A life where concealment and exposure coexist-The antiretroviral therapy adherence of people living with HIV infection: A phenomenological study.

Abstract:

AIM:The aim of this study is to identify the nature and structure of the real world experiences of people living with HIV infection and adhering to antiretroviral therapy (ART). DESIGN:Giorgi's phenomenological method was applied. METHODS:Data collection was conducted from 1 November 2016-1 September 2017. A total of six participants participated in the study. The Consolidated Criteria for Reporting Qualitative Research (COREQ) was used to report this study. RESULTS:The findings show that the structure of the experience of people living with HIV and adhering to ART is composed of six essential common constituents: (a) ART adherence has become a prerequisite for a normal life; (b) Endless adjustments responding to a sensitive body; (c) Dosing Time becomes the framework of the day; (d) Dosing time needing to coincide with the availability of confidential dosing space; (e) Classification of Relationships-those who know of my taking antiretroviral drugs and those who do not; and (f) Recognition of the multiple relationships affecting ART. CONCLUSION:Adhering to ART is experienced by people infected with HIV not only as a process they want to hide, but also a critical lifeline that stabilizes their lives. That is, their day-to-day living is split into a double life reflecting their coexisting need for concealment and exposure. IMPACT:Although much existing literature focuses on the adherence to medication, this study reveals the meaning of ART in the context of viewing the patient as an independent subject. Contrary with what people living with HIV want, they are at risk of external exposure during the process of treatment. This study highlights the need for nurses to communicate with patients about the strategies they need to meet the challenges they face. :目的: 该研究旨在识别艾滋病毒感染者和坚持抗逆转录病毒治疗(ART)者的真实世界经历性质和架构。 设计: 采用了乔治现象学方法。 方法: 在2016年11月1日至2017年9月1日进行数据采集。共有6名受试者参与了该研究。该研究采用定性研究统一报告准则(COREQ)进行报告。 结果: 研究结果表明,艾滋病病毒携带者和坚持抗逆转录病毒治疗者的经历架构包括6项基本的共有组分:(a)抗逆转录病毒治疗已成为正常生活的先决条件;(b)对敏感身体无休止的调理;(c)按给药时间划分一天时间;(d)给药时间需与私密给药空间的可用性相一致;(e)关系分类--知道我在服用抗逆转录病毒药物的人和不知道我服用抗逆转录病毒药物的人;(f)认识到影响抗逆转录病毒治疗的多重关系。 结论: 虽然坚持抗逆转录病毒治疗是艾滋病病毒感染者想要隐瞒的经历过程,但它也是稳定艾滋病病毒感染者生命的重要救命方式。也就是说,艾滋病病毒感染者的日常生活被一分为二,这反映了他们想要隐瞒的生活和暴露于外界的生活之间实现共存。 影响: 虽然现存的文献资料强调坚持药物治疗,但该研究揭示了患者被视为独立主体这一背景下的抗逆转录病毒治疗的意义。与艾滋病病毒感染者的需求相反,他们在治疗过程中有暴露于外界的风险。该研究强调了护士需要与患者沟通,了解他们应对挑战所需的策略。.

journal_name

J Adv Nurs

authors

Lee SA,Kim EY,Chang SO

doi

10.1111/jan.14309

subject

Has Abstract

pub_date

2020-04-01 00:00:00

pages

1027-1036

issue

4

eissn

0309-2402

issn

1365-2648

journal_volume

76

pub_type

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