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The treatment-related experiences of parents, children and young people with regular prescribed medication.

Abstract：

:Background Taking regular medication has been shown to have an impact on the daily lives of patients and their families. Objective To explore the medication-related experiences of patients and their families when a child or young person is prescribed regular medication. Setting A specialist U.K. paediatric hospital. Method Semi-structured face-to-face interviews of 24 parents/carers, children or young people, who had been taking two or more medications for 6 weeks or longer. The themes explored included the medication regimen, formulation, supplies, social aspects and adverse effects. The data was analysed using NVIVO version 11. Main outcome measure The experiences of patients, and their parents/carers, when a child/young person takes regular medication. Results Participants described a range of experiences associated with taking regular medication. Medication-related challenges were experienced around the timing of administration which was managed over 24 h rather than waking hours. Updating medication doses for administration at school was often delayed. Unintended nonadherence was cited as the biggest challenge with a range of strategies employed to manage this. The internet was commonly used as a source of additional information accessed for reassurance and adverse effects but there were varying experiences of using patient forums/help groups. Other challenges included the adequacy of information, travelling with medication, formulation issues, arranging supplies and adverse effects. Conclusion Patients and parents experience many challenges with children's medication. Individualised treatment options should be considered. Further research is required to determine how these experiences may be managed including the role of paediatric medication review.

journal_name

Int J Clin Pharm

journal_title

International journal of clinical pharmacy

authors

Aston J,Wilson KA,Terry DRP

doi

10.1007/s11096-018-0756-z

subject

Has Abstract

pub_date

2019-02-01 00:00:00

pages

113-121

issue

eissn

2210-7703

issn

2210-7711

pii

10.1007/s11096-018-0756-z

journal_volume

pub_type

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The treatment-related experiences of parents, children and young people with regular prescribed medication.