Utilization, access and satisfaction with primary care among people with spinal cord injuries: a comparison of three countries.

Abstract:

STUDY DESIGN:Cross-sectional; survey. OBJECTIVES:To describe the utilization, accessibility and satisfaction of primary and preventive health-care services to individuals with long-term spinal cord injuries, and compare results among three countries: the United States, Canada and the United Kingdom. SETTING:The Canadian sample was obtained from the Canadian Paraplegic Association-Ontario and Manitoba Divisions. The British sample was recruited from the Northwest Regional Spinal Injuries Centre in Southport and National Spinal Injuries Centre at Stoke Mandeville Hospital in Aylesbury. The American sample was recruited through Craig Hospital in Englewood, CO, USA. METHOD:A total sample of 373 individuals aging with a spinal cord injury participated in a mailed survey. The Health Care Questionnaire was used to measure utilization, access and satisfaction with primary care and preventive services. RESULTS:In total, 93% of individuals reported having a family doctor, 63% had a spinal injuries specialist and 56% had both a family doctor and spinal injuries specialist. Considerable duplication of services occurred for general medical and preventive services, although lifestyle and emotional issues were not addressed for over 75% of the participants. Significant differences were found in utilization among Canada, US and UK, with Canadians most likely to receive health care from family physicians and Americans most likely to receive care from specialists. Access to and satisfaction with health services was not significantly different among countries. CONCLUSION:People with long-standing spinal cord injuries develop complex maps by which they seek out appropriate primary health-care and preventive services. Given the differences among countries, it is clear that the health delivery model plays an important role in how and where individuals receive health services.

journal_name

Spinal Cord

journal_title

Spinal cord

authors

Donnelly C,McColl MA,Charlifue S,Glass C,O'Brien P,Savic G,Smith K

doi

10.1038/sj.sc.3101933

subject

Has Abstract

pub_date

2007-01-01 00:00:00

pages

25-36

issue

1

eissn

1362-4393

issn

1476-5624

pii

3101933

journal_volume

45

pub_type

杂志文章
  • Current pregnancy among women with spinal cord injury: findings from the US national spinal cord injury database.

    abstract:STUDY DESIGN:Cross-sectional study. OBJECTIVES:To examine the prevalence of pregnancy and associations with sociodemographic and clinical factors among women with spinal cord injury (SCI). SETTING:US National Spinal Cord Injury Database, an SCI registry that interviews participants 1, 5 and then every 5 years post in...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2015.88

    authors: Iezzoni LI,Chen Y,McLain AB

    更新日期:2015-11-01 00:00:00

  • The childbearing experience of women with spinal cord injury in Iran: a phenomenological study.

    abstract:STUDY DESIGN:This was a qualitative study conducted using an interpretative phenomenological approach. OBJECTIVES:This study investigated the experience of pregnancy and childbirth in women with spinal cord injury (SCI). SETTING:Brain and Spinal Cord Injury Research Center, Tehran University of Medical Sciences, Tehr...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/s41393-018-0162-3

    authors: Khazaeipour Z,Nikbakht-Nasrabadi A,Mohammadi N,Salehi-Nejad A,Shabany M

    更新日期:2018-12-01 00:00:00

  • Risk factors for mortality after spinal cord injury in the USA.

    abstract:STUDY DESIGN:Cohort study. OBJECTIVES:First, to examine three sets of risk and protective factors for mortality after spinal cord injury (SCI), with an emphasis on health and secondary conditions. Second, to extend earlier work with several methodologic enhancements and addition of new predictors. SETTING:Twenty hosp...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2013.2

    authors: Cao Y,Krause JS,DiPiro N

    更新日期:2013-05-01 00:00:00

  • A comprehensive, multispecialty approach to an acute exacerbation of chronic central pain in a tetraplegic.

    abstract:STUDY DESIGN:We present a case report describing the multidisciplinary treatment of a tetraplegic spinal cord injury (SCI) patient who developed an acute exacerbation of chronic central pain. OBJECTIVE:To bring further awareness to the importance of using a comprehensive, multidisciplinary approach in treating acute e...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2014.12

    authors: Chang EY,Zhao X,Perret DM,Luo ZD,Liao SS

    更新日期:2014-06-01 00:00:00

  • T-cell predominant balanitis in a traumatic tetraplegic patient: a case report.

    abstract::T-cell predominant balanitis is described in a 38 year old uncircumcised tetraplegic man whose presenting feature was non-progressive red lesions over the inner prepuce and the glans penis without signs of infection, phimosis, or meatal stenosis. There was no regional lymphadenopathy. He was not exposed to any of the ...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.1996.45

    authors: Van Velzen D,Vaidyanathan S,Krishnan KR,Soni BM,Parsons KF

    更新日期:1996-04-01 00:00:00

  • Hypertension and antihypertensive treatment in veterans with spinal cord injury and disorders.

