Abstract:
OBJECTIVES:To identify the shared research priorities of patients, caregivers and multidisciplinary renal health and social care professionals across Wales for integrated renal health and social care in Wales. DESIGN:Research priority setting exercise adapted from the James Lind Alliance national priority setting partnership framework in UK healthcare. SETTING:Two workshops: one in North Wales with patients, caregivers and multidisciplinary renal health and social care professionals and one in South Wales with the Welsh Renal Clinical Network (commissioners of renal services in Wales). Additional input provided from stakeholders via email correspondence and face to face communications. PARTICIPANTS:Academics n=14, patients n=16, family/carers n=6, multidisciplinary renal healthcare professionals n=40, local authority councils n=3, renal charities n=6 wider third sector organisations n=8, renal industries n=4, Welsh government social care n=3, renal service commissioners n=8. RESULTS:38 research priority questions grouped into 10 themes were agreed. The themes included: (1) integrating health and social care, (2) education, (3) acute kidney injury, (4) chronic kidney disease and cardiovascular disease, (5) transplantation, (6) dialysis, (7) personalised medicines, (8) cross-cutting priorities, (9) specific social contexts and (10) transitional services and children. Research questions were broad and covered a range of health and social care topics. Patient and professional perspectives broadly overlapped. Research priority setting activities revealed gaps in knowledge in overall service provision and potential areas for service improvement. CONCLUSIONS:Mapping priorities in health services and social care highlighted the research needed to support renal health services delivery and commissioning in Wales.
journal_name
BMJ Openjournal_title
BMJ openauthors
Mc Laughlin L,Spence S,Noyes Jdoi
10.1136/bmjopen-2020-036872subject
Has Abstractpub_date
2020-09-01 00:00:00pages
e036872issue
9issn
2044-6055pii
bmjopen-2020-036872journal_volume
10pub_type
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