When shared decision-making and evidence based practice clash: Infant sleep practices.

Abstract:

:In complex decisions, there are times when there may be a conflict between the recommendations from clinical practice guidelines and the outcome of a shared decision-making process between the clinician and the patient. Sticking rigidly to practice guidelines can be seen as paternalistic and even dismissive of a patient's specific circumstances and preferences; however, failing to adhere to such guidelines can be troubling for many doctors. In this article, we present and discuss this conflict using the common problem of how to provide family-centred, yet evidence-based guidance on infant sleep practices. Infant sleep practices are a common discussion topic at well-baby visits, and family preferences for infant sleep practices are often at odds with national recommendations. With three cases as a backdrop, we discuss how cultural humility, complexity and trust can be key factors in how the clinician-parent discussion on infant sleep can incorporate safe sleep guidelines into a family-centred, culturally relevant discussion.

authors

Gray B,Coker TR

doi

10.1111/jpc.14577

subject

Has Abstract

pub_date

2019-09-01 00:00:00

pages

1009-1012

issue

9

eissn

1034-4810

issn

1440-1754

journal_volume

55

pub_type

杂志文章
  • Rates of early intervention services in children born extremely preterm/extremely low birthweight.

    abstract:AIM:To determine the rates of early intervention (EI) service use in extremely preterm (EP, <28 weeks' gestation) or extremely low birthweight (ELBW, <1000 g) infants between 1991 and 2013, and identify biological or socio-economic factors associated with receiving EI. METHODS:Participants comprised consecutive EP or ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13668

    authors: Mills IS,Doyle LW,Cheong JL,Roberts G,Victorian Infant Collaborative Study Group.

    更新日期:2018-01-01 00:00:00

  • Missed opportunities for a diagnosis of acute otitis media in Aboriginal children.

    abstract:OBJECTIVE:Severe otitis media and its sequelae are common in rural and remote Aboriginal children. Identification of acute otitis media (AOM) is likely to reduce the number of children who go on to develop chronic suppurative otitis media and associated complications. The aim of this study was to compare the diagnoses ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2003.00210.x

    authors: Gibney KB,Morris PS,Carapetis JR,Skull SA,Leach AJ

    更新日期:2003-09-01 00:00:00

  • CHARGE syndrome: a review.

    abstract::CHARGE syndrome is a complex genetic syndrome, owing to the wide range of tissues/systems affected by mutations in the CHD7 gene. In this review, we discuss the diagnosis, clinical features and management of CHARGE syndrome. ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,评审

    doi:10.1111/jpc.12497

    authors: Hsu P,Ma A,Wilson M,Williams G,Curotta J,Munns CF,Mehr S

    更新日期:2014-07-01 00:00:00

  • Supervisory needs of research doctoral students in a university teaching hospital setting.

    abstract:BACKGROUND/HYPOTHESIS:Teaching hospitals affiliated with universities are now common sites for research higher degree supervision. We hypothesised that the hospital environment poses unique challenges to supervision compared with the traditional university research institute setting. AIMS:This study aimed to identify ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2012.02522.x

    authors: Caldwell PH,Oldmeadow W,Jones CA

    更新日期:2012-10-01 00:00:00

  • Use of the newborn screening card to define cause of death in a 12-year-old diagnosed with epilepsy.

    abstract::Post-mortem investigation of sudden death in young people frequently reveals no overt cause for the death. Full investigation is hampered if tissue or blood is not retained for DNA analysis. We report a post mortem molecular diagnosis of long QT syndrome in a 12-year-old boy diagnosed with epilepsy who died suddenly p...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2004.00498.x

    authors: Skinner JR,Chong B,Fawkner M,Webster DR,Hegde M

    更新日期:2004-11-01 00:00:00

  • Infant care practices associated with sudden infant death syndrome: findings from the Pacific Islands Families study.

    abstract:AIM:To report infant care practice prevalence for known modifiable sudden infant death syndrome (SIDS) risk factors among a generally disadvantaged yet low-SIDS rate population of mothers with Pacific infants. METHODS:The Pacific Islands Families study follows a cohort of Pacific infants born at a large tertiary hospi...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2007.01085.x

    authors: Schluter PJ,Paterson J,Percival T

    更新日期:2007-05-01 00:00:00

  • Advice about infant feeding for allergy prevention: A confusing picture for Australian consumers?

