Abstract:
BACKGROUND:The widespread adoption of electronic health records (EHRs) is accelerating the collection of sensitive clinical data. The availability of these data raises privacy concerns, yet sharing the data is essential for public health, longitudinal patient care, and clinical research. METHOD:Following previous work in the United States [1,2], the International Medical Informatics Association convened the 2012 European Summit on Trustworthy Reuse of Health Data. Over 100 delegates representing national governments, academia, patient groups, industry, and the European Commission participated. In all, 21 countries were represented. The agenda was designed to solicit a wide range of perspectives on trustworthy reuse of health data from the participants. RESULTS AND CONCLUSIONS:Delegates agreed that the "government" should provide oversight, that the reuse should be "fully regulated," and that the patient should be "fully informed." One important reflection was that doing nothing will have negative implications across the European Union (EU). First, continued fragmented parallel non-standards-based developments in multiple sectors entail a substantial duplication of costs and human effort. Second, a failure to work jointly across the stakeholders on common policy frameworks will forego a crucial opportunity to boost key EU markets (pharmaceuticals, health technology and devices, and eHealth solutions) and counter global competition. Finally, and crucially, the lack of harmonized policy across EU nations for trustworthy reuse of health data risks patient safety. The productive dialog, initiated with multiple stakeholders from government, academia, and industry, will have to continue, in order to address the many remaining issues outlined in this white paper.
journal_name
Int J Med Informjournal_title
International journal of medical informaticsauthors
Geissbuhler A,Safran C,Buchan I,Bellazzi R,Labkoff S,Eilenberg K,Leese A,Richardson C,Mantas J,Murray P,De Moor Gdoi
10.1016/j.ijmedinf.2012.11.003subject
Has Abstractpub_date
2013-01-01 00:00:00pages
1-9issue
1eissn
1386-5056issn
1872-8243pii
S1386-5056(12)00202-Xjournal_volume
82pub_type
杂志文章abstract:PURPOSE:When barcode medication administration (BCMA) is implemented nurses are required to integrate not only a new set of procedures or artifacts into everyday work, but also an orientation to medication safety itself that is sometimes at odds with their own. This paper describes how the nurses' orientation (the Prac...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2013.01.009
更新日期:2013-12-01 00:00:00
abstract:OBJECTIVE:Increasingly health care facilities are adopting electronic medical record systems and installing computer workstations in patient exam rooms. The introduction of computer workstations into the medical interview process makes it important to consider the impact of such technology on older patients as well as ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2011.03.005
更新日期:2013-11-01 00:00:00
abstract:BACKGROUND:In an era of short inpatient stays, residents may overlook relevant elements of the differential diagnosis as they try to evaluate and treat patients. However, if a resident's first principal diagnosis is wrong, the patient's appropriate evaluation and treatment may take longer, cost more, and lead to worse ...
