Abstract：
AIM:The first aim of this study was to explore the lived experiences of parents caring for their autistic children and their experiences with safety for these children. The second aim was to elicit safety recommendations from the parents of autistic children. DESIGN:Hermeneutic phenomenology. METHODS:Fifteen participants who self-reported they were parents of children with autism were recruited via snowball sampling. Data were collected from September 2017-December 2018 in audiotaped interviews using semi-structured questions. Interviews were held with four participants to determine if the findings represented their experiences and concerns accurately. RESULTS:Two underlying structures which demonstrated the trajectory of the experience caring for autistic children were lost/finding our way and battle ready/battle weary. The phenomenological themes within battle weary included living with fear, living with uncertainty and living with disappointment. Resilience was a fourth phenomenological theme which supported the experience of being battle ready. The participants provided recommendations for other parents and healthcare professionals to help keep autistic children safe. CONCLUSION:This study illustrates the unique perspective of parents of autistic children concerning autism and safety. IMPACT:Most parents in this sample reported they faced substantial issues with safety for their child. Study results demonstrated that parents received little to no information about safety from healthcare professionals. Parents of autistic children and healthcare professionals need to be educated about safety issues to prevent injuries and death. :目的: 此项研究的首要目的是探讨父母照顾自闭症儿童的生活经历以及对这些儿童安全问题的经验。第二个目的是从自闭症儿童父母那里获得安全防护建议。 设计: 诠释现象学。 方法: 我们通过雪球式抽样招募了15名自我报告为自闭症儿童父母的参与者。我们在2017年9月至2018年12月期间,通过采用半结构化问题在录音采访中收集了数据。我们与采访了四名参与者,从而确定调查结果是否准确反映了他们的经历和问题。 结果: 两个基本结构表明照顾自闭症儿童的轨迹为迷茫或是找到适合的方法,以及厌战或已做好战斗准备。厌战中的现象学主题包括在生活中担惊受怕、迷茫和失望。恢复是现象学的第四个主题,这支撑着父母准备好战斗。参与者为其他父母和医护专业人员提供了建议,从而帮助保障自闭症儿童的安全。 结论: 此项研究表明自闭症儿童对自闭症和儿童安全有独特的看法。 影响: 此样本中的多数父母报告表示他们面临着孩子安全的实质性问题。研究结果表明,父母几乎没有从医护专业人员处得到有关保障孩子安全的信息。自闭症儿童的父母和医护专业人员需要接受安全教育,从而防止自闭症儿童受伤和死亡。.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Celia T,Freysteinson W,Fredland N,Bowyer Pdoi
10.1111/jan.14213subject
Has Abstractpub_date
2020-01-01 00:00:00pages
221-233issue
1eissn
0309-2402issn
1365-2648journal_volume
76pub_type
杂志文章abstract：OBJECTIVE:To evaluate practice nurse (PN) and health visitor (HV) management of patients with acute minor illnesses, monitor the effect on general practitioner (GP) workload, and describe the range of conditions seen by nurses. DESIGN:Patients requesting 'urgent' appointments (within 24 hours) were offered consultatio...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2001.02008.x
更新日期：2001-11-01 00:00:00
abstract：AIM:This paper reports a study exploring the clinical experiences of student nurses with dyslexia and its potential influence on their practice. BACKGROUND:Widened access to university education has meant an increase in the number of students with dyslexia. A limited number of studies have explored the academic experi...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2006.03806.x
更新日期：2006-04-01 00:00:00
abstract：AIM:This paper reports a concept analysis to define the concept of nursing bioterrorism preparedness. BACKGROUND:Nursing bioterrorism preparedness is necessary, yet no theoretical or operational definition exists. The concept is often misinterpreted as being synonymous with organizational preparedness or confused with...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.2006.03866.x
更新日期：2006-06-01 00:00:00
abstract：:The purposes of this study were to: (a) determine nursing students' perceptions of the learning activities which contribute the most to their knowledge and skills; (b) determine students' perceptions of their learning difficulties; (c) compare the perceptions of English as a second language (ESL) and non-ESL students;...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1997.1997025199.x
更新日期：1997-01-01 00:00:00
abstract：:This study explores variables that might influence nurses' communication with elderly patients. Three groups of variables arise from the literature that seem to affect the quality or quantity of nurse-patient communication: variables related to nurses, to patients, and to the setting in which nursing care takes place....
