Abstract:
BACKGROUND:Relatives of stroke patients should be an integral part of the continuum of rehabilitation services. OBJECTIVE:The objective was to describe their perception of the quality of the services they received in the context of early supported discharged (ESD), in- and out-patient rehabilitation services. METHODS:Descriptive study using the Quality of Services Questionnaire for Relatives post-stroke (QSQR) completed online by relatives after the patient's discharge. It consists of 22 statements with respect to three subscales: 1) the training/instructions, 2) the information provision and 3) the organizational process of the service offer. Space is allowed for free comments and two open-ended questions. Quantitative data were analyzed descriptively, and we used a content analysis for qualitative data. RESULTS:One-third (30/90; 33.3%) of the sample are composed of relatives aged 55 and under, with a majority (81%) of women and 51.3% of spouses. The training/instructions and information provision were perceived positively with a mean % agreement at 85.0 ± 29.6 and 84.8 ± 22.4, respectively. The mean % agreement was 91.4 ± 17.8 for the organizational process subscale. A significantly higher score (p = 0,03; Kruskal Wallis test) was found for out-patient services (n = 20) as compared to ESD (n = 29) or in-patient rehabilitation (n = 41). Qualitatively, a lack of involvement of relatives was mentioned as well as a lack of personalized information about stroke and its consequences and provision of resources available. However, communication between professionals, their availability, and their professionalism were appreciated. CONCLUSION:Despite quantitative high scores, qualitative data allowed the identification of concrete avenues for improvement to truly and systematically include relatives in stroke rehabilitation.
journal_name
Top Stroke Rehabiljournal_title
Topics in stroke rehabilitationauthors
Rochette A,Dugas A,Morissette-Gravel ASdoi
10.1080/10749357.2020.1790731subject
Has Abstractpub_date
2021-03-01 00:00:00pages
142-152issue
2eissn
1074-9357issn
1945-5119journal_volume
28pub_type
杂志文章abstract:BACKGROUND:Sufficient physical activity (PA) is highly recommended to improve the prognosis after stroke. However, there have been only a few studies evaluating the changes in PA level after stroke. AIMS:We aimed to identify the changes in PA level between before and after stroke, and to determine the association betw...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1799292
更新日期:2020-07-29 00:00:00
abstract:PURPOSE:To establish the validity and reliability of a questionnaire measuring the experience of informal carers of patients with stroke through acute and rehabilitation hospital treatment. METHOD:The settings were 6 stroke units in the United Kingdom. Participants were relatives of patients with stroke. The Stroke Ca...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1310/tsr1903-256
更新日期:2012-05-01 00:00:00
abstract:BACKGROUND AND PURPOSE:Studies suggest that family caregiver well-being (ie, depressive symptoms and life satisfaction) may affect stroke survivor depressive symptoms. We used mediation analysis to assess whether caregiver well-being might be a factor explaining stroke survivor depressive symptoms, after controlling fo...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2001-44
更新日期:2013-01-01 00:00:00
abstract:BACKGROUND:Many studies have been conducted on the changes in the balance capabilities of stroke patients. However, results regarding the effects of dual-task activities on postural control in these patients have been variable. OBJECTIVE:To evaluate the effects of a short-term memory task on the sway characteristics o...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000039
更新日期:2015-10-01 00:00:00
abstract::This article describes the efforts made by the city of Chicago to promote total access and full participation for people with disabilities. The process that the Chicago Mayor's Office for People with Disabilities (MOPD) undertook to ensure that other city departments and sister agencies incorporated accessible program...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1502-75
更新日期:2008-03-01 00:00:00
abstract:BACKGROUND:Stroke survivors experience functional loss in basic activities of daily living (ADLs) and in everyday community activities or instrumental activities of daily living (IADLs). Historically there has been a greater focus by rehabilitation professionals on basic ADLs than on IADLs. PURPOSE:The purpose of this...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1401-48
更新日期:2007-01-01 00:00:00
abstract:BACKGROUND:Inflammation may not only be the consequence of brain infarction but it may also contribute to ischemic damage. However, the role of inflammatory markers in predicting functional outcome in stroke remains controversial. OBJECTIVE:This study was conducted to evaluate the predictive value of admission high-se...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2006-528
