Abstract:
:There is no published research on coping with muscular dystrophy among adults. In the present study, two questionnaires, the Reaction to the Diagnosis of Cancer Questionnaire (RDCQ) and the Mental Adjustment to Cancer scale (MAC), were modified in order to measure coping with muscular dystrophy (MD). A total of 60 people (16-64 years) with diagnosed MD answered the questionnaires in two interviews including semi-structured questions. The replies to these questions were analysed by two independent judges on the basis of the RDCQ and MAC categories for coping. The purpose was twofold: to investigate if cancer-coping categories could be used for the classification of interview answers concerning coping with MD, and to gain knowledge about specific coping with MD. Analysis indicated that 82% of replies to semi-structured questions concerned with emotion/appraisal-focused coping with MD can be described by means of RDCQ and MAC categories. Eight new categories were developed to classify the remaining 18%: Anticipation, Creation of new life values, Minimization, Establishment of control over everyday life, Secretiveness, Fear, Social comparison and Coping with heredity. In addition, 997 replies were classified to represent problem-focused coping. The judges reached good agreement with respect to the proportions of replies in the respective coping categories. However, kappa (kappa) values were within the range of fair to good agreement.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Ahlström G,Sjödén POdoi
10.1046/j.1365-2648.1994.20020314.xsubject
Has Abstractpub_date
1994-08-01 00:00:00pages
314-23issue
2eissn
0309-2402issn
1365-2648journal_volume
20pub_type
杂志文章abstract::This paper considers the difficulties and dangers inherent in attempts to assess attitude as an aspect of learning. It considers the definition of the concept, some implications for educational programmes, and the means and validity, in this context, of different assessment techniques. Finally, a form of learner profi...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1992.tb01932.x
更新日期:1992-04-01 00:00:00
abstract::In this paper the author discusses her experiences as a feminist, nurse and sociologist carrying out a study of hysterectomy. Difficulties in setting up the research, carrying out interviews and publishing reports result from masculine models of sociological research and from the fact that nursing work, including rese...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1984.tb00368.x
更新日期:1984-05-01 00:00:00
abstract::The purpose of this study was to explore the perceived needs and anxiety levels of adult family members of intensive care unit (ICU) patients. The study was conducted over a 3-month period, on a convenience sample of 166 subjects selected from the total adult population of family members visiting an ICU patient in thr...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1991.tb01796.x
更新日期:1991-08-01 00:00:00
abstract:AIM:This study examines the factors that mediate and moderate the relationships of perceived organizational support with work engagement and organization citizenship behaviour. Specifically, affective commitment is posited to mediate and psychological contract breach to moderate the above relationships. BACKGROUND:Nur...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13043
更新日期:2016-11-01 00:00:00
abstract:AIM:To interpret and synthesize nurse-family member experiences when a critically ill loved one is admitted to hospital. BACKGROUND:Having a family member hospitalized in a critical condition is an important stressor. When the family member is also a nurse, the provision of care is more complex, yet little research ex...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1111/jan.12331
更新日期:2014-07-01 00:00:00
abstract::During a study concerned with postoperative hypothermia, Closs (1985) noted an association between patients' core temperatures in the immediate postoperative period and respiratory infection. In this paper, a small follow-up study is reported in which the relationship between postoperative temperature and the developm...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1989.tb01525.x
更新日期:1989-03-01 00:00:00
abstract::Seldom is the work of philosophers invoked by health professionals when examining aspects of care from a philosophical perspective. Instead, students of health care, especially nurses, have been introduced to 'philosophies' which are often superficially examined and poorly understood. This practice fails to develop in...
journal_title:Journal of advanced nursing
pub_type: 传,历史文章,杂志文章
doi:10.1046/j.1365-2648.1998.00637.x
更新日期:1998-08-01 00:00:00
abstract:AIM:The aim of this article is to discuss the concept of frailty and its adequacy in identifying and describing older adults as frail. BACKGROUND:Despite the dramatic increase in use of the term 'frailty' over the past two decades, there is a lack of consensus in the literature about its meaning and use, and no clear ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,meta分析,评审
doi:10.1046/j.1365-2648.2003.02767.x
更新日期:2003-10-01 00:00:00
abstract:AIM:This study aims to evaluate the effects of a community-based program entitled 'Brain Vitality Enhancement (BRAVE)' on the cognitive function, physical and mental well-being of persons with mild cognitive impairment. STUDY DESIGN:This is a parallel wait list randomized controlled trial. METHODS:The BRAVE program c...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.14175
更新日期:2019-12-01 00:00:00
abstract::The study identified those hospital experiences perceived as stressful during hospitalization by patients, which will help clinical nurses to modify the nursing care provided. A Hospital Stress Rating Scale questionnaire of 40 items tested for reliability and validity was used to elicit responses from 100 patients fro...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1991.tb03437.x
更新日期:1991-04-01 00:00:00
abstract:BACKGROUND:The benefits of cardiac rehabilitation programmes have been well documented including reductions in mortality, improved physical performance, and improved quality of life. However, a large number of special needs patients often fail to access these programmes. Of particular concern are elderly patients with ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2003.02518.x
更新日期:2003-01-01 00:00:00
abstract:BACKGROUND AND AIM:User participation has been a widely researched and debated phenomenon in the formulation and implementation of health and social care policy and indeed wider public sector policy in the United Kingdom (UK), yet there remains a vast array of definitions of the term and great variety in the findings o...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2002.02389.x
更新日期:2002-11-01 00:00:00
abstract:BACKGROUND:Herbal medicines, products and therapies are a subject of great public interest both nationally and worldwide. Use of herbal therapy is most common among women and patients with chronic health problems. AIM:This paper reports a study to determine the prevalence of herbal therapy use among women over 65 year...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2003.02970.x
