Abstract:
:Outcome measurement in clinical genetics is problematic because the patient benefits are difficult to measure. The aim in this qualitative grounded theory study was to develop a theoretical framework describing the patient benefits from using clinical genetics services. Seven focus groups and 19 interviews were conducted with patients, patient group representatives, and health professionals. Data analysis resulted in construction of a model of empowerment summarizing the patient benefits from using clinical genetics services. Empowerment is similar to the concept of perceived personal control (PPC), and a measure of PPC has been developed for use in evaluations of clinical genetics services. However, empowerment includes some benefits not captured by PPC related to empowerment of other at risk relatives, and future generations.
journal_name
J Health Psycholjournal_title
Journal of health psychologyauthors
McAllister M,Payne K,Macleod R,Nicholls S,Dian Donnai,Davies Ldoi
10.1177/1359105308095063subject
Has Abstractpub_date
2008-10-01 00:00:00pages
895-905issue
7eissn
1359-1053issn
1461-7277pii
13/7/895journal_volume
13pub_type
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