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1999.01197.x
更新日期：1999-11-01 00:00:00
abstract：:The author considers that whilst nurse tutors teach theory, nurse practitioners go on nursing in the same way that they always have done. There appears to be a chasm dividing theory and practice. This paper describes an attempt to leap that chasm. The paper identifies the problem, inherent in the nursing process that ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1988.tb01428.x
更新日期：1988-05-01 00:00:00
abstract：AIM:To understand the experiences of young women with a disorder of sex development when sharing information about their body with healthcare professionals, friends and intimate partners. BACKGROUND:Disorders of sex development are lifelong conditions that create bodily difference such as absence of reproductive organ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12661
更新日期：2015-08-01 00:00:00
abstract：AIMS:To examine nurse-perceived quality of care, controlling for overall job satisfaction among critical care nurses and to explore associations with work environment characteristics. BACKGROUND:Nurse-perceived quality of care and job satisfaction have been positively linked to quality outcomes for nurses and patients...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,多中心研究
doi：10.1111/jan.13242
更新日期：2017-06-01 00:00:00
abstract：:One hundred and forty-three nurses' aids and 48 enrolled nurses at nursing homes in Sweden were interviewed about food refusal among patients. It became evident that their concepts of 'food refusal' and 'forced feeding' were very vague. This could partly be explained by the lack of knowledge among staff of how to inte...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1988.tb02853.x
更新日期：1988-07-01 00:00:00
abstract：AIMS:To investigate the curvilinear associations between two job characteristics (i.e. task identity and information processing) and negative outcomes (i.e. nurse need for recovery and negative affect). BACKGROUND:Research has historically demonstrated the beneficial effects of motivational job characteristics on seve...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12894
更新日期：2016-05-01 00:00:00
abstract：:This paper considers the difficulties and dangers inherent in attempts to assess attitude as an aspect of learning. It considers the definition of the concept, some implications for educational programmes, and the means and validity, in this context, of different assessment techniques. Finally, a form of learner profi...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1992.tb01932.x
更新日期：1992-04-01 00:00:00
abstract：BACKGROUND:In most parts of the world, nursing historically has been considered an occupation for women. Gender stereotypes are associated with the nursing profession. AIM:The aim was to describe and compare the self-reported competence in female and male nursing students. The students were also compared according to ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.14220
更新日期：2020-01-01 00:00:00
abstract：:The purpose of this research was to examine older adults' perceptions of physical fitness and exercise. This qualitative study was divided into four stages as described by Berg (1989): identification of the concept of the study; development of the interview guide; collection of data; and data analysis. Twenty-three ol...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1996.tb00017.x
更新日期：1996-03-01 00:00:00
abstract：AIMS AND OBJECTIVES:The relationship between mental disturbances - anxiety and depression, somatization and alcohol abuse - on admission to internal medicine units and perceived complexity of care as indicated by the nurse at discharge was studied. The goal was to study the utility of short screeners for mental disturb...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2001.01983.x
更新日期：2001-11-01 00:00:00
abstract：BACKGROUND:While perceptions of parents and staff about care of hospitalized children have been explored in developed countries, little research has examined these in developing countries. Assumptions about family-centred care are often based on Western values, with little evidence of how cultural constructs affect car...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2003.02930.x
更新日期：2004-03-01 00:00:00
abstract：AIM:This paper is a report of a concept analysis of transition to motherhood for mothers with infants in a neonatal intensive care unit. BACKGROUND:Mothers with infants in a neonatal intensive care unit have more difficulty in their transition to motherhood compared with mothers of healthy infants. The concept of tran...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2006.04194.x
更新日期：2007-04-01 00:00:00
abstract：:A situational analysis had demonstrated a need to help staff within an orthopaedic/trauma unit review past and plan future learning. One way of doing this is through the preparation of a portfolio. An action research project was undertaken to explore two research questions: Is the process of portfolio preparation in i...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1995.tb02539.x
更新日期：1995-02-01 00:00:00
