Abstract:
:Based on the question of an inspiring work - "Is the Market good for one's Health?", this paper poses a similar question, centered on "associativism" (belonging to a labor group or association) and the field of rare diseases. Starting from the research carried out in the scope of the Master's Degree in Sociology of the School of Economics of the University of Coimbra, this text puts into perspective the formulations created for the field of genetic conditions that, mainly, depart from a Eurocentric vision. The field of rare diseases is analyzed, identifying the roles, relationships and motivations of the different actors, namely, civil associations, pharmaceutical industry, academy, government, and families. The analysis highlights the preponderance of the market and the production of medicines, identifying a governance model - Utility Model of Care - in which the person who suffers and his/her family are left devoid of their subjectivity and transmuted into medication and market agents. :Baseado no questionamento “O Mercado faz bem à Saúde?” de um trabalho inspirador, este artigo realiza um questionamento semelhante, centrado no associativismo e no campo das doenças raras. Partindo da pesquisa realizada no âmbito do Mestrado em Sociologia da Faculdade de Economia da Universidade de Coimbra, este texto coloca em perspectiva as formulações criadas para o campo das condições genéticas que, majoritariamente, partem de uma visão eurocentrista. Analisa-se o campo das doenças raras, identificando os papéis, as relações e as motivações dos diferentes atores, nomeadamente, associações civis, indústria farmacêutica, academia, governo e famílias. Da análise sobressai a preponderância do mercado e da produção de medicamentos, identificando-se um modelo de governação – Modelo Utilitário de Cuidado –, no qual a pessoa que sofre e as suas famílias são esvaziadas da sua subjetividade e transmutadas em medicação e agentes de mercado.
journal_name
Cien Saude Coletjournal_title
Ciencia & saude coletivaauthors
Barbosa RL,Portugal Sdoi
10.1590/1413-81232018232.24032017subject
Has Abstractpub_date
2018-02-01 00:00:00pages
417-430issue
2eissn
1413-8123issn
1678-4561pii
S1413-81232018000200417journal_volume
23pub_type
杂志文章abstract::Caries Assessment Spectrum and Treatment (CAST) is an instrument developed for caries detection to be used in epidemiological surveys; it has been validated and is believed to provide a clearer picture of the oral health status than the criteria provided by the World Health Organization (WHO). This article aims to com...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232018249.21682017
更新日期:2019-09-09 00:00:00
abstract::The presence of clowns in hospitals is relatively recent and more than 700 organizations now perform clown therapy in hospitals in Brazil and around the world. Considering the emphasis on comprehensive care and the humanization of health, it is timely to understand and analyze the national and international scientific...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章,评审
doi:10.1590/1413-81232018249.22832017
更新日期:2019-09-09 00:00:00
abstract::The main objective of this study was to analyze the narratives of young university students about the experience of sexual initiation. The theoretical and conceptual references used were the sexual scripts of our society that inform people about when, how, where and with whom they should have their sexual experiences,...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232009000200034
更新日期:2009-03-01 00:00:00
abstract::Purpose in life (PiL) is defined as the sense that life has meaning and intentionality, and plays a guiding role in life goals and decision making regarding the use of personal resources. OBJECTIVES:to recognize and analyze data on PiL and conditions associated with good aging or with positive adaptation in aging. M...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232020256.20602018
更新日期:2020-06-01 00:00:00
abstract::Social policy councils began to be set up in municipalities in Brazil in the 1990s, first in the health care sector, then spreading to other sectors, for the purpose of including civil society in municipal policy management. Among the advances, studies revealed the formation of a network of government and non-governme...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232013000700021
更新日期:2013-07-01 00:00:00
abstract::This article seeks to analyze contraceptive practices of Brazilian adolescents and to discuss associated vulnerability situations. A cross-sectional study was conducted, using the database of the National Survey on Demography and Health of Women and Children _ PNDS 2006. Factors associated with the current use of cont...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232013001200020
更新日期:2013-12-01 00:00:00
abstract::The urban environment influences human health and behavior, and a clearer understanding of the health determinants of populations living in cities is needed. Using data from the National Household Sampling Survey (PNAD) 2008, with ordinal logistic models incorporating the sampling plan, this study assessed the associa...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232011001000013
更新日期:2011-09-01 00:00:00
abstract::The scope of this study was to estimate calibrated values for dietary data obtained by the Food Frequency Questionnaire for Adolescents (FFQA) and illustrate the effect of this approach on food consumption data. The adolescents were assessed on two occasions, with an average interval of twelve months. In 2004, 393 ado...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232012000200019
更新日期:2012-02-01 00:00:00
abstract::The objective of this article is to describe the utensils used throughout history to feed non breastfed infants. The method used was article review, reference search on the MEDLINE, LILACS and SciELO databases from 1966 to 2007 and documental analysis based on data from the internet, encyclopedias, art and history boo...
