Abstract:
PURPOSE:To establish the validity and reliability of a questionnaire measuring the experience of informal carers of patients with stroke through acute and rehabilitation hospital treatment. METHOD:The settings were 6 stroke units in the United Kingdom. Participants were relatives of patients with stroke. The Stroke Carer Experience Questionnaire (SCEQ) asks about specific elements of care and was constructed using qualitative analyses. Convergent and discriminant validity were assessed by correlations with other questionnaires and variables. Criterion validity was examined by correlations with indices derived from qualitative data. Temporal stability was assessed by correlation with a repeated administration. The performance of the questionnaire was compared with that of the Carer Hospital Satisfaction Questionnaire (Carer HospSat). RESULTS:Seventy-two (49%) of 147 questionnaires were returned. Test-retest reliability, assessed by a questionnaire mailed 7 days after the first completion, was 0.77. The correlation with the Carer HospSat was 0.57, indicating convergent validity. The SCEQ did not correlate with demographic variables or functional ability, which indicated discriminant validity. Significant correlations with indices derived from carers' qualitative descriptions evidenced criterion validity. The SCEQ detected specific negative experiences among carers with high global satisfaction scores on the Carer HospSat. In general, the SCEQ items were not strongly intercorrelated; only 6% of the intercorrelations were strong to moderate (30.6). CONCLUSIONS:The SCEQ is preferable to existing questionnaires for carers of patients with stroke, because it has established validity and reliability and assesses service characteristics important to carers. It also identifies experiences in services that elude global satisfaction ratings. It is a promising instrument for identifying service strengths and unmet needs.
journal_name
Top Stroke Rehabiljournal_title
Topics in stroke rehabilitationauthors
Howells A,Morris R,Darwin Cdoi
10.1310/tsr1903-256subject
Has Abstractpub_date
2012-05-01 00:00:00pages
256-67issue
3eissn
1074-9357issn
1945-5119pii
91408XL421440R8Qjournal_volume
19pub_type
杂志文章,多中心研究abstract::This article proposes to use information processing models of cognition to guide behaviorally based treatments of language deficits, specifically, single-word object naming. Our approach is illustrated with a clinical case of a transcortical sensory aphasic. Clinical neuropsychological and functional imaging data demo...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/K2HJ-YP2C-FMBW-0ME5
更新日期:1997-04-01 00:00:00
abstract:BACKGROUND:About one-third of adult stroke patients suffer from aphasia when they are discharged from hospital. Aphasia seems to be a negative predictive factor affecting post-stroke functional recovery after rehabilitation, but this association has been scarcely addressed in previous research. OBJECTIVES:We aim to ev...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1818479
更新日期:2020-09-24 00:00:00
abstract::The article will explore the use of the term medical necessity as it relates to wheeled mobility. Health insurance will cover a wheelchair if it is determined that it is medically necessary for a particular client. There are many different types of health insurance, and no universal definition of medical necessity. Th...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/564P-FWK1-Q96Y-5AXJ
更新日期:2005-07-01 00:00:00
abstract:BACKGROUND:Survivors of stroke have long-term physical and psychological consequences that impact their quality of life. Few interventions are available in the community to address these problems. Yoga, a type of mindfulness-based intervention, is shown to be effective in people with other chronic illnesses and may hav...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.1080/10749357.2016.1277481
更新日期:2017-05-01 00:00:00
abstract::In rehabilitation for hemiparesis, one of the goals of an occupational therapist is to practice upper extremity tasks with the recovering individual. The practice is intended to strengthen muscles and refine movements. It also provides examples for the recovering body and brain as they attempt to reestablish the now d...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/GCFE-QA7A-2D24-KHRU
更新日期:2004-01-01 00:00:00
abstract:PURPOSE:This study evaluated the impact of an educational intervention that integrates concepts of a community re-engagement framework (CR) and interprofessional collaboration (IPC) on health care providers' (HCP) practice with persons living with stroke (PLS). METHOD:A mixed-methods design was used in which HCPs (n =...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1310/tsr1901-63
更新日期:2012-01-01 00:00:00
abstract::In terms of integration of the paretic upper extremity in activities of daily living (ADLs), outcome is poor after stroke. Furthermore, amount of real-world arm use appears only weakly correlated with laboratory motor function scales. Therefore, amount of arm use may depend critically on the location, extent, and type...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1604-237
更新日期:2009-07-01 00:00:00
abstract:BACKGROUND:Many studies have been conducted on the changes in the balance capabilities of stroke patients. However, results regarding the effects of dual-task activities on postural control in these patients have been variable. OBJECTIVE:To evaluate the effects of a short-term memory task on the sway characteristics o...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000039
更新日期:2015-10-01 00:00:00
abstract:PURPOSE:To evaluate the effect of kinesiotaping as an adjuvant therapy to botulinum toxin A (BTX-A) injection in lower extremity spasticity. METHODS:This is a single-center, randomized, and double-blind study. Twenty hemiplegic patients with spastic equinus foot were enrolled into the study and randomized into 2 group...
