A systematic review of qualitative studies on adjusting after stroke: lessons for the study of resilience.

Abstract:

PURPOSE:To synthesize qualitative studies on adjusting after stroke, from stroke survivors' and carers' perspectives, and to outline their potential contribution to an understanding of resilience. METHODS:A systematic review of qualitative studies in peer reviewed journals from 1990 to 2011 was undertaken. Findings from selected studies were summarized and synthesized and then considered alongside studies of resilience. RESULTS:Forty studies were identified as suitable. These suggested that the impact of stroke was felt on many dimensions of experience, and that the boundaries between these were permeable. Nor was stroke as an adverse "event" temporally bounded. Adjustment was often marked by setbacks and new challenges over time. Participants identified personal characteristics as key, but also employed practical and mental strategies in their efforts to adjust. Relationships and structural factors also influenced adjustment after stroke. CONCLUSIONS:The impacts of stroke and the processes of adjusting to it unfold over time. This presents a new challenge for resilience research. Processes of adjustment, like resilience, draw on personal, inter-personal and structural resources. But the reviewed studies point to the importance of an emic perspective on adversity, social support, and what constitutes a "good" outcome when researching resilience, and to a greater focus on embodiment. Implications for Rehabilitation Stroke is a sudden onset condition which for around a third of people has long-term consequences. Stroke can cause a variety of physical and cognitive impairments, some of which may not be obvious to an outsider. As well as physical functioning, stroke can have a profound effect on survivors' sense of self and on their relationships. Stroke survivors' accounts suggest that relationships (including relationships with health care professionals) and structural factors (such as access to health services, employment possibilities and welfare systems) mediate efforts to adjust after stroke. While there is considerable overlap between notions of adjustment and resilience, the experiences of stroke survivors suggest further issues that need to be addressed in order to gain a more comprehensive understanding of resilience.

journal_name

Disabil Rehabil

authors

Sarre S,Redlich C,Tinker A,Sadler E,Bhalla A,McKevitt C

doi

10.3109/09638288.2013.814724

subject

Has Abstract

pub_date

2014-01-01 00:00:00

pages

716-26

issue

9

eissn

0963-8288

issn

1464-5165

journal_volume

36

pub_type

杂志文章,评审
  • Disability management in a sample of Australian self-insured companies.

    abstract:PURPOSE:Disability management (DM) is a term developed in North America and refers to the prevention and management of injury and illness in the workplace. The purpose of this paper is to report findings of an Australian study that examined whether self-insured employers in that country have implemented integrated DM p...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280210124347

    authors: Westmorland M,Buys N,Clements N

    更新日期:2002-09-20 00:00:00

  • Experiences of adults with high-care needs and their family members with housing and support pathways in Australia.

    abstract:PURPOSE:Many adults aged less than 65 years with high-care needs resulting from acquired disabilities are unable to access age-appropriate housing and support, and reside in residential aged care or live with family members who may struggle to navigate the disability support system. This qualitative study aimed to inve...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2016.1212108

    authors: McIntyre D,Fleming J,Foster M,Tweedy S

    更新日期:2017-09-01 00:00:00

  • Design of a randomized-controlled trial on low-intensity aerobic wheelchair exercise for inactive persons with chronic spinal cord injury.

    abstract:PURPOSE:To investigate effects and working mechanisms of low-intensity aerobic wheelchair exercise on fitness, (upper-body) health and active lifestyle in inactive persons with chronic spinal cord injury (SCI). METHODS:A multicenter randomized-controlled trial (RCT) in 40 inactive manual wheelchair users (aged 28-65y)...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.3109/09638288.2012.709301

    authors: van der Scheer JW,de Groot S,Postema K,Veeger DH,van der Woude LH

    更新日期:2013-06-01 00:00:00

  • A comprehensive psychometric evaluation of the UK FIM + FAM.

    abstract:PURPOSE:To evaluate the psychometric properties of the UK FIM + FAM. METHODS:(a) A systematic literature review integrating the evidence for psychometric qualities of both the original and UK versions, and (b) exploratory and confirmatory factor analysis of admission/discharge data from an inpatient general neuro-reha...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.766271

    authors: Turner-Stokes L,Siegert RJ

    更新日期:2013-01-01 00:00:00

  • Psychometric properties of the HI-FI problem checklist in a sample of adults with neurological and neuropsychiatric disorders: factors contributing to life satisfaction after long-term disability.