    abstract:AIM:Early feeding plays an important role in programming the immune system, particularly the risk of food allergy. There are many infant feeding guides published for consumers available in Australia, with most based on the National Health and Medical Research Council (NHMRC) 2012 Infant Feeding Guidelines for Health Wo...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13594

    authors: Netting MJ,Allen KJ

    更新日期:2017-09-01 00:00:00

  • Passive exposure to tobacco smoke and bacterial meningitis in children.

    abstract:OBJECTIVE:To determine whether an association exists between passive exposure to tobacco smoke and bacterial meningitis in childhood, in an Australian population. METHODOLOGY:A retrospective, case-controlled telephone survey of the parents of 71 children admitted to the Women's and Children's Hospital, North Adelaide,...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2001.00698.x

    authors: Iles K,Poplawski NK,Couper RT

    更新日期:2001-08-01 00:00:00

  • Factors related to passing the safety fast test among neonates with hypoglycemia in the neonatal intensive care unit.

    abstract:AIM:To investigate the success rates and predictors of safety fast test among neonates admitted to the neonatal intensive care unit for hypoglycemia. METHODS:A retrospective review of neonates transferred from the newborn nursery unit to the neonatal intensive care unit for intravenous dextrose therapy for hypoglycemi...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.15247

    authors: Olowoyeye A,Eisenberg R,Kim M,Havranek T

    更新日期:2020-11-03 00:00:00

  • Cardiac arrhythmias as a manifestation of acquired heart disease in association with paediatric respiratory syncitial virus infection.

    abstract::Respiratory syncitial virus (RSV) is a common cause of upper and lower respiratory tract infection in infants. An association between RSV bronchiolitis and cardiac arrhythmias has been described but is rare. A further case of an infant with supraventricular tachycardia in association with culture-positive respiratory ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,评审

    doi:10.1111/j.1440-1754.1993.tb00519.x

    authors: Armstrong DS,Menahem S

    更新日期:1993-08-01 00:00:00

  • Clonidine overdose in childhood: implications of increased prescribing.

    abstract:OBJECTIVE:To highlight the increase in the number of cases of clonidine overdose admitted to a specialist paediatric hospital, with particular reference to the clinical features, clinical course and circumstances surrounding the incident. METHODS:Cases of clonidine overdose were identified by review of the emergency d...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.1998.00301.x

    authors: Kappagoda C,Schell DN,Hanson RM,Hutchins P

    更新日期:1998-12-01 00:00:00

  • Is bag urine culture useful in monitoring urinary tract infection in infants?

    abstract:OBJECTIVES:We studied the false-positive rate of bag urine cultures in diagnosing bacteriuria in infants and examined the factors responsible for contamination. METHODS:One hundred asymptomatic patients with previous urinary tract infections (UTI; age range 5-23 months; sex ratio M : F 73:27) were screened by bag urin...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2002.00010.x

    authors: Li PS,Ma LC,Wong SN

    更新日期:2002-08-01 00:00:00

  • The prevalence of respiratory symptoms in South Australian preschool children. I. Geographic location.

    abstract:OBJECTIVE:This study was designed to ascertain the prevalence of respiratory symptoms in South Australian preschool children and to investigate the relationship between prevalence rates and geographic location. METHODOLOGY:Data were collected from 14,124 families with a child aged 4 years 3 months to 5 years of age. T...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.1995.tb00757.x

    authors: Volkmer RE,Ruffin RE,Wigg NR,Davies N

    更新日期:1995-04-01 00:00:00

  • Audit of referrals for concern regarding labial appearance at the Royal Children's Hospital: 2000-2012.

    abstract:AIM:To audit the clinical features and outcomes for all patients referred to our centre with concerns regarding labial appearance. METHODS:Young females referred to a paediatric/adolescent gynaecology tertiary centre between 2000 and 2012 with concerns regarding their labial appearance were retrospectively identified....