更新日期:2013-11-01 00:00:00
abstract:OBJECTIVES:In India, post-stroke outcomes are determined using functional outcome measures (FOMs), the contents of which have not been validated for their relevance to the Indian population. In this study, we aimed to evaluate the cultural validity of five frequently used stroke-specific FOMs by comparing their content...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2016.1234190
更新日期:2017-04-01 00:00:00
abstract::The privileging of the substituted judgment standard as the gold standard for surrogate decision making in law and bioethics has constrained the research agenda in end-of-life decision making. The empirical literature is inundated with a plethora of "Newlywed Game" designs, in which potential patients and potential su...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1404-80
更新日期:2007-07-01 00:00:00
abstract:OBJECTIVES:Visual field defects due to hemi- or quadrantanopia after stroke represent an under-recognized neurological symptom with inefficient instruments for neurorehabilitation to date. We here examined the effects of training in a virtual reality (VR) supermarket on cognitive functions, depressive symptoms, and sub...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1716531
更新日期:2020-09-01 00:00:00
abstract::The purpose of this article is to present the Kinesio taping method used to improve the upper extremity function in the adult with hemiplegia. The article discusses various therapeutic methods used in the treatment of stroke patients to achieve a functional upper extremity. The only taping technique for various upper ...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/33KA-XYE3-QWJB-WGT6
更新日期:2006-07-01 00:00:00
abstract::Purpose To use a mixed method design to evaluate how clinicians judge falls in stroke patients as a beneficial event, and to identify patient-specific characteristics associated with beneficial falls. Methods The definition of beneficial falls was based on interviews with six experienced clinicians in stroke rehabilit...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2017.1394631
更新日期:2018-03-01 00:00:00
abstract::In terms of integration of the paretic upper extremity in activities of daily living (ADLs), outcome is poor after stroke. Furthermore, amount of real-world arm use appears only weakly correlated with laboratory motor function scales. Therefore, amount of arm use may depend critically on the location, extent, and type...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1604-237
更新日期:2009-07-01 00:00:00
abstract::Stroke onset causes disruption of family roles as caregiving tasks are assumed. The current study presents a qualitative and quantitative analysis of the problems of 123 older, spousal stroke caregivers. Problems were coded into 14 categories; frequencies of occurrence and difficulty were also analyzed. Differences in...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/DDBP-TRCC-3KVA-4B94
更新日期:2002-04-01 00:00:00
abstract::This article uses the medium of clinicians' comments and stories to explore their perceptions of therapeutic relationships and how these relationships come to a close at discharge from aphasia therapy. These narratives are drawn from a qualitative, grounded theory study carried out in South Australia and Northern Terr...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1701-30
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Using secondary analysis and Friedemann's framework of systemic organization as a guide, the purpose of this article is to examine the experience of a subsample of five men caring for women with stroke who participated for 3 months in a Web-based support group. METHOD:Analysis of qualitative data (N = 224 entr...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/MHRL-NWL5-9XCG-JEMC
更新日期:2004-04-01 00:00:00
abstract::The role of narrative discourse has been increasingly recognized as crucial to all partners involved in the rehabilitation process after acquired brain injury. Particularly within the family, narrative offers an experiential space for meaning-making. To better understand this joint meaning-making process, a narrative-...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1801-47
更新日期:2011-01-01 00:00:00
abstract::Spatial neglect is a debilitating poststroke neurocognitive disorder associated with prolonged hospitalization and poor rehabilitation outcomes. The literature suggests a high prevalence of this disorder, but clinicians have difficulty reliably identifying affected survivors. This discrepancy may result from suboptima...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr1905-423
更新日期:2012-09-01 00:00:00