    abstract::Purpose To assess psychometric properties of the problem checklist (PCL) in a sample of individuals with neurological and neuropsychiatric disorders many years after trauma; to identify factors that impact life satisfaction and promote functional competence after long-term disability. Method Cross-sectional, interview...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2016.1152609

    authors: Mitrushina M,Tomaszewski R

    更新日期:2017-03-01 00:00:00

  • Survey of the use of transport by recipients of a regional Electric Indoor/Outdoor Powered (EPIOC) wheelchair service.

    abstract:PURPOSE:To determine the extent to which Electric Indoor/Outdoor Powered wheelchair (EPIOC) users travel in vehicles, their concerns about safety, any accidents occurring during transportation and difficulties with their equipment. METHOD:All 268 EPIOC users on the departmental database were sent a purpose-designed po...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280410001684055

    authors: Belcher MJ,Frank AO

    更新日期:2004-05-20 00:00:00

  • Fatigue in patients with chronic widespread pain participating in multidisciplinary rehabilitation treatment: a prospective cohort study.

    abstract:PURPOSE:To explore the associations between (improvement in) fatigue and (improvement in) clinical and cognitive factors in patients with chronic widespread pain (CWP), participating in multidisciplinary rehabilitation treatment. METHODS:Data were used from baseline, 6 and 18 months of follow-up during a prospective c...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.923530

    authors: de Rooij A,van der Leeden M,de Boer MR,Steultjens MP,Dekker J,Roorda LD

    更新日期:2015-01-01 00:00:00

  • Psychosocial aspects of chronic widespread pain and fibromyalgia.

    abstract:PURPOSE:To study the impact on health status as measured by SF-36 in groups of subjects having chronic musculoskeletal pain with different degree of generalization: No chronic pain (NCP), chronic regional pain (CRP), chronic widespread pain (CWP), CWP with a stricter 'Manchester' definition (CWP-M), and clinically defi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280400009030

    authors: Bergman S

    更新日期:2005-06-17 00:00:00

  • An integrated model of social environment and social context for pediatric rehabilitation.

    abstract:UNLABELLED:This article considers the conceptualization and operationalization of "social environment" and "social context" with implications for research and practice with children and youth with impairments. We first discuss social environment and social context as constructs important for understanding interaction b...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1076070

    authors: Batorowicz B,King G,Mishra L,Missiuna C

    更新日期:2016-01-01 00:00:00

  • Rehabilitation after total joint replacement: a scoping study.

    abstract:PURPOSE:The evidence supporting rehabilitation after joint replacement, while vast, is of variable quality making it difficult for clinicians to apply the best evidence to their practice. We aimed to map key issues for rehabilitation following joint replacement, highlighting potential avenues for new research. MATERIA...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638288.2017.1300947

    authors: L Snell D,Hipango J,Sinnott KA,Dunn JA,Rothwell A,Hsieh CJ,DeJong G,Hooper G

    更新日期:2018-07-01 00:00:00

  • HIV/AIDS information and services: the situation experienced by adolescents with disabilities in Rwanda and Uganda.

    abstract:PURPOSE:The study had two aims: (2) To explore whether knowledge about HIV and AIDS was similar among adolescents with disabilities compared with their non-disabled peers; and (2) To determine factors which may increase vulnerability of disabled adolescents to HIV infection and/or inappropriate access to HIV-related se...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280500164297

    authors: Yousafzai AK,Edwards K,D'Allesandro C,Lindström L

    更新日期:2005-11-30 00:00:00

  • The ICF-CY and Goal Attainment Scaling: benefits of their combined use for pediatric practice.

    abstract:PURPOSE:There is much heterogeneity and disconnect in the approaches used by service providers to conduct needs assessments, set goals and evaluate outcomes for clients receiving pediatric rehabilitation services. The purpose of this article is to describe how the International Classification of Functioning, Disability...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280802572973

    authors: McDougall J,Wright V

    更新日期:2009-01-01 00:00:00

  • Social environment and quality of life among older people with diabetes and multiple chronic illnesses in New Zealand: Intermediary effects of psychosocial support and constraints.

    abstract::Purpose: In older people with diabetes, multimorbidity is highly prevalent and it can lead to poor quality of life. The overall purpose of this study was to examine the association between the social environment, psychosocial support and constraints, and overall quality of life among older people with and without with...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1783375

    authors: Yeung P,Severinsen C,Good G,O'Donoghue K

    更新日期:2020-07-06 00:00:00

  • A bio-psycho-social approach for treating sub-acute low back pain.

