Abstract:
BACKGROUND:Social network sites have been growing in popularity across broad segments of Internet users, and are a convenient means to exchange information and support. Research on their use for health-related purposes is limited. OBJECTIVE:This study aimed to characterize the purpose, use, and creators of Facebook groups related to breast cancer. METHODS:We searched Facebook (www.Facebook.com) using the term breast cancer. We restricted our analysis to groups that were related to breast cancer, operated in English, and were publicly available. Two of us independently extracted information on the administrator and purpose of the group, as well as the number of user-generated contributions. We developed a coding scheme to guide content analysis. RESULTS:We found 620 breast cancer groups on Facebook containing a total of 1,090,397 members. The groups were created for fundraising (277/620, 44.7%), awareness (236, 38.1%), product or service promotion related to fundraising or awareness (61, 9%), or patient/caregiver support (46, 7%). The awareness groups as a whole contained by far the most members (n = 957,289). The majority of groups (532, 85.8%) had 25 wall posts or fewer. The support oriented groups, 47% (27/57) of which were established by high school or college students, were associated with the greatest number of user-generated contributions. CONCLUSIONS:Facebook groups have become a popular tool for awareness-raising, fundraising, and support-seeking related to breast cancer attracting over one million users. Given their popularity and reach, further research is warranted to explore the implications of social network sites as a health resource across various health conditions, cultures, ages, and socioeconomic groups.
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Bender JL,Jimenez-Marroquin MC,Jadad ARdoi
10.2196/jmir.1560subject
Has Abstractpub_date
2011-02-04 00:00:00pages
e16issue
1eissn
1439-4456issn
1438-8871pii
v13i1e16journal_volume
13pub_type
杂志文章abstract:BACKGROUND:Patient portals are a promising instrument to improve patient-centered care, as they provide patients information and tools that can help them better manage their health. The implementation of portals in both the inpatient and outpatient setting gives health care providers an opportunity to support patients ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,多中心研究
doi:10.2196/13126
更新日期:2019-06-06 00:00:00
abstract:BACKGROUND:The National Institutes of Health (NIH), US Department of Health and Human Services (HHS), realized the need to better understand its Web users in order to help assure that websites are user friendly and well designed for effective information dissemination. A trans-NIH group proposed a trans-NIH project to ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.944
更新日期:2008-02-15 00:00:00
abstract:BACKGROUND:Information has been identified as a commonly unmet supportive care need for those living with cancer (ie, patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of health care, is an example of an important i...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/20510
更新日期:2020-10-29 00:00:00
abstract:BACKGROUND:Internet-based interventions using cognitive behavioral approaches can be effective in promoting self-management of chronic pain conditions. Web-based programs delivered via smartphones are increasingly used to support the self-management of various health disorders, but research on smartphone interventions ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.2249
更新日期:2013-01-07 00:00:00
abstract:BACKGROUND:Psychosocial problems such as depression, anxiety, and substance abuse are common and burdensome in young people. In New Zealand, screening for such problems is undertaken routinely only with year 9 students in low-decile schools and opportunistically in pediatric settings using a nonvalidated and time-consu...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/13911
更新日期:2019-12-03 00:00:00
abstract:BACKGROUND:Increasing cases of diabetes, a general lack of routinely operational prevention, and a long history of separating disease prevention and treatment call for immediate engagement of frontier clinicians. This applies especially to village doctors who work in rural China where the majority of the nation's vast ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.3228
更新日期:2014-04-01 00:00:00
abstract:BACKGROUND:Video mediated meetings with patients were introduced in outpatient care at a hospital in Sweden. New behaviours and tasks emerged due to changes of roles, work processes and responsibilities. The study investigates effects of digital transformation, in this case how video visits in outpatient care change wo...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9866
更新日期:2018-06-27 00:00:00
abstract:BACKGROUND:Snowballing involves recursively pursuing relevant references cited in the retrieved literature and adding them to the search results. Snowballing is an alternative approach to discover additional evidence that was not retrieved through conventional search. Snowballing's effectiveness makes it best practice ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.3369
更新日期:2014-10-01 00:00:00
abstract::Virtual care, the use of videoconferencing technology to connect with patients, has become critical in providing continuing care for patients during the current COVID-19 pandemic. Virtual care has now been adopted by health care providers across the spectrum, including physicians, residents, nurse practitioners, nurse...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/20621
更新日期:2021-01-21 00:00:00
abstract:BACKGROUND:Conducting and analyzing clinical studies of cough and cold medications is challenging due to the rapid onset and short duration of the symptoms. The use of Internet-based surveillance tools is a new approach in clinical studies that is gradually becoming popular and may become a useful method of recruitment...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2868
更新日期:2014-06-19 00:00:00
abstract:BACKGROUND:Low participation rates are one of the most serious disadvantages of Web-based studies. It is necessary to develop effective strategies to improve participation rates to obtain sufficient data. OBJECTIVE:The objective of this trial was to investigate the effect of emphasizing the incentive in the subject li...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.8561
更新日期:2018-02-08 00:00:00
abstract:BACKGROUND:The availability of Internet-based continuing medical education is rapidly increasing, but little is known about recruitment of physicians to these interventions. OBJECTIVE:The purpose of this study was to examine predictors of physician participation in an Internet intervention designed to increase screeni...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.7.4.e48
更新日期:2005-09-02 00:00:00
abstract:BACKGROUND:The Internet offers a great amount of health related websites, but concern has been raised about their reliability. Several subjective evaluation criteria and websites rating systems have been proposed as a help for the Internet users to distinguish among web resources with different quality, but their effic...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1.1.e1
更新日期:1999-07-01 00:00:00
