Young caregivers in the end-of-life setting: a population-based profile of an emerging group.

abstract：INTRODUCTION:Most medical schools are remiss in preparing physicians in end-of-life communication skills. As a result, many residents are uncomfortable with approaching the patient, have not developed the skills required to discuss the patients' wishes, and avoid end-of-life conversations. OBJECTIVE:To evaluate an edu...

journal_title：Journal of palliative medicine

authors： Furman CD,Head B,Lazor B,Casper B,Ritchie CS

更新日期：2006-08-01 00:00:00

abstract：:This is a retrospective study of the length of survival (LOS) in hospice of patients with cancer treated at a major cancer center compared to other treatment sites. Of 670 patients, the 185 (28%) treated at a major cancer center had unique characteristics, including higher median Palliative Performance Score (PPS) at ...

journal_title：Journal of palliative medicine

authors： Younis T,Milch R,Abul-Khoudoud N,Lawrence D,Mirand A,Levine EG

更新日期：2007-04-01 00:00:00

abstract：:The treatment of suffering is now recognized as an essential component of medical care. By referring to this treatment as "palliative care," however, we diminish its importance. In this essay, we propose a shift in our conception of the treatment of suffering and advocate for the use of a new term: "palliative treatme...

journal_title：Journal of palliative medicine

authors： Kon AA,Ablin AR

更新日期：2010-06-01 00:00:00

abstract：BACKGROUND:Comprehensive information on end-of-life care in specialized palliative care settings is needed to assess the quality of care. OBJECTIVE:This study aimed to investigate medical treatments in the last two weeks of life in a national sample of palliative care units in Japan. DESIGN:Retrospective cohort study...

journal_title：Journal of palliative medicine

authors： Sato K,Miyashita M,Morita T,Tsuneto S,Shima Y

更新日期：2016-11-01 00:00:00

abstract：:Although the widespread implementation of hospice in the United States has led to tremendous advances in the care of the dying, there has been no widely accepted psychological theory to drive needs assessment and intervention design for the patient and family. The humanistic psychology of Abraham Maslow, especially hi...

journal_title：Journal of palliative medicine

authors： Zalenski RJ,Raspa R

更新日期：2006-10-01 00:00:00

abstract：: Background: This study examines communication profiles and associated attitudes toward health care professionals in interviews with family caregivers of hospitalized patients with confirmed multidrug-resistant organisms (e.g., methicillin-resistant Staphylococcus aureus or...

journal_title：Journal of palliative medicine

authors： Peters J,Dykes N,Heckel M,Ostgathe C

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:The evidence base to support palliative care clinical practice is inadequate and opportunities to improve the palliative care evidence base remain despite the field's rapid growth. OBJECTIVE:To examine current NIH funding of palliative medicine research, changes since our 2013 report, and trends since our 2...

journal_title：Journal of palliative medicine

authors： Brown E,Morrison RS,Gelfman LP

更新日期：2018-02-01 00:00:00

abstract：: Background: Despite positive outcomes associated with specialist palliative care (PC) in diverse medical populations, little research has investigated specialist PC in surgical ones. Although cancer surgery is predominantly safe, operations can be extensive and unpredictab...

journal_title：Journal of palliative medicine

authors： Aslakson RA,Chandrashekaran SV,Rickerson E,Fahy BN,Johnston FM,Miller JA,Conca-Cheng A,Wang S,Morris AM,Lorenz K,Temel JS,Smith TJ

更新日期：2019-09-01 00:00:00

abstract：: Introduction: Ventricular-assist devices (VADs) offer end-stage heart failure patients a chance to live longer and better. VAD patient numbers are growing, as is the need for their hospice care, whether they die from cardiac or noncardiac causes. But many hospices do not a...

journal_title：Journal of palliative medicine

authors： Kossman DA,Wolfrom SD,Haines S,Bagga M,Denno M,Ljubic L,O'Connor N

更新日期：2019-09-01 00:00:00

abstract：: Background: Growing evidence suggests that pediatric palliative care (PPC) teams influence the care received by children and young adults with chronic, life-limiting illnesses. Little is known about how PPC involvement affects advance care planning (ACP) and circumstances ...

journal_title：Journal of palliative medicine

authors： Harmoney K,Mobley EM,Gilbertson-White S,Brogden NK,Benson RJ

更新日期：2019-12-01 00:00:00

abstract：:Family members of intensive care unit (ICU) patients want to be involved in decision making, but they may not be best served by being placed in the position of having to solve problems for which they lack knowledge and skills. This case report presents an exemplar family meeting in the ICU led by a palliative care spe...