journal_title:International journal of medical informatics
pub_type: 杂志文章,评审
doi:10.1016/j.ijmedinf.2010.09.004
更新日期:2010-11-01 00:00:00
abstract::In order to increase the number of practical and discussion classes offered to students in the traditional-curriculum scenario, while decreasing the lecture-based ones and to create an online community to share knowledge on surgery, we developed and assessed the first online course for undergraduate medical students o...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2004.06.002
更新日期:2004-09-01 00:00:00
abstract:INTRODUCTION:Epilepsy is a chronic neurological disorder characterized by recurrent spontaneous seizures. Over 70% epilepsy patients can live normally if their seizures can be controlled. For this, many factors should be tracked and managed, but doing so is hard because of individual differences. There are mobile appli...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.104051
更新日期:2020-02-01 00:00:00
abstract::Frequency spectrum of surface electromyographic signals (SEMGs) exhibit a non-stationary nature even in the case of constant level isometric muscle contractions due to changes related to muscle fatigue processes. These changes can be evaluated by methods for estimation of time-varying (TV) spectrum. The most widely ad...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(00)00076-9
更新日期:2000-09-01 00:00:00
abstract:OBJECTIVE:To investigate factors influencing variations in clinicians' use of an online evidence retrieval system. SETTING:Public hospitals in New South Wales, Australia. METHOD:Web log analysis demonstrated considerable variation in rates of evidence use by clinicians at different hospitals. Focus groups and intervi...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(02)00046-1
更新日期:2003-01-01 00:00:00
abstract::In this contribution both the EDUCTRA project of the European Advanced Informatics in Medicine Programme and the IT-EDUCTRA project of the Telematics Applications Programme (Health Sector) are described. EDUCTRA had as aim to investigate which gaps in knowledge health professionals have with respect to health informat...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(98)00066-5
更新日期:1998-06-01 00:00:00
abstract:PURPOSE:This report describes an ongoing transition from the HELP Hospital Information System to HELP II, a replacement Health Information System built to manage clinical information captured in a variety of medical settings. The focus of the article is on the medical decision support provided by this system and studie...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(02)00110-7
更新日期:2003-03-01 00:00:00
abstract::A computer system of PCs, workstations, minicomputers etc. connected together via a local area network or wide area network represents a large pool of computational power. Our aim is to use this power for the implementation of an E(3) (efficiency, effectiveness, efficacy) medical decision support system, which can be ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(00)00086-1
更新日期:2000-09-01 00:00:00
abstract:BACKGROUND:Patient access to electronic health records (EHRs) is associated with several determinants and outcomes, which are interrelated. However, individual studies and the reviews summarizing them have only addressed particular aspects, such as policy, usability or health outcomes of adoption. Therefore, no compreh...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.05.014
更新日期:2019-09-01 00:00:00
abstract:OBJECTIVES:The intent of this paper is in the examination of health IT implementation processes - the barriers to and facilitators of successful implementation, identification of a beginning set of implementation best practices, the identification of gaps in the health IT implementation body of knowledge, and recommend...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2013.10.009
更新日期:2014-07-01 00:00:00
abstract:OBJECTIVE:Children are an important portion of the population of the territories covered by Primary Health Care (PHC), with needs and characteristics that can be managed at this level of care. Therefore, it is essential that professionals working in PHC be capable of providing child care. The aim of this study was to e...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.06.014
更新日期:2019-09-01 00:00:00
abstract:BACKGROUND:Despite attempts to reform the healthcare delivery system in the Middle East, expectations for its progress have been-and for some still are-somewhat slow. OBJECTIVE:This study reviewed progress in the use and adoption of telemedicine in Middle Eastern countries. The key dimensions affecting the progress of...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2020.104232
更新日期:2020-09-01 00:00:00
abstract::To assist medical professional in better treatment of diseases, and improve patient outcomes, healthcare has brought about a cognitive computing revolution. The cognitive computing system processes enormous amounts of data instantly to answer specific queries and makes customized intelligent recommendations. Cognitive...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.04.024
更新日期:2019-09-01 00:00:00
abstract:OBJECTIVES:A number of studies have been conducted to identify the self-care strategies that are used by persons living with chronic illnesses to manage their symptoms, but little work has been done to identify the primary information source for these self-care strategies. METHODS:We conducted an anonymous online surv...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2017.12.002
更新日期:2018-03-01 00:00:00
abstract:BACKGROUND:Lifestyle changes and the adoption of healthy behaviours are well established recommendations for the management of hypertension-a risk factor for cardiovascular and kidney disease. Mobile health interventions offer unique advantages and novel approaches to helping individuals make and maintain such behaviou...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2018.08.002
