Abstract：
:The McMaster framework introduced by Kirshner & Guyatt is the dominant paradigm for the development of measures of health status and health-related quality of life (HRQL). The framework defines the functions of such instruments as evaluative, predictive or discriminative. Evaluative instruments are required to be sensitive to change (responsiveness), but there is no corresponding index of the degree to which discriminative instruments are sensitive to cross-sectional differences. This paper argues that indices of validity and reliability are not sufficient to demonstrate that a discriminative instrument performs its function of discriminating between individuals, and that the McMaster framework would be augmented by the addition of a separate index of discrimination. The coefficient proposed by Ferguson (Delta) is easily adapted to HRQL instruments and is a direct, non-parametric index of the degree to which an instrument distinguishes between individuals. While Delta should prove useful in the development and evaluation of discriminative instruments, further research is required to elucidate the relationship between the measurement properties of discrimination, reliability and responsiveness.
journal_name
Health Qual Life Outcomesjournal_title
Health and quality of life outcomesauthors
Hankins Mdoi
10.1186/1477-7525-6-36subject
Has Abstractpub_date
2008-05-27 00:00:00pages
36issn
1477-7525pii
1477-7525-6-36journal_volume
6pub_type
杂志文章abstract：BACKGROUND:The objectives of the study were to develop web-based Spanish and Catalan versions of the EQ-5D-Y, and to compare scores and psychometric properties with the paper version. METHODS:Web-based and paper versions of EQ-5D-Y were included in a cross-sectional study in Palafolls (Barcelona), Spain and administer...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-015-0271-z
更新日期：2015-06-03 00:00:00
abstract：BACKGROUND:The EQ-5D health-related quality of life instrument comprises a health state classification (health problems by severity in five domains), followed by an evaluation using a visual analogue scale (VAS). Despite the EQ-5D's use in health technology assessment and as a patient-reported outcome measure (PROM), t...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-11-155
更新日期：2013-09-13 00:00:00
abstract：OBJECTIVES:Fatigue is frequent in rheumatic diseases. Fatigue expression and consequences may be modified by cultural differences. Our objective was to increase the understanding of the fatigue experience and characteristics among Egyptian, Muslim patients with rheumatic diseases. METHODS:Prospective monocentric quali...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-015-0304-7
更新日期：2015-08-22 00:00:00
abstract：BACKGROUND:Mass screening could identify those with unrecognized celiac disease (CD), but the experience of being detected through screening and living with screening-detected CD should be explored before considering this as acceptable intervention. For this study we invited screening-detected adolescents to describe t...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-12-91
更新日期：2014-06-11 00:00:00
abstract：BACKGROUND:Stomach cancer survivors (SCS) often carry the dual burden of the cancer itself and other comorbidities; meanwhile, they are highly motivated to seek health advice about lifestyles to improve their health and quality of life (QOL). The associations of the comorbidity and the consumption of vegetable and frui...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-018-0886-y
更新日期：2018-04-12 00:00:00
abstract：BACKGROUND:Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings. This study aimed to develop a patient reported outcome (PRO) tool for the assessment of H...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-015-0292-7
更新日期：2015-07-01 00:00:00
abstract：BACKGROUND:Proxy respondent-someone who assists the intended respondent or responds on their behalf-are widely applied in the measurement of health-related quality of life (HRQL). However, proxies may not provide the same responses as the intended respondents, which may bias the findings. OBJECTIVES:To determine wheth...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-020-01325-z
