Quality of life in caregivers of children and adolescents with Osteogenesis Imperfecta.

abstract：BACKGROUND:The Short Form-8 (SF-8) is a widely used instrument for measuring health-related quality of life (HRQOL). The purpose of the current study is to evaluate the reliability and validity of the Chinese version SF-8 using a large, representative sample of city residents in mainland China. METHODS:We surveyed res...

journal_title：Health and quality of life outcomes

authors： Lang L,Zhang L,Zhang P,Li Q,Bian J,Guo Y

更新日期：2018-04-03 00:00:00

abstract：BACKGROUND:Studies examining the impact of injury on health-related quality of life (HRQL) over time are necessary to understand the short- and long-term consequences of injury for population health. The aim of this systematic review was to provide an evidence update on studies that have measured HRQL over time in gene...

journal_title：Health and quality of life outcomes

authors： Geraerds AJLM,Richardson A,Haagsma J,Derrett S,Polinder S

更新日期：2020-05-29 00:00:00

abstract：BACKGROUND:Economic environmental factors represent important barriers to participation and have deleterious effects on quality of life (QOL) in persons with spinal diseases (SpD). While economic factors are anchored in the International Classification of Functioning, Disability and Health, their influence on QOL and p...

journal_title：Health and quality of life outcomes

authors： Gecht J,Mainz V,Boecker M,Clusmann H,Geiger MF,Tingart M,Quack V,Gauggel S,Heinemann AW,Müller CA

更新日期：2017-10-10 00:00:00

abstract：BACKGROUND:The General Health Questionnaire (GHQ) - 12 was designed as a short questionnaire to assess psychiatric morbidity. Despite the fact that studies have suggested a number of competing multidimensional factor structures, it continues to be largely used as a unidimensional instrument. This may have an impact on ...

journal_title：Health and quality of life outcomes

authors： Smith AB,Fallowfield LJ,Stark DP,Velikova G,Jenkins V

更新日期：2010-04-30 00:00:00

abstract：BACKGROUND:There is no disease-specific instrument to assess health-related quality of life (HRQL) in patients with idiopathic pulmonary fibrosis (IPF). METHODS:Patients' perspectives were collected to develop domains and items for an IPF-specific HRQL instrument. We used item variance and Rasch analysis to construct ...

journal_title：Health and quality of life outcomes

authors： Swigris JJ,Wilson SR,Green KE,Sprunger DB,Brown KK,Wamboldt FS

更新日期：2010-07-31 00:00:00

abstract：BACKGROUND:Job satisfaction describes an employee's motivation and/or feeling of satisfaction towards his/her work. Globally, healthcare professionals' turnover and retention play a critical role in the delivery of essential health services. In Ghana, however, little has been done to ascertain job satisfaction levels a...

journal_title：Health and quality of life outcomes

authors： Akuffo KO,Agyei-Manu E,Kumah DB,Danso-Appiah A,Mohammed AS,Asare AK,Addo EK

更新日期：2021-01-07 00:00:00

abstract：BACKGROUND:Premature ejaculation (PE) is a common sexual dysfunction among men which affects men and their partners. Little qualitative data are available to characterize the impact of PE on men and their partners about ejaculatory control, sexual satisfaction, emotional distress and relationships. The objective of thi...

journal_title：Health and quality of life outcomes

authors： Revicki D,Howard K,Hanlon J,Mannix S,Greene A,Rothman M

更新日期：2008-05-12 00:00:00

abstract：BACKGROUND:Studies have been rarely conducted to provide a comprehensive perspective of pregnant women with the intention to investigate the relationships between periodontal conditions and oral health-related quality of life (OHRQoL). As such, this study aimed to describe the OHRQoL of pregnant women in Shanghai, Chin...

journal_title：Health and quality of life outcomes

authors： Lu HX,Xu W,Wong MC,Wei TY,Feng XP

更新日期：2015-05-28 00:00:00

abstract：BACKGROUND:Rural-to-urban female migrant workers have a lower quality of life compared to the general population. Improving these conditions remains highly challenging. This paper reports the health-related quality of life (HRQoL) of the female migrant workers in an educational project. METHODS:In this before-and-afte...

journal_title：Health and quality of life outcomes

authors： Zhu C,Geng Q,Yang H,Chen L,Fu X,Jiang W

更新日期：2013-07-23 00:00:00

abstract：BACKGROUND:There is variation in the number of response alternatives used within health-related questionnaires. This study compared a four-and a five-point scale version of the Norwegian Function Assessment Scale (NFAS) by evaluating data quality, internal consistency and validity. METHODS:All inhabitants in seven bir...

