Abstract:
BACKGROUND:The benefits of electronic patient reported outcomes (PRO) questionnaires have been demonstrated in many settings, including in hospitals and patient homes. However, it remains to be investigated how melanoma patients and their treating clinicians experience the electronic self-reporting of side effects and the derived communication. OBJECTIVE:The primary objective of this study was to examine patients' and clinicians' experiences with an eHealth intervention for weekly monitoring of side effects during treatment with immunotherapy. METHODS:An eHealth intervention based on questions from the PRO-Common Terminology Criteria for Adverse Events (CTCAE) library was used and tested in a randomized clinical trial with patients receiving immunotherapy for malignant melanoma and clinicians at a university hospital in Denmark. On a weekly basis, patients reported their symptoms from home during the treatment via a provided tablet. The electronic patient reports were available to clinicians in the outpatient clinic. A mixed methods approach was applied to investigate the patients' and clinicians' experiences with the intervention. Data from patient experiences were collected in a short survey, the Patient Feedback Form. Moreover, a subset of the patients participating in the survey was interviewed about their experience. Furthermore, one focus group interview with clinicians was carried out to elucidate their views. RESULTS:A total of 57 patients completed the Patient Feedback Form, and 14 patients were interviewed. The focus group interview included 5 clinicians. Overall, patients and clinicians were satisfied with the tool. They believed it enhanced patients' awareness of side effects and increased their feeling of involvement. The patients reported that it was easy to fill out the questionnaire and that it made sense to do so. However, a minority of the patients expressed in the interviews that they did not believe that the health care professionals had seen their reports when they came to the clinic, and that the reporting did not lead to increased contact with the department. CONCLUSIONS:Overall, satisfaction with the eHealth intervention was high among patients and their treating clinicians. The tool was easy to use and contributed to greater symptom awareness and patient involvement. Thus, in terms of patient and clinician satisfaction with the tool, it makes sense to continue using the tool beyond the project period. TRIAL REGISTRATION:ClinicalTrials.gov NCT03073031; https://tinyurl.com/tjx3gtu.
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Tolstrup LK,Pappot H,Bastholt L,Zwisler AD,Dieperink KBdoi
10.2196/14896subject
Has Abstractpub_date
2020-04-09 00:00:00pages
e14896issue
4eissn
1439-4456issn
1438-8871pii
v22i4e14896journal_volume
22pub_type
杂志文章abstract:BACKGROUND:The Internet offers diverse opportunities for disease management, through information websites (Health 1.0) and interactive applications such as peer support forums, online consults, and insight into electronic medical records (Health 2.0). However, various skills are required to benefit from Health 1.0 and ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2428
更新日期:2013-02-11 00:00:00
abstract:BACKGROUND:There is a growing body of evidence regarding eHealth interventions that target substance use disorders. Development and funding decisions in this area have been challenging, due to a lack of understanding of what parts of an intervention work in which context. OBJECTIVE:We conducted a realist review of the...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/20557
更新日期:2021-01-21 00:00:00
abstract:BACKGROUND:Conversational assistants, such as Siri, Alexa, and Google Assistant, are ubiquitous and are beginning to be used as portals for medical services. However, the potential safety issues of using conversational assistants for medical information by patients and consumers are not understood. OBJECTIVE:To determ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/11510
更新日期:2018-09-04 00:00:00
abstract:BACKGROUND:Serious gaming could support patients in learning to cope with chronic pain or functional somatic syndromes and reduce symptom burdens. OBJECTIVE:To realize this potential, insight is needed into how, why, for whom, and when it works in actual treatment circumstances. METHODS:Following a realist approach, ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/14766
更新日期:2020-03-09 00:00:00
abstract:BACKGROUND:The police attend numerous domestic violence events each year, recording details of these events as both structured (coded) data and unstructured free-text narratives. Abuse types (including physical, psychological, emotional, and financial) conducted by persons of interest (POIs) along with any injuries sus...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/13067
更新日期:2019-03-12 00:00:00
abstract:BACKGROUND:The contents of traditional communication media and new internet social media reflect the interests of society. However, certain barriers and a lack of attention towards mental disorders have been previously observed. OBJECTIVE:The objective of this study is to measure the relevance of influential American ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9582
更新日期:2018-05-28 00:00:00
abstract:BACKGROUND:Attending to the wide range of communication behaviors that convey empathy is an important but often underemphasized concept to reduce errors in care, improve patient satisfaction, and improve cancer patient outcomes. A virtual human (VH)-based simulation, MPathic-VR, was developed to train health care provi...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15459
更新日期:2019-11-27 00:00:00
abstract:BACKGROUND:Web-based technology has recently become an important source for sharing health information with patients after an acute cardiac event. Therefore, consideration of patients' perceived electronic health (eHealth) literacy skills is crucial for improving the delivery of patient-centered health information. OB...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/17312
更新日期:2020-07-28 00:00:00
abstract::The recent global outbreak of SARS (severe acute respiratory syndrome) provides an opportunity to study the use and impact of public health informatics and population health technology to detect and fight a global epidemic. Population health technology is the umbrella term for technology applications that have a popul...
