End-of-life care in dementia: a review of problems, prospects, and solutions in practice.

Abstract:

:The purpose of this literature review was to assess the current state of affairs in end-of-life care for persons with dementia, to identify barriers to the provision of high-quality care, and to describe exemplary programs that have discovered ways to overcome these barriers. The literature reviewed included English-language articles published since 1990, obtained by searches of Medline, presentations at meetings and conferences, and the Internet. Barriers to quality terminal dementia care identified by this review include: (1) measurement issues regarding quality of care and quality of life, (2) inappropriate interventions stemming from lack or disregard of advance directives, cost considerations, healthcare system factors, and caregiver factors, (3) poor symptom management involving both professional and family caregivers, and (4) current health policy formulated by federal or state governments, insurance companies, and health maintenance organization. High-quality care for persons with dementia at the end of life is possible and is currently being provided in some settings. Further research into areas identified in this review is necessary if the quality of care being provided to this population is to improve.

journal_name

J Am Med Dir Assoc

authors

Blasi ZV,Hurley AC,Volicer L

keywords:

subject

Has Abstract

pub_date

2002-03-01 00:00:00

pages

57-65

issue

2

eissn

1525-8610

issn

1538-9375

pii

S1525-8610(04)70414-4

journal_volume

3

pub_type

杂志文章
  • Defining Safety in the Nursing Home Setting: Implications for Future Research.

    abstract::Currently, the Agency for Healthcare Research and Quality (AHRQ) Common Format for nursing homes (NHs) accommodates voluntary reporting for 4 adverse events: falls with injury, pressure ulcers, medication errors, and infections. In 2015, AHRQ funded a technical brief to describe the state of the science related to saf...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,评审

    doi:10.1016/j.jamda.2016.03.005

    authors: Simmons SF,Schnelle JF,Sathe NA,Slagle JM,Stevenson DG,Carlo ME,McPheeters ML

    更新日期:2016-06-01 00:00:00

  • The effects of withdrawal of dopaminergic medication in nursing home patients with advanced parkinsonism.

    abstract:OBJECTIVE:To determine the effects of dopaminergic medication withdrawal in an elderly, demented and minimally ambulatory nursing home population with parkinsonism in New York City. METHODS:In our double-blind, randomized study, 11 patients (7 males, 4 females) were randomized into 2 groups: one group underwent levodo...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jamda.2008.07.001

    authors: Tse W,Frisina PG,Hälbig TD,Gracies JM,Liang L,Tarshish C,Lesser G,Neufeld R,Koller WC,Libow LS

    更新日期:2008-11-01 00:00:00

  • Effects of a Home-Based and Volunteer-Administered Physical Training, Nutritional, and Social Support Program on Malnutrition and Frailty in Older Persons: A Randomized Controlled Trial.

    abstract:OBJECTIVES:The aim of this study was to examine the effects of a home-based and volunteer-administered physical training and nutritional intervention program compared with social support intervention on nutritional and frailty status in prefrail and frail community-dwelling older persons. DESIGN:This was a randomized ...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jamda.2016.04.018

    authors: Luger E,Dorner TE,Haider S,Kapan A,Lackinger C,Schindler K

    更新日期:2016-07-01 00:00:00

  • Suicide among nursing home residents: a population-based study.

    abstract:OBJECTIVE:The rate of suicide is highest among the oldest old and is associated with chronic medical illness and functional impairment. These risk factors are prevalent among nursing home (NH) residents, yet little has been published on suicide in this population. METHODS:We performed a population-based, retrospective...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:

    authors: Menghini VV,Evans JM

    更新日期:2000-03-01 00:00:00

  • Assessing the quality of evidence from randomized, controlled drug and nutritional supplement trials conducted among nursing home residents between 1968 and 2004: what can we learn?

