Interprofessional Silence at the End of Life: Do Swiss General Practitioners and Hospital Physicians Sufficiently Share Information About Their Patients?

Abstract:

BACKGROUND:Empirical research suggests that the quality of patient care at the end of life (EOL) is influenced by the effectiveness of the collaboration between the general practitioners (GPs) and hospital physicians (HPs). AIM:To identify possible difficulties and barriers to effective collaboration at the EOL between GPs and HPs from the perspective of Swiss GPs. DESIGN:Twenty-three qualitative semi-structured interviews with GPs were transcribed and analyzed using Mayring's content analysis. Interdisciplinary clinical-ethical analysis focused on the quality of GP and HP professional collaboration. RESULTS:GPs described the quality of collaboration with HPs as poor, in particular the lack of communication. There were two main issues to emerge. First, infrequent communication with HPs could negatively affect the care of the patient. Second, GPs were concerned with the lack of information about hospital care and involvement in medical decision making given their longstanding relationships with their patients. CONCLUSIONS:The research showed that Swiss GPs were concerned with the quality of their patients' EOL care and the current level of GP/HP collaboration. GPs appealed for greater involvement with EOL care decisions based on their relationship of care and knowledge of patient preferences. These findings require further critical evaluation to explore the potential advantages for patient care. Existing evidence suggests that there are measurable health benefits from successful GP/HP collaborations. A change in the way GPs maintain involvement with their patients during hospitalizations would be warranted if it resulted in a better use of resources, better patient experiences, and better health outcomes.

journal_name

J Palliat Med

authors

Otte IC,Jung C,Bally K,Elger BS,Schildmann J

doi

10.1089/jpm.2015.0377

subject

Has Abstract

pub_date

2016-09-01 00:00:00

pages

983-6

issue

9

eissn

1096-6218

issn

1557-7740

journal_volume

19

pub_type

杂志文章
  • Who enrolls in observational end of life research? Report from the cultural variations in approaches to end of life study.

    abstract:BACKGROUND:Response bias in end of life research is important though not well understood. OBJECTIVES:To compare consenting advanced cancer patient participants and refusers in observational end of life research. We hypothesized that, compared with refusers, consenters would: 1) have a stronger belief in personal gain ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2005.8.115

    authors: Phipps E,Harris D,Braitman LE,Tester W,Madison-Thompson N,True G

    更新日期:2005-02-01 00:00:00

  • Factors Associated with Family Reports of Pain, Dyspnea, and Depression in the Last Year of Life.

    abstract:BACKGROUND:Pain, dyspnea, and depression are highly troubling near the end of life. OBJECTIVE:To characterize factors associated with clinically significant pain and the presence of dyspnea and depression during the last year of life in a nationally representative sample. DESIGN:Retrospective cohort study. SETTING:H...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2015.0391

    authors: Singer AE,Meeker D,Teno JM,Lynn J,Lunney JR,Lorenz KA

    更新日期:2016-10-01 00:00:00

  • Using Nurse Care Managers Trained in the Serious Illness Conversation Guide to Increase Goals-of-Care Conversations in an Accountable Care Organization.

    abstract:: Background: Community-dwelling adults with serious illness benefit from conversations about their goals for care. Objective: We undertook a project to increase the number of serious illness conversations occurring in an account...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2019.0110

    authors: Lally K,Tuya Fulton A,Ducharme C,Scott R,Filpo J

    更新日期:2020-01-01 00:00:00

  • Identifying Connectional Silence in Palliative Care Consultations: A Tandem Machine-Learning and Human Coding Method.

    abstract:: Background: Systematic measurement of conversational features in the natural clinical setting is essential to better understand, disseminate, and incentivize high quality serious illness communication. Advances in machine-learning (ML) classification of human speech offer ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2018.0270

    authors: Durieux BN,Gramling CJ,Manukyan V,Eppstein MJ,Rizzo DM,Ross LM,Ryan AG,Niland MA,Clarfeld LA,Alexander SC,Gramling R

    更新日期:2018-12-01 00:00:00

  • Palliative Volume Resuscitation in a Patient with Cancer and Hypercalcemia: Why Bother?

    abstract::Hypercalcemia of malignancy affects 2%-2.8% of cancer patients and is associated with an increased risk of mortality and other symptom-related complications. Standard treatment consists of fluid resuscitation, intravenous bisphosphonates, and calcitonin. Little is known, however, about the benefits of treatment of mal...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2019.0343

    authors: Ferraro K,Sanchez-Reilly S

    更新日期:2020-06-01 00:00:00

  • Communication strategies and cultural issues in the delivery of bad news.