    abstract:PURPOSE:This article examines the distinctive opportunities and challenges involved in treating sub-acute low back pain (LBP). Several risk factors have been identified. Thus, a multi-disciplinary design and a comprehensive bio-psycho-social approach seem to be the best modality of intervention to improve outcome. MET...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638281003797349

    authors: Giaquinto S,Bruti L,Dall'Armi V,Gison A,Palma E

    更新日期:2010-01-01 00:00:00

  • Poor stroke-related risk factor control even after stroke: an opportunity for rehabilitation professionals.

    abstract::The burden of chronic disease worldwide is substantial. Unfortunately, risk factor control for most chronic diseases remains poor even after diagnoses. This is a major concern because poor risk factor control often leads to secondary consequences of the disease and the development of co-existing diseases. Stroke is a ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.797513

    authors: Ellis C,Breland HL

    更新日期:2014-01-01 00:00:00

  • Ankle sprains: patient perceptions of function and performance of physical tasks. A mixed methods approach.

    abstract:PURPOSE:To investigate patient's perceptions of function and performance of physical tasks after discharge from treatment for an ankle sprain. METHODS:Using a mixed methods approach, 40 participants who presented with an acute sprained ankle and their treating clinicians completed two questionnaires related to functio...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.568668

    authors: Larmer PJ,McNair PJ,Smythe L,Williams M

    更新日期:2011-01-01 00:00:00

  • The effects of dynamic ankle-foot orthoses on functional ambulation activities, weight bearing and spatio-temporal characteristics of hemiparetic gait.

    abstract:PURPOSE:To investigate the effects of dynamic ankle-foot orthoses (DAFOs) on functional ambulation activities, weight bearing and spatio-temporal characteristics of hemiparetic gait and to inquire whether wearing a DAFO for 3 months has a carryover effect. METHOD:Fourteen chronic hemiparetic patients who could walk in...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2011.582926

    authors: Suat E,Fatma U,Nilgün B

    更新日期:2011-01-01 00:00:00

  • Telehealth delivery of remote assessment of wheelchair and seating needs for adults and children: a scoping review.

    abstract::Purpose: This scoping review synthesizes research on the effects and processes of telehealth wheelchair and seating assessment and the perceptions of wheelchair users and healthcare providers of telehealth use for this purpose.Materials and Methods: A systematic search and scoping review of peer-reviewed publications ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1595180

    authors: Graham F,Boland P,Grainger R,Wallace S

    更新日期:2020-12-01 00:00:00

  • Italian adaptation of the functional outcome questionnaire - aphasia: initial psychometric evaluation.

    abstract:PURPOSE:To evaluate the psychometric properties of the Italian version of Functional Outcome Questionnaire - Aphasia. METHODS:Two hundred and five persons with stroke-related aphasia and right hemiparesis who received ongoing assistance from a family caregiver were assessed using the Functional Outcome Questionnaire -...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1362042

    authors: Spaccavento S,Cafforio E,Cellamare F,Colucci A,Di Palma A,Falcone R,Craca A,Loverre A,Nardulli R,Glueckauf RL

    更新日期:2018-12-01 00:00:00

  • Parallel reliability of the functional independence measure and the Barthel ADL index.

    abstract:PURPOSE:The aim of this study was to evaluate the concordance between the assessments of ADL according to the Functional Independence Measure (FIM) and the Barthel ADL index (BI) by means of a rank-invariant statistical method. METHOD:The construct validity, also called parallel reliability, of FIM and BI was assessed...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280050191972

    authors: Gosman-Hedström G,Svensson E

    更新日期:2000-11-10 00:00:00

  • Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues.

    abstract:PURPOSE:(1) Describe the challenges facing relatives of persons with stroke in accomplishing their daily activities and social roles (participation). (2) Reflect on the role of rehabilitation for relatives and ethical issues that may emerge following the adoption of a family-centred approach. METHOD:Review of the scie...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2010.524272

    authors: Pellerin C,Rochette A,Racine E

    更新日期:2011-01-01 00:00:00

  • Investigating the adaptation of caregivers of people with traumatic brain injury: a journey told in evolving research traditions.

    abstract::Purpose: To examine how conceptualizations of caregiver adaptation to traumatic brain injury have changed over time. The objectives were to identify research traditions, adaptive outcomes assessed in these traditions, and psychosocial variables associated with adaptive outcomes.Methods: A meta-narrative review was con...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1725158

    authors: King G,Nalder E,Stacey L,Hartman LR

    更新日期:2020-02-20 00:00:00

  • Reproducibility of dual-energy X-ray absorptiometry in the upper extremities in stroke patients.

