Health related quality of life assessment in Pakistani paediatric cancer patients using PedsQL™ 4.0 generic core scale and PedsQL™ cancer module.

abstract：BACKGROUND:Worldwide, disaster exposure and consequences are rising. Disaster risk in New Zealand is amplified by island geography, isolation, and ubiquitous natural hazards. Wellington, the capital city, has vital needs for evacuation preparedness and resilience to the devastating impacts and increasing uncertainties ...

journal_title：Health and quality of life outcomes

authors： Gowan ME,Kirk RC,Sloan JA

更新日期：2014-06-09 00:00:00

abstract：OBJECTIVE:Seasonal changes in mood and behavior are common in a general population, being of relevance to public health. We wanted to analyze whether the HRQoL is associated with the seasonal changes in mood and behavior. Because the shortage of exposure to daylight or artificial bright light has been linked to the occ...

journal_title：Health and quality of life outcomes

authors： Grimaldi S,Partonen T,Saarni SI,Aromaa A,Lönnqvist J

更新日期：2008-08-01 00:00:00

abstract：BACKGROUND AND OBJECTIVES:Nephrotic syndrome (NS) represents a common disease in pediatric nephrology typified by a relapsing and remitting course and characterized by the presence of edema that can significantly affect the health-related quality of life in children and adolescents. The PROMIS pediatric measures were c...

journal_title：Health and quality of life outcomes

authors： Gipson DS,Selewski DT,Massengill SF,Wickman L,Messer KL,Herreshoff E,Bowers C,Ferris ME,Mahan JD,Greenbaum LA,MacHardy J,Kapur G,Chand DH,Goebel J,Barletta GM,Geary D,Kershaw DB,Pan CG,Gbadegesin R,Hidalgo G,Lane

更新日期：2013-03-04 00:00:00

abstract：BACKGROUND:The Japanese Osteoporosis Quality of Life (JOQOL) questionnaire measures quality of life in Japanese patients with osteoporosis. However, several important aspects of the psychometric properties of individual domains, including responsiveness, have not been addressed to enable valid clinical application. Thi...

journal_title：Health and quality of life outcomes

authors： Urushihara H,Yoh K,Hamaya E,Taketsuna M,Tanaka K

更新日期：2014-12-12 00:00:00

abstract：BACKGROUND:Limited data define what constitutes a minimal clinically important difference (MCID) on the EuroQol 5-Dimension (EQ-5D) health status index in persons with multiple sclerosis (PwMS). We sought to estimate the MCID for the EQ-5D health index in North American PwMS. METHODS:PwMS completing the Patient Determ...

journal_title：Health and quality of life outcomes

authors： Kohn CG,Sidovar MF,Kaur K,Zhu Y,Coleman CI

更新日期：2014-05-05 00:00:00

abstract：BACKGROUND:Given the postulated advantages of mother generated index (MGI) in incorporating the patients' viewpoint and in the absence of a validated India specific postpartum quality of life assessment tool we proposed to evaluate the utility of an adapted Mother-Generated-Index in assessing postpartum quality of life...

journal_title：Health and quality of life outcomes

authors： Nagpal J,Dhar RS,Sinha S,Bhargava V,Sachdeva A,Bhartia A

更新日期：2008-12-02 00:00:00

abstract：BACKGROUND:Symptoms of heartburn has an impact on health-related quality of life (HRQL). When a questionnaire is translated into a new language, a linguistic validation is necessary but not sufficient unless the psychometric characteristics have been verified. The aim is to document the psychometric characteristics of ...

journal_title：Health and quality of life outcomes

authors： Kulich KR,Malfertheiner P,Madisch A,Labenz J,Bayerdörffer E,Miehlke S,Carlsson J,Wiklund IK

更新日期：2003-10-28 00:00:00

abstract：BACKGROUND:The Quality of Life after Brain Injury (QOLIBRI) score was developed to assess disease-specific health-related quality of life (HRQoL) after traumatic brain injury (TBI). So far, validation studies on the QOLIBRI were only conducted in cohorts with traumatic brain injury. This study investigated the longer-t...

journal_title：Health and quality of life outcomes

authors： Born K,Amsler F,Gross T

更新日期：2018-07-09 00:00:00

abstract：BACKGROUND:Health-related quality of life (HRQoL) was found to improve in participants of weight management interventions. However, information on moderately overweight youth as well as on maintaining HRQoL improvements following treatment is sparse. We studied the HRQoL of 74 overweight, but not obese participants (32...

journal_title：Health and quality of life outcomes

authors： Finne E,Reinehr T,Schaefer A,Winkel K,Kolip P

更新日期：2013-01-02 00:00:00

abstract：BACKGROUND:Studies that compare health-related quality of life (HRQOL) and other patient-reported outcomes in different populations rest on the assumption that the measure has equivalent psychometric properties across groups. This study examined the measurement equivalence (ME) of the 36-item Medical Outcomes Study Sho...

