Abstract:
BACKGROUND:Social media, mobile and wearable technology, and connected devices have significantly expanded the opportunities for conducting biomedical research online. Electronic consent to collecting such data, however, poses new challenges when contrasted to traditional consent processes. It reduces the participant-researcher dialogue but provides an opportunity for the consent deliberation process to move from solitary to social settings. In this research, we propose that social annotations, embedded in the consent form, can help prospective participants deliberate on the research and the organization behind it in ways that traditional consent forms cannot. Furthermore, we examine the role of the comments' valence on prospective participants' beliefs and behavior. OBJECTIVE:This study focuses specifically on the influence of annotations' valence on participants' perceptions and behaviors surrounding online consent for biomedical research. We hope to shed light on how social annotation can be incorporated into digitally mediated consent forms responsibly and effectively. METHODS:In this controlled between-subjects experiment, participants were presented with an online consent form for a personal genomics study that contained social annotations embedded in its margins. Individuals were randomly assigned to view the consent form with positive-, negative-, or mixed-valence comments beside the text of the consent form. We compared participants' perceptions of being informed and having understood the material, their trust in the organization seeking the consent, and their actual consent across conditions. RESULTS:We find that comment valence has a marginally significant main effect on participants' perception of being informed (F2=2.40, P=.07); specifically, participants in the positive condition (mean 4.17, SD 0.94) felt less informed than those in the mixed condition (mean 4.50, SD 0.69, P=.09). Comment valence also had a marginal main effect on the extent to which participants reported trusting the organization (F2=2.566, P=.08). Participants in the negative condition (mean 3.59, SD 1.14) were marginally less trusting than participants exposed to the positive condition (mean 4.02, SD 0.90, P=.06). Finally, we found that consent rate did not differ across comment valence conditions; however, participants who spent less time studying the consent form were more likely to consent when they were exposed to positive-valence comments. CONCLUSIONS:This work explores the effects of adding a computer-mediated social dimension, which inherently contains human emotions and opinions, to the consent deliberation process. We proposed that augmenting the consent deliberation process to incorporate multiple voices can enable individuals to capitalize on the knowledge of others, which brings to light questions, problems, and concerns they may not have considered on their own. We found that consent forms containing positive valence annotations are likely to lead participants to feel less informed and simultaneously more trusting of the organization seeking consent. In certain cases where participants spent little time considering the content of the consent form, participants exposed to positive valence annotations were even more likely to consent to the study. We suggest that these findings represent important considerations for the design of future electronic informed consent mechanisms.
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Balestra M,Shaer O,Okerlund J,Westendorf L,Ball M,Nov Odoi
10.2196/jmir.5662subject
Has Abstractpub_date
2016-07-20 00:00:00pages
e197issue
7eissn
1439-4456issn
1438-8871pii
v18i7e197journal_volume
18pub_type
杂志文章abstract:BACKGROUND:People with type 2 diabetes mellitus (T2DM) often experience mental health symptoms that exacerbate illness and increase mortality risk. Access to psychological support is low in people with T2DM. Detection of depression is variable in primary care and can be further hampered by mental health stigma. Electro...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16729
更新日期:2020-12-01 00:00:00
abstract:BACKGROUND:This is a methodological study investigating the online responses to a national debate over an important health and social problem in Russia. Russia is the largest Internet market in Europe, exceeding Germany in the absolute number of users. However, Russia is unusual in that the main search provider is not ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2270
更新日期:2012-12-13 00:00:00
abstract:BACKGROUND:The emergence of the Internet has increased access to health information and can facilitate active individual engagement in health care decision making. Hispanics are the fastest-growing minority group in the United States and are also the most underserved in terms of access to online health information. A g...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.3499
更新日期:2014-07-22 00:00:00
abstract:BACKGROUND:Word embeddings are dense numeric vectors used to represent language in neural networks. Until recently, there had been no publicly released embeddings trained on clinical data. Our work is the first to study the privacy implications of releasing these models. OBJECTIVE:This paper aims to demonstrate that t...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/18055
更新日期:2020-07-15 00:00:00
