Through the eyes of others - the social experiences of people with dementia: a systematic literature review and synthesis.

Abstract:

:ABSTRACTBackground:Psychosocial models suggest that the lived experience of dementia is affected by interpersonal factors such as the ways in which others view, talk about, and behave toward the person with dementia. This review aimed to illuminate how informal, everyday interpersonal relationships are experienced by people with dementia within their social contexts. METHOD:A systematic review of qualitative literature published between 1989 and May 2016 was conducted, utilizing the electronic databases PsycINFO, MEDLINE, and CINAHL-Complete. This was followed by a critical interpretative synthesis to understand how people with dementia perceive the attitudes, views, and reactions of other people toward them, and the subjective impact that these have. RESULTS:Four major themes were derived from the findings of the 23 included studies: being treated as an "other" rather than "one of us"; being treated as "lesser" rather than a full, valued member of society; the impact of others' responses; and strategies to manage the responses of others. Thus, people with dementia can feel outcast and relegated, or indeed feel included and valued by others. These experiences impact upon emotional and psychological well-being, and are actively interpreted and managed by people with dementia. CONCLUSION:Experiences such as loss and diminishing identity have previously been understood as a direct result of dementia, with little consideration of interpersonal influences. This review notes that people with dementia actively engage with others, whose responses can foster or undermine social well-being. This dynamic relational aspect may contribute to emerging understandings of social health in dementia.

journal_name

Int Psychogeriatr

authors

Patterson KM,Clarke C,Wolverson EL,Moniz-Cook ED

doi

10.1017/S1041610216002374

subject

Has Abstract

pub_date

2018-06-01 00:00:00

pages

791-805

issue

6

eissn

1041-6102

issn

1741-203X

pii

S1041610216002374

journal_volume

30

pub_type

杂志文章
  • "There isn't an easy way of finding the help that's available." Barriers and facilitators of service use among dementia family caregivers: a qualitative study.

    abstract:BACKGROUND:Family caregivers of people with dementia have significant unmet needs in regard to their caregiving role. Despite this, they are reluctant to utilize services to reduce their burden. The aim of this study was to examine the barriers and facilitators of service use among family caregivers of people with deme...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610216002532

    authors: Macleod A,Tatangelo G,McCabe M,You E

    更新日期:2017-05-01 00:00:00

  • A comparison of 99mTc-exametazime and 123I-FP-CIT SPECT imaging in the differential diagnosis of Alzheimer's disease and dementia with Lewy bodies.

    abstract:BACKGROUND:The aim of this study is to investigate the diagnostic value of perfusion 99mTc-exametazime single photon emission computed tomography (SPECT) in the diagnosis of dementia with Lewy bodies (DLB) and Alzheimer's disease (AD) in comparison with dopaminergic 123I-2beta-carbomethoxy-3beta-(4-iodophenyl)-n-(3-flu...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610208007709

    authors: Colloby SJ,Firbank MJ,Pakrasi S,Lloyd JJ,Driver I,McKeith IG,Williams ED,O'Brien JT

    更新日期:2008-12-01 00:00:00

  • History and physical examination of elderly patients with dementia.

    abstract::The role of the physician is critical in the evaluation of cognitively impaired patients for two reasons: (a) The longitudinal relationship between the patient and physician provides a unique opportunity to observe changes over time, generating confidence that may encourage the patient and family to report any concern...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s1041610297004729

    authors: Finkel SI,Woodson C

    更新日期:1997-01-01 00:00:00

  • A preliminary cross-national study of a possible relationship between elderly suicide rates and tuberculosis.

    abstract:BACKGROUND:The elderly are at high risk of developing tuberculosis. The prevalence and incidence of depression and anxiety are higher in those with tuberculosis than in the general population. A positive correlation between national suicide rates and rates of mortality due to tuberculosis has been reported. METHODS:Th...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610209990378

    authors: Shah A

    更新日期:2009-12-01 00:00:00

  • Implementation of evidence-based, non-pharmacological interventions addressing behavior and psychological symptoms of dementia: a systematic review focused on implementation strategies.

    abstract:OBJECTIVE:This study aimed to identify the nature and effects of implementation strategies to increase the use of evidence-based, non-pharmacological interventions designed to reduce the frequency and/or severity of behavioral and psychological symptoms associated with dementia, for people living in the community. DES...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610220001702

    authors: Bennett S,Laver K,MacAndrew M,Beattie E,Clemson L,Runge C,Richardson L

    更新日期:2020-11-16 00:00:00

  • Use of an external mnemonic to augment the efficacy of an internal mnemonic in older adults.

