Consensus research priorities for cerebral palsy: a Delphi survey of consumers, researchers, and clinicians.

Abstract:

AIM:Research funds for cerebral palsy are scarce and competition for them is strong. This study aimed to identify questions for future research that were agreed to be a high priority. METHOD:An expert panel of consumers, researchers, and clinicians was assembled (n=127) and surveyed using a Delphi survey comprising three rounds. In round I, participants identified three important research topics. Three parallel surveys were constructed: (1) consumers; (2) intervention researchers and clinicians; and (3) aetiology and prevention researchers. In rounds II and III, participants rated priorities using a seven-point Likert scale. Questions reaching consensus were itemized and those not reaching consensus were discarded. RESULTS:Consumers identified questions in the themes of prevention/cure, quality of life/community participation, and service provision/intervention. Intervention researchers/clinicians identified questions in the themes of effective outcomes and effective research/services. Aetiology and prevention researchers identified questions in the themes of infection/inflammation, focus on timing, haematology, research tools, neuroregeneration, and genetics. Fifty per cent of the consumers' priorities were also identified by professionals. INTERPRETATION:Research priorities change as evidence is established. Phase II of this project is to develop a web portal with international collaboration. As evidence builds for one research question, it will be added to the web portal and unanswered questions will become the priority.

journal_name

Dev Med Child Neurol

authors

McIntyre S,Novak I,Cusick A

doi

10.1111/j.1469-8749.2009.03358.x

subject

Has Abstract

pub_date

2010-03-01 00:00:00

pages

270-5

issue

3

eissn

0012-1622

issn

1469-8749

pii

DMCN3358

journal_volume

52

pub_type

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