Abstract:
:This paper describes the process followed to create and validate the Portuguese versión of a quality of life measurement instrument for patients in palliative care. After a literature review about the measurement of the quality of life in this particular and very specific kind of patients, we opt by the Irene Higginson's measurement instrument called Palliative Care Outcome Scale (POS). It has been selected as the one most appropriate to Portuguese patients' reality. For the creation of the Portuguese version we followed the recommended methodologies for the forward-backward translations. These methodologies allow us to determine semantic and linguistic equivalences of health outcomes measurement instruments. The validation was performed on a sample of 104 cancer patients aged between 40 and 85 years old. 70% were female, 29% had lung cancer, 46% breast cáncer and 22% had melanoma. Content validity was assured by two cognitive debriefing tests, respectively performed in oncologists and in patients. Construct validation allow us to find five ortogonal factors, including 'emotional well being' (19.7% of variance explained), 'consequences of the disease in life' (18.2%), 'received information and support' (11.7%), 'anxiety' (10.1%), and 'burden of illness' (9.8%). Criterion validity was tested by comparing the results obtained by POS to the ones obtained by the EORTC QLQ-C30, a genetic instrument especially designed for cancer patients. The found correlation values were moderated to strong and ranged from 0.51 to 0.63. The reliability of the Portuguese version was assured through the reproducibility test and the search for the internal consistency. The scores obtained by a one-week testrestest ranged from 0.66 to 1.00. Cronbach's alpha was 0.68, acceptable and allowing us to consider POS as a unique index Time responsiveness and diagnosis responsiveness were also analysed. Comparing values measured with a one-month interval showed sensibility to the lack of the quality of life felt by patients. This measurement instrument was also sensitive to the various pathologies. In conclusion, we may defend the quality of the performance of the Portuguese versión of the POS. This version may be used to prospectively assess the palliative care on advances cancer patients.
journal_name
Acta Med Portjournal_title
Acta medica portuguesaauthors
Lopes Ferreira P,Pinto Barros Asubject
Has Abstractpub_date
2008-03-01 00:00:00pages
111-24issue
2eissn
0870-399Xissn
1646-0758journal_volume
21pub_type
杂志文章abstract::The recent improvement in surgical of therapy of carriers of hepatocellular carcinoma is due to both an early diagnosis of the illness and in the evaluation of set of prognostic and resectability factors. On describing a clinical case of a hepatocellular carcinoma localized on the left lobe of a healthy liver, the imp...
journal_title:Acta medica portuguesa
pub_type: 杂志文章
doi:
更新日期:1989-05-01 00:00:00
abstract::The aim of this study was to evaluate the association between maternal nutritional factors and intrauterine growth retardation (IUGR). We studied 1233 mothers who delivered single term newborns: 144 IUGR-birth weight less than one 10th percentile for sex and gestational age and 1119 controls-birth weight between the 1...
journal_title:Acta medica portuguesa
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更新日期:1994-12-01 00:00:00
abstract::Osteoporosis in men, despite being a less important public health problem than osteoporosis in women, should not be neglected as it has many deleterious effects as well as social and economic costs. Finding the cause of osteoporosis is more complex in men than in women, and prevention should be based on an early evalu...
journal_title:Acta medica portuguesa
pub_type: 杂志文章,评审
doi:
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abstract::Toscana virus (Phlebovirus genus, Bunyaviridae family) is a neurotropic virus which circulates in the Mediterranean Basin. Although Portugal has been the second country where its presence was reported, the existence of this virus in our country has been referred only sporadically, and there is a lack of knowledge rega...
journal_title:Acta medica portuguesa
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journal_title:Acta medica portuguesa
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pub_type: 评论,杂志文章
doi:
更新日期:2015-11-01 00:00:00
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journal_title:Acta medica portuguesa
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doi:
更新日期:2011-09-01 00:00:00
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journal_title:Acta medica portuguesa
pub_type: 杂志文章
doi:
更新日期:1995-06-01 00:00:00
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pub_type: 杂志文章
doi:
更新日期:2006-09-01 00:00:00
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journal_title:Acta medica portuguesa
pub_type: 杂志文章,评审
doi:
更新日期:1995-06-01 00:00:00
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doi:
更新日期:1995-06-01 00:00:00
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更新日期:2011-12-01 00:00:00
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更新日期:2010-07-01 00:00:00
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更新日期:2019-03-29 00:00:00
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journal_title:Acta medica portuguesa
pub_type: 杂志文章
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更新日期:1991-11-01 00:00:00
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