Ecuadorian Spanish translation and validation of the VELO quality of life instrument.

Abstract:

OBJECTIVES:Adapt the Spanish translation of VPI Effects on Life Outcome (VELO) instrument into Ecuadorian Spanish; test the resulting instrument for reliability and validity. METHODS:A cross-sectional, prospective design, set at a humanitarian mission within a community hospital. Linguistic validation: native Ecuadorian-Spanish speakers modified the Spanish VELO to Ecuadorian Spanish. Cognitive interviews were conducted with children with cleft palate (CP) and their parents (n = 50), guiding instrument modifications. An expert panel reviewed changes, resulting in the VELO-Ecuadorian dialect (VELO-Ec). INSTRUMENT ASSESSMENT:88 participants with CP (88 parents, 46 children) and 33 non-cleft controls (33 adult, 11 children) completed the VELO-Ec, Spanish-Pediatric Voice Handicap Index (pVHI), and Spanish-Intelligibility in Context Scale (ICS). Internal consistency was assessed with Cronbach's alpha; test-retest reliability was assessed by calculating the intraclass correlation coefficient (ICC); standard error of measurement (SEM) was calculated. Concurrent validity was assessed with Pearson correlations of VELO-Ec with pVHI and ICS. Discriminant validity assessment used an established ICS cutoff. Construct validity was assessed by grouping patients by parent report of hypernasality and early vs. late cleft repair (>24 months) using the Wilcoxon Rank-Sum test. RESULTS:VELO-Ec showed excellent internal consistency (alpha 0.96) and test-retest reliability (ICC = 0.85, 95% CI 0.68-0.93, SEM 5.71). It had strong concurrent validity, correlating with ICS (r = 0.75, p < 0.001) and pVHI (r = -0.79, p < 0.001). Discriminant validity was strong with better VELO-Ec scores among subjects with normal vs. abnormal ICS score (median 95 & 61, p < 0.001). Strong construct validity was identified: those with parent-reported hypernasality had worse VELO-Ec scores than those without (median 59 & 75, p < 0.001). Those with repair before or after 24 months had similar VELO-Ec scores (p = 0.882). CONCLUSION:The VELO-Ec is a valid and reliable measure of VPI-related quality of life, useful to clinicians and researchers treating Ecuadorian CP patients, especially in areas with limited resources such as on humanitarian missions.

authors

Ridgell L,Roth CT,Bow M,Hares-Helou R,Arias KM,Pollard SH,Hamdan U,Tollefson TT,Skirko JR

doi

10.1016/j.ijporl.2020.110312

subject

Has Abstract

pub_date

2020-11-01 00:00:00

pages

110312

eissn

0165-5876

issn

1872-8464

pii

S0165-5876(20)30455-9

journal_volume

138

pub_type

杂志文章
  • Bilateral tension pneumothorax during pediatric bronchoscopy (high-frequency jet injection ventilation).

    abstract::Bilateral tension pneumothorax complicating high-frequency jet injection ventilation during rigid open bronchoscopy for foreign body removal in a 3-year-old child is reported. Subcutaneous emphysema, bradycardia and low voltage of the QRS complex were the presenting symptoms. Disparition of heart dullness by percussio...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/s0165-5876(84)80012-9

    authors: Ostfeld E,Ovadia L

    更新日期:1984-07-01 00:00:00

  • Hearing screening and middle ear measures in American Indian infants and toddlers.

    abstract:UNLABELLED:American Indian children have three times the rate of otitis media compared to the general population, yet prospective cohort studies of OME and hearing loss have not been previously reported in American Indian infants. Between 1997 and 2003, a cohort of 421 infants was enrolled at birth from Minnesota Ameri...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2007.05.020

    authors: Hunter LL,Davey CS,Kohtz A,Daly KA

    更新日期:2007-09-01 00:00:00

  • Acute mastoid abscess and cholesteatoma.

    abstract::A 10-year review of acute mastoid abscess treated surgically in Belfast revealed a total of 24 cases, 12 of which were found to have an underlying cholesteatoma. The surgical management of these 12 cases is outlined but despite a desire to maintain an intact canal wall, 9 of them to date have ended up with an open cav...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/s0165-5876(87)80001-0

    authors: Primrose WJ,Cinnamond MJ

    更新日期:1987-02-01 00:00:00

  • Preliminary outcomes of cholesteatoma screening in children using non-echo-planar diffusion-weighted magnetic resonance imaging.

    abstract:OBJECTIVE:Diffusion-weighted (DW) MRI imaging is evolving into an alternative to second look surgery in detection of cholesteatoma recurrence. Insights into the DW MRI appearances of postoperative or inflammatory mucosal changes have recently described using non-echo-planar, turbo spin-echo (TSE) DW MRI which reliably ...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2009.12.011

    authors: Rajan GP,Ambett R,Wun L,Dhepnorrarat RC,Kuthubutheen J,Chow Z,Wood B

    更新日期:2010-03-01 00:00:00

  • Evaluation of hearing organ in patients with Turner syndrome.

