:00:00

  • Narratives of aggressive care: Knowledge, time, and responsibility.

    abstract:BACKGROUND:While witnessing and providing aggressive care have been identified as predominant sources of moral distress, little is known about what nurses "know" to be the "right thing to do" in these situations. RESEARCH OBJECTIVES:The purpose of this study was to explore what nurses' moral knowledge is in situations...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733013502804

    authors: Peter E,Mohammed S,Simmonds A

    更新日期:2014-06-01 00:00:00

  • The ethics of developed nations recruiting nurses from developing countries: the case of Malawi.

    abstract::There is currently a global shortage of nurses. Developing countries such as Malawiare among those hardest hit by this shortage. The demands on available nurses have increased and at the same time there is a lack of interest in becoming a nurse owing to the poor working conditions among those still employed in the ser...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1191/0969733003ne636oa

    authors: Muula AS,Mfutso-Bengo JM,Makoza J,Chatipwa E

    更新日期:2003-07-01 00:00:00

  • Moral injury in healthcare professionals: A scoping review and discussion.

    abstract::Moral injury emerged in the healthcare discussion quite recently because of the difficulties and challenges healthcare workers and healthcare systems face in the context of the COVID-19 pandemic. Moral injury involves a deep emotional wound and is unique to those who bear witness to intense human suffering and cruelty...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733020966776

    authors: Čartolovni A,Stolt M,Scott PA,Suhonen R

    更新日期:2021-01-11 00:00:00

  • Development, validity and reliability testing the Swedish Ethical Climate Questionnaire.

    abstract:BACKGROUND:An ethical climate has been described as a working climate embracing shared perceptions about morally correct behaviour concerning ethical issues. Various ethical climate questionnaires have been developed and validated for different contexts, but no questionnaire has been found concerning the ethical climat...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733018819122

    authors: Grönlund CF,Söderberg A,Dahlqvist V,Andersson L,Isaksson U

    更新日期:2019-11-01 00:00:00

  • Statutory disclosure in article 280 of the Turkish Penal Code.

    abstract::A new Turkish Penal Code came into effect on 1 June 2005. Article 280 concerns health care workers' failure to report a crime. This article removes the responsibility from health care workers to maintain confidentiality, but also removes patients' right to confidentiality. It provides for up to one year of imprisonmen...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733006069693

    authors: Büken E,Sahinoğlu S,Büken NO

    更新日期:2006-11-01 00:00:00

  • Value conflicts in perioperative practice.

    abstract:BACKGROUND:The foundation of all nursing practice is respect for human rights, ethical value and human dignity. In perioperative practice, challenging situations appear quickly and operating theatre nurses must be able to make different ethical judgements. Sometimes they must choose against their own professional princ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733018798169

    authors: Blomberg AC,Bisholt B,Lindwall L

    更新日期:2019-11-01 00:00:00

  • The human condition of the professional: discretion and accountability.

    abstract::This article takes issue with procedural reductionism, which is the inclination to reduce all matters of judgement and responsibility to the following of some procedure or rule. Two scenarios provide content for a discussion of professional discretion in the context of accountability. The author shows that in professi...

    journal_title:Nursing ethics

    pub_type: 杂志文章,评审

    doi:10.1177/096973309700400608

    authors: Hunt G

    更新日期:1997-11-01 00:00:00

  • The development and implications of a case-based computer program to train ethical decision-making.

    abstract::To effectively train ethical decision-making of nursing students, a case-based computer program was developed using Flash animation. Seven ethical cases collected from practicing registered nurses' actual clinical experiences and a six-step Integrated Ethical Decision-Making Model developed by the author were employed...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733013484489

    authors: Park EJ

    更新日期:2013-12-01 00:00:00

  • Teaching nursing ethics by cases: a personal perspective.

    abstract::This article is a reflection on the use of case study material in the teaching of ethics to nursing students. Given the main aims of a course in ethics for nurses and the limited effectiveness of formal moral theory, it seems inevitable that the mainstay of nursing ethics courses will continue to be case study materia...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/096973309900600509

    authors: Holland S

    更新日期:1999-09-01 00:00:00

  • Nurse middle manager ethical dilemmas and moral distress.

    abstract:BACKGROUND:Nurse managers are placed in a unique position within the healthcare system where they greatly impact upon the nursing work environment. Ethical dilemmas and moral distress have been reported for staff nurses but not for nurse middle managers. OBJECTIVE:To describe ethical dilemmas and moral distress among ...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733013515490

    authors: Ganz FD,Wagner N,Toren O

    更新日期:2015-02-01 00:00:00

  • Ethical issues related to BRCA gene testing in orthodox Jewish women.

    abstract::Persons exhibiting mutations in two tumor suppressor genes, BRCA1 and BRCA2, have a greatly increased risk of developing breast and/or ovarian cancer. The incidence of BRCA gene mutation is very high in Ashkenazi Jewish women of European descent, and many issues can arise, particularly for observant Orthodox women, be...

    journal_title:Nursing ethics

    pub_type: 杂志文章,评审

    doi:10.1177/09697330080150041201

    authors: Mor P,Oberle K

    更新日期:2008-07-01 00:00:00

  • The relationship of ethics education to moral sensitivity and moral reasoning skills of nursing students.

    abstract::This study described the relationships between academic class and student moral sensitivity and reasoning and between curriculum design components for ethics education and student moral sensitivity and reasoning. The data were collected from freshman (n = 506) and senior students (n = 440) in eight baccalaureate nursi...

    journal_title:Nursing ethics

    pub_type: 杂志文章

    doi:10.1177/0969733011433922

    authors: Park M,Kjervik D,Crandell J,Oermann MH

    更新日期:2012-07-01 00:00:00

  • Ethical issues in the qualitative researcher--participant relationship.

    abstract::Qualitative research poses ethical issues and challenges unique to the study of human beings. In developing the interpersonal relationship that is critical to qualitative research, investigator and participant engage in a dialogic process that often evokes stories and memories that are remembered and reconstituted in ...

    journal_title:Nursing ethics

    pub_type: 杂志文章,评审

    doi:10.1177/0969733007086018

    authors: Eide P,Kahn D

    更新日期:2008-03-01 00:00:00

  • Confidentiality, anonymity and amnesty for midwives in distress seeking online support - Ethical?

    abstract:BACKGROUND:Midwife health is intrinsically linked to the quality of safe patient care. To ensure safe patient care, there is a need to deliver emotional support to midwives. One option that midwives may turn to may be a confidential online intervention, instead of localised, face-to-face support. RESEARCH DESIGN:Follo...

    journal_title:Nursing ethics

    pub_type: 杂志文章,评审

    doi:10.1177/0969733016654315

    authors: Pezaro S,Clyne W,Gerada C

    更新日期:2018-06-01 00:00:00