Parental decision making involvement and decisional conflict: a descriptive study.

Abstract:

BACKGROUND:Decisional conflict is a state of uncertainty about the best treatment option among competing alternatives and is common among adult patients who are inadequately involved in the health decision making process. In pediatrics, research shows that many parents are insufficiently involved in decisions about their child's health. However, little is known about parents' experience of decisional conflict. We explored parents' perceived decision making involvement and its association with parents' decisional conflict. METHOD:We conducted a descriptive survey study in a pediatric tertiary care hospital. Our survey was guided by validated decisional conflict screening items (i.e., the SURE test). We administered the survey to eligible parents after an ambulatory care or emergency department consultation for their child. RESULTS:Four hundred twenty-nine respondents were included in the analysis. Forty-eight percent of parents reported not being offered treatment options and 23% screened positive for decisional conflict. Parents who reported being offered options experienced less decisional conflict than parents who reported not being offered options (5% vs. 42%, p < 0.001). Further, parents with options were more likely to: feel sure about the decision (RR 1.08, 95% CI 1.02-1.15); understand the information (RR 1.92, 95% CI 1.63-2.28); be clear about the risks and benefits (RR 1.12, 95% CI 1.05-1.20); and, have sufficient support and advice to make a choice (RR 1.07, 95% CI 1.03-1.11). CONCLUSION:Many parents in our sample experienced decisional conflict after their clinical consultation. Involving parents in the decision making process might reduce their risk of decisional conflict. Evidence based interventions that support parent decision making involvement, such as shared decision making, should be evaluated and implemented in pediatrics as a strategy to reduce parents' decisional conflict.

journal_name

BMC Pediatr

journal_title

BMC pediatrics

authors

Boland L,Kryworuchko J,Saarimaki A,Lawson ML

doi

10.1186/s12887-017-0899-4

subject

Has Abstract

pub_date

2017-06-13 00:00:00

pages

146

issue

1

issn

1471-2431

pii

10.1186/s12887-017-0899-4

journal_volume

17

pub_type

杂志文章
  • Vaccination status of resident pediatricians and the potential risk for their patients - a cross-sectional questionnaire study in pediatric practices in Vienna.

    abstract:BACKGROUND:Pediatricians are advised by the Austrian ministry of health to be vaccinated against diphtheria, tetanus, pertussis, poliomyelitis, measles, mumps, rubella, varicella, hepatitis A, hepatitis B, meningococcus ACWY and meningococcus B, pneumococcus and seasonal influenza. As they take care of a vulnerable pat...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1529-0

    authors: Diesner SC,Peutlberger S,Voitl P

    更新日期:2019-05-16 00:00:00

  • Algorithms for converting estimates of child malnutrition based on the NCHS reference into estimates based on the WHO Child Growth Standards.

    abstract:BACKGROUND:The child growth standards released by the World Health Organization (WHO) in 2006 have several technical advantages over the previous 1977 National Center for Health Statistics (NCHS)/WHO reference and are recommended for international comparisons and secular trend analysis of child malnutrition. To obtain ...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-8-19

    authors: Yang H,de Onis M

    更新日期:2008-05-05 00:00:00

  • Population-based study of the incidence of congenital hip dysplasia in preterm infants from the Survey of Neonates in Pomerania (SNiP).

    abstract:BACKGROUND:Some etiological factors involved in developmental dysplasia of the hip (DDH) occur in the last trimester of pregnancy, which could result in a decreased incidence of DDH in preterm infants. The aim of this study was to compare the incidence of DDH between preterm and term infants. METHODS:Ultrasound of the...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-017-0829-5

    authors: Lange AE,Lange J,Ittermann T,Napp M,Krueger PC,Bahlmann H,Kasch R,Heckmann M

    更新日期:2017-03-16 00:00:00

  • Characteristics and risk factors of children with sleep-disordered breathing in Wuxi, China.

