Monitoring validated quality of life outcomes after prostatectomy: initial description of novel online questionnaire.

Abstract:

OBJECTIVES:To describe a novel, low-cost, online health-related quality of life (HRQOL) survey that allows for automated follow-up and convenient access for patients in geographically diverse locations. Clinicians and investigators have been encouraged to use validated HRQOL instruments when reporting outcomes after radical prostatectomy. METHODS:The institutional review board approved our protocol and the use of a secure web site (http://www.SurveyMonkey.com) to send patients a collection of validated postprostatectomy HRQOL instruments by electronic mail. To assess compliance with the electronic mail format, a pilot study of cross-sectional surveys was sent to patients who presented for follow-up after robotic-assisted laparoscopic prostatectomy. The response data were transmitted in secure fashion in compliance with the Health Insurance Portability and Accountability Act. RESULTS:After providing written informed consent, 514 patients who presented for follow-up after robotic-assisted laparoscopic prostatectomy from March 2010 to February 2011 were sent the online survey. A total of 293 patients (57%) responded, with an average age of 60 years and a median interval from surgery of 12 months. Of the respondents, 75% completed the survey within 4 days of receiving the electronic mail, with a median completion time of 15 minutes. The total survey administration costs were limited to the web site's $200 annual fee-for-service. CONCLUSIONS:An online survey can be a low-cost, efficient, and confidential modality for assessing validated HRQOL outcomes in patients who undergo treatment of localized prostate cancer. This method could be especially useful for those who cannot return for follow-up because of geographic reasons.

journal_name

Urology

journal_title

Urology

authors

Sebrow D,Lavery HJ,Brajtbord JS,Hobbs A,Levinson AW,Samadi DB

doi

10.1016/j.urology.2011.08.075

subject

Has Abstract

pub_date

2012-02-01 00:00:00

pages

314-9

issue

2

eissn

0090-4295

issn

1527-9995

pii

S0090-4295(11)02491-5

journal_volume

79

pub_type

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