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.13819

    authors: McQuillan SK,Jayasinghe Y,Grover SR

    更新日期:2018-04-01 00:00:00

  • Antenatal counselling of congenital surgical anomalies: A decade of experience in a local tertiary centre.

    abstract:AIM:This study reviewed the experience of a tertiary paediatric surgery and obstetric centre on prenatal counselling of congenital surgical anomalies and to explore the role of paediatric surgeons on perinatal outcomes of antenatally detected anomalies. METHODS:A retrospective analysis of all antenatal consultations a...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.15321

    authors: Fung ACH,Kan ASY,Chung PH,Shek NWM,Chan IHY,Wong KKY

    更新日期:2021-01-05 00:00:00

  • Clinicopathological features of fatal cardiomyopathy in childhood: an autopsy series.

    abstract:AIM:  Cardiomyopathy, a group of primary myocardial disorders, is an uncommon, but important, cause of death in childhood. This study examines the demographic, clinical and pathological features of fatal cardiomyopathy in childhood with particular reference to its classification and autopsy findings. METHOD:  The meth...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2012.02450.x

    authors: Roberts SE,Pryce JW,Weber MA,Malone M,Ashworth MT,Sebire NJ

    更新日期:2012-08-01 00:00:00

  • Small bowel injuries in children.

    abstract:OBJECTIVE:To determine the common features of small bowel injury (SBI) in childhood and the consequences of delayed diagnosis. METHODOLOGY:A retrospective case review was performed of children with traumatic SBI between January 1988 and November 1999. RESULTS:Twenty-eight patients were identified with SBI. Road traum...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.2000.00502.x

    authors: Holland AJ,Cass DT,Glasson MJ,Pitkin J

    更新日期:2000-06-01 00:00:00

  • Cryptorchidism associated with meningomyelocele.

    abstract:OBJECTIVE:The authors studied 75 male infants with meningomyelocele (MMC) to analyse the association with cryptorchidism. METHODS:All infants were diagnosed at birth and surgically corrected after 24-48 h. Testes were classified undescended in accordance with Kaplan. The associated malformations, the exact levels of t...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.1998.00151.x

    authors: Ferrara P,Rossodivita A,Ruggiero A,Pulitanò S,Tortorolo L,Salvaggio E

    更新日期:1998-02-01 00:00:00

  • ASCIA guidelines for prevention of food anaphylactic reactions in schools, preschools and child-care centres.

    abstract::These guidelines have been developed by the anaphylaxis working party of the Australasian Society of Clinical Immunology and Allergy to provide advice for minimizing the risk of food-induced anaphylaxis in schools, preschools and child-care centres. The guidelines outline four steps for the prevention of food anaphyla...

    journal_title:Journal of paediatrics and child health

    pub_type: 指南,杂志文章

    doi:10.1111/j.1440-1754.2004.00509.x

    authors: Baumgart K,Brown S,Gold M,Kemp A,Loblay R,Loh R,Mitrou D,Mullins R,Peake J,Ruhno J,Said M,Sinclair J,Smith V,Smith W,Solley G,Soutter V,Tang M,Ziegler J,Australasian Society of Clinical Immunology and Allergy Anaphyla

    更新日期:2004-12-01 00:00:00

  • Quality of life and impact of children with unclassified developmental delays.

    abstract:AIMS:The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family. METHODS:In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical devel...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.12081

    authors: Hsieh RL,Hsueh YM,Huang HY,Lin MI,Tseng WC,Lee WC

    更新日期:2013-02-01 00:00:00

  • Early case conferences shorten length of stay in children admitted to hospital with suspected child abuse.

    abstract:OBJECTIVE:To compare the outcomes of two models for the management of children admitted to hospital with suspected child abuse: routine early case conferencing versus standard evaluation. METHODS:Between March 2001 and February 2002 professionals from the Royal Children's Hospital, Melbourne, Victoria Police and Child...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/j.1440-1754.2005.00694.x

    authors: Smith JA,Efron D

    更新日期:2005-09-01 00:00:00

  • Clinical profile of children with nephrotic syndrome not on glucorticoid therapy, but presenting with infection.

    abstract:OBJECTIVE:This is a prospective, hospital based study over a period of one year, to examine the clinical profile of nephrotic children not on glucocorticoid therapy, but presenting with infection. METHODS:Sixty-eight children with 76 episodes of nephrotic syndrome were enrolled during the study year. They were examine...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2004.00285.x

    authors: Alwadhi RK,Mathew JL,Rath B

    更新日期:2004-01-01 00:00:00

  • Severity of rotavirus infection in relation to serotype, monotype and electropherotype.