abstract:PURPOSE:Education is a key component of post stroke care, but patients and carers often report dissatisfaction with information provided. A small number of studies have reported challenges surrounding the provision of information to this population, but patients' perspectives have not been explored in detail. The aim o...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1702-69
更新日期:2010-03-01 00:00:00
abstract:PURPOSE:Hope is said to be important in recovery from illness or injury, supporting adjustment, perseverance, and positive outcomes. There has been little exploration of hope in people after stroke. This is reflected in the literature, which lacks consistent definition and terminology. This purpose of this article is t...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr1805-490
更新日期:2011-09-01 00:00:00
abstract:PURPOSE:This descriptive study examined problems and successes that a sample of 73 adult caregivers new to the role expressed in the first year of caring for stroke survivors. Data were collected from May 2002 to December 2005. METHOD:Bimonthly, trained telephone interviewers asked the participants open-ended question...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1402-13
更新日期:2007-03-01 00:00:00
abstract:OBJECTIVE:To examine the effectiveness of cardiovascular conditioning on comfortable gait speed and total distance walked when initiated in the chronic stage of stroke through a meta-analysis. METHODS:MEDLINE, CINAHL, EMBASE, and Scopus databases were searched from 1980 to June 2012. A study was selected if (1) it was...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析
doi:10.1310/tsr1906-463
更新日期:2012-11-01 00:00:00
abstract:BACKGROUND:Higher physical activity levels during hospitalization may benefit the life-space mobility, defined as the ability to move within environments that expand from one's home to the greater community, of stroke survivors following their discharge. OBJECTIVES:This study aimed to evaluate the relationship between...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1834276
更新日期:2020-10-20 00:00:00
abstract:BACKGROUND:Motor imagery practice refers to the mental rehearsal of motor acts in the absence of actual movement production. PURPOSE:To evaluate the effect of motor imagery practice on the performance of sit to stand (STS) and reaching to grasp in subjects with post stroke chronic hemiparesis. METHOD:The study was de...
journal_title:Topics in stroke rehabilitation
pub_type: 临床试验,杂志文章
doi:10.1310/tsr1904-306
更新日期:2012-07-01 00:00:00
abstract:BACKGROUND:Fast treadmill walking combined with functional electrical stimulation to ankle muscles (FastFES) is a well-studied gait intervention that improves post-stroke walking function. Although individualized verbal feedback is commonly incorporated during clinical gait training, and a variable practice structure i...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1818480
更新日期:2020-09-18 00:00:00
abstract::Poststroke somatosensory impairment is prevalent, yet commonly used clinical measures lack the sensitivity needed to quantify impairment and detect change due to intervention. This selective review, prepared and presented as a part of the I-Treat Conference (June 22, 2013, Columbus, Ohio), discusses the prevalence of ...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr2104-290
更新日期:2014-07-01 00:00:00
abstract::Informal care provision presents many challenges. As the population ages, more people are forced to enter the role of informal caretaker. Despite the increase in the need for caregivers and the importance of providing care, there is little empirical research examining how men and women approach and cope with providing...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/CJVW-WCPK-2FCV-369P
更新日期:2006-01-01 00:00:00
abstract:BACKGROUND AND PURPOSE:After stroke, many individuals have reduced physical activity. Pedometer use is reported to enhance physical activity in patients with other health conditions. The purpose of this study was to investigate the feasibility of a community-based, pedometer-monitored walking program and determine its ...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2102-101
更新日期:2014-03-01 00:00:00
abstract::This article describes an approach to treatment of agrammatic aphasic individuals' sentence production deficits. In this linguistic-specific sentence production treatment, sentences selected for treatment and the treatment itself are control led for their lexical and syntactic properties. Results derived from a series...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.1996.11754114
更新日期:1996-06-01 00:00:00
abstract::Background Somatosensory stimulation may have a positive impact on recovery of motor function by maintaining cortical representation of the hand and acting to prime the motor system for movement. Objective Determine the efficacy of somatosensory stimulation on upper limb motor function after stroke. Methods Five elect...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.1080/10749357.2017.1389054
更新日期:2018-03-01 00:00:00