    abstract::Bone mineral loss after stroke in affected extremities can increase the prevalence of fractures that interrupt the rehabilitation programme and lower the level of activity. In stroke rehabilitation, precise bone mineral measurement is needed in order to assess the risk of fractures. We defined five regions-of-interest...

    journal_title:Disability and rehabilitation

    pub_type: 临床试验,杂志文章

    doi:10.3109/09638289709166045

    authors: Tanaka N,Sonoda S,Kondo K,Chino N

    更新日期:1997-12-01 00:00:00

  • Mapping two measures to the International Classification Of Functioning, Disability and Health and the brief ICF core set for spinal cord injury in the post-acute context.

    abstract:OBJECTIVE:To evaluate the extent to which the rehabilitation outcome levels (ROL) and the spinal cord independence measure (SCIM) III could be mapped to the International Classification of Functioning, Disability and Health (ICF) and the brief core set for spinal cord injury (SCI) in the post-acute context. METHODS:Tw...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2015.1107762

    authors: Joseph C,Phillips J,Wahman K,Nilsson Wikmar L

    更新日期:2016-08-01 00:00:00

  • Multimodality: a basis for augmentative and alternative communication--psycholinguistic, cognitive, and clinical/educational aspects.

    abstract:PURPOSE:Message generating is a complex process involving a number of processes, including the selection of modes to use. When expressing a message, human communicators typically use a combination of modes. This phenomenon is often termed multimodality. This article explores the use of models that explain multimodality...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280500384168

    authors: Loncke FT,Campbell J,England AM,Haley T

    更新日期:2006-02-15 00:00:00

  • Biomechanics of the Achilles tendon.

    abstract:PURPOSE:Tendons behave viscoelastically and exhibit adaptive responses to conditions of increased loading and disuse. Strain patterns in tendons may not be uniform, as tendons show stress-shielded areas and areas subjected to compressive loading at the enthesis. These areas correspond to the sites where tendinopathic c...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280701785494

    authors: Maganaris CN,Narici MV,Maffulli N

    更新日期:2008-01-01 00:00:00

  • The development of intimate relationships in adolescent girls and women with traumatic brain injury: a framework to guide gender specific rehabilitation and enhance positive social outcomes.

    abstract::Background: Traumatic brain injury is a neurological disorder of biopsychosocial nature influenced by sex and gender interactions across the lifespan. Traumatic brain injury sustained during adolescence can result in cognitive and social communication impairments that compromise the development and maintenance of inti...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1597180

    authors: Wiseman-Hakes C,Saleem M,Poulin V,Nalder E,Balachandran P,Gan C,Colantonio A

    更新日期:2020-12-01 00:00:00

  • Holistic group rehabilitation--a short cut to adaptation to the new life after mild acquired brain injury.

    abstract:PURPOSE:The purpose was to explore and understand what patients with mild acquired brain injury (mABI) consider is effective in a holistic therapy group rehabilitation programme and how the programme affects the rehabilitation process. METHODS:Thematic interviews were conducted with ten informants with diagnosed mABI....

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.528141

    authors: Nilsson C,Bartfai A,Löfgren M

    更新日期:2011-01-01 00:00:00

  • A review of treatment for carpal tunnel syndrome.

    abstract:PURPOSE:A common disorder encountered by healthcare specialists is carpal tunnel syndrome (CTS). CTS is a neuropathy disorder caused by compression on the median nerve. METHOD:Currently, there are several treatment methods for CTS such as: (1) non-steroidal anti-inflammatory drugs (NSAIDs); (2) injection of medication...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/0963828021000007978

    authors: Wilson JK,Sevier TL

    更新日期:2003-02-04 00:00:00

  • The impact of stroke in Italy: first step for a National Burden of Disease Study.

    abstract:PURPOSE:To calculate the impact of stroke in Italy in 1998, expressed in terms of disability adjusted life years (DALYs) according to the WHO Global Burden of Disease (GBD) Study. METHOD:The data on first-ever stroke incidence (FES), remission rate and case fatality derived from the health information system and a res...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280400006457

    authors: Francescutti C,Mariotti S,Simon G,D'Errigo P,Di Bidino R

    更新日期:2005-03-04 00:00:00