Abstract：
:Informational need assessment has become an important part of health care in order to provide information effectively in clinical settings. Literature on information needs in the West suggests that breast cancer (BC) patients needed more information than doctors had provided, and information that fully met their needs was associated with patients' long-term well-being. Since few studies on this issue have been conducted in Japan, where the general consultation style is less open and more indirect, compared with that in the West, the application of the findings in the West is questionable. The purpose of this qualitative study was to explore perceived information needs among female BC patients in Japan. Twelve Japanese women with BC participated in semi-structured face-to-face interviews. Grounded theory using verbatim transcripts extracted two main themes: information needed to minimize physical and psychological impacts of treatment and information needed for the resumption of normal life. These were closely related at two time points. Physical support after discharge was perceived as relatively insufficient, especially by women experiencing post-operative arm complications. More open and direct communication was preferred between patients and doctors/family members in the recovery phase. Unmet needs for information may lead to patients' distress.
journal_name
Eur J Cancer Care (Engl)journal_title
European journal of cancer careauthors
Tsuchiya M,Horn SAdoi
10.1111/j.1365-2354.2008.00936.xsubject
Has Abstractpub_date
2009-03-01 00:00:00pages
149-55issue
2eissn
0961-5423issn
1365-2354pii
ECC936journal_volume
18pub_type
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