    abstract:BACKGROUND:Sleep-disordered breathing (SDB) is a common syndrome in children, related to their immune responses, cardiovascular function, and neurocognitive function. This study aimed to determine the prevalence of SDB among children in Wuxi, China, and to evaluate the protective and risk factors of SDB in children. M...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02207-5

    authors: Guo Y,Pan Z,Gao F,Wang Q,Pan S,Xu S,Hui Y,Li L,Qian J

    更新日期:2020-06-26 00:00:00

  • White, affluent, educated parents are least likely to choose HPV vaccination for their children: a cross-sectional study of the National Immunization Study - teen.

    abstract:BACKGROUND:Human Papillomavirus (HPV) vaccination coverage is below national goals in the United States. Research is needed to inform strategically designed interventions that target sociodemographic groups with underutilization of HPV vaccination. METHODS:Secondary data analysis of the National Immunization Survey-Te...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-017-0953-2

    authors: Warner EL,Ding Q,Pappas LM,Henry K,Kepka D

    更新日期:2017-12-01 00:00:00

  • Do pediatricians manage influenza differently than internists?

    abstract:BACKGROUND:Little is known about how pediatricians or internists manage influenza symptoms. Recent guidelines on antiviral prescribing by the Centers for Disease Control and Prevention (CDC) make almost no distinction between adults and children. Our objective was to describe how pediatricians in two large academic med...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-8-15

    authors: Rothberg MB,Bonner AB,Rajab MH,Stechenberg BW,Rose DN

    更新日期:2008-04-24 00:00:00

  • Education of pediatric subspecialty fellows in transport medicine: a national survey.

    abstract:BACKGROUND:The transport of critically ill patients to children's hospitals is essential to current practice. The AAP Section on Transport Medicine has raised concerns about future leadership in the field as trainees receive less exposure to transport medicine. This study identifies the priorities of pediatric subspeci...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-017-0780-5

    authors: Mickells GE,Goodman DM,Rozenfeld RA

    更新日期:2017-01-13 00:00:00

  • Evaluation of treatment response, drug resistance and HIV-1 variability among adolescents on first- and second-line antiretroviral therapy: a study protocol for a prospective observational study in the centre region of Cameroon (EDCTP READY-study).

    abstract:BACKGROUND:Sub-Saharan Africa (SSA) alone has nine out of every 10 children living with HIV globally and monitoring in this setting remains suboptimal, even as these children grow older. With scalability of antiretroviral therapy (ART), several HIV-infected children are growing towards adolescence (over 2.1 million), w...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1599-z

    authors: Fokam J,Santoro MM,Takou D,Njom-Nlend AE,Ndombo PK,Kamgaing N,Kamta C,Essiane A,Sosso SM,Ndjolo A,Colizzi V,Perno CF

    更新日期:2019-07-05 00:00:00

  • EPIPAGE 2: a preterm birth cohort in France in 2011.

    abstract:BACKGROUND:Children born at low gestational ages face a range of risks and number of neonates surviving very preterm birth is increasing. We present the objectives and methods of a French national cohort of very and moderately preterm children, the EPIPAGE 2 study. It aims to examine short- and long-term outcomes of ve...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-14-97

    authors: Ancel PY,Goffinet F,EPIPAGE 2 Writing Group.

    更新日期:2014-04-09 00:00:00

  • Safe diagnostic management of malignant mediastinal tumors in the presence of respiratory distress: a 10-year experience.

    abstract:BACKGROUND:The fundamental treatment for patients with pediatric malignant mediastinal tumors is chemotherapy. Therefore, accurate diagnosis is essential for selecting the appropriate chemotherapeutic regimen. However, malignant mediastinal tumors occasionally cause respiratory distress, and biopsies under general anes...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02183-w

    authors: Tanaka T,Amano H,Tanaka Y,Takahashi Y,Tajiri T,Tainaka T,Shirota C,Sumida W,Yokota K,Makita S,Tani Y,Hinoki A,Uchida H

    更新日期:2020-06-10 00:00:00

  • Birth weight charts for a Chinese population: an observational study of routine newborn weight data from Chongqing.