abstract:BACKGROUND:Advances in mobile health (mHealth) have enabled systematic and continuous management of patients with chronic diseases. OBJECTIVE:We developed a smartphone-based mHealth system and aimed to evaluate its effects on health behavior management and risk factor control in stroke patients. METHODS:With a multif...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15377
更新日期:2020-02-27 00:00:00
abstract:BACKGROUND:There has been a rapid rise in the popularity of electronic cigarettes (e-cigarettes) over the last decade, with growth predicted to continue. The uptake of these devices has escalated despite inconclusive evidence of their efficacy as a smoking cessation device and unknown long-term health consequences. As ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/11953
更新日期:2019-02-05 00:00:00
abstract:BACKGROUND:Poor quality primary health care is a major issue in China, particularly in blindness prevention. Artificial intelligence (AI) could provide early screening and accurate auxiliary diagnosis to improve primary care services and reduce unnecessary referrals, but the application of AI in medical settings is sti...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/14316
更新日期:2019-10-17 00:00:00
abstract:BACKGROUND:Profound vitamin B12 deficiency is a known cause of disease, but the role of low or intermediate levels of B12 in the development of neuropathy and other neuropsychiatric symptoms, as well as the relationship between eating meat and B12 levels, is unclear. OBJECTIVE:The objective of our study was to investi...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.8667
更新日期:2018-01-05 00:00:00
abstract:BACKGROUND:Recruitment of health research participants through social media is becoming more common. In the United States, 80% of adults use at least one social media platform. Social media platforms may allow researchers to reach potential participants efficiently. However, online research methods may be associated wi...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/23021
更新日期:2020-10-07 00:00:00
abstract:BACKGROUND:In addition to the aging process, risk factors for hearing loss in adults include, among others, exposure to noise, use of ototoxic drugs, genetics, and limited access to medical care. Differences in exposure to these factors are bound to be reflected in the prevalence of hearing loss. Assessment of hearing ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/17238
更新日期:2020-07-23 00:00:00
abstract::People across the world have been greatly affected by the ongoing coronavirus disease (COVID-19) pandemic. The high infection risk of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) in hospitals is particularly problematic for recently delivered mothers and currently pregnant women who require professiona...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19916
更新日期:2020-07-22 00:00:00
abstract:BACKGROUND:A three-dimensional virtual world (3DVW) is a computer-simulated electronic 3D virtual environment that users can explore, inhabit, communicate, and interact with via avatars, which are graphical representations of the users. Since the early 2000s, 3DVWs have emerged as a technology that has much to offer th...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.3097
更新日期:2014-02-18 00:00:00
abstract:BACKGROUND:Background: Chronic low back pain is the most prevalent chronic pain condition worldwide and access to behavioral pain treatment is limited. Virtual reality (VR) is an immersive technology that may provide effective behavioral therapeutics for chronic pain. OBJECTIVE:Objective: To conduct a double-blind, pa...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/26292
更新日期:2021-01-13 00:00:00
abstract:BACKGROUND:In December 2019, the COVID-19 outbreak started in China and rapidly spread around the world. Lack of a vaccine or optimized intervention raised the importance of characterizing risk factors and symptoms for the early identification and successful treatment of patients with COVID-19. OBJECTIVE:This study ai...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,meta分析
doi:10.2196/20509
更新日期:2020-10-02 00:00:00
abstract:BACKGROUND:A majority of adolescents report the use of some form of social media, and many prefer to communicate via social networking sites. Social media may offer new opportunities in diabetes management, particularly in terms of how health care teams provide tailored support and treatment to adolescents with diabete...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12149
更新日期:2019-05-30 00:00:00
abstract:BACKGROUND:The early diagnosis of various gastrointestinal diseases can lead to effective treatment and reduce the risk of many life-threatening conditions. Unfortunately, various small gastrointestinal lesions are undetectable during early-stage examination by medical experts. In previous studies, various deep learnin...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/18563
更新日期:2020-11-26 00:00:00
abstract:BACKGROUND:Most smokers attempt to quit on their own even though cessation aids can substantially increase their chances of success. Millions of smokers seek cessation advice on the Internet, so using it to promote cessation products and services is one strategy for increasing demand for treatments. Little is known, ho...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1666
更新日期:2011-08-26 00:00:00
