Abstract:
PURPOSE:This descriptive study examined problems and successes that a sample of 73 adult caregivers new to the role expressed in the first year of caring for stroke survivors. Data were collected from May 2002 to December 2005. METHOD:Bimonthly, trained telephone interviewers asked the participants open-ended questions to elicit their experience in caregiving. Guided by Friedemann's framework of systemic organization, we analyzed the data using Colaizzi's method of content analysis. RESULTS:There were 2,455 problems and 2,687 successes reported. Three themes emerged from the problems: being frustrated in day-to-day situations (system maintenance in Friedemann's terms), feeling inadequate and turning to others for help (coherence), and struggling and looking for "normal" in caring (system maintenance vs. change). Three themes were attributed to the successes: making it through and striving for independence (system maintenance), doing things together and seeing accomplishments in the other (coherence), and reaching a new sense of normal and finding balance in life (individuation and system maintenance). CONCLUSION:These findings provided an in-depth, theorybased description of the experience of being a new caregiver and can help explain how caring can be a difficult yet rewarding experience. Knowledge of the changes over time allows health care professionals to tailor their interventions, understanding, and support.
journal_name
Top Stroke Rehabiljournal_title
Topics in stroke rehabilitationauthors
Pierce LL,Steiner V,Govoni A,Thompson TC,Friedemann MLdoi
10.1310/tsr1402-13subject
Has Abstractpub_date
2007-03-01 00:00:00pages
13-20issue
2eissn
1074-9357issn
1945-5119pii
92887152287H70NUjournal_volume
14pub_type
杂志文章abstract::The article will explore the use of the term medical necessity as it relates to wheeled mobility. Health insurance will cover a wheelchair if it is determined that it is medically necessary for a particular client. There are many different types of health insurance, and no universal definition of medical necessity. Th...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/564P-FWK1-Q96Y-5AXJ
更新日期:2005-07-01 00:00:00
abstract:BACKGROUND:Stroke survivors experience functional loss in basic activities of daily living (ADLs) and in everyday community activities or instrumental activities of daily living (IADLs). Historically there has been a greater focus by rehabilitation professionals on basic ADLs than on IADLs. PURPOSE:The purpose of this...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1401-48
更新日期:2007-01-01 00:00:00
abstract::The Medicare Modernization Act of 2003 (MMA'03) did more than introduce a prescription drug benefit for Medicare beneficiaries; it also laid the groundwork for several far-reaching changes in the Medicare program. These changes must be considered in the context of the "American devolution"--a much larger shift in Amer...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/R28D-5XJQ-B0TX-R4VM
更新日期:2005-04-01 00:00:00
abstract:BACKGROUND:Impaired balance and weak muscle strength are common deficits associated with stroke. Limited research has examined the relationship between balance and strength in people post-stroke. OBJECTIVE:To investigate the association between balance and muscular strength in people post-stroke. METHODS:A total of 1...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2019.1574417
更新日期:2019-04-01 00:00:00
abstract:BACKGROUND:Relatives of stroke patients should be an integral part of the continuum of rehabilitation services. OBJECTIVE:The objective was to describe their perception of the quality of the services they received in the context of early supported discharged (ESD), in- and out-patient rehabilitation services. METHODS...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1790731
更新日期:2021-03-01 00:00:00
abstract::This article uses the medium of clinicians' comments and stories to explore their perceptions of therapeutic relationships and how these relationships come to a close at discharge from aphasia therapy. These narratives are drawn from a qualitative, grounded theory study carried out in South Australia and Northern Terr...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1701-30
更新日期:2010-01-01 00:00:00
abstract:OBJECTIVES:Visual field defects due to hemi- or quadrantanopia after stroke represent an under-recognized neurological symptom with inefficient instruments for neurorehabilitation to date. We here examined the effects of training in a virtual reality (VR) supermarket on cognitive functions, depressive symptoms, and sub...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1716531
更新日期:2020-09-01 00:00:00
abstract:BACKGROUND:In response to the need to simultaneously address multiple domains of the International Classification of Functioning, Disability and Health (ICF) in aphasia therapy and to incorporate intensive treatment doses consistent with principles of neuroplasticity, a potentially potent treatment option termed intens...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2005-379
更新日期:2013-09-01 00:00:00
abstract:PURPOSE:To evaluate the effect of kinesiotaping as an adjuvant therapy to botulinum toxin A (BTX-A) injection in lower extremity spasticity. METHODS:This is a single-center, randomized, and double-blind study. Twenty hemiplegic patients with spastic equinus foot were enrolled into the study and randomized into 2 group...