journal_title:Topics in stroke rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1310/tsr1704-318
更新日期:2010-07-01 00:00:00
abstract::Venous thromboembolism (VTE) is a common complication following acute ischemic and hemorrhagic stroke. Pulmonary embolism (PE), the most serious consequence of deep vein thrombosis (DVT), can result in significant morbidity and death. Patients with stroke are at particular risk because of limb paralysis, prolonged bed...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/54NU-U4CP-5KC8-JM9W
更新日期:2003-10-01 00:00:00
abstract::Subarachnoid hemorrhage affects more than 25,000 Americans yearly and is most commonly caused by a ruptured, saccular, cerebral aneurysm. Current measures to evaluate and manage patients with nontraumatic subarachnoid hemorrhage are detailed. Areas of future progress are presented. The diagnosis and treatment of intra...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.1996.11754101
更新日期:1996-03-01 00:00:00
abstract::There is no "magic bullet" in rehabilitation. In the absence of direct neural transplants, neurological rehabilitation is an arduous process. We have pioneered the clinical application of robotics in stroke rehabilitation and have shown evidence of the positive impact of targeted exercise on stroke recovery. In this a...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/6177-QDJJ-56DU-0NW0
更新日期:2002-01-01 00:00:00
abstract:BACKGROUND:Providing appropriate and effective information to people with stroke and their families has been identified as a key component to successful practice. Researchers continue to focus on "lack of information" as being the lack of specific technical medical information rather than the communication of practical...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/NPC4-01YV-P66Q-VM9R
更新日期:2004-10-01 00:00:00
abstract:BACKGROUND:The similarities or differences of the three some (physiotherapists, patients, and caregivers) thought about the process of stroke rehabilitation can play a key role in the success of rehabilitation. OBJECTIVE:The aim of this qualitative study was to investigate the perspectives of the three some, with rega...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000042
更新日期:2015-10-01 00:00:00
abstract::Background Post-stroke fatigue is common and disabling. Objectives The aim of NotFAST was to examine factors associated with fatigue in stroke survivors without depression, six months after stroke. Methods Participants were recruited from four UK stroke units. Those with high levels of depressive symptoms (score ≥7 on...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2017.1368912
更新日期:2017-12-01 00:00:00
abstract::The privileging of the substituted judgment standard as the gold standard for surrogate decision making in law and bioethics has constrained the research agenda in end-of-life decision making. The empirical literature is inundated with a plethora of "Newlywed Game" designs, in which potential patients and potential su...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1404-80
更新日期:2007-07-01 00:00:00
abstract:BACKGROUND:Stroke presents with heterogeneous recovery periods, severity, and manifestation of deficits, all of which may adversely impact fitness-to-drive. Little is known about the association between site of lesion and driving performance after stroke. OBJECTIVE:To investigate the association between site of stroke...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000018
更新日期:2015-08-01 00:00:00
abstract:BACKGROUND:Virtual reality (VR) is becoming a popular alternative to traditional upper and lower limb rehabilitation following a stroke. OBJECTIVE:To conduct a systematic review and meta-analysis on the effectiveness of VR interventions for improving balance in a chronic stroke (≥6 months) population. DATA SOURCES:A ...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.1080/10749357.2016.1192361
更新日期:2017-01-01 00:00:00
abstract:BACKGROUND:Many people with mild disability after stroke are physically inactive despite the risk of recurrent stroke. A self-management program may be one strategy to increase physical activity in stroke survivors. OBJECTIVES:To investigate the feasibility of a self-management program, and determine whether self-mana...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2017.1304876
更新日期:2017-07-01 00:00:00
