Patient empowerment in clinical genetics services.

Abstract:

:Outcome measurement in clinical genetics is problematic because the patient benefits are difficult to measure. The aim in this qualitative grounded theory study was to develop a theoretical framework describing the patient benefits from using clinical genetics services. Seven focus groups and 19 interviews were conducted with patients, patient group representatives, and health professionals. Data analysis resulted in construction of a model of empowerment summarizing the patient benefits from using clinical genetics services. Empowerment is similar to the concept of perceived personal control (PPC), and a measure of PPC has been developed for use in evaluations of clinical genetics services. However, empowerment includes some benefits not captured by PPC related to empowerment of other at risk relatives, and future generations.

journal_name

J Health Psychol

authors

McAllister M,Payne K,Macleod R,Nicholls S,Dian Donnai,Davies L

doi

10.1177/1359105308095063

subject

Has Abstract

pub_date

2008-10-01 00:00:00

pages

895-905

issue

7

eissn

1359-1053

issn

1461-7277

pii

13/7/895

journal_volume

13

pub_type

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