journal_title:Ciencia & saude coletiva
pub_type: 历史文章,杂志文章,评审
doi:10.1590/s1413-81232010000700050
更新日期:2010-06-01 00:00:00
abstract::200 million pre-school age children are not developing properly. Delays in child development are associated with multiple factors. This study aims to analyze if vitamin A supplementation is associated with improved development and how this effect could be mediated by nutritional status. Population-based study surveyed...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232018248.22242017
更新日期:2019-08-05 00:00:00
abstract::Analysis of the effect between the use of Facebook, perceived stress and alcohol consumption among young people. A descriptive, correlative and cross-sectional study was carried out. The sample of 1110 young university students from Nuevo León, Mexico, was selected by probability sample. Personal Data and Prevalence o...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-812320182311.27132016
更新日期:2018-11-01 00:00:00
abstract::In 1998, the Brazilian Ministry of Health established the Guidelines for Protection in Medical and Odontological Radiography, aimed at ensuring the quality of radiological procedures provided to the population as well as radiological protection for the health professionals. The purpose of this study was to verify the ...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232008000900021
更新日期:2008-12-01 00:00:00
abstract::The article discusses the role of the Ciência & Saúde Coletiva Journal in the dissemination of knowledge in Brazil and in the international scientific community, its new challenges and role in the consolidation of the national public health field. Its history is outlined, positioning it as a scientific journal and the...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232015207.04802015
更新日期:2015-07-01 00:00:00
abstract::The aim of this study was to evaluate the resilience of adolescents participants and non-participants of social projects for sports relating it to their sociodemographic profile. Cross-section Study, comparative and analytical, covered 134 adolescents, from ages 12 to 17, residing in a social zone of high vulnerabilit...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232020253.18362018
更新日期:2020-03-01 00:00:00
abstract::This study compares the challenges for work in emergency services of publicuniversity hospitals in Algeria, Brazil and France. The description and analysis are organized in three topics: context and trajectory of the health systems; hospitals and emergency services; and the challenges that are faced. The research carr...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232018237.08762018
更新日期:2018-07-01 00:00:00
abstract::This article approaches autonomy and citizenship in the psychosocial rehabilitation process. The bibliographical review approaches concepts such as de-institutionalization and rehabilitation used by authors following the tradition of Basaglia, as well as American and British authors discussing the question rehabilitat...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章,评审
doi:10.1590/s1413-81232009000100022
更新日期:2009-01-01 00:00:00
abstract::Obesity is considered the most important nutritional disorder due to a rapid increase in its prevalence in recent years. The scope of this study was to estimate the prevalence of abdominal obesity and excess fat in students aged 11 to 14 (boys and girls) from a town in the mountains of southern Brazil, and to verify t...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:
更新日期:2013-05-01 00:00:00
abstract::This study analyzes the meanings attributed to the concept of the medicalization of childbirth from a narrative review of the literature in national journals published between 2000 and 2017. It is based on the more general concept of medicalization - understood as the process by which medicine broadens and consolidate...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-812320202511.00752019
更新日期:2020-11-01 00:00:00
abstract::The article results from a qualitative research on the perception of health of the Guarany Mbyá ethnic group held in 3 villages in the South of Brazil. The cultural characteristics of the group were surveyed in the literature, observed in fieldwork and confirmed in the 20 open interviews conducted with community membe...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232011000700024
更新日期:2011-01-01 00:00:00