    abstract:BACKGROUND:To construct birth weight charts for the Chongqing municipality, China and to identify whether differences in birth weight exist across urban/rural populations, thereby warranting separate charts. METHODS:Secondary analysis of routinely collected data from 338,454 live infants between 2014 and 2017 in Chong...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1816-9

    authors: Zhao X,Xia Y,Zhang H,Baker PN,Norris T

    更新日期:2019-11-11 00:00:00

  • Mobility may impact attention abilities in healthy term or prematurely born children at 7-years of age: protocol for an intervention controlled trial.

    abstract:BACKGROUND:Seven years of age is a milestone for learning basic knowledge that is strongly related to attention abilities such as Alerting, Orienting, and Inhibition function, allowing for appropriate adaptation to primary school. These attention abilities are also influenced by gestational age at birth in a complex ma...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1186/s12887-018-1229-1

    authors: Ceyte H,Rosenbaum J,Hamon I,Wirth M,Caudron S,Hascoët JM

    更新日期:2018-08-06 00:00:00

  • Modified lung ultrasound score predicts ventilation requirements in neonatal respiratory distress syndrome.

    abstract:BACKGROUND:We propose a modified lung ultrasound (LUS) score in neonates with respiratory distress syndrome (RDS), which includes posterior instead of lateral lung fields, and a 5-grade rating scale instead of a 4-grade rating scale. The purpose of this study was to evaluate the reproducibility of the rating scale and ...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02485-z

    authors: Szymański P,Kruczek P,Hożejowski R,Wais P

    更新日期:2021-01-06 00:00:00

  • Schoolbag weight carriage in Portuguese children and adolescents: a cross-sectional study comparing possible influencing factors.

    abstract:BACKGROUND:Schoolbags and the consequences of carrying them, particularly those associated with overload, are often studied as a health concern. Modifications in gait and posture were reported when children carried loads that corresponded to more than 10% of their body weight (BW). The aims of this study were to verify...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1519-2

    authors: Barbosa J,Marques MC,Izquierdo M,Neiva HP,Barbosa TM,Ramírez-Vélez R,Alonso-Martínez AM,García-Hermoso A,Aguado-Jimenez R,Marinho DA

    更新日期:2019-05-17 00:00:00

  • Dyslipidemia and reference values for fasting plasma lipid concentrations in Danish/North-European White children and adolescents.

    abstract:BACKGROUND:Dyslipidemia is reported in 27 - 43% of children and adolescents with overweight/obesity and tracks into adulthood, increasing the risk of cardiovascular morbidity. Cut-off values for fasting plasma lipid concentrations are typically set at fixed levels throughout childhood. The objective of this cross-secti...

    journal_title:BMC pediatrics

    pub_type: 临床试验,杂志文章

    doi:10.1186/s12887-017-0868-y

    authors: Nielsen TRH,Lausten-Thomsen U,Fonvig CE,Bøjsøe C,Pedersen L,Bratholm PS,Hansen T,Pedersen O,Holm JC

    更新日期:2017-04-28 00:00:00

  • Prevalence of underweight, overweight and obesity among Palestinian school-age children and the associated risk factors: a cross sectional study.

    abstract:BACKGROUND:Childhood obesity is rising in developed and developing countries, while childhood underweight is rising mainly in developing countries. Childhood underweight has been shown to increase a child's risk of rapid weight gain. Overweight and obese children are more likely to become obese adults, which increases ...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1842-7

    authors: Al-Lahham S,Jaradat N,Altamimi M,Anabtawi O,Irshid A,AlQub M,Dwikat M,Nafaa F,Badran L,Mohareb R,Haji R,Aqqad T,Jayyab S,Ghosh BA,Taher R,Al Zabadi H

    更新日期:2019-12-09 00:00:00

  • Comparative study of bacteriological culture and real-time fluorescence quantitative PCR (RT-PCR) and multiplex PCR-based reverse line blot (mPCR/RLB) hybridization assay in the diagnosis of bacterial neonatal meningitis.

