Measurement of health-related and oral health-related quality of life among individuals with nonsyndromic orofacial clefts: a systematic review and meta-analysis.

Abstract:

:Objective : To compare health-related quality of life and oral health-related quality of life between nonsyndromic individuals with and without cleft lip and/or cleft palate and to identify the most affected quality of life dimensions in individuals with cleft lip and/or palate. Design : Systematic review and meta-analysis were conducted. Of the 314 identified citations, 23 articles were submitted to quality assessment. Data from nine studies on health-related quality of life and six on oral health-related quality of life were extracted for meta-analysis. Main Outcome Measures : Pooled mean differences of health-related quality of life between adults with and without cleft lip and/or palate, pooled means of health-related quality of life dimensions of children and adults with cleft lip and/or palate and oral health-related quality of life dimensions of children and adolescents with cleft lip and/or palate with a 95% confidence interval were calculated. Results : Quality assessment revealed methodological differences between studies. Lack of subgroup stratification and absence of control for confounders were the main limitations. Heterogeneity was detected on the comparison of oral health-related quality of life and health-related quality of life between children with and without cleft lip and/or palate, and oral health-related quality of life between adolescents with and without cleft lip and/or palate. A random-effect model showed a significant difference on health-related quality of life between adults with and without cleft lip and/or palate (mean difference = 0.10; 95% confidence interval, 0.16 to 0.05). Psychological health (mean, 78.9; 95% confidence interval, 70.1 to 87.7) and vitality (mean, 68.1; 95% confidence interval, 48.0 to 88.1) were the most affected health-related quality of life dimensions in children and adults with cleft lip and/or palate, respectively. Means of health-related quality of life dimensions in children and adults with cleft lip and/or palate and oral health-related quality of life in children and adolescents with cleft lip and/or palate varied yet did not differ in indirect comparisons. Conclusion : The presence of cleft lip and/or palate negatively affected the health-related quality of life of adults, mainly on psychosocial dimensions.

authors

Queiroz Herkrath AP,Herkrath FJ,Rebelo MA,Vettore MV

doi

10.1597/13-104

subject

Has Abstract

pub_date

2015-03-01 00:00:00

pages

157-72

issue

2

eissn

1055-6656

issn

1545-1569

journal_volume

52

pub_type

杂志文章,meta分析,评审
  • Development of a microportable imaging system for otoscopy and nasoendoscopy evaluations.

    abstract:OBJECTIVE:Imaging systems for patients with cleft palate typically are not portable, but are essential to obtain an audiovisual record of nasoendoscopy and otoscopy procedures. Practitioners who evaluate patients in rural, remote, or otherwise medically underserved areas are expected to obtain audiovisual recordings of...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-063.1

    authors: VanLue M,Cox KM,Wade JM,Tapp K,Linville R,Cosmato C,Smith T

    更新日期:2007-03-01 00:00:00

  • The Trend of Cleft Care at a Children's Referral Center in Thailand.

    abstract:OBJECTIVE:To investigate the trend in cleft care at a major children's referral center in Bangkok, Thailand. STUDY DESIGN:Retrospective chart review. PATIENTS AND METHODS:A review of 129 patients under 18 years of age who had underwent care by the senior author for cleft treatment between January 2015 and October 201...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665620922103

    authors: Setabutr D,Sathavornmanee T,Jitpakdee P,Nudchawong S,Krergmatukorn P

    更新日期:2020-09-01 00:00:00

  • Atypical Facial Clefts From Northcentral Nigeria, Review of 36 Cases.

    abstract:OBJECTIVE:This study aims to present the pattern and management of atypical facial clefts from a Nigerian population. DESIGN:This is a retrospective study of patients seen during series of surgical outreach programs in North Central Nigeria, between 2011 and 2017. All cases of atypical facial clefts encountered were e...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665618790884

    authors: Bello SA,Ibikari AB,Oketade I,Balogun SA

    更新日期:2019-04-01 00:00:00

  • Histological evaluation of autogenous iliac particulate cancellous bone and marrow grafted to alveolar clefts--a preliminary report of five young adult cases.

    abstract:OBJECTIVE:We histologically evaluated iliac particulate cancellous bone and marrow (PCBM) grafted to alveolar clefts in five young adults with cleft lip and palate. PATIENTS AND METHODS:Five young adults with cleft lip and palate underwent secondary alveolar bone grafting. The mean age of the patients was 21.2 years (...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2000_037_0055_heoaip_2.3.co_2

    authors: Iino M,Ishii H,Sato J,Seto K

    更新日期:2000-01-01 00:00:00

  • Sleep disturbances in 22q11.2 deletion syndrome: a case with obstructive and central sleep apnea.

    abstract::The 22q11.2 deletion syndrome is characterized by wide phenotypic variability, frequently involving characteristic craniofacial features, cardiac malformations, and learning difficulties. Skeletal anomalies are also common and include an obtuse angle of the cranial base, retrognathia, and cervical spine abnormalities....