更新日期：2020-03-18 00:00:00
abstract：BACKGROUND:Studies that compare health-related quality of life (HRQOL) and other patient-reported outcomes in different populations rest on the assumption that the measure has equivalent psychometric properties across groups. This study examined the measurement equivalence (ME) of the 36-item Medical Outcomes Study Sho...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1186/1477-7525-10-29
更新日期：2012-03-13 00:00:00
abstract：BACKGROUND:Residential youth care (RYC) institutions aim to provide care and stability for vulnerable adolescents with several previous and present challenges, such as disrupted attachments, wide-ranging adverse childhood experiences, mental health problems, and poor quality of life (QoL). To the best of our knowledge,...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-021-01676-1
更新日期：2021-01-22 00:00:00
abstract：BACKGROUND:The aim of this study was to evaluate the psychometric properties of the Brazilian version of the Oral Anticoagulation Knowledge (OAK) Test. METHODS:This study, conducted in an anticoagulation clinic, included 201 Brazilian participants aged over 18 years, who had been using warfarin for more than two month...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-016-0498-3
更新日期：2016-06-24 00:00:00
abstract：BACKGROUND:Although considerable progress has been made in the treatment of chronic kidney disease, compromised quality of life continues to be a significant problem for patients receiving hemodialysis (HD). However, in spite of the high prevalence of sleep complaints and disorders in this population, the relationship ...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-1-68
更新日期：2003-11-21 00:00:00
abstract：BACKGROUND:This exploratory study sought to establish the relationship between endometriosis-related pelvic pain, endometriosis symptom-frequency, and women's subjective wellbeing (SWB). METHODS:A purposive sample (N = 2061) of women with endometriosis aged between 18 and 62 years (M = 30.49 ± 7.45) completed an onlin...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-019-1185-y
更新日期：2019-07-16 00:00:00
abstract：BACKGROUND:Compliance, palatability, gastrointestinal (GI) symptom, and treatment satisfaction patient- and observer-reported outcome (PRO, ObsRO) measures were developed/modified for patients with transfusion-dependent anemias or myelodysplastic syndrome (MDS) requiring iron chelation therapy (ICT). METHODS:This qual...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-017-0702-0
更新日期：2017-06-23 00:00:00
abstract：BACKGROUND:NAFLD impacts patient reported outcomes (PROs). Our aim was to assess the impact of NAFLD on patients' HRQOL. METHODS:National Health and Nutrition Examination Survey (NHANES) 2001-2011 data were used to identify adult patients with NAFLD [Fatty Liver Index (FLI) > 60 in absence of other liver disease and e...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-016-0420-z
更新日期：2016-02-09 00:00:00
abstract：BACKGROUND:We investigated the relationship between Body Mass Index (BMI) and health-related quality of life (HRQOL) indicated by baseline health status in elementary school children. METHODS:Data were obtained via parents whose children enrolled in an elementary school, kindergarten to fourth grade, in southern Missi...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-6-77
更新日期：2008-10-09 00:00:00
abstract：BACKGROUND:This article describes the development and validation of a self-reported questionnaire, the KQoL-26, that is based on the views of patients with a suspected ligamentous or meniscal injury of the knee that assesses the impact of their knee problem on the quality of their lives. METHODS:Patient interviews and...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-6-48
更新日期：2008-07-10 00:00:00
abstract：BACKGROUND:The Quality Adjusted Life Year influences the allocation of significant amounts of healthcare resources. Despite this surprisingly little research effort has been devoted to analysing how beliefs and attitudes to hastening death influence preferences for health states anchored at "dead" and "perfect health"....