journal_title:Journal of medical Internet research
pub_type: 社论
doi:10.2196/jmir.5.2.e14
更新日期:2003-04-01 00:00:00
abstract:BACKGROUND:eHealth is widely used as a tool for improving health care delivery and information. However, distinct policies and strategies are required for its proper implementation and integration at national and international levels. OBJECTIVE:To determine the scope of policy issues faced by individuals, institutions...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.1633
更新日期:2012-02-17 00:00:00
abstract:BACKGROUND:Massive open online courses (MOOCs), as originally conceived, promised to provide educational access to anyone with an internet connection. However, the expansiveness of MOOC education has been found to be somewhat limited. Nonetheless, leading universities continue to offer MOOCs, including many in the heal...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/17318
更新日期:2020-07-08 00:00:00
abstract:BACKGROUND:Self-management plays an important role in maintaining good control of diabetes mellitus, and mobile phone interventions have been shown to improve such self-management. The Health Promotion Board of Singapore has created a caloric-monitoring mobile health app, the "interactive Diet and Activity Tracker" (iD...
journal_title:Journal of medical Internet research
pub_type: 临床试验,杂志文章
doi:10.2196/jmir.3938
更新日期:2015-02-03 00:00:00
abstract::The Internet is commonly used to provide treatment information to patients diagnosed with cancer. Notably missing from the existing websites is information on the cost of cancer care in terms of medical costs to the patient and work-related consequences. The purpose of this paper is to describe what is known about the...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.7.3.e29
更新日期:2005-07-01 00:00:00
abstract:BACKGROUND:Psychosocial problems such as depression, anxiety, and substance abuse are common and burdensome in young people. In New Zealand, screening for such problems is undertaken routinely only with year 9 students in low-decile schools and opportunistically in pediatric settings using a nonvalidated and time-consu...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/13911
更新日期:2019-12-03 00:00:00
abstract::The use of Facebook groups by health care researchers and professionals for chronic disease management, namely type 2 diabetes mellitus and coronary heart disease, is in its early stages and challenges are emerging. While Facebook groups offer great potential to deliver health support, research of Facebook groups for ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.7558
更新日期:2018-01-17 00:00:00
abstract:BACKGROUND:The literature indicates that Web-based health information seeking is mostly used for seeking information on well-established diseases. However, only a few studies report health information seeking in the absence of a doctor's visit and in the context of acute symptoms. OBJECTIVE:This survey aimed to estima...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15148
更新日期:2020-01-10 00:00:00
abstract:BACKGROUND:Advance care planning is the process of discussing health care treatment preferences based on patients' personal values, and it often involves the completion of advance directives. In the first months of 2020, a novel coronavirus, severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), began circulatin...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/21385
更新日期:2020-08-11 00:00:00
abstract:BACKGROUND:Local and organic foods have shown increased importance and market size in recent years. However, attitudes, sentiment, and habits related to such foods in the context of video social networks have not been thoroughly researched. Given that such media have become some of the most important venues of internet...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16761
更新日期:2020-08-10 00:00:00
abstract:BACKGROUND:Mobile apps are an evolving trend in the medical field. To date, few apps in an oncological context exist. OBJECTIVE:The aim was to analyze the attitude of health care professionals (HCPs) toward telemedicine, mHealth, and mobile apps in the field of oncology. METHODS:We developed and conducted an online s...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.6399
更新日期:2016-11-24 00:00:00