journal_title：Health and quality of life outcomes

authors： Lix LM,Acan Osman B,Adachi JD,Towheed T,Hopman W,Davison KS,Leslie WD

更新日期：2012-03-13 00:00:00

abstract：BACKGROUND:Previous pediatric studies have observed a cross-informant variance in patient self-reported health-related quality of life (HRQoL) versus parent proxy-reported HRQoL. This study assessed in older children and adolescents with a variety of chronic pain conditions: 1) the consistency and agreement between ped...

journal_title：Health and quality of life outcomes

authors： Vetter TR,Bridgewater CL,McGwin G Jr

更新日期：2012-07-23 00:00:00

abstract：BACKGROUND:Assessment of health-related quality of life (HRQoL) are often measured as an important patient-reported outcome (PRO) in clinical studies. Pulmonary arterial hypertension (PAH) is a common complication of atrial septal defect (ASD). This study aimed to compare the HRQoL of PAH related uncorrected secundum A...

journal_title：Health and quality of life outcomes

authors： Hidayati F,Gharini PPR,Hartopo AB,Anggrahini DW,Dinarti LK

更新日期：2020-08-14 00:00:00

abstract：BACKGROUND:The resilience to face disease is a process of positive adaptation despite the loss of health. It involves developing vitality and skills to overcome the negative effects of adversity, risks, and vulnerability caused by disease. In Mexico, the Mexican Resilience Measurement Scale (RESI-M) has been validated ...

journal_title：Health and quality of life outcomes

authors： Toledano-Toledano F,Moral de la Rubia J,McCubbin LD,Liebenberg L,Vera Jiménez JA,Rivera-Rivera L,Hart A,Barajas Nava LA,Salazar García M,Martínez Valverde S,Rivera Aragón S,Sánchez Gómez C,Villavicencio Guzmán L,Granados García

更新日期：2017-12-13 00:00:00

abstract：BACKGROUND:The National Research Council (CNR) prostate cancer monitoring project in Italy (Pros-IT CNR) is an observational, prospective, ongoing, multicentre study aiming to monitor a sample of Italian males diagnosed as new cases of prostate cancer. The present study aims to present data on the quality of life at ti...

journal_title：Health and quality of life outcomes

authors： Porreca A,Noale M,Artibani W,Bassi PF,Bertoni F,Bracarda S,Conti GN,Corvò R,Gacci M,Graziotti P,Magrini SM,Mirone V,Montironi R,Muto G,Pecoraro S,Ricardi U,Russi E,Tubaro A,Zagonel V,Crepaldi G,Maggi S,Pros-IT C

更新日期：2018-06-13 00:00:00

abstract：:With the growth of patient-reported outcome (PRO) measurement, questions arise regarding how copyright protection applies to PRO instruments in general and to their translations in particular. The main objectives of this reflection paper are: 1) to help authors of PRO instruments understand basic rules of intellectual...

journal_title：Health and quality of life outcomes

authors： Anfray C,Arnold B,Martin M,Eremenco S,Patrick DL,Conway K,Acquadro C,ISOQOL Translation and Cultural Special Interest Group (TCA-SIG).

更新日期：2018-12-05 00:00:00

abstract：BACKGROUND:Spanish is one of the five most spoken languages in the world. There is currently no published Spanish version of the Örebro Musculoskeletal Pain Questionnaire (OMPQ). The aim of the present study is to describe the process of translating the OMPQ into Spanish and to perform an analysis of reliability, inter...

journal_title：Health and quality of life outcomes

authors： Cuesta-Vargas AI,González-Sánchez M

更新日期：2014-10-29 00:00:00

abstract：BACKGROUND:This study aims to identify factors associated with health related quality of life (HRQOL) through a comprehensive analysis of sociodemographic and clinical variables among a representative sample size of renal transplant recipients (RTR) in France. METHODS:A cross-sectional multicenter study was carried ou...

journal_title：Health and quality of life outcomes

authors： Gentile S,Beauger D,Speyer E,Jouve E,Dussol B,Jacquelinet C,Briançon S

更新日期：2013-05-30 00:00:00

abstract：BACKGROUND:Chronic fatigue syndrome (CFS) is a debilitating condition of unknown etiology and no definitive pharmacotherapy. Patients are usually prescribed symptomatic treatment or self-medicate. We evaluated prescription and non-prescription drug use among persons with CFS in Georgia and compared it to that in non-fa...

journal_title：Health and quality of life outcomes

authors： Boneva RS,Lin JM,Maloney EM,Jones JF,Reeves WC

更新日期：2009-07-20 00:00:00

abstract：BACKGROUND:Quality of life (QoL) and health-related quality of life (HRQoL) measurement in low and middle-income countries of people with cerebral palsy (CP), the major cause of childhood physical disability, is essential to assess the impact of interventions and inform policies that best improve people's lives. The pu...

