Dementia, family caregivers and health service: the care of yourself and the other.

Abstract:

:This study sought to identify the perception of the family caregivers regarding care provided by them and the ESF to the elderly with dementia. This qualitative, analytical and descriptive research was carried out through semi-structured interviews, with five family caregivers users of a primary care facility organized by the ESF, located in the city of Rio de Janeiro. The collected material was submitted to the French School of discourse analysis. Analysis of the symptoms that affect the routine and the feelings of the caregiver generate considerable changes. Family history, family coping with difficult situations, and support for backwardness represented by lack of support from other family members and the State intensify care-related problems. Self-abdication, isolation, and negative subjective interpretations are the producers and aggravators of the psychic distress of family caregivers. Despite its limitations, the ESF receives seniors with dementia and caregivers, but it is not considered a reference of care by family caregivers. Family caregivers affirm that what intensifies the challenges of care is the situation of abandonment experienced by them, impacting as subjective dynamics of oppression and self-abdication, leading to conflicts that reflect in the care situation. :O estudo buscou conhecer a percepção dos familiares cuidadores acerca do cuidado ao idoso com demência realizado por eles e pela ESF. A pesquisa qualitativa analítica-descritiva foi realizada através de entrevistas semiestruturadas, com cinco familiares cuidadores usuários de uma unidade de atenção primária organizada pela ESF, localizada no município do Rio de Janeiro. O material coletado foi submetido à análise de discurso da Escola Francesa. Análise dos sintomas que impactam na rotina e nos sentimentos do cuidador gerando mudanças consideráveis; o histórico familiar, a forma da família lidar com situações difíceis e o apoio ao avesso representado pela falta de suporte dos outros familiares e do Estado intensificam os problemas relacionados ao cuidado; A abdicação de si, o isolamento e as interpretações subjetivas negativas são produtores e agravantes de sofrimento psíquico do familiar cuidador. A ESF apesar de suas limitações acolhe o idoso com demência e o cuidador, mas não é considerada referência de cuidado pelos familiares cuidadores. Para os familiares cuidadores, o que intensifica os desafios do cuidado é a situação de abandono experienciada por eles, impactando como uma dinâmica subjetiva de opressão e abdicação de si, levando a conflitos que refletem na situação de cuidado.

journal_name

Cien Saude Colet

journal_title

Ciencia & saude coletiva

authors

Nascimento HGD,Figueiredo AEB

doi

10.1590/1413-81232018244.01212019

subject

Has Abstract

pub_date

2019-04-01 00:00:00

pages

1381-1392

issue

4

eissn

1413-8123

issn

1678-4561

pii

S1413-81232019000401381

journal_volume

24

pub_type

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