    abstract:BACKGROUND:Bacterial meningitis is more common in the neonatal period than any other time in life; however, it is still a challenge for the evidence based diagnosis. Strategy for identification of neonatal bacterial meningitis pathogens is presented by evaluating three different available methods to establish evidence-...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-14-224

    authors: Wang Y,Guo G,Wang H,Yang X,Shao F,Yang C,Gao W,Shao Z,Zhang J,Luo J,Yang Y,Kong F,Zhu B

    更新日期:2014-09-08 00:00:00

  • Selected hematologic and biochemical measurements in African HIV-infected and uninfected pregnant women and their infants: the HIV Prevention Trials Network 024 protocol.

    abstract:BACKGROUND:Reference values for hematological and biochemical assays in pregnant women and in newborn infants are based primarily on Caucasian populations. Normative data are limited for populations in sub-Saharan Africa, especially comparing women with and without HIV infection, and comparing infants with and without ...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1186/1471-2431-9-49

    authors: Mwinga K,Vermund SH,Chen YQ,Mwatha A,Read JS,Urassa W,Carpenetti N,Valentine M,Goldenberg RL

    更新日期:2009-08-07 00:00:00

  • Waist-to-height ratio is more closely associated with alanine aminotransferase levels than body mass index and waist circumference among population-based children: a cross-sectional study in Japan.

    abstract:BACKGROUND:An association between anthropometric measurements, including waist circumference (WC), and alanine aminotransferase (ALT) levels has been reported among adults. However, studies conducted among population-based elementary schoolchildren to date have been limited, especially in Japan, where the measurement o...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-015-0378-8

    authors: Ochiai H,Shirasawa T,Nishimura R,Nanri H,Ohtsu T,Hoshino H,Tajima N,Kokaze A

    更新日期:2015-05-17 00:00:00

  • Exploring the usefulness of comprehensive care plans for children with medical complexity (CMC): a qualitative study.

    abstract:BACKGROUND:The Medical Home model recommends that Children with Special Health Care Needs (CSHCN) receive a medical care plan, outlining the child's major medical issues and care needs to assist with care coordination. While care plans are a primary component of effective care coordination, the creation and maintenance...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-13-10

    authors: Adams S,Cohen E,Mahant S,Friedman JN,Macculloch R,Nicholas DB

    更新日期:2013-01-19 00:00:00

  • A qualitative study of the infant feeding beliefs and behaviours of mothers with low educational attainment.

    abstract:BACKGROUND:Infancy is an important period for the promotion of healthy eating, diet and weight. However little is known about how best to engage caregivers of infants in healthy eating programs. This is particularly true for caregivers, infants and children from socioeconomically disadvantaged backgrounds who experienc...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-016-0601-2

    authors: Russell CG,Taki S,Azadi L,Campbell KJ,Laws R,Elliott R,Denney-Wilson E

    更新日期:2016-05-21 00:00:00

  • Supporting play exploration and early developmental intervention versus usual care to enhance development outcomes during the transition from the neonatal intensive care unit to home: a pilot randomized controlled trial.

    abstract:BACKGROUND:While therapy services may start in the Neonatal Intensive Care Unit (NICU) there is often a gap in therapy after discharge. Supporting Play Exploration and Early Development Intervention (SPEEDI) supports parents, helping them build capacity to provide developmentally supportive opportunities starting in th...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1186/s12887-018-1011-4

    authors: Dusing SC,Tripathi T,Marcinowski EC,Thacker LR,Brown LF,Hendricks-Muñoz KD

    更新日期:2018-02-09 00:00:00

  • Perinatal factors associated with early neonatal deaths in very low birth weight preterm infants in Northeast Brazil.

    abstract:BACKGROUND:In Brazil, the prevalence of prematurity has increased in recent years and it is a major cause of death in the neonatal period. Therefore, this study aims at assessing perinatal factors associated with early neonatal deaths in very low birth weight preterm infants born in a region of Brazil with low Human De...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-014-0312-5

    authors: Castro EC,Leite ÁJ,Almeida MF,Guinsburg R

    更新日期:2014-12-20 00:00:00

  • Prevalence and factors associated with intestinal parasitic infection among under-five children in and around Haro Dumal Town, Bale Zone, Ethiopia.