    abstract:OBJECTIVES:To evaluate the impact of external memory devices on the efficacy of a package of internal mnemonic techniques. Participants wrote two types of lists during the study phase: (a) a list of study words and/or (b) a loci list. At recall, participants were not allowed to refer to either of the lists they had wri...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s1041610203008755

    authors: Brooks JO 3rd,Friedman L,Yesavage JA

    更新日期:2003-03-01 00:00:00

  • An international perspective on advanced neuroimaging: cometh the hour or ivory tower?

    abstract::Over the past five to ten years, neuroimaging capability for neurodegenerative diseases has made remarkable progress. However, debate remains as to the true clinical utility of these advanced and costly investigations. Not only is the place of these tests in diagnostic algorithms unclear, but the access to them varies...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,评审

    doi:10.1017/S1041610211000901

    authors: Ritchie CW,Ames D,Burke JR,Bustin J,Connelly P,Laczo J,Portet F

    更新日期:2011-09-01 00:00:00

  • Elderly suicide attempters by self-poisoning in Korea.

    abstract:BACKGROUND:Suicide is a major public health concern. The elderly have the highest rate of suicide and they make more lethal suicide attempts and have fewer psychiatric interventions than young people. Furthermore, they have old-age specific psychosocial difficulties. The present study investigated psychosocial risk fac...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610211000263

    authors: Kim YR,Choi KH,Oh Y,Lee HK,Kweon YS,Lee CT,Lee KU

    更新日期:2011-08-01 00:00:00

  • Attachment anxiety, depression, and perceived social support: a moderated mediation model of suicide ideation among the elderly.

    abstract:OBJECTIVES:Issues concerning the association among attachment anxiety, depression and suicidal ideation among the elderly have rarely been explored. The present study investigated the relationship among attachment anxiety, depression and perceived support concerning suicidal ideation among older people. DESIGN:Cross-s...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S104161022000054X

    authors: Oonarom A,Wongpakaran T,Kuntawong P,Wongpakaran N

    更新日期:2020-05-07 00:00:00

  • Risperidone for dementia-related disturbed behavior in nursing home residents: a clinical experience.

    abstract::Many nursing home residents are candidates for antipsychotic pharmacotherapy for dementia-related behavioral disturbances that include physical agitation and aggression, verbal outbursts, anxiety, and depression. These patients are often resistant to or intolerant of standard neuroleptics and are usually receiving mul...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s1041610297004213

    authors: Goldberg RJ,Goldberg J

    更新日期:1997-03-01 00:00:00

  • Changes in depressive symptoms and functional disability among community-dwelling depressive older adults.

    abstract:BACKGROUND:Previous studies have shown that the presence of depressive symptoms among older persons was evidently associated with subsequent physical and functional decline. However, few studies have directly examined the impact of changes in depressive symptoms or depressed mood on changes in functional ability. The p...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212000890

    authors: Nyunt MS,Lim ML,Yap KB,Ng TP

    更新日期:2012-10-01 00:00:00

  • Variables modulating depression in dementia caregivers: a longitudinal study.

    abstract:BACKGROUND:Dementia caregiving has been linked to negative consequences for mental health in caregivers. Although depression seems to be an enduring psychological consequence associated with caregiving, little is known about the longitudinal effects that modulating variables related to coping strategies have on caregiv...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610211002237

    authors: Romero-Moreno R,Márquez-González M,Mausbach BT,Losada A

    更新日期:2012-08-01 00:00:00

  • Efficacy of donepezil on behavioral symptoms in patients with moderate to severe Alzheimer's disease.

    abstract:OBJECTIVE:This subanalysis of a large, double-blind, placebo-controlled trial examined the prevalence of behavioral symptoms in moderate to severe Alzheimer's disease (AD), and the effect of treatment with donepezil. METHODS:Two hundred ninety patients with moderate to severe AD (standardized Mini-Mental State Examina...

    journal_title:International psychogeriatrics

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1017/s104161020200858x

    authors: Gauthier S,Feldman H,Hecker J,Vellas B,Ames D,Subbiah P,Whalen E,Emir B,Donepezil MSAD Study Investigators Group.