    abstract:BACKGROUND:An estimated 1.5 million residents of nursing homes (NH) in the United States were prescribed an average of 7 to 8 medications each month. However, it is unknown which of these prescribed drugs and nutritional supplements have been tested for use among NH residents who often have distinct and complex needs c...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 历史文章,杂志文章

    doi:10.1016/j.jamda.2008.06.005

    authors: Cheng HY

    更新日期:2009-01-01 00:00:00

  • SAIDO learning as a cognitive intervention for dementia care: a preliminary study.

    abstract:OBJECTIVES:The purpose of this study was to examine the beneficial effects on cognitive function by a cognitive intervention program designed for dementia care called Learning Therapy in Japan and SAIDO Learning in the United States (hereinafter "SAIDO Learning," as appropriate). SAIDO Learning is a working memory trai...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 临床试验,杂志文章

    doi:10.1016/j.jamda.2014.10.021

    authors: Kawashima R,Hiller DL,Sereda SL,Antonczak M,Serger K,Gannon D,Ito S,Otake H,Yunomae D,Kobayashi A,Muller C,Murata H,FallCreek S

    更新日期:2015-01-01 00:00:00

  • Impact of Current Antipsychotic Medications on Comparative Mortality and Adverse Events in People With Parkinson Disease Psychosis.

    abstract:OBJECTIVES:To establish the mortality risk and adverse events associated with the use of atypical antipsychotic medications in people with Parkinson disease psychosis (PDP) in a clinically defined trial cohort. DESIGN:Post hoc analysis of data from a multicenter, open-label extension study of pimavanserin comparing pe...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jamda.2015.06.021

    authors: Ballard C,Isaacson S,Mills R,Williams H,Corbett A,Coate B,Pahwa R,Rascol O,Burn DJ

    更新日期:2015-10-01 00:00:00

  • Frailty and Risk of Adverse Outcomes in Hospitalized Older Adults: A Comparison of Different Frailty Measures.

    abstract:OBJECTIVES:There is a paucity of data for the assessment of frailty in acutely ill hospitalized older adults. We aim to (1) compare the performance of frailty measures [5-item scale of fatigue, resistance, ambulation, illnesses, and loss of weight) (FRAIL), Tilburg Frailty Indicator (TFI), and Clinical Frailty Scale (C...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2017.04.011

    authors: Chong E,Ho E,Baldevarona-Llego J,Chan M,Wu L,Tay L

    更新日期:2017-07-01 00:00:00

  • Repeated Hospital Transfers and Associated Outcomes by Residency Time Among Nursing Home Residents in Taiwan.

    abstract:BACKGROUND:Nursing home residents' repeated transfers to hospital are costly and can lead to in-hospital complications and high mortality for frail residents. However, no research has examined the trajectory of residents' symptoms over their nursing home residency and its relationship to hospital transfer. AIM:The pur...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2016.06.019

    authors: Tsai HH,Tsai YF,Liu CY

    更新日期:2016-11-01 00:00:00

  • Vital signs in older patients: age-related changes.

    abstract::Vital signs are objective measures of physiological function that are used to monitor acute and chronic disease and thus serve as a basic communication tool about patient status. The purpose of this analysis was to review age-related changes of traditional vital signs (blood pressure, pulse, respiratory rate, and temp...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,评审

    doi:10.1016/j.jamda.2010.04.009

    authors: Chester JG,Rudolph JL

    更新日期:2011-06-01 00:00:00

  • Risk of 30-Day Hospital Readmission Among Patients Discharged to Skilled Nursing Facilities: Development and Validation of a Risk-Prediction Model.

    abstract:OBJECTIVES:Patients discharged to a skilled nursing facility (SNF) for post-acute care have a high risk of hospital readmission. We aimed to develop and validate a risk-prediction model to prospectively quantify the risk of 30-day hospital readmission at the time of discharge to a SNF. DESIGN:Retrospective cohort stud...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2019.01.137

    authors: Chandra A,Rahman PA,Sneve A,McCoy RG,Thorsteinsdottir B,Chaudhry R,Storlie CB,Murphree DH Jr,Hanson GJ,Takahashi PY