    abstract::Good communication is a fundamental skill for all palliative care clinicians. Patients present with varied desires, beliefs, and cultural practices, and navigating these issues presents clinicians with unique challenges. This article provides an overview of the evidence for communication strategies in delivering bad n...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1089/jpm.2007.9929

    authors: Barclay JS,Blackhall LJ,Tulsky JA

    更新日期:2007-08-01 00:00:00

  • Young caregivers in the end-of-life setting: a population-based profile of an emerging group.

    abstract:PURPOSE:Little is known about young caregivers of people with advanced life-limiting illness. Better understanding of the needs and characteristics of these young caregivers can inform development of palliative care and other support services. METHODS:A population-based analysis of caregivers was performed from pilote...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2010.0004

    authors: Burns CM,LeBlanc TW,Abernethy A,Currow D

    更新日期:2010-10-01 00:00:00

  • Percutaneous cervical cordotomy for the management of pain from cancer: a prospective review of 45 cases.

    abstract:BACKGROUND:Percutaneous cervical cordotomy (PCC) is a well recognized but infrequently performed procedure for the relief of unilateral intractable pain from malignancy. There is a paucity of data regarding efficacy and safety of PCC. OBJECTIVES:The study's objectives were to demonstrate the efficacy and safety of PCC...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0027

    authors: Bain E,Hugel H,Sharma M

    更新日期:2013-08-01 00:00:00

  • External validation of the number of risk factors score in a palliative care outpatient clinic at a comprehensive cancer center.

    abstract:BACKGROUND:Prognostic tools are available to predict if terminally ill cancer patients have days or weeks to live. Tools for predicting the prognosis in ambulatory patients at an earlier stage are lacking. The Number of Risk Factors (NRF) score developed in ambulatory cancer patients receiving palliative radiation ther...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0256

    authors: Glare P,Shariff I,Thaler HT

    更新日期:2014-07-01 00:00:00

  • A Chinese version of the Spiritual Needs Assessment for patients survey instrument.

    abstract:CONTEXT:Unmet spiritual needs have been associated with decreased patient ratings of quality of care, satisfaction, and quality of life. Few instruments exist to measure spiritual needs particularly among non-English speaking patients in the U.S. OBJECTIVE:To develop an internally consistent and reliable Chinese versi...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2012.0131

    authors: Astrow AB,Sharma RK,Huang Y,Xu Y,Sulmasy DP

    更新日期:2012-12-01 00:00:00

  • Association between Receipt of Emotional Support and Caregivers' Overall Hospice Rating.

    abstract:: Background: A major goal of hospice care is to provide individually tailored emotional and spiritual support to caregivers of hospice patients. Objectives: Examine the association between reported emotional support and caregive...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2020.0324

    authors: Parast L,Elliott MN,Haas A,Teno J,Bradley M,Weech-Maldonado R,Anhang Price R

    更新日期:2020-10-06 00:00:00

  • Fundamentals of education: "Edu-Mentals".

    abstract::As new accreditation standards for health professions education increasingly require end-of-life (EOL) curriculum and performance-based assessment, health professions educators struggle to shift through the educational literature to find core principles, practical strategies, emerging trends, and on-line resources to ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/109662101750290263

    authors: Simpson DE,Biernat K

    更新日期:2001-07-01 00:00:00

  • The Use of Dexmedetomidine in Pediatric Palliative Care: A Preliminary Study.

    abstract:OBJECTIVE:To evaluate the effect of dexmedetomidine infusions in patients with advanced malignancies, advanced heart disease, or after stem cell transplantation (SCT), who during end-of-life care had pain and/or agitation unresponsive to conventional therapies. BACKGROUND:Pediatric patients with intractable advanced m...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2016.0419

    authors: Burns J,Jackson K,Sheehy KA,Finkel JC,Quezado ZM

    更新日期:2017-07-01 00:00:00

  • Documento de Posición Oficial sobre la Promoción Global de Cuidados Paliativos: Recomendaciones del Grupo Internacional Asesor PAL-LIFE de la Academia Pontificia de la Vida, Ciudad del Vaticano.

    abstract::Resumen Contexto: La Academia Pontificia de la Vida (PAV) es una institución académica de la Santa Sede (Vaticano) cuyo objetivo es promover una visión católica de la ética biomédica. La PAV invitó a una serie de expertos en Cuidados Paliativos (CP) de todo el mundo, de todas las creencias, a desarrollar recomendacion...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2018.0387

    authors: Centeno C,Sitte T,de Lima L,Alsirafy S,Bruera E,Callaway M,Foley K,Luyirika E,Mosoiu D,Pettus K,Puchalski C,Rajagopal MR,Yong J,Garralda E,Rhee JY,Comoretto N