    abstract:OBJECTIVES:Hypertension (HTN) is an important risk factor for cardiovascular disease, a major cause of morbidity and mortality among people with spinal cord injury and disorders (SCI/D). Our study examined prevalence, associated factors, and pharmacological treatment of HTN in Veterans with SCI/D compared with a matche...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2012.122

    authors: Barry W,St Andre JR,Evans CT,Sabharwal S,Miskevics S,Weaver FM,Smith BM

    更新日期:2013-02-01 00:00:00

  • Neurogenic heterotopic ossification of the hands in a patient with spinal cord injury: a case report.

    abstract:STUDY DESIGN:The study was designed as a case report. OBJECTIVE:The objective of this study was to report an unusual case of bilateral neurogenic heterotopic ossification of the hands in a patient with spinal cord injury. SETTING:Physical Medicine and Rehabilitation department in Sale, Morocco. METHODS:A 47-year-old...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2010.191

    authors: Bendeddouche I,Aissaoui N,Hajjaj-Hassouni N

    更新日期:2011-10-01 00:00:00

  • Pediatric spinal cord injury in Sweden; how to identify a cohort of rare events.

    abstract:STUDY DESIGN:Register study enhanced and verified by medical records and personal interviews and examinations. SETTINGS:Sweden. OBJECTIVES:To define a method of identifying a study population of rare events. To point out the relative importance of every step, an example is given of identifying persons who sustained t...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3101456

    authors: Augutis M,Malker H,Levi R

    更新日期:2003-06-01 00:00:00

  • On the need of validating inpatient registers.

    abstract:STUDY DESIGN:Register study. OBJECTIVES:To design and implement a validation process to check the completeness of the Hospital Discharge Register (HDR) held by the Swedish National Board of Health and Welfare. SETTING:Sweden. METHODS:An accurate traumatic spinal cord injury prevalence group (n=495) was acquired from...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2008.42

    authors: Nordgren C

    更新日期:2008-11-01 00:00:00

  • The effect of tidal volumes on the time to wean persons with high tetraplegia from ventilators.

    abstract:STUDY DESIGN:Retrospective review of patient medical records comparing the outcomes of two groups of individuals with high-level (C3-4) tetraplegia- those with high-volume and those with low-volume mechanical ventilation. OBJECTIVES:To determine if higher volume mechanical ventilation contributes to faster weaning fro...

    journal_title:Spinal cord

    pub_type: 临床试验,杂志文章

    doi:10.1038/sj.sc.3100818

    authors: Peterson WP,Barbalata L,Brooks CA,Gerhart KA,Mellick DC,Whiteneck GG

    更新日期:1999-04-01 00:00:00

  • Patient experience survey in telemedicine for spinal cord injury patients.

    abstract:STUDY DESIGN:Patient feedback study. OBJECTIVES:To measure how patients value the telemedicine consultation service at the National Spinal Injuries Centre over a period of 8 months. SETTING:United Kingdom (south of England). METHODS:Telephone survey conducted by an external surveyor who does not work in the departme...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2014.247

    authors: Yuen J,Thiyagarajan CA,Belci M

    更新日期:2015-04-01 00:00:00

  • Pelvic organ prolapse and urogynecological assessment in women with spinal cord injury.

    abstract:STUDY DESIGN:Observational cross-sectional study. OBJECTIVES:Due to weakened pelvic floor muscles, the risk of pelvic organ prolapse (POP) may increase after a spinal cord injury (SCI); hence, the aim of this study was to investigate the occurrence of POP after SCI and to evaluate the need for urogynecological consult...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/s41393-018-0181-0

    authors: Elmelund M,Biering-Sørensen F,Bing MH,Klarskov N

    更新日期:2019-01-01 00:00:00

  • Sequential treatment of chronic constipation in paraplegic subjects.

    abstract::Chronic constipation is the main gastrointestinal complaint of spinal cord injury (SCI) patients, and has a significant effect on patients' lives, concerning nursing dependence, morbidity and complications. Many therapies have been proposed to treat chronic severe constipation, most of them with limited effect or bein...

    journal_title:Spinal cord

    pub_type: 临床试验,杂志文章

    doi:10.1038/sj.sc.3100355

    authors: Badiali D,Bracci F,Castellano V,Corazziari E,Fuoco U,Habib FI,Scivoletto G

    更新日期:1997-02-01 00:00:00

  • Documentation of weight management practices for individuals with spinal cord injuries and disorders.

