Practical Tools to Monitor and Evaluate Transition.

Abstract:

:The success of transition for children and youth with neurological disorders depends on leadership from the pediatric neurology team to encourage and support the patient's firm knowledge base of the medical condition, gradual acceptance of self-management skills and confident self-advocacy. While the foundations of effective medical transition have been effectively outlined, the challenge remains to translate from principles to practice. The Child Neurology Foundation has published open source, practical guides which are designed to facilitate the ability to structure and monitor the process through adolescence as well as to insure an effective transfer of care to adult providers. In addition, this article provides one hospital;'s efforts to integrate the transition process into the electronic medical record.

journal_name

Semin Pediatr Neurol

authors

Brown LW

doi

10.1016/j.spen.2020.100852

subject

Has Abstract

pub_date

2020-12-01 00:00:00

pages

100852

eissn

1071-9091

issn

1558-0776

pii

S1071-9091(20)30074-7

journal_volume

36

pub_type

杂志文章,评审
  • A case that is not for the faint of heart.

    abstract::A 5-year-old was admitted after an episode of loss of consciousness and an episode of convulsive activity. Information that aids in differentiating seizures and syncope is discussed. ...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2008.10.003

    authors: McGregor A

    更新日期:2008-12-01 00:00:00

  • Postural tachycardia syndrome in children and adolescents.

    abstract::Postural tachycardia syndrome is a chronic condition with frequent symptoms of orthostatic intolerance or sympathetic activation and excessive tachycardia while standing, without significant hypotension. Orthostatic symptoms include dizziness, lightheadedness, blurring of vision, near faints, weakness in legs, poor co...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2013.01.001

    authors: Jarjour IT

    更新日期:2013-03-01 00:00:00

  • A review of newborn screening in the era of tandem mass spectrometry: what's new for the pediatric neurologist?

    abstract::Newborn screening has evolved from a single test for a single metabolite to a test that detects more than 90 metabolites on a single blood spot. In the past decade, the panel of newborn-screening disorders has rapidly expanded and will continue to grow as more is discovered about the human genome. It continues to be a...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2008.05.003

    authors: Copeland S

    更新日期:2008-09-01 00:00:00

  • A Quiet Disease With Loud Manifestations.

    abstract::Cytomegalovirus (CMV) is the most common congenital virus passed from mother to fetus in the United States, and the most common acquired cause of sensorineural hearing loss. Neuroimaging in patients with symptomatic congenital CMV demonstrates abnormalities frequently, but many providers are unaware of the extent of t...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2017.03.014

    authors: Moresco BL,Svoboda MD,Ng YT

    更新日期:2018-07-01 00:00:00

  • Cyclic vomiting syndrome: age-old syndrome and new insights.

    abstract::Cyclic vomiting is a variant of migraine that is discussed in depth. The importance of the diagnostic criteria, differential diagnosis, supportive and pharmacologic therapies is stressed. ...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1053/spen.2001.23456

    authors: Li BU

    更新日期:2001-03-01 00:00:00

  • Understanding the mechanisms of callosal development through the use of transgenic mouse models.

    abstract::The cerebral cortex is the area of the brain where higher-order cognitive processing occurs. The 2 hemispheres of the cerebral cortex communicate through one of the largest fiber tracts in the brain, the corpus callosum. Malformation of the corpus callosum in human beings occurs in 1 in 4000 live births, and those aff...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2009.07.003

    authors: Donahoo AL,Richards LJ

    更新日期:2009-09-01 00:00:00

  • Protein surplus myopathies and other rare congenital myopathies.

    abstract::The protein surplus myopathies have emerged as a newly recognized subgroup of morphologically defined myopathies within the spectrum of congenital myopathies because of the accumulation of protein aggregates, some of them mutant proteins. Currently, nosologic, including molecular criteria include desmin-related myopat...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1053/spen.2002.33799

    authors: Goebel HH,Borchert A

    更新日期:2002-06-01 00:00:00

  • Neurology training for the child neurologist.

    abstract::The training of the child neurologist in the fundamentals of neurology is discussed. Although the fundamentals of neurology are clearly necessary for the practice of child neurology, the breadth of the background necessary for the practice of child neurology depend on the interest, enthusiasm, and goals of the residen...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2011.05.006

    authors: Bodensteiner J

    更新日期:2011-06-01 00:00:00

  • Craniovertebral junction anomalies: diagnosis and management.

    abstract::The craniovertebral junction is the most complex of the axial skeleton, residing between the skull and the upper cervical spine. Congenital, developmental, and acquired bony abnormalities result in compression and distortion of the neural structures, the vertebrobasilar vascular system, and the cerebrospinal fluid cha...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/s1071-9091(97)80038-1

    authors: Menezes AH

    更新日期:1997-09-01 00:00:00

  • Mosaic Neurocutaneous Disorders and Their Causes.