    更新日期:2018-10-01 00:00:00

  • Outpatient palliative care for chronic obstructive pulmonary disease: a case series.

    abstract:BACKGROUND:Patients with chronic obstructive pulmonary disease (COPD) have well-documented symptoms that affect quality of life. Professional societies recommend palliative care for such patients, but the optimal way of delivering this care is unknown. OBJECTIVE:To describe an outpatient palliative medicine program fo...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0669

    authors: Schroedl C,Yount S,Szmuilowicz E,Rosenberg SR,Kalhan R

    更新日期:2014-11-01 00:00:00

  • Why the Interdisciplinary Team Approach Works: Insights from Complexity Science.

    abstract:BACKGROUND:Although an interdisciplinary approach is considered best practice for caring for patients at the end of life, or in need of palliative care (PC) services, there is growing tension between healthcare organizations' need to contain costs and the provision of this beneficial, yet resource-intensive service. O...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2015.0398

    authors: Ciemins EL,Brant J,Kersten D,Mullette E,Dickerson D

    更新日期:2016-07-01 00:00:00

  • Fostering Existential Maturity to Manage Terror in a Pandemic.

    abstract:: Background: The COVID-19 pandemic has created an environment in which existence is more fragile and existential fears or terror rises in people. Objective: Managing existential terror calls for being mature about mortality, som...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2020.0263

    authors: Emanuel L,Solomon S,Fitchett G,Chochinov H,Handzo G,Schoppee T,Wilkie D

    更新日期:2020-06-17 00:00:00

  • Provision of Services in Perinatal Palliative Care: A Multicenter Survey in the United States.

    abstract:BACKGROUND:Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy affected by a life-limiting diagnosis. OBJECTIVE:To examine characteristics...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,多中心研究

    doi:10.1089/jpm.2015.0266

    authors: Wool C,Côté-Arsenault D,Perry Black B,Denney-Koelsch E,Kim S,Kavanaugh K

    更新日期:2016-03-01 00:00:00

  • Role of acupressure in symptom management in patients with end-stage renal disease: a systematic review.

    abstract:BACKGROUND:Acupressure is a widely used adjunct for various symptoms in patients with nonchronic kidney disease. However, its role for symptom management in end-stage renal disease (ESRD) populations is not clear. OBJECTIVE:To summarize and critically evaluate the evidence available from randomized clinical trials (RC...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1089/jpm.2009.0363

    authors: Kim KH,Lee MS,Kang KW,Choi SM

    更新日期:2010-07-01 00:00:00

  • Concurrent Hospice Care and Cancer-Directed Treatment for Advanced Lung Cancer and Receipt of Aggressive Care at the End of Life in the Veteran's Health Administration.

    abstract:: Background: Aggressive care at the end of life (EOL) is a persistent issue for patients with stage IV nonsmall cell lung cancer (NSCLC). We evaluated the use of concurrent care (CC) with hospice care and cancer-directed treatment simultaneously within the Veteran's Health ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2019.0485

    authors: Presley CJ,Han L,O'Leary JR,Zhu W,Corneau E,Chao H,Shamas T,Rose M,Lorenz K,Levy CR,Mor V,Gross CP

    更新日期:2020-08-01 00:00:00

  • Single-Center Experience Providing Palliative Care to Pediatric Patients with End-Stage Renal Disease.

    abstract:BACKGROUND:End-stage renal disease (ESRD) affects nearly 1400 new children each year in the United States. Morbidity and mortality rates remain high for pediatric patients with ESRD, including those that have received a renal transplant. OBJECTIVE:To better understand ESRD patients referred to palliative care, includi...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2016.0353

    authors: Keefer P,Lehmann K,Shanley M,Woloszyk T,Khang E,Luckritz K,Saul D

    更新日期:2017-08-01 00:00:00

  • Development and Validation of a Set of Palliative Medicine Entrustable Professional Activities: Findings from a Mixed Methods Study.

    abstract:BACKGROUND:Entrustable professional activities (EPAs) are routine tasks considered essential to a professional practice. An EPA can serve as a performance-based outcome that a clinical supervisor would progressively entrust a learner to perform. OBJECTIVE:Our aim was to identify, develop, and validate a set of EPAs fo...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2014.0392

    authors: Myers J,Krueger P,Webster F,Downar J,Herx L,Jeney C,Oneschuk D,Schroder C,Sirianni G,Seccareccia D,Tucker T,Taniguchi A

    更新日期:2015-08-01 00:00:00

  • Prediction of pediatric death in the year after hospitalization: a population-level retrospective cohort study.