更新日期:2018-11-01 00:00:00
abstract:OBJECTIVE:There is a growing interest in using natural language processing (NLP) for healthcare-associated infections (HAIs) monitoring. A French project consortium, SYNODOS, developed a NLP solution for detecting medical events in electronic medical records for epidemiological purposes. The objective of this study was...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2018.06.002
更新日期:2018-09-01 00:00:00
abstract::This paper presents a computerised information system for the characterisation and analysis of the hospital admission flow of patients. Based on administrative data made available by the Ministry of Health of Brazil (DATASUS-MS), the system allows the representation of patients' flow from residence to hospital, as wel...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(00)00129-5
更新日期:2001-04-01 00:00:00
abstract:BACKGROUND:Worldwide, patients have posted millions of online reviews for their doctors. The rich textual information in the online reviews holds the potential to generate insights into how patients' experience with their doctors differ across nations and how should we use them to improve our health service. OBJECTIVE...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2016.12.007
更新日期:2017-03-01 00:00:00
abstract:PURPOSE:Despite the amount of health information available online, there are several barriers that limit the Internet from being adopted as a source of health information. The purpose of this study was to identify individual skill-related problems that users experience when accessing the Internet for health information...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2011.10.005
更新日期:2012-01-01 00:00:00
abstract:BACKGROUND:The authors have been conducting text mining analyses (extraction of useful information from text) of Medline records, using Abstracts as the main data source. For literature-based discovery, and other text mining applications as well, all records in a discipline need to be evaluated for determining prior ar...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2004.02.008
更新日期:2004-06-30 00:00:00
abstract::Decision trees have been already successfully used in medicine, but as in traditional statistics, some hard real world problems can not be solved successfully using the traditional way of induction. In our experiments we tested various methods for building univariate decision trees in order to find the best induction ...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/s1386-5056(01)00176-9
更新日期:2001-09-01 00:00:00
abstract:OBJECTIVE:The aims of this paper were to study the reporting rate and completeness of data reported from primary healthcare centres (PHCCs) in Sweden to the Swedish National Diabetes Register (NDR), with a special attention on the relation between these measures and the reporting system used by the PHCCs. METHOD:A nat...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2011.06.006
更新日期:2011-09-01 00:00:00
abstract:OBJECTIVE:To develop a comprehensive instrument assessing quality of health-related web sites. METHODS:Phase I consisted of a literature review to identify constructs thought to indicate web site quality and to identify items. During content analysis, duplicate items were eliminated and items that were not clear, mean...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2005.07.034
更新日期:2006-01-01 00:00:00
abstract:OBJECTIVE:To examine the effectiveness of delivering of computer-generated discharge summaries to general practice by email, fax, post and patient hand delivery. DESIGN:Blinded, randomized controlled trial. A pre-study audit ascertaining baseline statistics and a follow-up survey were conducted with general practice t...
journal_title:International journal of medical informatics
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.ijmedinf.2009.12.006
更新日期:2010-03-01 00:00:00
abstract:INTRODUCTION:Information and Communication Technologies (ICTs) are acknowledged as vital tools to strengthen Primary Health Care (PHC) in low- and middle-income countries (LMICs). However, these technologies have been used only for selected services. Moreover, there is limited evidence on how effective these interventi...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2020.104235
更新日期:2020-09-01 00:00:00
abstract:BACKGROUND:Medical Information Technology may be understood as an interdisciplinary study of the conception, design, development, adoption and use of Information Technology (IT) innovations for healthcare provision, management and planning. Concerning the use of IT in reproductive health, the aim of the diverse range o...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.04.008
更新日期:2019-07-01 00:00:00
abstract:BACKGROUND AND OBJECTIVE:Hypoglycemia is a common safety event when attempting to optimize glycemic control in diabetes (DM). While electronic medical records provide a natural ground for detecting and analyzing hypoglycemia, ICD codes used in the databases may be invalid, insensitive or non-specific in detecting new h...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2019.06.020
更新日期:2019-09-01 00:00:00
abstract::Evidence-based dentistry has shown that different restorative materials have different survival times. Our primary hypothesis is that this should be revealed from normal dental records by the use of data mining technique and a practice-based dentistry approach analysed in a scientifically sound way. Dental records fro...
journal_title:International journal of medical informatics
pub_type: 杂志文章
doi:10.1016/j.ijmedinf.2009.04.004
更新日期:2009-12-01 00:00:00