journal_title:Topics in stroke rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1310/tsr1704-318
更新日期:2010-07-01 00:00:00
abstract::Background: Neuropsychiatric symptoms are common after stroke and are distressing symptoms. They may persist after the acute event and negatively impact rehabilitation, functioning, and patients' quality of life. Objectives: To elucidate the prevalence and course of neuropsychiatric symptoms in stroke patients during ...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1871283
更新日期:2021-01-10 00:00:00
abstract:PURPOSE:Hope is said to be important in recovery from illness or injury, supporting adjustment, perseverance, and positive outcomes. There has been little exploration of hope in people after stroke. This is reflected in the literature, which lacks consistent definition and terminology. This purpose of this article is t...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr1805-490
更新日期:2011-09-01 00:00:00
abstract:BACKGROUND:Sufficient physical activity (PA) is highly recommended to improve the prognosis after stroke. However, there have been only a few studies evaluating the changes in PA level after stroke. AIMS:We aimed to identify the changes in PA level between before and after stroke, and to determine the association betw...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2020.1799292
更新日期:2020-07-29 00:00:00
abstract:OBJECTIVE:To examine the effectiveness of cardiovascular conditioning on comfortable gait speed and total distance walked when initiated in the chronic stage of stroke through a meta-analysis. METHODS:MEDLINE, CINAHL, EMBASE, and Scopus databases were searched from 1980 to June 2012. A study was selected if (1) it was...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析
doi:10.1310/tsr1906-463
更新日期:2012-11-01 00:00:00
abstract::Good end-of-life care requires that clinicians, families, and ethicists be aware of biases that influence patient cases, particularly in the acute care setting where the aim is primarily cure and return to optimal functional level. Persons with disabilities may pose unique challenges; their potential for quality of li...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr1304-54
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:The clinical functional evaluation is the usual method for dysphagia screening in patients with acute stroke. This study compared two methods of evaluation--with liquid and semisolid viscosities. METHOD:Twenty-six patients with stroke onset within 7 days--with a mean age of 63.5 +/- 12.4 years--were prospect...
journal_title:Topics in stroke rehabilitation
pub_type: 临床试验,杂志文章
doi:10.1310/tsr1504-378
更新日期:2008-07-01 00:00:00
abstract::This article provides the rehabilitation team with some tips concerning how to maximize their chances for successful communication with individuals who have aphasia. These ideas can be applied across the range of settings in which health care is provided. The notions described here can increase the effectiveness of in...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.1996.11754090
更新日期:1996-01-01 00:00:00
abstract::Background Somatosensory stimulation may have a positive impact on recovery of motor function by maintaining cortical representation of the hand and acting to prime the motor system for movement. Objective Determine the efficacy of somatosensory stimulation on upper limb motor function after stroke. Methods Five elect...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.1080/10749357.2017.1389054
更新日期:2018-03-01 00:00:00
abstract::There is no "magic bullet" in rehabilitation. In the absence of direct neural transplants, neurological rehabilitation is an arduous process. We have pioneered the clinical application of robotics in stroke rehabilitation and have shown evidence of the positive impact of targeted exercise on stroke recovery. In this a...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/6177-QDJJ-56DU-0NW0
更新日期:2002-01-01 00:00:00
abstract:OBJECTIVES:In India, post-stroke outcomes are determined using functional outcome measures (FOMs), the contents of which have not been validated for their relevance to the Indian population. In this study, we aimed to evaluate the cultural validity of five frequently used stroke-specific FOMs by comparing their content...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1080/10749357.2016.1234190
更新日期:2017-04-01 00:00:00