更新日期:2004-04-01 00:00:00
abstract:AIM/S:To assess implementation of the Veterans Health Administration staffing methodology directive. BACKGROUND:In 2010 the Veterans Health Administration promulgated a staffing methodology directive for inpatient nursing units to address staffing and budget forecasting. DESIGN:A qualitative multi-case evaluation app...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12961
更新日期:2016-08-01 00:00:00
abstract:AIMS:To understand the impact of urban violence and crime on HIV care delivery. BACKGROUND:Urban violence and crime can put pressure on the healthcare system and on nursing staff. Whilst there is research about the impact this has at the individual level, there is less research that places this in the context of the o...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.14022
更新日期:2019-08-01 00:00:00
abstract::Nurses are the major caregivers for the aged with brain failure. The patients' needs and resources must be continually reassessed and care adjusted to the changing situation whether the patient is at home, attending a community ambulatory clinic, or in a hospital or a long-term institution. The nursing role includes h...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1986.tb01262.x
更新日期:1986-07-01 00:00:00
abstract:AIM:This paper is a report of a study conducted to identify the difference between mode of group exercise and health-related quality of life (HRQOL), to determine the associations between mode of group exercise chosen by participants and their demographic characteristics, and to identify themes from narrative comments ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2010.05456.x
更新日期:2011-03-01 00:00:00
abstract::With the development of the concept of community care there has been a significant expansion of the community psychiatric nurse (CPN) profession. The present study attempts to examine which aspects of their work CPNs currently find stressful. The study also examines the various strategies which CPNs feel to be useful ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1995.tb02519.x
更新日期:1995-02-01 00:00:00
abstract:AIM:To examine the relationships of health literacy to diabetes self-care behaviors (diet, physical exercise, foot care and blood glucose monitoring) through empowerment controlling for diabetes education. BACKGROUND:Potential mechanisms of how health literacy links to health outcomes have not clearly elucidated. DES...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13738
更新日期:2018-10-01 00:00:00
abstract:AIM:This paper is a report of a study to investigating the incidence types and causes of medication errors (MEs) and the consequences for patients. Background. Medication errors are a common problem in hospitals around the world, including those in Brazil. METHOD:An exploratory, quantitative survey design was used and...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2009.04979.x
更新日期:2009-06-01 00:00:00
abstract::This paper addresses the emergence of a humanist discourse within nursing and questions the extent to which it represents the panacea implied within much of the humanist nursing literature. Particular attention will be given to whether it represents an ontological and epistemological framework capable of understanding...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1046/j.1365-2648.1995.22030442.x
更新日期:1995-09-01 00:00:00
abstract:AIMS:To evaluate the clinical validity indicators for the nursing diagnosis of dysfunctional family processes related to alcohol abuse. BACKGROUND:Alcoholism is a chronic disease that negatively affects family relationships. Studies on the nursing diagnosis of dysfunctional family processes are scarce in the literatur...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12999
更新日期:2016-10-01 00:00:00
abstract:AIM:To develop and psychometrically test the distress thermometer for caregivers (DT-C) and document the distress level in primary caregivers of children and adolescents diagnosed with schizophrenia. DESIGN:A validation diagnostic accuracy study and descriptive cross-sectional survey. METHODS:DT-C was adopted based o...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.14233
更新日期:2020-02-01 00:00:00
abstract:AIMS:This study compared the work-related experiences and personal health status of double-duty caregivers with those of caregivers who do not provide informal care to a family member or close friend in need. BACKGROUND:The interest in providing informal care alongside employment is growing. However, little attention ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12320
更新日期:2014-07-01 00:00:00
abstract::Prolonged waiting for major elective surgery has been a problem in several Western countries for many years. In Iceland coronary artery bypass graft (CABG) surgery was installed in 1986 and this descriptive study was conducted to describe systematically the experience of Icelandic people waiting for CABG surgery with ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1998.00497.x
更新日期:1998-01-01 00:00:00
abstract:AIM:To longitudinally describe stroke caregivers' quality of life, anxiety, depression and burden and to identify predictors of stroke caregivers' quality of life, anxiety, depression and burden. BACKGROUND:Caregivers have a key role in stroke survivor care and the first year of caregiving is the most challenging. To ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13695
更新日期:2018-04-27 00:00:00
abstract:AIM:To explore how Graduate Entry Nursing students present and position themselves in practice in response to anti-intellectualist stereotypes and assessment structures. BACKGROUND:A complex background turbulence exists in nurse education which incorporates both pro- and anti-intellectualist positions. This represents...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.12673
更新日期:2015-09-01 00:00:00
abstract::Little information exists in the literature to assist the nurse in understanding people of ethnic minority group status who become hospitalized in an acute-care setting. Research on these populations has primarily centred on out-patient service utilization and on folk health practices, yet the process of becoming hosp...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1984.tb00399.x
更新日期:1984-09-01 00:00:00
abstract::In this paper, research guided by the principles of fourth-generation evaluation, which has negotiation as its centre, will be scrutinized. The role of stakeholders will be discussed with reference to negotiation issues. Throughout this discussion, observations will be based on the actual process of conducting three p...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2000.01253.x
更新日期:2000-01-01 00:00:00
abstract::The author argues that the practice of nursing should be based on the "nursing model" related to care not the "medical model" related to cure. Using the nursing model entails making an assessment of the patient's needs and an individualized nursing care plan to meet them. It is conceded that the historical development...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1979.tb02983.x
更新日期:1979-01-01 00:00:00