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-196

    authors: Heike CL,Avellino AM,Mirza SK,Kifle Y,Perkins J,Sze R,Egbert M,Hing AV

    更新日期:2007-05-01 00:00:00

  • Children's Attitudes Toward Peers With Unintelligible Speech Associated With Cleft Lip and/or Palate.

    abstract:OBJECTIVE:The objective of this study was to investigate whether reduced speech intelligibility in children with cleft palate affects social and personal attribute judgments made by typically developing children of different ages. DESIGN:The study (1) measured the correlation between intelligibility scores of speech s...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-088

    authors: Lee A,Gibbon FE,Spivey K

    更新日期:2017-05-01 00:00:00

  • Placement of endosseous implants in grafted alveolar clefts.

    abstract:OBJECTIVE:The purpose of this study was to determine the optimal timing for placement and to evaluate short- and long-term outcomes of endosseous implants in bone-grafted alveolar clefts. DESIGN:Fourteen patients who underwent alveolar cleft bone grafting (ACBG) and closure of an oronasal fistula followed by restorati...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1997_034_0520_poeiig_2.3.co_2

    authors: Kearns G,Perrott DH,Sharma A,Kaban LB,Vargervik K

    更新日期:1997-11-01 00:00:00

  • Le Fort III Distraction With Internal vs External Distractors: A Cephalometric Analysis.

    abstract:OBJECTIVE:This study compares the change in midface position following Le Fort III advancement using either rigid external distraction (group 1) or internal distraction (group 2). We hypothesized that, with reference to right-facing cephalometry, internal distraction would result in increased clockwise rotation and inf...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617754460

    authors: Robertson KJ,Mendez BM,Bruce WJ,McDonnell BD,Chiodo MV,Patel PA

    更新日期:2018-05-01 00:00:00

  • Orthognathic Correction in Prader-Willi Syndrome: Occlusion and Sleep Restored.

    abstract::Children with Prader-Willi Syndrome (PWS) may present with a malocclusion and have a high propensity of developing obstructive sleep apnea (OSA). Obstructive sleep apnea is associated with short- and long-term adverse effects that negatively impact children with PWS. A case of a 15-year-old male with PWS, OSA, and a d...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665618775724

    authors: Xiao KK,Tomur S,Beckerman R,Cassidy K,Lypka M

    更新日期:2019-03-01 00:00:00

  • Pierre Robin sequence in Denmark: a retrospective population-based epidemiological study.

    abstract:OBJECTIVE:To give an epidemiological description of the clinical entity given the name Pierre Robin sequence, defined by retro- and micrognathia, cleft palate, and respiratory distress and describe other malformations and possible intrauterine impairment. METHODS:Using the inclusion criteria of micrognathia, cleft pal...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/02-055

    authors: Printzlau A,Andersen M

    更新日期:2004-01-01 00:00:00

  • Rigid external distraction osteogenesis for a patient with maxillary hypoplasia and oligodontia.

    abstract:OBJECTIVE:In this report, the orthodontic treatment combined with rigid external distraction osteogenesis in a 5.5-year-old girl with midfacial hypoplasia and oligodontia is described. PATIENT:The child presented with a reduced maxilla, protruding lower lip, skeletal Class III jaw relationship with a low mandibular pl...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2003_040_0207_redofa_2.0.co_2

    authors: Kitai N,Kawasaki K,Yasuda Y,Kogo M,Murakami S,Kreiborg S,Takada K

    更新日期:2003-03-01 00:00:00

  • Coping with a cleft II: Factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents.

    abstract:OBJECTIVE:TO explore the factors that predict psychosocial adjustment in young people with a cleft and their parents. DESIGN, PARTICIPANTS, SETTING: The study used a cross-sectional postal questionnaire design involving young people aged between 11 and 16 and their parents from two cleft services. Data are presented fo...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/08-094

    authors: Berger ZE,Dalton LJ

    更新日期:2011-01-01 00:00:00

  • About a "New" Technique for Uvular Repair.

    abstract::This letter is about a recent publication in the Cleft Palate Craniofacial Journal titled: "The significance of uvula after palatoplasty: A new technique to improve the aesthetic outcome" published by Elsherbiny et al (Cleft Palate Craniofacial J 2018;55(3):451-455). The authors present the use of one hemi-uvula for u...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 评论,信件

    doi:10.1177/1055665619893902

    authors: Rossell-Perry P

    更新日期:2020-05-01 00:00:00

  • Mothers' Reactions to Seeing Their Children With Cleft for the First Time: A Qualitative Study in Ghana.