    abstract:STUDY DESIGN:This cross-sectional chart review study included 100 US Veterans with spinal cord injuries/disorders (SCI/D) who received care at a Veterans Affairs (VA) SCI facility during a 12-month period. Progress notes were examined to extract need for weight management (WM), patient-provider discussions about risk d...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2016.59

    authors: Locatelli SM,LaVela SL

    更新日期:2016-12-01 00:00:00

  • Role of NMDA receptor activation in serotonin agonist-induced air-stepping in paraplegic mice.

    abstract:STUDY DESIGN:Experimental laboratory investigation of the effects of serotonergic and glutamatergic drugs in early paraplegic mice. OBJECTIVES:To examine whether NMDA and 5-HT receptors synergistically participate to generate basic stepping movements in paraplegic mice. SETTING:Laval University Medical Center, Quebec...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3101580

    authors: Guertin PA

    更新日期:2004-03-01 00:00:00

  • MRI of inflammatory spondyloarthropathy following traumatic cauda equina syndrome.

    abstract:BACKGROUND CONTEXT:Spondyloarthropathy has been described radiographically in patients following paralysis from spinal cord trauma. Onset of these findings after cauda equina syndrome have not been reported previously. Furthermore, the magnetic resonance documentation of its early evolution has not been recorded. PURP...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2014.190

    authors: Ginder LM,Porter NA,Subedi N,Singh J,Lalam RK,Tins BJ,Tyrrell PN,Osman A,Cassar-Pullicino VN

    更新日期:2015-03-01 00:00:00

  • Perceptions of exercise mastery in persons with complete and incomplete spinal cord injury.

    abstract:STUDY DESIGN:Cross-sectional study. OBJECTIVE:To compare exercise-related self-perceptions in persons with complete and incomplete spinal cord injury (SCI) and to identify factors that explain the variance of perceived exercise mastery in the study population. SETTING:Sunnaas Rehabilitation Hospital and the Norwegian...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2009.136

    authors: Lannem AM,Sørensen M,Lidal IB,Hjeltnes N

    更新日期:2010-05-01 00:00:00

  • Comparison between esophageal and intestinal temperature responses to upper-limb exercise in individuals with spinal cord injury.

    abstract:STUDY DESIGN:Experimental study. OBJECTIVE:Individuals with spinal cord injuries (SCI) may present with impaired sympathetic control over thermoregulatory responses to environmental and exercise stressors, which can impact regional core temperature (Tcore) measurement. The purpose of this study was to investigate whet...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/s41393-019-0257-5

    authors: Au JS,Kamijo YI,Goosey-Tolfrey VL,Leicht CA,MacDonald MJ,Mukai Y,Tajima F

    更新日期:2019-07-01 00:00:00

  • International spinal cord injury endocrine and metabolic extended data set.

    abstract:OBJECTIVE:The objective of this study was to develop the International Spinal Cord Injury (SCI) Endocrine and Metabolic Extended Data Set (ISCIEMEDS) within the framework of the International SCI Data Sets that would facilitate consistent collection and reporting of endocrine and metabolic findings in the SCI populatio...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2016.164

    authors: Bauman WA,Wecht JM,Biering-Sørensen F

    更新日期:2017-05-01 00:00:00

  • Quantitative assessment of spinal cord perfusion by using contrast-enhanced ultrasound in a porcine model with acute spinal cord contusion.

    abstract:OBJECTIVES:To quantify spinal cord perfusion by using contrast-enhanced ultrasound (CEUS) in a porcine model with acute spinal cord injury. METHODS:Microcirculatory changes of acute spinal cord injury were shown by CEUS in a porcine model with spinal cord contusion at three selected time points, coupling with conventi...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2012.111

    authors: Huang L,Lin X,Tang Y,Yang R,Li AH,Ye JC,Chen K,Wang P,Shen HY

    更新日期:2013-03-01 00:00:00

  • Low cervical chordoma: case report.

    abstract::We report a case of a 32-year old woman with radicular symptoms associated with a low cervical chordoma. According to our knowledge this is the 10th case of low cervical chordoma reported in the literature. ...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.1996.65

    authors: Inci S,Palaoğlu S,Onol B,Erbengi A

    更新日期:1996-06-01 00:00:00

  • The correlation between nitric oxide and vascular endothelial growth factor in spinal cord injury.

    abstract:STUDY DESIGN:Prospective, randomized, placebo-controlled, experimental study. OBJECTIVES:The issue of whether nitric oxide (NO) production is beneficial or deleterious on ischemic injuries of the central nervous system still remains doubtful. Vascular endothelial growth factor (VEGF) is known to induce the release of ...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3102066

    authors: Savas S,Savas C,Altuntas I,Adiloglu A

    更新日期:2008-02-01 00:00:00

  • Upper thoracic disc herniation followed by acutely progressing paraplegia.