abstract：AIM:To assess the quality of evidence and determine the effect of patient-related and economic outcomes of self-management support interventions in chronically ill patients with a low socio-economic status. BACKGROUND:Integrated evidence on self-management support interventions in chronically ill people with low socio...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.13159
更新日期：2017-04-01 00:00:00
abstract：AIM:To explore how nurses, who are the principal character of zombie-focused feature films are portrayed. DESIGN:A mixed methods study with a quantitative exploration of 44,000 feature film synopsis and additional online material for films made between 1900 and 2018 was used. Zombie-focused films (485) were reviewed f...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.14036
更新日期：2019-08-01 00:00:00
abstract：:The purpose of this study was to determine if a relationship exists between work roles, work role values and job satisfaction for registered nurses employed in the hospital setting in the USA. A total of 201 nurses responded (33% response rate) to a survey instrument consisting of questions regarding work roles, work ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1994.20050958.x
更新日期：1994-11-01 00:00:00
abstract：AIM:To examine the predictive role of family sense of coherence, social support and stress during pregnancy and their changes from pregnancy to postpartum on family and marital functioning at 6 weeks postpartum. BACKGROUND:Family sense of coherence plays a significant role in promoting positive family and marital func...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12394
更新日期：2014-11-01 00:00:00
abstract：AIMS:To clarify the subgroups of overtime work motivations and to determine how fatigue, mental status, and work engagement differ among the subgroups. DESIGN:Cross-sectional. METHODS:Questionnaires were distributed to 1,075 full-time nurses working in four hospitals in Japan from October 2015 - February 2016. Nurses...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.13991
更新日期：2019-10-01 00:00:00
abstract：AIM:To report a study conducted to explore childrearing concerns through an analysis of online parenting message boards managed by popular parenting magazines. Background. Increasingly, mothers appear to be turning to the Web for childrearing advice and support. However, no previous studies have examined the childrear...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2012.06030.x
更新日期：2013-03-01 00:00:00
abstract：BACKGROUND:The recent government decision to fund the costs of Registered nursing time in long-term care facilities in England through the Registered Nurse Contribution to Care renders the need to distinguish the role of Registered General Nurses (RGNs) from that of Care Assistants (CAs) in nursing homes increasingly i...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,多中心研究
doi：10.1046/j.1365-2648.2003.02649.x
更新日期：2003-06-01 00:00:00
abstract：AIM:This paper is a report of a systematic review to identify and analyse the main factors affecting the utilization of antenatal care in developing countries. BACKGROUND:Antenatal care is a key strategy for reducing maternal mortality, but millions of women in developing countries do not receive it. DATA SOURCES:A r...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.2007.04532.x
更新日期：2008-02-01 00:00:00
abstract：BACKGROUND:Adolescents' psychosocial development is generally influenced by their peers. Those facing hospital-based cancer treatment are particularly challenged as they are isolated from their social network and lack sufficient coping resources. AIM:This study explores the adolescent cancer survivor's perceptions and...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.14732
更新日期：2021-01-20 00:00:00
abstract：AIM:To report literature search strategies for the purpose of conducting knowledge-building and theory-generating qualitative systematic reviews. BACKGROUND:Qualitative systematic reviews lie on a continuum from knowledge-building and theory-generating to aggregating and summarizing. Different types of literature sear...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2012.06037.x
更新日期：2013-01-01 00:00:00
abstract：BACKGROUND:The economic recession and stringent economic adjustment programme that Jordan has gone through since the early 1980s have resulted in lower living standards and higher rates of poverty and unemployment. Poverty debilitates women and impairs their access to health care, proper nutrition and well-being in gen...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2001.01943.x
更新日期：2001-10-01 00:00:00
abstract：:This paper discusses parents' perceptions of their stress when their children are hospitalized with long-term disabilities. The study used a qualitative method. Data were collected with 40 parents through in-hospital interviews, and were analysed using the method of constant, comparative analysis. Parents' own interpr...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1984.tb00381.x
更新日期：1984-07-01 00:00:00
abstract：AIM:To explore the relationships among various nursing homes characteristics including work environment, careworker outcomes and resident outcomes in Swiss nursing homes. BACKGROUND:In Switzerland, a growing number of older people live in nursing homes. Although research has addressed the issue of quality of nursing c...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12253
更新日期：2014-04-01 00:00:00