    abstract:OBJECTIVE:Studies on the etiology, treatment, and psychosocial effects of clefts among children born with the condition abound. Limited studies, however, have focused on the mothers of these children. This study aimed to explore the immediate reaction of mothers to seeing their children born with a cleft for the first ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665620965407

    authors: Dapaah JM,Addo B,Effe JP

    更新日期:2020-10-16 00:00:00

  • Timing of Furlow Palatoplasty for Patients With Submucous Cleft Palate.

    abstract:BACKGROUND:Submucous cleft palate (SMCP) is the most common form of cleft involving the posterior palate, resulting in variable degrees of velar dysfunction and speech disturbance. Although early surgical intervention is indicated for patients with true cleft palate, the indications for palatoplasty and timing of surgi...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617726989

    authors: Ettinger RE,Kung TA,Wombacher N,Berger M,Newman MH,Buchman SR,Kasten SJ

    更新日期:2018-03-01 00:00:00

  • The frequency of palatal anomalies in Saethre-Chotzen syndrome.

    abstract:OBJECTIVE:Saethre-Chotzen Syndrome (SCS) is an autosomal dominant disorder with widespread phenotypic variability. Cardinal features include coronal synostosis, blepharoptosis, and limb abnormalities. Cleft palate can also occur, but there are few reports on its frequency. This study was undertaken to determine the pre...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/08-088.1

    authors: Stoler JM,Rogers GF,Mulliken JB

    更新日期:2009-05-01 00:00:00

  • A new scale to assess radiographic success of secondary alveolar bone grafts.

    abstract:OBJECTIVES:To propose a new scale for evaluating the position of the bone graft within the cleft and assess its inter- and intraobserver reliability. DESIGN:Sixty-six patients (70 cleft sites) over a 14-year period were assessed, 90% of patients retrospectively and 10% prospectively. The radiographs were reviewed by t...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2002_039_0255_anstar_2.0.co_2

    authors: Witherow H,Cox S,Jones E,Carr R,Waterhouse N

    更新日期:2002-05-01 00:00:00

  • Global strategies to reduce the health care burden of craniofacial anomalies: report of WHO meetings on international collaborative research on craniofacial anomalies.

    abstract::Although several significant research projects have arisen from international cooperation, especially in the field of genetics, these have been the exception rather than the rule. However, those of us who had the privilege and delight of participating in the World Health Organization meetings were struck by a common r...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 共识发展会议,杂志文章,评审

    doi:10.1597/03-214.1

    authors:

    更新日期:2004-05-01 00:00:00

  • A restricted test of single-word intelligibility in 3-year-old children with and without cleft palate.

    abstract:OBJECTIVE:In a previous study, children with cleft palate with hard palate closure at 12 months of age showed more typical phonological development than did children with an unrepaired hard palate at 36 months of age. This finding was based on narrow transcription of word initial target consonants obtained from a simpl...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/10-141

    authors: Willadsen E,Poulsen M

    更新日期:2012-05-01 00:00:00

  • Early maxillary orthopedics in a child with an oblique facial cleft.

    abstract:OBJECTIVE:Oblique facial clefts are extremely rare. In view of their variability, surgical treatment cannot be standardized. To date, early maxillary orthopedics in the treatment of oblique facial clefts have not been reported. The case described here presents a newborn child with a Tessier 3 cleft. Because of the enor...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1997_034_0147_emoiac_2.3.co_2

    authors: Stellzig A,Basdra EK,Mühling J,Komposch G

    更新日期:1997-03-01 00:00:00

  • Use of the Sphenoid Flap in Repair of the Wide Cleft Palate.

    abstract:OBJECTIVE:In wide palatal defects, closure of the nasal layer can prove a considerable challenge. Mobilizing nasal flaps posteriorly usually facilitates soft palate closure. However, the defect is often too wide within the hard palate; hence, bilateral vomerine flaps are frequently required. Despite this, there is ofte...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,多中心研究

    doi:10.1177/1055665617732781

    authors: Khan K,Hardwicke J,Seselgyte R,Morris P,Thorburn G,Kangesu L,Swan MC,Richard B

    更新日期:2018-03-01 00:00:00

  • Premaxillary osteotomy and guided tissue regeneration in secondary bone grafting in children with bilateral cleft lip and palate.