journal_title：Health and quality of life outcomes

authors： Power R,Akhter R,Muhit M,Wadud S,Heanoy E,Karim T,Badawi N,Khandaker G

更新日期：2019-08-02 00:00:00

abstract：BACKGROUND:Previous quality of life (QoL) literature in bladder cancer (BC) patients has focused on finding the preferred urinary diversion while little is known about the QoL of patients in medical oncological treatment (MOT). We performed a systematic review to assess the existing literature on QoL in patients with m...

journal_title：Health and quality of life outcomes

authors： Taarnhøj GA,Johansen C,Pappot H

更新日期：2019-01-22 00:00:00

abstract：BACKGROUND:Dyspnea is frequent in amyotrophic lateral sclerosis (ALS) and one of the most bothersome symptoms. The recently developed Dyspnea-ALS-Scale (DALS-15) is a disease-specific patient-reported outcome to detect and quantify dyspnea. OBJECTIVES:To analyze in a case-based approach the diagnostic and clinical imp...

journal_title：Health and quality of life outcomes

authors： Vogt S,Schreiber S,Heinze HJ,Dengler R,Petri S,Vielhaber S

更新日期：2019-06-03 00:00:00

abstract：BACKGROUND:Measuring quality of life (QOL) in a population is important for the predictions of health and social care needs. In Pakistan, health related quality of life data exist but there are no quality of life data of general population. In this study, quality of life was assessed among the Pakistani general populat...

journal_title：Health and quality of life outcomes

authors： Lodhi FS,Montazeri A,Nedjat S,Mahmoodi M,Farooq U,Yaseri M,Kasaeian A,Holakouie-Naieni K

更新日期：2019-01-14 00:00:00

abstract：BACKGROUND:Although elderly Iranian immigrants in Sweden are the largest elderly group born outside Europe, little is known about their health-related quality of life (HRQL). The aim of this study was to examine the association between migration status and HRQL in a comparison of elderly Iranians in Iran, elderly Irani...

journal_title：Health and quality of life outcomes

authors： Koochek A,Montazeri A,Johansson SE,Sundquist J

更新日期：2007-11-23 00:00:00

abstract：:A sizable body of research has now examined the complex relationship between quality of life (QoL) and depressive disorder. Uptake of QoL research in relation to bipolar disorder (BD) has been comparatively slow, although increasing numbers of QoL studies are now being conducted in bipolar populations. We aimed to per...

journal_title：Health and quality of life outcomes

authors： Michalak EE,Yatham LN,Lam RW

更新日期：2005-11-15 00:00:00

abstract：BACKGROUND:Although multiple language versions of health-related quality of life instruments are often used interchangeably in clinical research, the measurement equivalence of these versions (especially using alphabet vs pictogram-based languages) has rarely been assessed. We therefore investigated the measurement equ...

journal_title：Health and quality of life outcomes

authors： Luo N,Chew LH,Fong KY,Koh DR,Ng SC,Yoon KH,Vasoo S,Li SC,Thumboo J

更新日期：2003-04-17 00:00:00

abstract：BACKGROUND:To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether t...

journal_title：Health and quality of life outcomes

authors： Sulaiman SK,Aldersey HM,DePaul VG,Kaka B

更新日期：2020-09-21 00:00:00

abstract：BACKGROUND:The Pain Catastrophizing Scale (PCS) is a widely used self-report tool to evaluate pain related catastrophizing. The PCS was developed using classical test theory and has been shown to be psychometrically sound among various populations. However, it's current three subscales are rarely used in clinical pract...

journal_title：Health and quality of life outcomes

authors： Walton DM,Mehta S,Seo W,MacDermid JC

更新日期：2020-05-07 00:00:00

abstract：BACKGROUND:This study examined sex-specific differences in physical health-related quality of life (HRQoL) across subgroups of metabolic health and obesity. We specifically asked whether (1) obesity is related to lower HRQoL independent of metabolic health status and potential confounders, and (2) whether associations ...

journal_title：Health and quality of life outcomes

authors： Truthmann J,Mensink GBM,Bosy-Westphal A,Hapke U,Scheidt-Nave C,Schienkiewitz A

更新日期：2017-06-10 00:00:00

abstract：BACKGROUND:The Musculoskeletal Health Questionnaire (MSK-HQ) has been developed to measure musculoskeletal health status across musculoskeletal conditions and settings. However, the MSK-HQ needs to be further evaluated across settings and different languages. OBJECTIVE:The objective of the study was to evaluate and co...

journal_title：Health and quality of life outcomes

authors： Christiansen DH,McCray G,Winding TN,Andersen JH,Nielsen KJ,Karstens S,Hill JC

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:Residential youth care (RYC) institutions aim to provide care and stability for vulnerable adolescents with several previous and present challenges, such as disrupted attachments, wide-ranging adverse childhood experiences, mental health problems, and poor quality of life (QoL). To the best of our knowledge,...

journal_title：Health and quality of life outcomes

authors： Singstad MT,Wallander JL,Greger HK,Lydersen S,Kayed NS

更新日期：2021-01-22 00:00:00