abstract:BACKGROUND:In response to the high cost of HIV pre-exposure prophylaxis (PrEP) medications in Canada, community organizations have created internet-based guides detailing how to legally order generic medications online and travel to collect them in the United States. However, little is known about the patients followin...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12076
更新日期:2019-07-22 00:00:00
abstract:BACKGROUND:Mobile phone use and the adoption of healthy lifestyle software apps ("health apps") are rapidly proliferating. There is limited information on the users of health apps in terms of their social demographic and health characteristics, intentions to change, and actual health behaviors. OBJECTIVE:The objective...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.5604
更新日期:2017-04-19 00:00:00
abstract:BACKGROUND:Periodic prompts serve as tools for health behavior interventions to encourage and maintain behavior changes. Past literature reviews have examined periodic messages targeting specific behaviors (smoking, physical activity, diet, etc) or media (telephone, email, face-to-face, newsletter, etc) and have found ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.2837
更新日期:2014-03-25 00:00:00
abstract:BACKGROUND:Primary care settings are uniquely positioned to reach individuals at risk of alcohol use disorder through technology-delivered behavioral health interventions. Despite emerging effectiveness data, few efforts have been made to summarize the collective findings from these delivery approaches. OBJECTIVE:The ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/10859
更新日期:2019-04-08 00:00:00
abstract:BACKGROUND:Patients who suffer from different diseases may use different electronic health (eHealth) resources. Thus, those who plan eHealth interventions should take into account which eHealth resources are used most frequently by patients that suffer from different diseases. OBJECTIVE:The aim of this study was to un...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/13116
更新日期:2020-03-05 00:00:00
abstract:BACKGROUND:The medical tourism industry is currently popular in India, but there is no confirmation of the common perspectives among the country's medical travelers. OBJECTIVE:This qualitative research study analyzed web-based narratives from health travelers visiting India and described the themes of their experience...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15665
更新日期:2020-05-14 00:00:00
abstract:BACKGROUND:The prospect of assessing cognition longitudinally and remotely is attractive to researchers, health practitioners, and pharmaceutical companies alike. However, such repeated testing regimes place a considerable burden on participants, and with cognitive tasks typically being regarded as effortful and unenga...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
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更新日期:2017-11-22 00:00:00
abstract:BACKGROUND:Mental health services aim to provide recovery-focused care and facilitate coproduced care planning. In practice, mental health providers can find supporting individualized coproduced care with service users difficult while balancing administrative and performance demands. To help meet this aim and using pri...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
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更新日期:2020-03-19 00:00:00
abstract:BACKGROUND:Advance care planning is the process of discussing health care treatment preferences based on patients' personal values, and it often involves the completion of advance directives. In the first months of 2020, a novel coronavirus, severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), began circulatin...
journal_title:Journal of medical Internet research
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更新日期:2020-08-11 00:00:00
abstract:BACKGROUND:The increasing use of Web-based solutions for health prevention and promotion presents opportunities to improve self-management and adherence to guideline-based therapy for individuals with type 2 diabetes (T2DM). Despite promising preliminary evidence, many users stop using Web-based solutions due to the bu...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
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更新日期:2018-03-16 00:00:00
abstract:BACKGROUND:At the onset of the coronavirus outbreak, the World Health Organization's (WHO) Health Emergencies Learning and Capacity Development Unit, together with the WHO's health technical lead on coronaviruses, developed a massive open online course within 3 weeks as part of the global response to the emergency. The...
journal_title:Journal of medical Internet research
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更新日期:2020-04-27 00:00:00
abstract:BACKGROUND:Adherence to childhood immunization schedules is a function of various factors. Given the increased use of technology as a strategy to increase immunization coverage, it is important to investigate how parents perceive different forms of communication, including traditional means and text-message reminders. ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1976
更新日期:2012-06-06 00:00:00
abstract:BACKGROUND:Web-based interventions have been shown to be effective for the treatment of depression. However, interventions are often complex and include a variety of elements, making it difficult to identify the most effective component(s). OBJECTIVE:The aim of this pilot study was to shed light on mechanisms in the o...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
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更新日期:2020-03-26 00:00:00
abstract:BACKGROUND:In December 2019, pneumonia cases of unknown origin were reported in Wuhan City, Hubei Province, China. Identified as the coronavirus disease (COVID-19), the number of cases grew rapidly by human-to-human transmission in Wuhan. Social media, especially Sina Weibo (a major Chinese microblogging social media s...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19087
更新日期:2020-05-17 00:00:00
abstract:BACKGROUND:While research in the area of e-mental health has received considerable attention over the last decade, there are still many areas that have not been addressed. One such area is the comorbidity of psychological disorders in a Web-based sample using online assessment and diagnostic tools, and the relationship...
journal_title:Journal of medical Internet research
pub_type: 临床试验,杂志文章
doi:10.2196/jmir.4143
更新日期:2015-02-26 00:00:00
abstract:BACKGROUND:Preexposure prophylaxis (PrEP) is available as a daily pill for preventing infection with the human immunodeficiency virus (HIV). Innovative methods of administering PrEP systemically or topically are being discussed and developed. OBJECTIVE:The objective of our study was to assess attitudes toward differen...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
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更新日期:2016-05-19 00:00:00
abstract:BACKGROUND:Digital health information is available on a wide variety of platforms including PC-access of the Internet, Wireless Application Protocol phones, CD-ROMs, and touch screen public kiosks. All these platforms record details of user sessions in transaction log files, and there is a growing body of research into...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.3.2.e18
更新日期:2001-04-01 00:00:00