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Outcomes That Define Successful Advance Care Planning: A Delphi Panel Consensus.

Abstract：

CONTEXT:Standardized outcomes that define successful advance care planning (ACP) are lacking. OBJECTIVE:The objective of this study was to create an Organizing Framework of ACP outcome constructs and rate the importance of these outcomes. METHODS:This study convened a Delphi panel consisting of 52 multidisciplinary, international ACP experts including clinicians, researchers, and policy leaders from four countries. We conducted literature reviews and solicited attendee input from five international ACP conferences to identify initial ACP outcome constructs. In five Delphi rounds, we asked panelists to rate patient-centered outcomes on a seven-point "not-at-all" to "extremely important" scale. We calculated means and analyzed panelists' input to finalize an Organizing Framework and outcome rankings. RESULTS:Organizing Framework outcome domains included process (e.g., attitudes), actions (e.g., discussions), quality of care (e.g., satisfaction), and health care (e.g., utilization). The top five outcomes included 1) care consistent with goals, mean 6.71 (±SD 0.04); 2) surrogate designation, 6.55 (0.45); 3) surrogate documentation, 6.50 (0.11); 4) discussions with surrogates, 6.40 (0.19); and 5) documents and recorded wishes are accessible when needed 6.27 (0.11). Advance directive documentation was ranked 10th, 6.01 (0.21). Panelists raised caution about whether "care consistent with goals" can be reliably measured. CONCLUSION:A large, multidisciplinary Delphi panel developed an Organizing Framework and rated the importance of ACP outcome constructs. Top rated outcomes should be used to evaluate the success of ACP initiatives. More research is needed to create reliable and valid measurement tools for the highest rated outcomes, particularly "care consistent with goals."

journal_name

J Pain Symptom Manage

journal_title

Journal of pain and symptom management

authors

Sudore RL,Heyland DK,Lum HD,Rietjens JAC,Korfage IJ,Ritchie CS,Hanson LC,Meier DE,Pantilat SZ,Lorenz K,Howard M,Green MJ,Simon JE,Feuz MA,You JJ

doi

10.1016/j.jpainsymman.2017.08.025

subject

Has Abstract

pub_date

2018-02-01 00:00:00

pages

245-255.e8

issue

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(17)30431-1

journal_volume

pub_type

共识发展会议,杂志文章

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Outcomes That Define Successful Advance Care Planning: A Delphi Panel Consensus.