    abstract:OBJECTIVE:To introduce a surgical technique for secondary alveolar bone grafting performed in conjunction with premaxillary osteotomy and guided tissue regeneration in children with bilateral clefts. This paper also looks at the outcomes of this surgery in a series of 15 consecutive patients. METHODS:Secondary alveola...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/06-032.1

    authors: Scott JK,Webb RM,Flood TR

    更新日期:2007-09-01 00:00:00

  • A novel nonoperative technique in the initial management and treatment of congenital microstomia.

    abstract::Congenital microstomia in the newborn can result in poor functional and aesthetic outcomes. In the past, treatment options have included surgical methods such as commissurotomies and z-plasties as well as nonsurgical treatments using oral splints. In severe microstomia, a surgical release may be required to permit spl...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/10-114

    authors: Rezak KM,Bouvier A,Olack B,Larumbe JC,Stelnicki E

    更新日期:2012-05-01 00:00:00

  • Effects of subglottal air pressure on velopharyngeal muscle activity in dogs.

    abstract:OBJECTIVE:To analyze the effects of airflow in the larynx on activity of the levator veli palatini and pterygopharyngeal muscles. DESIGN:Ten adult beagle dogs were anesthetized with sodium pentobarbital. In each dog, two tracheal tubes were inserted subsequent to tracheotomy, one in the direction of the vocal folds an...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2003_040_0351_eosapo_2.0.co_2

    authors: Kogo M,Iida S,Senoo H,Ishii S,Hamaguchi M,Enomoto A,Matsuya T

    更新日期:2003-07-01 00:00:00

  • The genetic basis of the Pierre Robin Sequence.

    abstract:OBJECTIVE:The Pierre Robin Sequence (PRS) is subgroup of the cleft palate population. As with the etiology of cleft lip or palate, the etiology of PRS is generally unknown. Some factors are suggestive of a genetic basis for PRS. The purpose of this study was to compare genetic information on PRS available in the litera...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/05-008.1

    authors: Jakobsen LP,Knudsen MA,Lespinasse J,García Ayuso C,Ramos C,Fryns JP,Bugge M,Tommerup N

    更新日期:2006-03-01 00:00:00

  • The Use of Acellular Dermal Matrix in Combination With Pedicled Buccal Fat Pad in Wide Cleft Palate Repair: A Case Report and Literature Review.

    abstract::We describe a case of the combined use of acellular dermal matrix and pedicled buccal fat pad (BFP) in a wide U-shaped cleft palate repair. Acellular dermal matrix was used as a "patch" repair for the nasal mucosa defect as opposed to the conventional inlay graft. The advantages include reduced cost and a smaller avas...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1177/1055665619851915

    authors: Goh BKL,Chia HL

    更新日期:2019-11-01 00:00:00

  • Early consonant production in Swedish infants with and without unilateral cleft lip and palate and two-stage palatal repair.

    abstract:OBJECTIVE:To investigate consonant production at 12 and 18 months of age following early soft palate repair in infants with unilateral cleft lip and palate (UCLP), and to compare it with typically developing children without clefts. DESIGN:Randomized study with comparison group. PARTICIPANTS:Twenty Swedish infants bo...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,随机对照试验

    doi:10.1597/09-105

    authors: Lohmander A,Olsson M,Flynn T

    更新日期:2011-05-01 00:00:00

  • Parent questionnaire for screening early language development in children with cleft palate.

    abstract::This study investigated the efficacy of a parent questionnaire as a component for screening early language development of children 16 to 30 months of age with cleft lip and palate. Thirty nonsyndromic children with cleft lip and palate and 30 children without clefts received the MacArthur Communicative Development Inv...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1995_032_0007_pqfsel_2.3.co_2

    authors: Scherer NJ,D'Antonio LL

    更新日期:1995-01-01 00:00:00

  • Economy of Hand Motion During Cleft Palate Surgery Using a High-Fidelity Cleft Palate Simulator.

    abstract:OBJECTIVE:The objectives of this study were to assess economy of hand motion of residents, fellows, and staff surgeons using a high-fidelity cleft palate simulator to (1) stratify performance for the purpose of simulator validation and (2) to estimate the learning curve. DESIGN:Two residents, 2 fellows, and 2 staff su...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665618793768

    authors: Ghanem A,Podolsky DJ,Fisher DM,Wong Riff KW,Myers S,Drake JM,Forrest CR

    更新日期:2019-04-01 00:00:00

  • Sutureless skin closure for cleft lip repair.

    abstract:OBJECTIVE:To study the quality of scars following the use of butyl cyanoacrylate to close the skin during cleft lip repair. DESIGN:Nonrandomized prospective study. SETTING:Tertiary care hospital. PATIENTS:Patients (n = 104) with cleft lip and palate in combination of various degrees of cleft with the age group rangi...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-171

    authors: Mourougayan V

    更新日期:2006-11-01 00:00:00