    abstract:BACKGROUND:Intestinal parasitic infection is diversified illness and diseases caused millions morbidity among under-five children lives in developing countries particularly vulnerable rural communities. Deworming coverage in such community is low. The aim of this study was to determine the prevalence and associated ris...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1731-0

    authors: Gadisa E,Jote K

    更新日期:2019-10-27 00:00:00

  • Hirschsprung's disease presenting as intractable anemia: a report of two cases and review of the literature.

    abstract:BACKGROUND:This report summarizes the clinical characteristics of intractable anemia as part of the clinical presentation of Hirschsprung's disease (HD) and aims to strengthen clinicians' ability to recognize early signs of HD. CASE PRESENTATION:An 11-year-old boy with a 6-year history of intractable anemia, low hemog...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02423-z

    authors: Sun X,Chu J,Li C,Deng Z

    更新日期:2020-11-16 00:00:00

  • Parental and medical knowledge and management of fever in Italian pre-school children.

    abstract:BACKGROUND:Guidelines for the management of fever in children have been recently published, however "fever phobia" is still spreading. To provide information which may sustain educational interventions tailored to our population we investigated the parental and medical knowledge and management of fever in preschool chi...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-12-97

    authors: Chiappini E,Parretti A,Becherucci P,Pierattelli M,Bonsignori F,Galli L,de Martino M

    更新日期:2012-07-13 00:00:00

  • Pertussis vaccination in child care workers: room for improvement in coverage, policy and practice.

    abstract:BACKGROUND:The "Staying Healthy in Child Care" Australian guidelines provide for illness and disease exclusions and encourage vaccination of staff in child care settings, however these requirements are not subject to accreditation and licensing, and their level of implementation is unknown. This study aimed to describe...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-12-98

    authors: Hope K,Butler M,Massey PD,Cashman P,Durrheim DN,Stephenson J,Worley A

    更新日期:2012-07-13 00:00:00

  • Dynamics of toxigenic Clostridium perfringens colonisation in a cohort of prematurely born neonatal infants.

    abstract:BACKGROUND:Clostridium perfringens forms part of the human gut microbiota and has been associated with life-threatening necrotising enterocolitis (NEC) in premature infants. Whether specific toxigenic strains are responsible is unknown, as is the extent of diversity of strains in healthy premature babies. We investigat...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-1976-7

    authors: Shaw AG,Cornwell E,Sim K,Thrower H,Scott H,Brown JCS,Dixon RA,Kroll JS

    更新日期:2020-02-18 00:00:00

  • Congenital diaphragmatic hernia presenting with symptoms within the first day of life; outcomes from a non-ECMO centre in Denmark.

    abstract:BACKGROUND:Between 1998 and 2015, we report on the survival of congenital diaphragmatic hernia (CDH)-infants presenting with symptoms within the first 24 h of life, treated at Odense University Hospital (OUH), a tertiary referral non-extracorporeal membrane oxygenation (ECMO) hospital for paediatric surgery. METHODS:W...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02072-2

    authors: Larsen UL,Jepsen S,Strøm T,Qvist N,Toft P

    更新日期:2020-05-07 00:00:00

  • Health workers' views on factors affecting caregiver engagement with bubble CPAP.

    abstract:BACKGROUND:Severe respiratory distress is a leading cause of mortality among neonates in Malawi. Despite evidence on the safety, cost effectiveness and efficacy of bubble continuous positive airway pressure (CPAP) in managing the condition, its use in Malawian health facilities is limited and little is known about care...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02088-8

    authors: Salimu S,Kinshella MW,Vidler M,Banda M,Newberry L,Dube Q,Molyneux EM,Goldfarb DM,Kawaza K,Nyondo-Mipando AL

    更新日期:2020-04-23 00:00:00