journal_title：Journal of palliative medicine

authors： Adams J,Bailey DE Jr,Anderson RA,Galanos AN

更新日期：2013-03-01 00:00:00

abstract：BACKGROUND:Advanced cancer can erode patients' wellbeing. Narrative interventions have improved patients' wellbeing, but might not be feasible for widespread implementation. OBJECTIVES:(1) Test the effects of miLivingStory, a telephone-based life review and illness narrative intervention with online resources and soci...

journal_title：Journal of palliative medicine

authors： Wise M,Marchand LR,Roberts LJ,Chih MY

更新日期：2018-02-01 00:00:00

abstract：BACKGROUND:Additional evidence is needed regarding the impact of inpatient palliative care (IPC) on the quality of end-of-life care and downstream utilization. AIM:Examine the effects of IPC on quality of end-of-life care and acute and postacute care use in a large integrated system. DESIGN:Retrospective cohort desig...

journal_title：Journal of palliative medicine

authors： Khang PS,Wang SE,Liu IA,Watson HL,Koyama SY,Huynh DN,Lee JS,Nguyen HQ

更新日期：2018-07-01 00:00:00

abstract：:Alzheimer's dementia and related dementias are incurable illnesses for which curative treatment currently does not exist, and the efficacy of remittive treatment is extremely limited. Persons with advanced dementia commonly develop fever and are at high risk for death. We preformed a systematic review of outcome follo...

journal_title：Journal of palliative medicine

authors： Pinderhughes ST,Morrison RS

更新日期：2003-06-01 00:00:00

abstract：BACKGROUND:Striking changes occurred in health care in the United States between 2000 and 2013, including growth of hospice and hospital-based palliative care teams, and changes in Medicare payment policies. OBJECTIVE:The aim of this study was to compare informants' reports and ratings of the quality of end-of-life ca...

journal_title：Journal of palliative medicine

authors： Teno JM,Freedman VA,Kasper JD,Gozalo P,Mor V

更新日期：2015-08-01 00:00:00

abstract：BACKGROUND/AIM:Palliative care services (PCS) are recommended to enhance quality of care for hospitalized patients. METHODS:We evaluated the attitudes of liver transplant (LT) providers and perceived barriers to PCS for their patients by conducting a web-based survey of intensive care unit nurses, postgraduate year 1 ...

journal_title：Journal of palliative medicine

authors： Beck KR,Pantilat SZ,O'Riordan DL,Peters MG

更新日期：2016-08-01 00:00:00

abstract：OBJECTIVE:The purpose of the study was to describe the perceptions of community residence (CR) staff who have cared for older adults with developmental disabilities (ADDs) that are at the end of life. DESIGN:This exploratory, descriptive study utilized qualitative methods that involved semistructured interviews with C...

journal_title：Journal of palliative medicine

authors： Kirkendall AM,Waldrop D

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Our objective was to provide a contemporary analysis of the prevalence, types, and impact of advance health care directives in critically ill cancer patients. METHODS:We retrospectively reviewed all intensive care unit (ICU) admissions (January 1, 2006 to April 25, 2008) at an oncologic center and identifie...

journal_title：Journal of palliative medicine

authors： Halpern NA,Pastores SM,Chou JF,Chawla S,Thaler HT

更新日期：2011-04-01 00:00:00

abstract：BACKGROUND:Entrustable professional activities (EPAs) are routine tasks considered essential to a professional practice. An EPA can serve as a performance-based outcome that a clinical supervisor would progressively entrust a learner to perform. OBJECTIVE:Our aim was to identify, develop, and validate a set of EPAs fo...

journal_title：Journal of palliative medicine

authors： Myers J,Krueger P,Webster F,Downar J,Herx L,Jeney C,Oneschuk D,Schroder C,Sirianni G,Seccareccia D,Tucker T,Taniguchi A

更新日期：2015-08-01 00:00:00

abstract：:Generalized severe junctional epidermolysis bullosa is a rare mechanobullous skin disorder that is uniformly fatal. We present the case of an infant who received palliative pain management and ultimately proportionate palliative sedation. However, because of the extent of the patient's skin disease, we were unable to ...

journal_title：Journal of palliative medicine

authors： Pasichow KP,Frizzola M,Miller EG

更新日期：2018-07-01 00:00:00

abstract：:Louisiana State Penitentiary (Angola) has a large population of aging men serving long sentences with little hope of reprieve. Eighty-five percent of the 5108 inmates currently incarcerated at Angola are expected to die there. The prison, in partnership with University Hospital Community Hospice in New Orleans, has cr...

