Abstract:
BACKGROUND:There is no disease-specific instrument to assess health-related quality of life (HRQL) in patients with idiopathic pulmonary fibrosis (IPF). METHODS:Patients' perspectives were collected to develop domains and items for an IPF-specific HRQL instrument. We used item variance and Rasch analysis to construct the ATAQ-IPF (A Tool to Assess Quality of life in IPF). RESULTS:The ATAQ-IPF version 1 is composed of 74 items comprising 13 domains. All items fit the Rasch model. Domains and the total instrument possess acceptable psychometric characteristics for a multidimensional questionnaire. The pattern of correlations between ATAQ-IPF scores and physiologic variables known to be important in IPF, along with significant differences in ATAQ-IPF scores between subjects using versus those not using supplemental oxygen, support its validity. CONCLUSIONS:Patient-centered and careful statistical methodologies were used to construct the ATAQ-IPF version 1, an IPF-specific HRQL instrument. Simple summation scoring is used to derive individual domain scores as well as a total score. Results support the validity of the ATAQ-IPF, and future studies will build on that validity.
journal_name
Health Qual Life Outcomesjournal_title
Health and quality of life outcomesauthors
Swigris JJ,Wilson SR,Green KE,Sprunger DB,Brown KK,Wamboldt FSdoi
10.1186/1477-7525-8-77subject
Has Abstractpub_date
2010-07-31 00:00:00pages
77issn
1477-7525pii
1477-7525-8-77journal_volume
8pub_type
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journal_title:Health and quality of life outcomes
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journal_title:Health and quality of life outcomes
pub_type: 杂志文章
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