    更新日期:2019-04-01 00:00:00

  • Optimizing Prescribing of Antipsychotics in Long-Term Care (OPAL): A Stepped-Wedge Trial.

    abstract:BACKGROUND:Inappropriate antipsychotic prescribing is a key quality indicator by which clinical outcomes might be monitored and improved in long-term care (LTC), but limited evidence exists on the most effective strategies for reducing inappropriate antipsychotic use. OBJECTIVES:The objective of the study was to evalu...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2019.07.025

    authors: Kirkham J,Maxwell C,Velkers C,Leung R,Moffat K,Seitz D

    更新日期:2020-03-01 00:00:00

  • Combined reduced forced expiratory volume in 1 second (FEV1) and peripheral artery disease in sedentary elders with functional limitations.

    abstract:OBJECTIVES:Because they are potentially modifiable and may coexist, we evaluated the combined occurrence of a reduced forced expiratory volume in 1 second (FEV1) and peripheral artery disease (PAD), including its association with exertional symptoms, physical inactivity, and impaired mobility, in sedentary elders with ...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2014.05.008

    authors: Vaz Fragoso CA,Hsu FC,Brinkley T,Church T,Liu CK,Manini T,Newman AB,Stafford RS,McDermott MM,Gill TM,LIFE Study Group.

    更新日期:2014-09-01 00:00:00

  • Incidence of venous thromboembolism in nursing home residents.

    abstract:OBJECTIVE:Venous thromboembolism (VTE) is common in the elderly, but its epidemiology in nursing home residents remains unclear. This study estimated rates of VTE recorded on nursing home admission and incidence during residence. DESIGN:Retrospective analysis of AnalytiCare long term care (LTC) database for the period...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2013.02.003

    authors: Reardon G,Pandya N,Nutescu EA,Lamori J,Damaraju CV,Schein J,Bookhart B

    更新日期:2013-08-01 00:00:00

  • The complexity of implementing culture change practices in nursing homes.

    abstract:PURPOSE:The culture change (CC) movement aims to transform the traditional nursing home (NH) that is institutional in design with hierarchical management structure into a homelike environment that empowers residents and frontline staff. This study examines differences in adoption of CC practices according to a NH's sel...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2009.11.002

    authors: Sterns S,Miller SC,Allen S

    更新日期:2010-09-01 00:00:00

  • Conversion diversion: participation in a social HMO reduces the likelihood of converting from short-stay to long-stay nursing facility placement.

    abstract:OBJECTIVES:To determine the effect of a Social Health Maintenance Organization (S/HMO) on diverting older adults admitted into a nursing facility from converting to long-stay placement. DESIGN:Members of the SCAN S/HMO and those in Medicare Fee-For-Service were compared on successful discharge to the community after b...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2009.10.009

    authors: Thomas KE,Gassoumis ZD,Wilber KH

    更新日期:2010-06-01 00:00:00

  • Nontraditional Small House Nursing Homes Have Fewer COVID-19 Cases and Deaths.

    abstract:OBJECTIVES:Green House and other small nursing home (NH) models are considered "nontraditional" due to their size (10-12 beds), universal caregivers, and other home-like features. They have garnered great interest regarding their potential benefit to limit Coronavirus Disease 2019 (COVID-19) infections due to fewer peo...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2021.01.069

    authors: Zimmerman S,Dumond-Stryker C,Tandan M,Preisser JS,Wretman CJ,Howell A,Ryan S

    更新日期:2021-01-26 00:00:00

  • Costs and Effects of an Ambulatory Geriatric Unit (the AGe-FIT Study): A Randomized Controlled Trial.