abstract:BACKGROUND:Outbreaks of human infection with a new avian influenza A H7N9 virus occurred in China in the spring of 2013. Control and prevention of a new human infectious disease outbreak can be strongly affected by public reaction and social impact through the Internet and social media. OBJECTIVE:This study aimed to i...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2911
更新日期:2014-01-17 00:00:00
abstract:BACKGROUND:The long-term effects of mobile health (mHealth) interventions have not been documented, especially in resource-constrained settings. OBJECTIVE:This study aimed to assess the effects of a 1-year mHealth intervention on blood pressure levels and body weight in low-resource urban settings in Peru, 4 years aft...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/14595
更新日期:2020-04-21 00:00:00
abstract:BACKGROUND:The current COVID-19 pandemic is showing negative effects on human health as well as on social and economic life. It is a critical and challenging task to revive public life while minimizing the risk of infection. Reducing interactions between people by social distancing is an effective and prevalent measure...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/21613
更新日期:2020-08-27 00:00:00
abstract:BACKGROUND:The fact that patient satisfaction with primary care clinical practices and physician-patient communications has decreased gradually has brought a new opportunity to the online channel as a supplementary service to provide additional information. OBJECTIVE:In this study, our objectives were to examine the p...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1574
更新日期:2011-11-02 00:00:00
abstract::In October 2015, the "Chinese American Physicians E-Hospital" celebrated its "grand opening" online. All physicians affiliated with this E-Hospital are bilingual Chinese American physicians, who provide services ranging from initial teleconsulting to international transfer and treatment in the United States. Such tele...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.5432
更新日期:2016-05-23 00:00:00
abstract:BACKGROUND:Online health communities (OHCs) provide a convenient and commonly used way for people to connect around shared health experiences, exchange information, and receive social support. Users often interact with peers via multiple communication methods, forming a multirelational social network. Use of OHCs is co...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.5985
更新日期:2016-08-25 00:00:00
abstract:BACKGROUND:Current practice guidelines emphasize the use of physical activity as the first-line treatment of knee osteoarthritis; however, up to 90% of people with osteoarthritis are inactive. OBJECTIVE:We aimed to assess the efficacy of a technology-enabled counseling intervention for improving physical activity in p...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.8514
更新日期:2018-04-30 00:00:00
abstract:BACKGROUND:Active participant monitoring of adverse events following immunization (AEFI) is a recent development to improve the speed and transparency of vaccine safety postmarketing. Vaxtracker, an online tool used to monitor vaccine safety, has successfully demonstrated its usefulness in postmarketing surveillance of...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.2196/14791
更新日期:2019-10-23 00:00:00
abstract:BACKGROUND:The majority of workers, regardless of age or occupational status, report engaging in personal Internet use in the workplace. There is little understanding of the impact that personal Internet use may have on patient care in acute clinical settings. OBJECTIVE:The objective of this study was to investigate t...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2421
更新日期:2013-05-17 00:00:00
abstract:BACKGROUND:The medical tourism industry is currently popular in India, but there is no confirmation of the common perspectives among the country's medical travelers. OBJECTIVE:This qualitative research study analyzed web-based narratives from health travelers visiting India and described the themes of their experience...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15665
更新日期:2020-05-14 00:00:00
abstract:BACKGROUND:Since the outbreak of COVID-19, the Chinese government and the Chinese Center for Disease Control and Prevention have released COVID-19-related information to the public through various channels to raise their concern level of the pandemic, increase their knowledge of disease prevention, and ensure the uptak...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/20487
更新日期:2020-11-09 00:00:00
abstract:BACKGROUND:Methylphenidate, a stimulant used to treat attention deficit hyperactivity disorder, has the potential to be used nonmedically, such as for studying and recreation. In an era when many people actively use social networking services, experience with the nonmedical use or side effects of methylphenidate might ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16466
更新日期:2020-02-24 00:00:00
abstract:BACKGROUND:Demographic changes over the past decades call for the promotion of health and disease prevention for older patients, as well as strategies to enhance their independence, productivity, and quality of life. OBJECTIVE:Our objective was to examine the effects of a computer-based educational intervention design...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.6948
更新日期:2017-02-22 00:00:00