Abstract：
AIM:To determine whether, in children with congenital heart disease (CHD), disease severity is associated with health-related quality of life (HRQOL) and impact on the family. METHODS:Cross-sectional, single-centre study comparing HRQOL outcomes of age and sex matched children with hypoplasia of the left ventricle (HLV) (n = 31) and tetralogy of Fallot (n = 29) was performed in Queensland, Australia. HRQOL was assessed using generic and disease-specific components of the Paediatric Quality of Life Inventory Measurement Model (PedsQL). Intra-diagnostic age group comparisons of HRQOL were examined. Impact of CHD on families and parental HRQOL was assessed using the PedsQL Family Impact Scale. RESULTS:Child and parent-proxy reporting indicate children with HLV have significantly lower overall HRQOL than children with tetralogy of Fallot across generic domains of HRQOL (P < 0.0001), with significantly lower scores in physical (P < 0.0001) and psychosocial (P < 0.0001) health domains. No significant difference in child reporting across domains of the Cardiac Module is evident. Parent-proxy reporting indicates significantly lower scores on the symptom scales for children with HLV (P < 0.001), with greater cognitive problems (P < 0.02) and perceived treatment anxiety (P < 0.01). No significant differences in HRQOL were identified between age groups. HLV has a greater overall family impact, with significantly lower parental HRQOL (P = 0.0001) and family functioning (P < 0.0001) summary scores. CONCLUSIONS:The more severe condition of HLV is associated with poorer HRQOL in some domains and has greater impact on parental HRQOL and family functioning.
journal_name
J Paediatr Child Healthjournal_title
Journal of paediatrics and child healthauthors
Eagleson KJ,Justo RN,Ware RS,Johnson SG,Boyle FMdoi
10.1111/jpc.12296subject
Has Abstractpub_date
2013-10-01 00:00:00pages
856-64issue
10eissn
1034-4810issn
1440-1754journal_volume
49pub_type
杂志文章abstract：:Five children with multiple relapsing steroid-dependent nephrotic syndrome were treated with continuous cyclosporin for periods ranging from 18 to 48 months. Renal biopsy showed mild mesangial proliferation in three of the children and minimal change in two. All children previously had been treated with cyclophosphami...
journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/j.1440-1754.1993.tb00484.x
更新日期：1993-06-01 00:00:00
abstract：OBJECTIVE:To explore the use of sun protection behaviours and the experience of sunburn in a sample of parents and their children in New Zealand. METHODOLOGY:Information was collected from 887 parents using postal questionnaires at the beginning of and during the summer. RESULTS:Thirty per cent of the parents believe...
journal_title：Journal of paediatrics and child health
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doi：10.1046/j.1440-1754.1998.00307.x
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abstract：AIM:This study was designed to investigate whether the playing-back of the recorded maternal voice through the headphones to children undergoing bilateral ophthalmic surgery has clinical effects on the incidence of emergence agitation, and the anaesthesia recovery course. METHODS:In this prospective, blinded and rando...
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journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/jpc.12995
更新日期：2016-01-01 00:00:00
abstract：OBJECTIVES:To evaluate the habits of betel quid use and areca nut chewing among school-aged children in Karachi, Pakistan. Areca nut (betel nut) is chewed by itself, in various scented preparations, and in betel quid (containing betel leaf, areca nut, slaked lime, condiments, sweeteners and sometimes tobacco) in variou...
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pub_type： 杂志文章
doi：10.1046/j.1440-1754.2002.00040.x
更新日期：2002-10-01 00:00:00
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journal_title：Journal of paediatrics and child health
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doi：10.1111/j.1440-1754.1995.tb00872.x
更新日期：1995-12-01 00:00:00
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journal_title：Journal of paediatrics and child health
pub_type： 临床试验,杂志文章,多中心研究,随机对照试验
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pub_type： 杂志文章
doi：10.1111/j.1440-1754.1990.tb02429.x
更新日期：1990-08-01 00:00:00
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journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/jpc.12693
更新日期：2015-02-01 00:00:00
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journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/j.1440-1754.2005.00593.x
更新日期：2005-04-01 00:00:00
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journal_title：Journal of paediatrics and child health
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更新日期：2016-02-01 00:00:00
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journal_title：Journal of paediatrics and child health
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更新日期：2013-09-01 00:00:00
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journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/j.1440-1754.2007.01236.x
更新日期：2008-04-01 00:00:00
abstract：:Problems of inattention and hyperactivity affect one half of individuals with autistic disorder. Care must be taken to ensure that inattention and hyperactivity are not manifestations of other behavioural pathology seen in association with autistic disorder, as this will affect treatment decisions. The prescribing of ...
journal_title：Journal of paediatrics and child health
pub_type： 杂志文章,评审
doi：10.1111/j.1440-1754.2007.00995.x
更新日期：2007-01-01 00:00:00
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journal_title：Journal of paediatrics and child health
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journal_title：Journal of paediatrics and child health
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更新日期：2020-10-27 00:00:00
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journal_title：Journal of paediatrics and child health
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doi：10.1046/j.1440-1754.2003.00105.x
更新日期：2003-03-01 00:00:00
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doi：10.1111/j.1440-1754.2010.01752.x
更新日期：2010-07-01 00:00:00
abstract：:Soy infant formula contains high levels of the isoflavones, genistein and daidzein, which are commonly referred to as phytoestrogens. These are non-steroidal chemicals with structural similarities to estrogen. Infants consuming soy formula have high levels of circulating isoflavones. These are an order of magnitude gr...
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更新日期：2003-08-01 00:00:00
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journal_title：Journal of paediatrics and child health
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doi：10.1046/j.1440-1754.1999.00337.x
更新日期：1999-06-01 00:00:00
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journal_title：Journal of paediatrics and child health
pub_type： 杂志文章,评审
doi：10.1046/j.1440-1754.1999.355403.x
更新日期：1999-10-01 00:00:00
abstract：:An 11-year-old Caucasian male with history of abdominal pain, diarrhoea, fatigue, emesis and fever on the previous days presented with dehydratation, shock and acute mesenteric ischaemia. Final diagnosis of Addison's disease was made. ...
journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/j.1440-1754.2012.02556.x
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abstract：AIM:To determine health-care-seeking behaviour for childhood illnesses in a resource-poor setting. METHOD:Cross-sectional survey was conducted in the children emergency room in a Nigerian tertiary hospital. Socio-demographic data and details of the place and type of care given to ill children before presentation in th...
journal_title：Journal of paediatrics and child health
pub_type： 杂志文章
doi：10.1111/j.1440-1754.2009.01677.x
更新日期：2010-05-01 00:00:00