abstract::Poor mothers and their families constitute a core dilemma for a social welfare system that aims primarily to encourage and keep workers in the labor force. Public income transfers to these and other marginalized groups may be viewed as disincentives to seek paid work and have been characterized in Canada by stinginess...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232007000600015
更新日期:2007-11-01 00:00:00
abstract::Anemia is a public health problem that affects about 30% of Brazilian women, which may cause deleterious effects on the health and quality of life of mother and child. This article seeks to evaluate the healthcare and gestational factors associated with anemia among mothers receiving care at a human milk bank (HMB) of...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-812320182311.34832016
更新日期:2018-11-01 00:00:00
abstract::This paper explores some ethical dilemmas faced while doing fieldwork. Ethical norms are not enough to appraise the relationship between researchers and participants; a reflexivity practice is needed to understand the dilemmas aroused during this process. Here four issues faced during fieldwork are presented. The acad...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232012000300005
更新日期:2012-03-01 00:00:00
abstract::Common mental disorders (CMD) present high prevalence among general populations and workers with important individual and social consequences. This cross-sectional and descriptive study explores the relationship between psychological job demands, job control degree and job support and prevalence of CMD among primary h...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232010000700070
更新日期:2010-06-01 00:00:00
abstract::The objective of this study was to characterize blood pressure control of 440 hypertensive patients. The subjects were interviewed and had their blood pressure measurement by means of an automatic device. The results showed that 45.5% had an adequate blood pressure control. People under control were different (p<0.05)...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232011000700074
更新日期:2011-01-01 00:00:00
abstract:INTRODUCTION:Adolescence is considered a healthy stage of life and therefore little studied. This study described mortality over time in teenagers in Uruguay and analysed the burden of disease at this stage of life by the measure of Years of Life Lost by Premature Death in Uruguay and by comparison with rates in Latin ...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232018239.13702018
更新日期:2018-09-01 00:00:00
abstract::Tooth loss is highly prevalent in Brazil, especially among the elderly, where more than three million need bimaxillary dentures. The federal government instituted Specialized Dental Care Centers (SDCC) to remedy this situation. The scope of this study was to evaluate one attribute of these Centers, namely the provisio...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/s1413-81232013000200016
更新日期:2013-02-01 00:00:00
abstract::Epidemiology plays a strategic role at this stage of the policy cycle, contributing to goal setting, resource allocation and use of information systems. In 2009, the Municipal Health Secretariat of Rio de Janeiro initiated a reform of the health care model under the main influence the Primary Health Care concept. This...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232017223.33142016
更新日期:2017-03-01 00:00:00
abstract::This study has the objective of analyzing information about diarrhea outbreaks in Brazil's northeast in the year 2013. Information came from electronic media and from health information systems. A total of 33 news events related to diarrhea outbreaks were identified, some of them mentioning causes and aggravating fact...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232015213.17002015
更新日期:2016-03-01 00:00:00
abstract::This article presents the findings of a study of the coverage of health, science and technology during 2012 by the Jornal Nacional, a national television news program in Brazil produced by the Rede Globo de Televisão. A total of 246 news stories addressing health-related topics were analyzed, half of which addressed s...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-81232018234.13682016
更新日期:2018-04-01 00:00:00
abstract::The scope of this article is to estimate the prevalence and factors associated with alcohol use during pregnancy. It involved a cross-sectional study in a sample of 361 pregnant women in a reference service for gynecological and prenatal care. The data related to socio-demographic characteristics, alcohol use and pote...
journal_title:Ciencia & saude coletiva
pub_type: 杂志文章
doi:10.1590/1413-812320182310.24582016
更新日期:2018-10-01 00:00:00