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-018-0985-9
更新日期：2018-07-31 00:00:00
abstract：BACKGROUND:Parents often experience stress-related complications when their child requires blood and marrow transplant (BMT). Previous studies have described the emotional toll BMT places on parents during the acute phase of care and within the context of clinical complications. In this paper we introduce the Parent Im...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-015-0240-6
更新日期：2015-04-09 00:00:00
abstract：BACKGROUND:This study was conducted to examine the association between ideal cardiovascular health (CVH) and health-related quality of life and health status indicators. METHODS:This cross-sectional study included adult NHANES participants from 2001 to 2010 without CVD (N = 7115). CVH was defined according to AHA defi...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-015-0352-z
更新日期：2015-09-22 00:00:00
abstract：BACKGROUND:The World Health Organization Disability Assessment Schedule (WHODAS-2.0) has been adapted and validated in several cultures, but data on performance in the African context are lacking. The aim of the study was to evaluate the validity and psychometric properties of the WHODAS-2.0 among people with severe me...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-017-0647-3
更新日期：2017-04-05 00:00:00
abstract：BACKGROUND:Incorporating family-centered care principles into childhood obesity interventions is integral for improved clinical decision making, better follow-through, and more effective communication that leads to better outcomes and greater satisfaction with services. The purpose of this study is to evaluate the psyc...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章,随机对照试验
doi：10.1186/s12955-020-01431-y
更新日期：2020-06-11 00:00:00
abstract：BACKGROUND:Patient self reported measures for Health Related Quality of Life (HRQOL) and mental distress are frequently used to evaluate outcome of therapeutic strategies in cardiac patients.Our study aims to describe changes in HRQOL and mental distress after percutaneous coronary intervention (PCI) focusing on tempor...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-11-144
更新日期：2013-08-27 00:00:00
abstract：BACKGROUND:Given the postulated advantages of mother generated index (MGI) in incorporating the patients' viewpoint and in the absence of a validated India specific postpartum quality of life assessment tool we proposed to evaluate the utility of an adapted Mother-Generated-Index in assessing postpartum quality of life...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-6-107
更新日期：2008-12-02 00:00:00
abstract：BACKGROUND:While there are many published studies on HIV and functional limitations, there are few in the context of early abuse and its impact on functionality and Quality of Life (QoL) in HIV. METHODS:The present study focused on HIV in the context of childhood trauma and its impact on functionality and Quality of L...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-9-84
更新日期：2011-09-30 00:00:00
abstract：BACKGROUND:There is limited data examining the association between cardiorespiratory fitness (CRF) and health related quality of life (HRQOL) in healthy young adults. We examined the association between CRF and the HRQOL Physical Component Summary (PCS) and Mental Component Summary (MCS) scores in apparently healthy ma...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-7-47
更新日期：2009-05-28 00:00:00
abstract：BACKGROUND:Along with rapid economic development, the aging process in China is gradually accelerating. The living conditions of empty-nest rural elderly are worrisome. As a more vulnerable group, empty-nest elderly are facing more urgent health problems. This study explores the health-related quality of life (HRQOL) o...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-12-59
更新日期：2014-04-25 00:00:00
abstract：BACKGROUND:The aim of the present study was to identify the physical fitness (PF) tests of a multi-component battery more related to the perception of problems in each dimension of the health-related quality of life (HRQoL) assessed by the EuroQol 5 dimensions 3 level questionnaire (EQ-5D-3L) in community-dwelling midd...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/1477-7525-9-117
更新日期：2011-12-22 00:00:00
abstract：BACKGROUND:Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address this need, the Adult Si...
journal_title：Health and quality of life outcomes
pub_type： 临床试验,杂志文章
doi：10.1186/s12955-014-0125-0
更新日期：2014-08-22 00:00:00
abstract：BACKGROUND:We previously reported that changes of 6-17 percent in the EORTC QLQ-C30 scores are regarded important by patients with multiple myeloma and thus may be considered as Minimal Important Differences (MIDs). However, patients' internal standard of measurement may have changed over time (response shift, RS). In ...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章,随机对照试验
doi：10.1186/1477-7525-8-79
更新日期：2010-08-03 00:00:00
abstract：BACKGROUND:Versions of the Health Assessment Questionnaire (HAQ) are commonly used to measure physical functioning across multiple rheumatic diseases but there has been no clear demonstration that any HAQ version is actually generic. This study aimed to show that the HAQ-II instrument is invariant across different rheu...
journal_title：Health and quality of life outcomes
pub_type： 杂志文章
doi：10.1186/s12955-018-0939-2
更新日期：2018-05-30 00:00:00