    abstract::Neurocutaneous disorders are a heterogeneous group of conditions (mainly) affecting the skin [with pigmentary/vascular abnormalities and/or cutaneous tumours] and the central and peripheral nervous system [with congenital abnormalities and/or tumours]. In a number of such disorders, the skin abnormalities can assume a...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2015.11.001

    authors: Ruggieri M,Praticò AD

    更新日期:2015-12-01 00:00:00

  • The pediatric neurosurgical patient: the challenge of growing up.

    abstract::Adults treated in infancy for conditions such as spina bifida and hydrocephalus are not cured of their conditions even after reaching adulthood. However, patients who have received coordinated care within a children's facility are unlikely to find the same type of coordinated care when they become adults. This article...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2009.03.004

    authors: Rekate HL

    更新日期:2009-03-01 00:00:00

  • The relationship between sleep and epilepsy.

    abstract::The occurrence of seizures in the sleep state is observed in nearly one third of patients. This is caused by an intimate relationship between the physiological state of sleep and the pathological process underlying epileptic seizures. Both sleep and sleep deprivation influence the frequency of epileptiform discharges ...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2008.03.007

    authors: Kotagal P,Yardi N

    更新日期:2008-06-01 00:00:00

  • Sydenham's chorea as a presentation of Moyamoya disease.

    abstract::A seven year-old male presented to his pediatrician with choreiform movements and a recent history of sore throat. He was diagnosed with Sydenham's chorea based on clinical criteria and laboratory evidence. Worsening symptoms prompted a magnetic resonance imaging (MRI) of the brain which demonstrated evidence of Moyam...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2010.01.004

    authors: Cardenas JF,Chapman K

    更新日期:2010-03-01 00:00:00

  • Deletion 22q11: spectrum of associated disorders.

    abstract::Velocardiofacial syndrome, also called Shprintzen syndrome or DiGeorge sequence, is one of the most common genetic disorders in humans. Caused by a microdeletion on chromosome 22, it manifests in a remarkable variety of symptoms in multiple systems. The most frequent anomalies involve palatal function, facial features...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2007.07.005

    authors: Hay BN

    更新日期:2007-09-01 00:00:00

  • Psychiatric Treatment and Management of Psychiatric Comorbidities of Movement Disorders.

    abstract::Pediatric movement disorders may present with psychiatric symptoms at many points during the course of the disease. For the relatively common pediatric movement disorder, Tourette syndrome, psychiatric comorbidities are well-described and treatment is well-studied. Managing these comorbidities may be more effective th...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2017.12.002

    authors: Walsh KH,Soe K,Sarawgi S

    更新日期:2018-04-01 00:00:00

  • When does a ganglion become a brain? Evolutionary origin of the central nervous system.

    abstract::A brain, a neural structure located in the head, differs from a ganglion by the following characteristics: (1) a brain subserves the entire body, not just restricted segments; (2) it has functionally specialized parts; (3) it is bilobar; (4) commissures and neurons form the surface with axons in the central core; (5) ...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1053/spen.2002.32502

    authors: Sarnat HB,Netsky MG

    更新日期:2002-12-01 00:00:00

  • The pursuit of effective neuroprotection during infant cardiac surgery.

    abstract::Advances in infant cardiac surgery have resulted in a dramatic decline in mortality rates; however, neurological morbidity remains an important concern. The effectiveness of a number of interventional strategies to prevent or minimize brain injury during open heart surgery are currently being investigated. This articl...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/s1071-9091(99)80047-3

    authors: du Plessis AJ,Johnston MV

    更新日期:1999-03-01 00:00:00

  • Surgical pathology of epilepsy resections in childhood.

    abstract::In this review, we discuss the important pathological lesions observed in temporal lobectomies and neocortical resections performed for medically refractory seizures in children. A higher percentage of pediatric cases appear to be "lesional" with computed tomography (CT) and magnetic resonance imaging (MRI) and abnorm...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/s1071-9091(05)80034-8

    authors: Jay V,Becker LE

    更新日期:1995-09-01 00:00:00

  • Updates in the genetic evaluation of the child with global developmental delay or intellectual disability.

    abstract::Global developmental delay (GDD) and intellectual disability (ID) occur in up to 3% of the general population and are even more commonly encountered in the setting of the pediatric neurology clinic. New advances in technology and in the understanding of genetic disorders have led to changes in the diagnostic approach ...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2012.09.004

    authors: Flore LA,Milunsky JM

    更新日期:2012-12-01 00:00:00

  • Evaluation and treatment of autoimmune neurologic disorders in the pediatric intensive care unit.

    abstract::Autoimmunity is being increasingly recognized as a cause of neurologic presentations both inside and outside the intensive care unit (ICU) setting. Pediatric autoimmune neurologic diseases likely to be seen in the ICU include autoimmune encephalitidies such as N-Methyl-D-aspartate (NMDA) receptor encephalitis, central...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2014.12.008

    authors: Benson LA,Olson H,Gorman MP

    更新日期:2014-12-01 00:00:00

  • Psychological factors in childhood headaches.