    abstract:OBJECTIVES:To examine costs and effects of care based on comprehensive geriatric assessment (CGA) provided by an ambulatory geriatric care unit (AGU) in addition to usual care. DESIGN:Assessor-blinded, single-center randomized controlled trial. SETTING:AGU in an acute hospital in southeastern Sweden. PARTICIPANTS:Co...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jamda.2015.01.074

    authors: Ekdahl AW,Wirehn AB,Alwin J,Jaarsma T,Unosson M,Husberg M,Eckerblad J,Milberg A,Krevers B,Carlsson P

    更新日期:2015-06-01 00:00:00

  • Electronic health record implementation in community nursing homes.

    abstract:INTRODUCTION:The Electronic Health Record (EHR) is being advocated as a tool to improve patient care. Nationwide initiatives are under way to determine how to implement EHR. To date, community nursing homes have not been involved in that effort. Many reasons, including multiple providers in a home, physical structure o...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2006.09.013

    authors: Brandeis GH,Hogan M,Murphy M,Murray S

    更新日期:2007-01-01 00:00:00

  • Evidence-based recommendations for addressing malnutrition in health care: an updated strategy from the feedM.E. Global Study Group.

    abstract::The prevalence of malnutrition ranges up to 50% among patients in hospitals worldwide, and disease-related malnutrition is all too common in long-term and other health care settings as well. Regrettably, the numbers have not improved over the past decade. The consequences of malnutrition are serious, including increas...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2014.05.011

    authors: Correia MI,Hegazi RA,Higashiguchi T,Michel JP,Reddy BR,Tappenden KA,Uyar M,Muscaritoli M

    更新日期:2014-08-01 00:00:00

  • Zopiclone Use and Risk of Fractures in Older People: Population-Based Study.

    abstract:OBJECTIVES:The primary objective was to evaluate the risk of fractures associated with use of zopiclone, a new Z-hypnotic, in a population-based cohort of older people in New Zealand (NZ) in a real-world setting. The secondary objective was to examine a nonlinear relationship with age and risk for fractures in zopiclon...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2016.12.085

    authors: Nishtala PS,Chyou TY

    更新日期:2017-04-01 00:00:00

  • Nursing education and improvement in oral care delivery in long-term care.

    abstract:OBJECTIVE:To determine if a facility-wide oral care educational program will improve the quality of routine oral care provided to nursing home residents. DESIGN:Single-blind, pre-post observational study of direct caregivers providing routine oral care to residents in 2 nursing homes. INTERVENTION:A 30-minute oral ca...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2009.09.001

    authors: Gammack JK,Pulisetty S

    更新日期:2009-11-01 00:00:00

  • Detection of delirium and its symptoms by nurses working in a long term care facility.

    abstract:OBJECTIVE:To investigate the ability of nurses to recognize delirium and its symptoms and to investigate the factors associated with undetected delirium. DESIGN:A prospective, observational study with repeated measurements over a 6-month period. SETTING:Seven long term care settings in Montreal and Quebec City, Canad...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2010.11.002

    authors: Voyer P,Richard S,McCusker J,Cole MG,Monette J,Champoux N,Ciampi A,Belzile E

    更新日期:2012-03-01 00:00:00

  • Light therapy for seniors in long term care.

    abstract:OBJECTIVES:To investigate the effects of light therapy on cognition, depression, sleep, and circadian rhythms in a general, nonselected population of seniors living in a long term care facility. DESIGN:A double-blind, placebo-controlled trial. SETTING:The experiment took place at a long term care facility in Pennsylv...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jamda.2011.05.006

    authors: Royer M,Ballentine NH,Eslinger PJ,Houser K,Mistrick R,Behr R,Rakos K

    更新日期:2012-02-01 00:00:00

  • A Randomized Controlled Study Comparing a DPP4 Inhibitor (Linagliptin) and Basal Insulin (Glargine) in Patients With Type 2 Diabetes in Long-term Care and Skilled Nursing Facilities: Linagliptin-LTC Trial.