    abstract:UNLABELLED:Hearing loss and middle ear diseases are often reported in some of Turner patients. In most of the reports hearing organ was evaluated with the use of subjective methods. The aim of the work was subjective and objective evaluation of hearing organ with an attempt to set the correlation between the results an...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2008.01.021

    authors: Gawron W,Wikiera B,Rostkowska-Nadolska B,Orendorz-Fraczkowska K,Noczyńska A

    更新日期:2008-05-01 00:00:00

  • Single-stage tracheal resection for severe tracheal stenosis in older children.

    abstract:OBJECTIVE:While tracheal resection for management of tracheal stenosis is an effective technique that has been well described in adults, the results in children have been less encouraging, as children tolerate anastomotic tension less well than adults. We describe our current technique for the management of severe trac...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2003.08.054

    authors: Preciado D,Cotton RT,Rutter MJ

    更新日期:2004-01-01 00:00:00

  • HRCT and MRI findings in X-linked non-syndromic deafness patients with a POU3F4 mutation.

    abstract:OBJECTIVE:The aim of this study was to analyze HRCT and MRI findings in patients with X-linked non-syndromic deafness and a POU3f4 mutation. METHODS:HRCT and MRI data of four patients (males, 2-19 years old) with a POU3f4 mutation were collected and a retrospective review was performed. Cochlea, internal auditory cana...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2014.08.013

    authors: Gong WX,Gong RZ,Zhao B

    更新日期:2014-10-01 00:00:00

  • Prevalence of signs and symptoms of temporomandibular dysfunction in female adolescent athletes and non-athletes.

    abstract:OBJECTIVES:To compare the prevalence of signs and symptoms of temporomandibular dysfunction (TMD) in female adolescent athletes and non-athletes and to examine the association between signs and symptoms of TMD in female adolescents in different Tanner stages. METHODS:The subjects were 89 female basketball and handball...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2012.12.024

    authors: Weiler RM,Santos FM,Kulic MA,De Souza Lima MP,Pardini SR,Mori M,de Souza Vitalle MS

    更新日期:2013-04-01 00:00:00

  • Myocutaneous sternocleidomastoid flap for reconstruction after the resection of a parapharyngeal heterotopic glioma in a child with cleft palate, and systematic review of parapharyngeal glial heterotopia.

    abstract::We describe the surgery and reconstruction employed with a sternocleidomastoid myocutaneous flap for the treatment of a heterotopic glioma in a 2-year-old boy with incomplete palatal fissure who presented with dysphagia and snoring, in whom a lateral pharyngeal wall mass obstructing 60% of the airway was noted. Hetero...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章,评审

    doi:10.1016/j.ijporl.2015.12.003

    authors: Prado-Calleros HM,Arrieta-Gómez JR,Castillo-Ventura B,Martínez SP,Jiménez-Gutiérrez C,Jiménez-Escobar I

    更新日期:2016-02-01 00:00:00

  • Surgical interventions for pediatric unilateral vocal fold paralysis: A systematic review and meta-analysis.

    abstract:OBJECTIVE:To evaluate outcomes of injection laryngoplasty (IL) and laryngeal reinnervation for the treatment of pediatric Unilateral Vocal Fold Paralysis (UVFP), especially on swallowing and quality of voice. METHODS:A literature review was performed in Medline/PubMed and Cochrane Library, following PRISMA guidelines,...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2020.110553

    authors: Aires MM,Marinho CB,Vasconcelos SJ

    更新日期:2021-02-01 00:00:00

  • Balance in children with otitis media with effusion.

    abstract::To determine the presence of balance disorders in young children who had otitis media with effusion (OME), 25 subjects, aged 13-57 months, diagnosed by pediatric otolaryngologists, were tested on the gross motor subtest of the Peabody Developmental Motor Scales, a standardized test of motor development with establishe...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/s0165-5876(97)00113-4

    authors: Cohen H,Friedman EM,Lai D,Pellicer M,Duncan N,Sulek M

    更新日期:1997-12-10 00:00:00

  • Tissue engineering and cartilage regeneration for auricular reconstruction.

    abstract:OBJECTIVE:This paper will provide (a) a review on current status of auricular reconstruction (b) particularly focusing on the current data about pinna reconstruction using stem cells in combination with tissue engineering. METHODS:The paper is divided into two sections. The first section presents a brief overview of t...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章,评审

    doi:10.1016/j.ijporl.2006.03.013

    authors: Ciorba A,Martini A

    更新日期:2006-09-01 00:00:00

  • Acute sinusitis in childhood.

    abstract::Acute inflammatory disease of the paranasal sinuses is not a common condition of childhood. A thorough understanding of the anatomic, radiologic and etiologic factors is necessary in order for the clinician to make the appropriate diagnosis and initiate the indicated therapy. It is not unusual for patients to present ...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/0165-5876(80)90024-5

    authors: Healy GB

    更新日期:1980-04-01 00:00:00

  • Tracheal agenesis: two case reports.