journal_title：Health and quality of life outcomes

authors： Østerås N,Gulbrandsen P,Garratt A,Benth JS,Dahl FA,Natvig B,Brage S

更新日期：2008-02-15 00:00:00

abstract：BACKGROUND:Knee Injury and Osteoarthritis Outcome Score (KOOS) is available in over 30 languages and a commonly used Patient-Reported Outcome (PRO) for assessment of treatment effects following knee surgery. The aim of the study was to report the linguistic translational process and evaluate the psychometric properties...

journal_title：Health and quality of life outcomes

authors： Paradowski PT,Witoński D,Kęska R,Roos EM

更新日期：2013-06-27 00:00:00

abstract：BACKGROUND:Fatigue is the most common symptom in Systemic Lupus Erythematosus (SLE) patients. Many fatigue instruments have been used in SLE, with Fatigue Severity Scale (FSS) mostly adopted. However, fatigue instruments haven't been tested in the Chinese SLE population. The aim of our study was to test the psychometri...

journal_title：Health and quality of life outcomes

authors： Feng C,He Q,Wu Y,Hu X,Wu J,He X,Zhao S

更新日期：2019-04-24 00:00:00

abstract：BACKGROUND:Most studies report that being parents of a child with cancer is a stressful experience, but these have tended to focus on mothers and few have included both parents. Moreover, studies have focussed on families in Western countries and none have been published examining the psychological outcomes for parents...

journal_title：Health and quality of life outcomes

authors： Masa'Deh R,Collier J,Hall C

更新日期：2012-07-28 00:00:00

abstract：BACKGROUND:The aims of the present study are to investigate whether there are differences in health-related quality of life (HRQoL) between girls and boys in two different age groups, to study how much of children's variance in HRQoL can be explained by common psychosomatic health symptoms, and to examine whether the s...

journal_title：Health and quality of life outcomes

authors： Svedberg P,Eriksson M,Boman E

更新日期：2013-10-23 00:00:00

abstract：BACKGROUND:The St. George's Respiratory Questionnaire (SGRQ) was a widely used tool to assess disease impact on patients with obstructive airways disease. Although traditional methods have generally supported construct validity and internal consistency reliability of SGRQ, such methods cannot facilitate the evaluation ...

journal_title：Health and quality of life outcomes

authors： Lo C,Liang WM,Hang LW,Wu TC,Chang YJ,Chang CH

更新日期：2015-08-20 00:00:00

abstract：BACKGROUND:The Asthma Symptom Utility Index (ASUI) is a preference-based outcome measure used in US clinical trials and cost-effectiveness studies for asthma. This study evaluated ASUI preference weights in Europe to determine whether the multi-attribute utility function, based on preferences from a US population, is g...

journal_title：Health and quality of life outcomes

authors： Flood EM,De Cock E,Mörk AC,Revicki DA

更新日期：2006-08-15 00:00:00

abstract：BACKGROUND:To investigate the impact of the gap between subjective and objective social status on health-related quality of life. METHODS:We analyzed data from 12,350 participants aged ≥ 18 years in the Korean Health Panel Survey. Health-related quality of life was measured by EuroQol-Visual analogue scale. Objective ...

journal_title：Health and quality of life outcomes

authors： Choi Y,Kim JH,Park EC

更新日期：2015-08-08 00:00:00

abstract：BACKGROUND:A valid and efficient stress measure is important for clinical and community settings. The objectives of this study were to translate the English version of the Perceived Stress Questionnaire (PSQ) into Chinese and to assess the psychometric properties of the Chinese version of the PSQ (C-PSQ). The C-PSQ eva...

journal_title：Health and quality of life outcomes

authors： Meng R,Li J,Wang Z,Zhang D,Liu B,Luo Y,Hu Y,Yu C

更新日期：2020-03-13 00:00:00

abstract：BACKGROUND:The proportion of people living to a very old age is continuously increasing. One of the possibilities explored in policies and services to meet this health and societal challenge is to encourage the very old to continue living at home. This initiative is in line with the wishes of most elderly people. Howev...

journal_title：Health and quality of life outcomes

authors： Jalenques I,Rondepierre F,Rachez C,Lauron S,Guiguet-Auclair C

更新日期：2020-05-07 00:00:00

abstract：:This article deals with the problem of interpreting health-related quality of life (HRQL) outcomes in clinical trials. First, we will briefly describe how dichotomization and item response theory can facilitate interpretation. Based on examples from the medical literature for the interpretation of HRQL scores we will ...

journal_title：Health and quality of life outcomes

authors： Schünemann HJ,Akl EA,Guyatt GH

更新日期：2006-09-14 00:00:00

abstract：BACKGROUND:There are very few studies about general quality of life parameters, standards for the description of health status and comparison with general population data on patients with Hereditary hemorrhagic telangiectasia (HHT), a rare disease in which epistaxis is a cardinal symptom. PURPOSE:To assess the quality...