    abstract:BACKGROUND:The study of how the quality of pediatric end-of-life care varies across systems of health care delivery and financing is hampered by lack of methods to adjust for the probability of death in populations of ill children. OBJECTIVE:To develop a prognostication models using administratively available data to ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2008.0206

    authors: Feudtner C,Hexem KR,Shabbout M,Feinstein JA,Sochalski J,Silber JH

    更新日期:2009-02-01 00:00:00

  • Enhancing communication for end-of-life care: an electronic advance directive process.

    abstract::An advance directive, a description of one's future preferences for medical treatment, must be easily available to care providers to ensure that one's treatment preferences are honored. The transition of our health care system to an electronic medical record complicated the availability of a patient's written advance ...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/109662103322144880

    authors: Bricker LJ,Lambing A,Markey C

    更新日期:2003-06-01 00:00:00

  • Detecting attitudinal changes about death and dying as a result of end-of-life care curricula for medical undergraduates.

    abstract:BACKGROUND:There is heightened emphasis on teaching end-of-life (EOL) care in the medical school curriculum, but a relative paucity of tools focused on assessing key attitudinal changes due to curricula. OBJECTIVE:We sought to evaluate the responsiveness of two validated measures of relevant attitudes to changes cause...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2005.8.975

    authors: Schwartz CE,Clive DM,Mazor KM,Ma Y,Reed G,Clay M

    更新日期:2005-10-01 00:00:00

  • Evaluation of spiritual needs of patients with advanced cancer in a palliative care unit.

    abstract:INTRODUCTION:Spiritual needs play an important role in palliative care as both a clinical dimension and a therapeutic strategy. However, recent studies have shown that the management of this dimension still remains a challenge at the clinical level of palliative care. GOALS:Our goal was to evaluate the spiritual needs...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0569

    authors: Vilalta A,Valls J,Porta J,Viñas J

    更新日期:2014-05-01 00:00:00

  • Men as caregivers at the end of life.

    abstract:BACKGROUND:Few studies have focused on men as caregivers at the end-of-life. The objective of this secondary data analysis was to examine the experiences of men involved in end-of-life caregiving, focusing on caregiver strain. METHODS:We used a random sample of Oregon death certificates to telephone survey family care...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2005.8.1167

    authors: Fromme EK,Drach LL,Tolle SW,Ebert P,Miller P,Perrin N,Tilden VP

    更新日期:2005-12-01 00:00:00

  • Interprofessional communication skills training for serious illness: evaluation of a small-group, simulated patient intervention.

    abstract:BACKGROUND:Communication with patients and families is an essential component of high-quality care in serious illness. Small-group skills training can result in new communication behaviors, but past studies have used facilitators with extensive experience, raising concerns this is not scalable. OBJECTIVE:The objective...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2013.0318

    authors: Bays AM,Engelberg RA,Back AL,Ford DW,Downey L,Shannon SE,Doorenbos AZ,Edlund B,Christianson P,Arnold RW,O'Connor K,Kross EK,Reinke LF,Cecere Feemster L,Fryer-Edwards K,Alexander SC,Tulsky JA,Curtis JR

    更新日期:2014-02-01 00:00:00

  • The Edmonton Classification System for Cancer Pain: comparison of pain classification features and pain intensity across diverse palliative care settings in eight countries.

    abstract:BACKGROUND:Standardized approaches for assessing and classifying cancer pain are required to improve treatment of patients with complex pain profiles. The Edmonton Classification System for Cancer Pain (ECS-CP) offers a starting point for the evolution of a standardized international classification system for cancer pa...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章,多中心研究

    doi:10.1089/jpm.2012.0390

    authors: Nekolaichuk CL,Fainsinger RL,Aass N,Hjermstad MJ,Knudsen AK,Klepstad P,Currow DC,Kaasa S,European Palliative Care Research Collaborative (EPCRC).

    更新日期:2013-05-01 00:00:00

  • Impact of Inpatient Palliative Care on Quality of End-of-Life Care and Downstream Acute and Postacute Care Utilization.

    abstract:BACKGROUND:Additional evidence is needed regarding the impact of inpatient palliative care (IPC) on the quality of end-of-life care and downstream utilization. AIM:Examine the effects of IPC on quality of end-of-life care and acute and postacute care use in a large integrated system. DESIGN:Retrospective cohort desig...

    journal_title:Journal of palliative medicine

    pub_type: 杂志文章

    doi:10.1089/jpm.2017.0275

    authors: Khang PS,Wang SE,Liu IA,Watson HL,Koyama SY,Huynh DN,Lee JS,Nguyen HQ

    更新日期:2018-07-01 00:00:00