abstract:OBJECTIVE:To examine the effectiveness of cardiovascular conditioning on comfortable gait speed and total distance walked when initiated in the chronic stage of stroke through a meta-analysis. METHODS:MEDLINE, CINAHL, EMBASE, and Scopus databases were searched from 1980 to June 2012. A study was selected if (1) it was...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析
doi:10.1310/tsr1906-463
更新日期:2012-11-01 00:00:00
abstract:BACKGROUND:In response to the need to simultaneously address multiple domains of the International Classification of Functioning, Disability and Health (ICF) in aphasia therapy and to incorporate intensive treatment doses consistent with principles of neuroplasticity, a potentially potent treatment option termed intens...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2005-379
更新日期:2013-09-01 00:00:00
abstract::Spatial neglect is a debilitating poststroke neurocognitive disorder associated with prolonged hospitalization and poor rehabilitation outcomes. The literature suggests a high prevalence of this disorder, but clinicians have difficulty reliably identifying affected survivors. This discrepancy may result from suboptima...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr1905-423
更新日期:2012-09-01 00:00:00
abstract::In a study made by The Stroke and Aphasia Federation Finland, a little less than a quarter of the aphasic patients and their families could not cope with the change in their life caused by stroke. Patients' and families' functionality decreased, and their social contacts either decreased or ended. These were the facto...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.1995.11754082
更新日期:1995-09-01 00:00:00
abstract:BACKGROUND:The brain mechanisms underlying successful recovery of hand fuenction after stroke are still not fully understood, although functional MRI (fMRI) studies underline the importance of neuronal plasticity. METHODS:We explored potential changes in brain activity in 7 patients with subacute to chronic stroke (69...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2004-308
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:This study investigated the physiological responses of stroke survivors to a 16-week program of moderate aerobic and anaerobic exercise. METHOD:Forty participants who were a minimum of 6 months post stroke underwent physiological testing over the course of 2 days that included a maximal VO(2) stress test, a Bi...
journal_title:Topics in stroke rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1310/0J2K-MDNX-1Q0L-8LX6
更新日期:2003-01-01 00:00:00
abstract:OBJECTIVES:Visual field defects due to hemi- or quadrantanopia after stroke represent an under-recognized neurological symptom with inefficient instruments for neurorehabilitation to date. We here examined the effects of training in a virtual reality (VR) supermarket on cognitive functions, depressive symptoms, and sub...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1716531
更新日期:2020-09-01 00:00:00
abstract:BACKGROUND:Several reports have focused on the effects of whole body vibration (WBV) on spasticity with differing results. Most studies used modified Ashworth scale (MAS) for qualitative measurements, but the effect was small. OBJECTIVE:To investigate the effect of WBV on spasticity in hemiplegic legs of patients with...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2017.1389055
更新日期:2018-03-01 00:00:00
abstract:OBJECTIVE:Modifying assessments for people with aphasia has the potential to increase the validity of healthcare assessments across professional domains. This pilot study addressed the challenges of giving people with aphasia the power to fully participate in the assessment process. The study aimed to investigate the f...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000034
更新日期:2015-04-01 00:00:00
abstract:PURPOSE:This study was designed to evaluate the effectiveness of the compelled body weight shift (CBWS) therapy approach in the rehabilitation of individuals with chronic stroke. CBWS involves a forced shift of body weight toward a person's affected side by means of a shoe insert that establishes a lift of the nonaffec...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1310/tsr1906-556
更新日期:2012-11-01 00:00:00
abstract:BACKGROUND:Relatives of stroke patients should be an integral part of the continuum of rehabilitation services. OBJECTIVE:The objective was to describe their perception of the quality of the services they received in the context of early supported discharged (ESD), in- and out-patient rehabilitation services. METHODS...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1790731
更新日期:2021-03-01 00:00:00