Service users' views of the assessment process in stroke rehabilitation.

Abstract:

OBJECTIVE:To investigate the service users' (stroke survivors and care-givers) experiences and views of the rehabilitation assessment process. DESIGN:Qualitative data analysis from three focus groups using a content analysis to identify the major themes. SETTING:Participants were recruited from stroke support groups and community rehabilitation services in a large UK city. SUBJECTS:Seventeen community-dwelling stroke survivors who had completed their rehabilitation within the previous year and six care-givers. RESULTS:Five themes emerged: understanding the purpose of the assessment; repetition of assessments; feedback about assessments and progress; format of feedback and barriers to feedback. While all participants reported undergoing assessment, some felt their purpose was not always explained and resented unexplained repetitions of tests. Some participants reported a positive experience, but most wanted more information about their progress and predictions of recovery. They wanted regular, consistent, objective information presented in layman's terms; verbally and in writing. Some carers reported difficulty accessing information particularly as a result of confidentiality policies. While some participants accepted these short-comings, others considered them due to staff's disinterest or ineptitude, which undermined their trust in the team. CONCLUSIONS:Stroke service users require clear information about the purpose of assessments and regular, consistent, objective feedback about their progress using layman's language both verbally and in writing.

journal_name

Clin Rehabil

journal_title

Clinical rehabilitation

authors

Tyson SF,Burton LJ,McGovern A,Sharifi S

doi

10.1177/0269215514523300

subject

Has Abstract

pub_date

2014-08-01 00:00:00

pages

824-831

issue

8

eissn

0269-2155

issn

1477-0873

pii

0269215514523300

journal_volume

28

pub_type

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