abstract::The ongoing coronavirus disease outbreak demonstrates the need for novel applications of real-time data to produce timely information about incident cases. Using health information technology (HIT) and real-world data, we sought to produce an interface that could, in near real time, identify patients presenting with s...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/18707
更新日期:2020-05-28 00:00:00
abstract:BACKGROUND:Self-reported medical history information is included in many studies. However, data on the validity of Web-based questionnaires assessing medical history are scarce. If proven to be valid, Web-based questionnaires may provide researchers with an efficient means to collect data on this parameter in large pop...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.3847
更新日期:2015-06-16 00:00:00
abstract:BACKGROUND:Provision of online evidence at the point of care is one strategy that could provide clinicians with easy access to up-to-date evidence in clinical settings in order to support evidence-based decision making. OBJECTIVE:The aim was to determine long-term use of an online evidence system in routine clinical p...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.974
更新日期:2008-03-19 00:00:00
abstract:BACKGROUND:A majority of adolescents report the use of some form of social media, and many prefer to communicate via social networking sites. Social media may offer new opportunities in diabetes management, particularly in terms of how health care teams provide tailored support and treatment to adolescents with diabete...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12149
更新日期:2019-05-30 00:00:00
abstract:BACKGROUND:Data coordination across multiple health care facilities has become increasingly important for many emerging health care applications. Distrust has been recognized as a key barrier to the success of such applications. Leveraging blockchain technology could provide potential solutions tobuild trust between da...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19029
更新日期:2020-07-27 00:00:00
abstract:BACKGROUND:As breast cancer survival rates improve and structural health resources are increasingly being stretched, health providers require people living with and beyond breast cancer (LwBBC) to self-manage aspects of their care. OBJECTIVE:This study aimed to explore how women use and experience social media to self...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16902
更新日期:2020-05-25 00:00:00
abstract:BACKGROUND:Advance care planning allows patients to articulate their future care preferences should they no longer be able to make decisions on their own. Early advance care planning in outpatient settings provides benefits such as less aggressive care and fewer hospitalizations, yet it is underutilized due to barriers...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9203
更新日期:2018-06-26 00:00:00
abstract:BACKGROUND:Nowadays, digital self-tracking devices offer a plethora of possibilities to both healthy and chronically ill users who want to closely examine their body. This study suggests that self-tracking in a private setting will lead to shifting understandings in professional care. To provide more insight into these...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.8040
更新日期:2018-01-12 00:00:00
abstract:BACKGROUND:Mental disorders are highly prevalent for the people who are aged between 16 and 25 years and can permanently disrupt the development of these individuals. Easily available mobile health (mHealth) apps for mobile phones have great potential for the prevention and early intervention of mental disorders in you...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.6775
更新日期:2017-05-12 00:00:00
abstract:BACKGROUND:Many patients with eating disorders do not receive help for their symptoms, even though these disorders have severe morbidity. The Internet may offer alternative low-threshold treatment interventions. OBJECTIVE:This study evaluated the effects of a Web-based cognitive behavioral therapy (CBT) intervention u...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.3946
更新日期:2015-06-18 00:00:00
abstract:BACKGROUND:Artificial intelligence (AI) and the Internet of Intelligent Things (IIoT) are promising technologies to prevent the concerningly rapid spread of coronavirus disease (COVID-19) and to maximize safety during the pandemic. With the exponential increase in the number of COVID-19 patients, it is highly possible ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/19104
更新日期:2020-08-10 00:00:00