    abstract::The aim of this study was to determine whether the severity of symptoms associated with rotavirus infection was related to the serotype of the infecting virus. Severity of clinical symptoms in 108 children admitted to hospital for treatment of rotavirus diarrhoea was retrospectively assessed using a scoring system for...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.1992.tb02618.x

    authors: Barnes GL,Unicomb L,Bishop RF

    更新日期:1992-02-01 00:00:00

  • Predischarge screening of very low birthweight infants by click evoked otoacoustic emissions.

    abstract:OBJECTIVE:To evaluate the role of transient evoked otoacoustic emission (TEOAE) in screening very low birthweight (VLBW) neonatal intensive care unit (NICU) graduates for hearing loss in comparison with visual reinforcement orientation audiology (VROA) at 10 months. METHODOLOGY:The study population was all VLBW neonat...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1046/j.1440-1754.1998.00271.x

    authors: Gill AW,Gosling D,Kelly C,Walker P,Wooderson S

    更新日期:1998-10-01 00:00:00

  • Aminotransferases and muscular diseases: a disregarded lesson. Case reports and review of the literature.

    abstract::The aim of this study was to call the attention to the often disregarded message that hypertransaminasemia may be a marker of both liver and muscle diseases by presenting personal case reports and a systematic literature review. Three male children (mean age 5.7 years) were inappropriately addressed, during the last 1...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,评审

    doi:10.1111/j.1440-1754.2010.01730.x

    authors: Veropalumbo C,Del Giudice E,Esposito G,Maddaluno S,Ruggiero L,Vajro P

    更新日期:2012-10-01 00:00:00

  • Cryptococcus gattii infection complicated by immune reconstitution inflammatory syndrome in three apparently immunocompetent children.

    abstract:BACKGROUND:Paediatric Cryptococcus gattii disease is rare, with only two previous cases recorded in the Northern Territory (NT) over the last 54 years. Immune reconstitution inflammatory syndrome (IRIS) is a recognised complication of C. gattii infection, even in the absence of an identified immunodeficiency syndrome; ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/jpc.14321

    authors: O'Brien MP,Ford TJ,Currie BJ,Francis JR

    更新日期:2019-08-01 00:00:00

  • Paediatric cardiopulmonary resuscitation: recent changes to guidelines.

    abstract::Recommended cardiopulmonary resuscitation guidelines for infants and children by health-care personnel have been updated following an extensive review of the science of resuscitation. Notable changes include a change to a single chest compression-to-ventilation ratio of 15:2, a single DC shock (2 J/kg) strategy for sh...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2007.01257.x

    authors: Tibballs J

    更新日期:2008-01-01 00:00:00

  • Assessment and treatment of childhood asthma.

    abstract::In June 1990 a meeting of Paediatric Respiratory Physicians was held near Adelaide. The guidelines for assessing and treating asthma as prepared by the Thoracic Society of Australia and New Zealand for the management of patients with asthma was considered. Although not explicitly stated, these guidelines were designed...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.1991.tb00395.x

    authors: Henry R,Sly P,Godfrey S,Van Asperen P,Staugas R,Le Souef P,Smith G,Robertson I,Robertson C,Phelan P

    更新日期:1991-08-01 00:00:00

  • Comparison of the pharyngeal pressure provided by two heated, humidified high-flow nasal cannulae devices in premature infants.

    abstract:AIMS:This study aims to determine if there is a difference in the pharyngeal pressure, measured as a surrogate for continuous positive distending airway pressure, delivered to premature infants between two commonly used heated, humidified high-flow nasal cannulae (HHHFNC) devices: Fisher & Paykel Healthcare HHHFNC and ...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/jpc.12277

    authors: Collins CL,Holberton JR,König K

    更新日期:2013-07-01 00:00:00

  • Children in out-of-home care: does routine health screening improve outcomes?

    abstract:AIM:Children in out-of-home care have high and frequently unidentified health needs. The Child Protection Unit at Sydney Children's Hospital offers comprehensive health screening to children in care. Recommendations for remediation are made, but follow-up in the clinic is not offered. Current research has failed to est...

    journal_title:Journal of paediatrics and child health

    pub_type: 杂志文章

    doi:10.1111/j.1440-1754.2009.01592.x

    authors: Nathanson D,Lee G,Tzioumi D

    更新日期:2009-11-01 00:00:00