    abstract:OBJECTIVES:Safe and easily implemented treatment regimens are needed for the management of patients with type 2 diabetes mellitus (T2DM) in long-term care (LTC) and skilled nursing facilities. DESIGN:This 6-month open-label randomized controlled trial compared the efficacy and safety of a DPP4 inhibitor (linagliptin) ...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jamda.2017.11.002

    authors: Umpierrez GE,Cardona S,Chachkhiani D,Fayfman M,Saiyed S,Wang H,Vellanki P,Haw JS,Olson DE,Pasquel FJ,Johnson TM 2nd

    更新日期:2018-05-01 00:00:00

  • Parkinson's disease without expected neuropathologic abnormality.

    abstract::A case is reported of an initially 78-year-old man whose presentation and course, closely followed over 10 years by an academic neurologist, were consistent with classic idiopathic Parkinson's disease (PD), including unilateral onset, obvious cogwheeling, and a very good prolonged response to levodopa/carbidopa (LD/CD...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1097/01.JAM.0000141949.31853.25

    authors: Velickovic M,Lesser G,Purohit D,Neufeld RR,Tarshish CY,Libow LS

    更新日期:2004-11-01 00:00:00

  • The Risk of Hospital Admission Due to Traumatic Brain Injury Is Increased in Older Persons With Severe Functional Limitations.

    abstract:INTRODUCTION:Hospital admissions due to traumatic brain injuries (TBIs) in older persons are increasing. Falls are the leading mechanism of injury in this age group. TBIs are associated with unfavorable outcomes such as mortality and institutionalization. OBJECTIVES:To estimate rates of TBIs in older persons with seve...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2016.02.032

    authors: Büchele G,Rapp K,König HH,Jaensch A,Rothenbacher D,Becker C,Benzinger P

    更新日期:2016-07-01 00:00:00

  • Dysphagia in Nursing Home Residents: Management and Outcomes.

    abstract:OBJECTIVES:To define the prevalence of dysphagia and its associated factors and to investigate the influence of dysphagia and nutritional therapies performed in dysphagic subjects on clinical outcomes, including nutritional status, pressure ulcers, hospitalization, and mortality. DESIGN:A prospective observational stu...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2018.07.023

    authors: Jukic Peladic N,Orlandoni P,Dell'Aquila G,Carrieri B,Eusebi P,Landi F,Volpato S,Zuliani G,Lattanzio F,Cherubini A

    更新日期:2019-02-01 00:00:00

  • A Canadian Cohort Study to Evaluate the Outcomes Associated with a Multicenter Initiative to Reduce Antipsychotic Use in Long-Term Care Homes.

    abstract:OBJECTIVES:To evaluate the impact of a multicenter intervention to reduce potentially inappropriate antipsychotic use in Canadian nursing homes at the individual and facility levels. DESIGN:Longitudinal, population-based cohort study to evaluate the Canadian Foundation for Healthcare Improvement's Spreading Healthcare...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2020.04.004

    authors: Hirdes JP,Major J,Didic S,Quinn C,Mitchell L,Chen J,Jantzi M,Phillips K

    更新日期:2020-06-01 00:00:00

  • Acute Hospital Admissions Because of Health Care-Related Adverse Events: A Retrospective Study of 5 Specialist Departments.

    abstract:BACKGROUND:Health care-related adverse events (HCRAEs), which should not be confused with (blameworthy) medical errors, are common; they can lead to hospital admissions and can have grave consequences. Although they are sometimes potentially preventable, information is lacking on HCRAEs leading to admission to differen...

    journal_title:Journal of the American Medical Directors Association

    pub_type: 杂志文章

    doi:10.1016/j.jamda.2015.06.019

    authors: Magdelijns FJ,Pijpers E,Rouhl RP,Hannemann PF,ten Broeke RH,Dings JT,Stehouwer CD,Stassen PM

    更新日期:2015-12-01 00:00:00