    更新日期:2002-12-01 00:00:00

  • The effects of mood changes and antidepressants on the cognitive capacity of elderly depressed patients.

    abstract::Seventy-eight nondemented elderly depressed patients underwent an extensive battery of cognitive tests both before and after seven weeks of treatment with nortriptyline, phenelzine, or placebo. Clinical and cognitive evaluations of the patients were under double-blind conditions. Response to treatment did not appear t...

    journal_title:International psychogeriatrics

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1017/s1041610289000141

    authors: Georgotas A,McCue RE,Reisberg B,Ferris SH,Nagachandran N,Chang I,Mir P

    更新日期:1989-10-01 00:00:00

  • Disability in older adults across the continuum of cognitive decline: unique contributions of depression, sleep disturbance, cognitive deficits and medical burden.

    abstract:OBJECTIVES:Disability in older adults is associated with a need for support in work, education, and community activities, reduced independence, and poorer quality of life. This study examines potential determinants of disability in a clinical sample of older adults across the continuum of cognitive decline, including s...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610218002144

    authors: LaMonica HM,Hickie IB,Ip J,Ireland C,Mowszowski L,English A,Glozier N,Naismith SL

    更新日期:2019-11-01 00:00:00

  • A test of the measurement invariance of a brief version of the Penn State Worry Questionnaire between American and Spanish older adults.

    abstract:BACKGROUND:Both anxiety disorders and subclinical anxiety symptoms are related to poorer health and functioning in later life. Because worry is an important component of anxiety, the accurate measurement of worry is crucial to studying the etiology, prevention and treatment of anxiety disorders. Assessment of the trait...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610206003450

    authors: Nuevo R,Mackintosh MA,Gatz M,Montorio I,Wetherell JL

    更新日期:2007-02-01 00:00:00

  • Purpose in life over a five-year period: a longitudinal study in a very old population.

    abstract:BACKGROUND:Few studies have specifically examined purpose in life among very old people, and we know of none that has used a prospective approach. The aim of this study was to examine changes in purpose in life over five years in very old men and women and to investigate whether depressed mood, malnutrition, inactivity...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610210002279

    authors: Hedberg P,Brulin C,Aléx L,Gustafson Y

    更新日期:2011-06-01 00:00:00

  • Frailty and adverse outcomes: impact of multiple bed moves for older inpatients.

    abstract:BACKGROUND:A consequence of pressure on hospitals to accommodate care needs of older patients is "boarding" or out-lying from their home ward. This may have greater adverse effects on older inpatients who are frail. METHODS:A retrospective matched cohort study was conducted in an outer metropolitan general hospital. R...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610216001605

    authors: Ranasinghe C,Fleury A,Peel NM,Hubbard RE

    更新日期:2017-02-01 00:00:00

  • Improving the end-of-life for people with dementia living in a care home: an intervention study.

    abstract:BACKGROUND:One in three adults, most of whom are living in a care home at the time, dies with dementia. Their end-of-life is often in hospital, where they may experience uncomfortable interventions without known benefit and die rapidly with uncontrolled pain and comfort needs. This study aimed to improve end-of-life ca...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610213001221

    authors: Livingston G,Lewis-Holmes E,Pitfield C,Manela M,Chan D,Constant E,Jacobs H,Wills G,Carson N,Morris J

    更新日期:2013-11-01 00:00:00

  • Individualized guidelines for the management of aggression in dementia - Part 1: key concepts.

    abstract:BACKGROUND:Clinical guidelines have the potential to assist in the management of aggression in dementia. This study aims to develop a conceptual framework for the construction of individualized guidelines for this group. METHODS:A concept map of the topic "How to manage aggression in dementia" was developed by reviewi...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212000014

    authors: Vickland V,Chilko N,Draper B,Low LF,O'Connor D,Brodaty H

    更新日期:2012-07-01 00:00:00

  • The ABC of Alzheimer's disease: cognitive changes and their management in Alzheimer's disease and related dementias.

    abstract::Cognitive decline, commonly first recognized as memory impairment, is a typical feature of Alzheimer's disease (AD). Neuropathological changes in the cerebral cortex and limbic system lead to deficits in learning, memory, language, and visuospatial skills. The precise nature of cognitive dysfunction reflects the distr...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,评审

    doi:10.1017/s1041610203008664

    authors: Corey-Bloom J

    更新日期:2002-01-01 00:00:00

  • Elder mistreatment, ageism, and human rights.