    abstract:STUDY DESIGN:Case report. OBJECTIVE:To report a rare thoracic intervertebral disc herniation followed by acutely progressing paraplegia. SETTING:Spinal Injuries Center, Fukuoka, Japan. METHOD:A 37-year-old man presented with sudden severe backache and acutely progressing motor impairments of both lower extremities a...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3101781

    authors: Sasaki S,Kaji K,Shiba K

    更新日期:2005-12-01 00:00:00

  • Targeting inflammation to influence cognitive function following spinal cord injury: a randomized clinical trial.

    abstract:STUDY DESIGN:This study was a randomized, parallel-group, controlled clinical trial. OBJECTIVES:The purpose of this study was to examine the efficacy of targeting inflammation as a means of improving cognitive function in individuals with spinal cord injury. SETTING:Participants were recruited from the Niagara region...

    journal_title:Spinal cord

    pub_type: 杂志文章,随机对照试验

    doi:10.1038/sc.2016.96

    authors: Allison DJ,Josse AR,Gabriel DA,Klentrou P,Ditor DS

    更新日期:2017-01-01 00:00:00

  • Level walking and ambulatory capacity in persons with incomplete spinal cord injury: relationship with muscle strength.

    abstract:STUDY DESIGN:Prospective analysis of relationships. OBJECTIVES:(1) To quantify the relationship between individual lower extremity muscle strength and functional walking measures and (2) to determine whether a multiple regression model incorporating lower extremity muscle strength could predict the performance of func...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3101569

    authors: Kim CM,Eng JJ,Whittaker MW

    更新日期:2004-03-01 00:00:00

  • Charcot joint of the spine, a cause of autonomic dysreflexia in spinal cord injured patients.

    abstract:STUDY DESIGN:Case report of two subjects. OBJECTIVE:Charcot joints of the spine as a cause of Autonomic Dysreflexia in spinal cord lesions. SETTING:Stoke Mandeville Hospital, UK. METHOD:Two patients with long standing spinal cord lesions developed symptoms of headaches and sweating associated with sitting up and tra...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3101345

    authors: Selmi F,Frankel HL,Kumaraguru AP,Apostopoulos V

    更新日期:2002-09-01 00:00:00

  • The administration of high-dose methylprednisolone for 24 h reduced muscle size and increased atrophy-related gene expression in spinal cord-injured rats.

    abstract:OBJECTIVE:Administration after spinal cord injury (SCI) of methylprednisolone (MP) for 24-48 h has been suggested to improve functional outcome. The safety of this approach has been questioned because of the known adverse effects of glucocorticoids on skeletal muscle and the immune system. The purpose of this study was...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sc.2011.28

    authors: Wu Y,Hou J,Collier L,Pan J,Hou L,Qin W,Bauman WA,Cardozo CP

    更新日期:2011-08-01 00:00:00

  • Use of a free jejunal graft for oesophageal reconstruction following perforation after cervical spine surgery: case report and review of the literature.

    abstract:STUDY DESIGN:: Single-subject (male, 16 years of age) case. OBJECTIVES:To demonstrate a suitable method for oesophageal repair after perforation as a complication of anterior spinal fusion in an individual with quadriplegia, and to review the literature on oesophageal perforation and repair. SETTING:University hospit...

    journal_title:Spinal cord

    pub_type: 杂志文章

    doi:10.1038/sj.sc.3101439

    authors: Küntscher MV,Erdmann D,Boltze WH,Germann G

    更新日期:2003-10-01 00:00:00

  • Management of patients with an incomplete cervical spinal cord injury.

    abstract::Forty-five patients with incomplete cervical spinal cord injuries were examined as to the mechanism of injury, neurological deficits in the initial stage and differences in treatment. Nineteen (42.2%) were treated non-surgically and 26 (57.8%) surgically. Their injuries could be divided into seven types of cervical sp...

    journal_title:Spinal cord

    pub_type: 临床试验,杂志文章

    doi:10.1038/sc.1996.111

    authors: Asazuma T,Satomi K,Suzuki N,Fujimura Y,Hirabayashi K

    更新日期:1996-10-01 00:00:00

  • Exploring quality of life following high spinal cord injury: a review and critique.

    abstract:STUDY DESIGN:Review. OBJECTIVES:To explore the concept of quality of life (QOL), critique the practice and problems of assessing QOL following spinal cord injury (SCI) and to review the findings of studies into QOL for people with SCI both below and above the level of C4. METHODS:Relevant articles were identified fro...

    journal_title:Spinal cord

    pub_type: 杂志文章,评审

    doi:10.1038/sj.sc.3101636

    authors: Hammell KW

    更新日期:2004-09-01 00:00:00