    abstract::Recurrent headaches in children are most often migraines and are based in a genetic predisposition with a low headache threshold. As with any pain experience, there is a large emotional component associated with an attack of migraines that grows in amplitude as the headaches become more frequent and resistant to medic...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2010.04.002

    authors: Farmer K,Dunn D,Scott E

    更新日期:2010-06-01 00:00:00

  • Creatine Defects and Central Nervous System.

    abstract::Creatine deficiency syndromes are a group of disorders of creatine (Cr) synthesis and transport characterized by intellectual disability, language delay, epilepsy, autism spectrum disorder, and movement disorders secondary to decrease of Cr concentration in the brain. Synthesis defects are treatable, therefore an earl...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2016.11.003

    authors: Fons C,Campistol J

    更新日期:2016-11-01 00:00:00

  • Paroxysmal kinesigenic dyskinesias.

    abstract::The paroxysmal dyskinesias (PxDs) are involuntary, intermittent movement disorders manifested by dystonia, chorea, athetosis, ballismus or any combination of these hyperkinetic disorders. Paroxysmal kinesigenic dyskinesia (PKD), one of the four main types of PxD, involves sudden attacks of dyskinesias induced by volun...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/s1071-9091(02)00012-8

    authors: Lotze T,Jankovic J

    更新日期:2003-03-01 00:00:00

  • Pediatric residency preceding child neurology training.

    abstract::Training in child neurology requires formal training in other aspects of pediatrics. This pediatrics training affords the ability to obtain a developmentally appropriate history and physical examination at all stages of childhood and adolescence and to provide anticipatory guidance to children and families of all deve...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2011.05.007

    authors: Schor NF

    更新日期:2011-06-01 00:00:00

  • The Philosophical Basis of Bioethics.

    abstract::In this article, I consider in what sense bioethics is philosophical. Philosophy includes both analysis and synthesis. Analysis focuses on central concepts in a domain, for example, informed consent, death, medical futility, and health. It is argued that analysis should avoid oversimplification. The synthesis or synop...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2015.05.005

    authors: Horn P

    更新日期:2015-09-01 00:00:00

  • Neurosurgery for pediatric brain tumors.

    abstract::Pediatric brain tumors should be treated at multispecialty centers where the pediatric neurosurgeon constitutes a critical component to the team. Pediatric brain tumors are relatively rare, and diagnosis is often delayed because of the protean manifestations of these tumors clinically. The tumors can occur anywhere al...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/s1071-9091(97)80013-7

    authors: Mickle JP

    更新日期:1997-12-01 00:00:00

  • Imaging the brachial plexus and peripheral nerves in infants and children.

    abstract::Imaging of the brachial plexus and peripheral nerves is challenging in the pediatric patient. Magnetic resonance imaging is the modality of choice as it is not invasive and demonstrates proximal and distal lesions. This may be used to detect nerve root avulsions, nerve ruptures, pseudo-meningoceles, brachial plexus sc...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/s1071-9091(00)80006-6

    authors: Birchansky S,Altman N

    更新日期:2000-03-01 00:00:00

  • The evaluation of treatment-resistant epilepsy.

    abstract::An estimated 10% to 40% of children with epilepsy have treatment-resistant epilepsy. Persistent seizures have negative psychosocial, behavioral, cognitive, and financial consequences and are associated with an increased mortality rate. Accurate syndromic and etiologic diagnoses are of vital importance because they may...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章,评审

    doi:10.1016/j.spen.2011.06.002

    authors: Skjei KL,Dlugos DJ

    更新日期:2011-09-01 00:00:00

  • Astrocyte form and function in the developing central nervous system.

    abstract::Astrocytes have long been forgotten entities in our quest to understand brain function. Over the last few decades, there has been an exponential increase in our knowledge of central nervous system (CNS) function, and, consequently, astrocytes have emerged as key figures in CNS physiology and disease. Indeed, several p...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2013.10.003

    authors: Chaboub LS,Deneen B

    更新日期:2013-12-01 00:00:00

  • Perspectives of young adults with cerebral palsy on transitioning from pediatric to adult healthcare systems.

    abstract::Transition from pediatric to adult healthcare is a well-established challenge for individuals with neurodevelopmental disorders like cerebral palsy. With regard to ethics, some of the key aspects to explore include the following: if and how individuals feel respected during the transition process; if and how their val...

    journal_title:Seminars in pediatric neurology

    pub_type: 杂志文章

    doi:10.1016/j.spen.2013.06.009

    authors: Larivière-Bastien D,Bell E,Majnemer A,Shevell M,Racine E

    更新日期:2013-06-01 00:00:00