journal_title：Health and quality of life outcomes

authors： Zarrabeitia R,Fariñas-Álvarez C,Santibáñez M,Señaris B,Fontalba A,Botella LM,Parra JA

更新日期：2017-01-23 00:00:00

abstract：BACKGROUND:With data from a diverse sample of patients either in treatment for cancer or post-treatment for cancer, we examine inter-domain and cross-domain correlations among the core domains of the Patient-Reported Outcomes Measurement Information System Sexual Function and Satisfaction measures (PROMIS® SexFS) and t...

journal_title：Health and quality of life outcomes

authors： Flynn KE,Reeve BB,Lin L,Cyranowski JM,Bruner DW,Weinfurt KP

更新日期：2013-03-11 00:00:00

abstract：BACKGROUND:The Multidimensional Scale of Perceived Social Support (MSPSS) is a short instrument, developed to assess perceived social support. The original English version has been widely used. The original scale has demonstrated satisfactory psychometric properties in different settings, but no validated Swedish versi...

journal_title：Health and quality of life outcomes

authors： Ekbäck M,Benzein E,Lindberg M,Arestedt K

更新日期：2013-10-10 00:00:00

abstract：BACKGROUND:The aim of a rapid response system (RRS) is to improve the timely recognition and treatment of ward patients with deteriorating vital signs The system is based on a set of clinical criteria that are used to assess patient's vital signs on a general ward. Once a patient is evaluated as critical, a medical eme...

journal_title：Health and quality of life outcomes

authors： Simmes F,Schoonhoven L,Mintjes J,Fikkers BG,van der Hoeven JG

更新日期：2013-05-01 00:00:00

abstract：BACKGROUND:Preoperative anxiety is a frequent and challenging problem with deleterious effects on the development of surgical procedures and postoperative outcomes. To prevent and treat preoperative anxiety effectively, the level of anxiety of patients needs to be assessed through valid and reliable measuring instrumen...

journal_title：Health and quality of life outcomes

authors： Vergara-Romero M,Morales-Asencio JM,Morales-Fernández A,Canca-Sanchez JC,Rivas-Ruiz F,Reinaldo-Lapuerta JA

更新日期：2017-06-07 00:00:00

abstract：BACKGROUND:Cavotricuspid isthmus (CTI) ablation is the treatment of choice in preventing recurrences of typical atrial flutter (AFl). However, little is known about long-term quality of life (QoL) after CTI ablation. METHODS AND RESULTS:From 01/2003 to 05/2005, 94 patients who consecutively underwent typical AFl ablat...

journal_title：Health and quality of life outcomes

authors： Cabanas-Grandío P,García-Seara J,Gude F,Martínez-Sande JL,Fernández-López XA,González-Juanatey JR

更新日期：2014-04-07 00:00:00

abstract：BACKGROUND:The Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS) are patient-reported outcome measures developed to evaluate efficacy in clinical trials and clinical practice. The ESD is a daily electronic diary assessing symptom severity; the EIS is a weekly electronic diary assessing symptom impa...

journal_title：Health and quality of life outcomes

authors： Kitchen H,Seitz C,Trigg A,Aldhouse N,Willgoss T,Schmitz H,Gater A,Gerlinger C,Haberland C

更新日期：2021-01-06 00:00:00

abstract：BACKGROUND:Current evidence supports the use of pedometers as effective motivational tools to promote physical activity and improve health-related quality of life in the general population. The aims of this study are to examine whether a pedometer-driven walking programme can improve health-related quality of life, and...

journal_title：Health and quality of life outcomes

authors： Mansi S,Milosavljevic S,Tumilty S,Hendrick P,Baxter GD

更新日期：2013-11-01 00:00:00

abstract：BACKGROUND:The 14-item Treatment Satisfaction Questionnaire for Medication (TSQM) Version 1.4 is a reliable and valid instrument to assess patients' satisfaction with medication, providing scores on four scales--side effects, effectiveness, convenience and global satisfaction. In naturalistic studies, administering the...

journal_title：Health and quality of life outcomes

authors： Bharmal M,Payne K,Atkinson MJ,Desrosiers MP,Morisky DE,Gemmen E

更新日期：2009-04-27 00:00:00

abstract：BACKGROUND:The primary aim of rheumatoid arthritis (RA) treatment is to induce remission, the absence of disease activity. The objective of this study was to explore the association between clinical endpoints used to gauge RA treatment efficacy and patient-reported outcomes of health-related quality of life, fatigue, a...

journal_title：Health and quality of life outcomes

authors： Strand V,Kosinski M,Gnanasakthy A,Mallya U,Mpofu S

更新日期：2014-03-05 00:00:00