journal_title：Journal of palliative medicine

authors： Evans C,Herzog R,Tillman T

更新日期：2002-08-01 00:00:00

abstract：PURPOSE:In 1997, a biweekly, 18-month Palliative Care Seminar Series was started at Mount Sinai School of Medicine as a way to explore participants' beliefs about palliative care and to instill the knowledge, skills, and attitudes needed to improve care at the end of life. The goal of this study was to examine the effe...

journal_title：Journal of palliative medicine

authors： Spiegel MJ,Meier DE,Goldhirsch S,Natale D,Morrison RS

更新日期：2002-06-01 00:00:00

abstract：BACKGROUND:Increasing numbers of patients are living with multiple, chronic medical conditions and functional impairments that leave them homebound. Home-based primary and palliative care (HBPC) programs provide access to health care services for this vulnerable population. Homebound patients have high symptom burden u...

journal_title：Journal of palliative medicine

authors： Ornstein K,Wajnberg A,Kaye-Kauderer H,Winkel G,DeCherrie L,Zhang M,Soriano T

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Employment-related issues have been largely overlooked in cancer patients needing palliative care. These issues may become more relevant as cancer evolves into more of a chronic illness and palliative care is provided independent of stage or prognosis. OBJECTIVE:To characterize the employment situations of ...

journal_title：Journal of palliative medicine

authors： Glare PA,Nikolova T,Alickaj A,Patil S,Blinder V

更新日期：2017-07-01 00:00:00

abstract：BACKGROUND AND AIM:Consensus has been reached on the need to integrate palliative care in the follow-up examinations of chronic obstructive pulmonary disease (COPD) patients. We analyzed the survival from the initiation of follow-up by a palliative home care team (PHCT) and described the needs and end-of-life process. ...

journal_title：Journal of palliative medicine

authors： Gainza-Miranda D,Sanz-Peces EM,Alonso-Babarro A,Varela-Cerdeira M,Prados-Sánchez C,Vega-Aleman G,Rodriguez-Barrientos R,Polentinos-Castro E

更新日期：2019-03-01 00:00:00

abstract：:This paper provides an evidence-based review of the principles underlying palliative care for heart failure (HF), including its pathogenesis, staging, assessment, prognosis, and treatment. Approaches to advanced care planning, symptom management, hospice eligibility, home inotropic infusions, device management and imp...

journal_title：Journal of palliative medicine

authors： Stuart B

更新日期：2007-02-01 00:00:00

abstract：BACKGROUND:Acute hospital readmission of older adults receiving hospice care is not aligned with hospice goals. OBJECTIVE:To identify factors associated with 30-day readmission among older adults newly discharged to hospice. DESIGN/SUBJECTS:Medical record review of 59 patients, 19 readmitted within 30 days and 40 ran...

journal_title：Journal of palliative medicine

authors： Goldenheim A,Oates D,Parker V,Russell M,Winter M,Silliman RA

更新日期：2014-07-01 00:00:00

abstract：BACKGROUND:The oral food intake of terminally ill cancer patients is known to gradually decrease, but there are few reports about how oral intake changes around the terminal stage. It is important to clarify changes in oral food intake, as such changes affect the support and care of terminally ill cancer patients. OBJ...

journal_title：Journal of palliative medicine

authors： Ohno T,Tamura F,Kikutani T,Morita T,Sumi Y

更新日期：2016-08-01 00:00:00

abstract：BACKGROUND:People with serious illness frequently rely on religion/spirituality to cope with their diagnosis, with potentially positive and negative consequences. Clergy are uniquely positioned to help patients consider medical decisions at or near the end of life within a religious/spiritual framework. OBJECTIVE:We a...

journal_title：Journal of palliative medicine

authors： Sanders JJ,Chow V,Enzinger AC,Lam TC,Smith PT,Quiñones R,Baccari A,Philbrick S,White-Hammond G,Peteet J,Balboni TA,Balboni MJ

更新日期：2017-10-01 00:00:00

abstract：BACKGROUND:Pain, not responsive to opioid analgesics, remains a problem for patients with chronic and cancer pain as well as their families, and clinicians. Opioid antagonists have various uses in pain and palliative care. Their use in the reversal of tolerance and hyperalgesia remains at the basic science level and ha...

journal_title：Journal of palliative medicine

authors： Loitman JE

更新日期：2006-12-01 00:00:00