    abstract:BACKGROUND:Elder mistreatment, social ageism, and human rights are increasingly powerful discourses in positioning older people in society, yet the relationship between them has rarely been subjected to critical investigation. This perceived relationship will have implications for how mistreatment is understood and res...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212002372

    authors: Biggs S,Haapala I

    更新日期:2013-08-01 00:00:00

  • Reliability and validity of the subjective burden scale in family caregivers of elderly relatives with dementia.

    abstract::The reliability and validity of the Subjective Burden Scale (SBS) were investigated in 255 Japanese family caregivers of elderly relatives with dementia. Values of the Cronbach's alpha reliability, split-half reliability (r), and test-retest reliability (r) were .87, .80, and .72, respectively. The SBS score was signi...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s1041610299005712

    authors: Matsuda O

    更新日期:1999-06-01 00:00:00

  • The relationship between population growth and elderly suicide rates: a cross-national study.

    abstract:BACKGROUND:Elderly suicide rates are associated with the elderly population size, the proportion of elderly in the general population and the elderly dependency ratio. METHODS:A cross-national study examining the "a priori" hypothesis that the relationship between elderly suicide rates and average annual population gr...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610208007953

    authors: Shah A

    更新日期:2009-04-01 00:00:00

  • Cognitive function and risk for depression in old age: a meta-analysis of published literature.

    abstract:BACKGROUND:We assessed the relationship between cognitive impairment (including mild cognitive impairment with no signs of dementia, and dementia) and risk for depression in old age (60 years and older). METHODS:MEDLINE, EMBASE and the Cochrane Library database were used to identify potential studies. All of the clini...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,meta分析,评审

    doi:10.1017/S1041610210000049

    authors: Huang CQ,Wang ZR,Li YH,Xie YZ,Liu QX

    更新日期:2011-05-01 00:00:00

  • Dementia associated with epilepsy.

    abstract::In this review, we explore the relationship between epilepsy and cognition and between epilepsy and dementia. Chronic epilepsy, particularly mesial temporal lobe epilepsy (MTLE) with hippocampal sclerosis, may be associated with impaired cognition, which can be secondary to uncontrolled seizures, to adverse effects of...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,评审

    doi:10.1017/s1041610205002024

    authors: Caramelli P,Castro LH

    更新日期:2005-01-01 00:00:00

  • The things that batter.

    abstract::Over 20 years ago, the Australian Liberal/National Party Federal Opposition had a set of policies with which it hoped to persuade the Australian people to return it to government in the election due in 1996. This particular collection of proposed initiatives was called "The things that matter". When the then leader of...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610216000387

    authors: Ames D

    更新日期:2016-06-01 00:00:00

  • Contribution of self-reported health ratings to predicting frailty, institutionalization, and death over a 5-year period.

    abstract::Cross-sectional data from Phase 1 of the Canadian Study of Health and Aging was used to examine the relationship between two self-report health measures: "How would you say your health is these days?"(HEALTH) and "How much do your health troubles stand in the way of your doing the things you want to do?"(TROUBLE). The...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,多中心研究

    doi:10.1017/s1041610202008165

    authors: Gutman GM,Stark A,Donald A,Beattie BL

    更新日期:2001-01-01 00:00:00

  • Psychological functioning and adherence to the recommended dose of physical activity in later life: results from a national health survey.

    abstract:BACKGROUND:Official health organizations have established the dose of physical activity needed for preserving both physical and psychological health in old age. The objective of this study was to explore whether adherence to the recommended criterion of physical activity accounted for better psychological functioning i...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212001299

    authors: Netz Y,Dunsky A,Zach S,Goldsmith R,Shimony T,Goldbourt U,Zeev A

    更新日期:2012-12-01 00:00:00

  • Does a cognitive stress test predict progression from mild cognitive impairment to dementia equally well in clinical versus population-based settings?

    abstract::ABSTRACTBackground:Evidence suggests that semantic interference may be a sensitive indicator of early dementia. We examined the utility of the Semantic Interference Test (SIT), a cognitive stress memory paradigm which taps proactive and retroactive semantic interference, for predicting progression from mild cognitive ...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610217002666

    authors: Beer JC,Snitz BE,Chang CH,Loewenstein DA,Ganguli M

    更新日期:2018-10-01 00:00:00