abstract::Screening tests for memory can be administered more quickly than standard tests of memory. They can be particularly useful with patients with acute medical illness or with the elderly who are unable to tolerate complex or lengthy memory testing, such as patients with acute stroke. However, screening measures for memor...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1310/tsr1605-321
更新日期:2009-09-01 00:00:00
abstract:BACKGROUND AND PURPOSE:Studies suggest that family caregiver well-being (ie, depressive symptoms and life satisfaction) may affect stroke survivor depressive symptoms. We used mediation analysis to assess whether caregiver well-being might be a factor explaining stroke survivor depressive symptoms, after controlling fo...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2001-44
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:This study describes current stroke care within hospital acute care settings. METHOD:Twenty-two acute care hospital sites in Central South Ontario were mailed a survey exploring the prevalence of stroke admissions, use of protocols and policies, staff resources, stroke-specific training, and available equipmen...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1405-1
更新日期:2007-09-01 00:00:00
abstract:BACKGROUND:Persons with stroke commonly have serious sequelae requiring long-term medical treatment. They often experience distress, and thus improving quality of life (QOL) has been considered a therapeutic objective in addition to prolonging the patient's life. OBJECTIVE:The aim of this study was to analyze the impa...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1310/tsr2003-226
更新日期:2013-05-01 00:00:00
abstract:BACKGROUND:The similarities or differences of the three some (physiotherapists, patients, and caregivers) thought about the process of stroke rehabilitation can play a key role in the success of rehabilitation. OBJECTIVE:The aim of this qualitative study was to investigate the perspectives of the three some, with rega...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000042
更新日期:2015-10-01 00:00:00
abstract:BACKGROUND:A gap exists between best and actual management of poststroke unilateral spatial neglect (USN). Given the negative impact of USN on poststroke recovery, knowledge translation efforts are needed to optimize USN management. To date, no study has investigated the specific barriers and facilitators affecting USN...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr2103-228
更新日期:2014-05-01 00:00:00
abstract::The privileging of the substituted judgment standard as the gold standard for surrogate decision making in law and bioethics has constrained the research agenda in end-of-life decision making. The empirical literature is inundated with a plethora of "Newlywed Game" designs, in which potential patients and potential su...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1404-80
更新日期:2007-07-01 00:00:00
abstract:UNLABELLED:As hypothermia by immersion can reduce the sensory nerve conduction velocity, this study hypothesized that the reduction of sensory input to the ipsilesional upper extremity (UE) using cryotherapy would reduce the inhibitory activity of the contralesional hemisphere in chronic stroke subjects. OBJECTIVE:In ...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1179/1074935714Z.0000000023
更新日期:2015-02-01 00:00:00
abstract::Vascular dementia (VaD) is the second most common form of dementia after Alzheimer's dementia (AD). It is characterized by loss of executive function with milder memory loss as compared with AD and is associated with cerebral brain infarction or hemorrhage. Treatment is predominantly focused on cardiovascular risk fac...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/tsr1501-22
更新日期:2008-01-01 00:00:00
abstract::Venous thromboembolism (VTE) is a common complication following acute ischemic and hemorrhagic stroke. Pulmonary embolism (PE), the most serious consequence of deep vein thrombosis (DVT), can result in significant morbidity and death. Patients with stroke are at particular risk because of limb paralysis, prolonged bed...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章,评审
doi:10.1310/54NU-U4CP-5KC8-JM9W
更新日期:2003-10-01 00:00:00
abstract::The role of narrative discourse has been increasingly recognized as crucial to all partners involved in the rehabilitation process after acquired brain injury. Particularly within the family, narrative offers an experiential space for meaning-making. To better understand this joint meaning-making process, a narrative-...
journal_title:Topics in stroke rehabilitation
pub_type: 杂志文章
doi:10.1310/tsr1801-47
更新日期:2011-01-01 00:00:00