    abstract::Tracheal agenesis is a rare and uniformly lethal congenital malformation. It presents with severe respiratory distress at birth. In this anomaly there is a congenital absence of the trachea and the bronchus communicates with the esophagus. The diagnosis should be suspected in newborn infant with respiratory distress w...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2005.08.023

    authors: Agarwal S,John S,Latta S,Sahni M,Kumar N

    更新日期:2006-04-01 00:00:00

  • Simultaneous intracranial and orbital complications of acute rhinosinusitis in children.

    abstract:OBJECTIVE:To evaluate the frequency of intracranial and orbital complications occurring as simultaneous but separate complications of acute rhinosinusitis in the pediatric population. METHODS:Records of children admitted to St. Louis Children's Hospital between 1 January 1990 and 31 December 2002 were reviewed. Releva...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章,评审

    doi:10.1016/j.ijporl.2003.12.010

    authors: Herrmann BW,Forsen JW Jr

    更新日期:2004-05-01 00:00:00

  • Audiovestibular sequelae of congenital cytomegalovirus infection in 3 children presumably representing 3 symptomatically different types of delayed endolymphatic hydrops.

    abstract::Three cases of congenital cytomegalovirus (CMV) infection with long-term audiovestibular sequelae are presented. Case 1 had no hearing in one ear and severe progressive hearing loss in the other ear; he showed vestibular symptoms at the age of 4.5 years. Case 2 had severe but stationary hearing loss in one ear and sho...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/0165-5876(96)83899-7

    authors: Huygen PL,Admiraal RJ

    更新日期:1996-04-01 00:00:00

  • Comparing foreign body injuries patterns between Turkey and European Countries: are female Turkish children more vulnerable?

    abstract:OBJECTIVES:The present study aimed at analyzing and comparing Foreign Body (FB) injuries patterns in children from Turkey and other European countries in order to assess any country and culturally specific aspects of FB risk. METHODS:Data from Susy Safe register were included in the analysis. For this study, ICD-935 (...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2020.110605

    authors: Aydın E,Azzolina D,Baldas S,French MA,Gregori D,Lorenzoni G

    更新日期:2020-12-31 00:00:00

  • A clinical test of dynamic visual acuity for children.

    abstract:OBJECTIVE:Children with sensorineural hearing impairment (SNHI) and concomitant vestibular hypofunction demonstrate deficits in gaze stability that may affect reading. The objective of this study was to develop a reliable, valid clinical test of dynamic visual acuity (DVA) for children. METHODS:Seventy-six typically d...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2003.07.004

    authors: Rine RM,Braswell J

    更新日期:2003-11-01 00:00:00

  • Hard palate perforation due to invasive aspergillosis in a patient with acute lymphoblastic leukemia.

    abstract::Invasive aspergillosis (IA) is a major cause of morbidity and mortality in immunosuppressed patients. Primary oral invasive aspergillosis is a rare condition. We present an acute lymphoblastic leukemia (ALL) patient with hard palate perforation due to invasive aspergillosis. Two months after the appearance of the fung...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2005.03.035

    authors: Karabulut AB,Kabakas F,Berköz O,Karakas Z,Kesim SN

    更新日期:2005-10-01 00:00:00

  • Microbiology and antibiotic therapy of subperiosteal orbital abscess in children with acute ethmoiditis.

    abstract:OBJECTIVE:The objective of this study was to investigate the microbiological cultures and the management of acute ethmoiditis complicated by subperiosteal orbital abscess (SPOA) in a pediatric population. METHODS:The medical records of children under 18 years old was performed in a tertiary referral pediatric center f...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2018.01.021

    authors: Coudert A,Ayari-Khalfallah S,Suy P,Truy E

    更新日期:2018-03-01 00:00:00

  • Results of a national study on the awareness of and attitudes toward acute otitis media (AOM) among clinicians and the estimated direct healthcare costs in Turkey (TR-AOM Study).

    abstract:AIMS:Acute otitis media (AOM) is one of the most frequent diagnoses and reasons for prescribing antibiotics in children. The aims of this prospective study were the following: (1) to assess the continuing education of physicians and the sources of information about AOM; (2) to assess the current knowledge of and attitu...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2013.02.004

    authors: Dinleyici EC,Yuksel F,Yargic ZA,Unalacak M,Unluoglu I

    更新日期:2013-05-01 00:00:00

  • Primary cervical leiomyoma: A rare cause of a posterior neck mass in a pediatric patient.

    abstract::A 13-year-old male presents for evaluation of a right-sided posterolateral neck mass, first noted four years prior to presentation; incisional biopsy two years ago suggested a benign lymph node. Recent growth and increased pain prompted referral to our tertiary care center. MR imaging revealed a densely calcified mass...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2017.11.015

    authors: Oliver JD,Anzalone CL,Balakrishnan K

    更新日期:2018-01-01 00:00:00

  • Granulomatosis with polyangiitis presenting as facial nerve palsy in a teenager.

    abstract::Granulomatosis with polyangiitis (GPA, previously known as Wegener's granulomatosis) is an autoimmune systemic small-vessel vasculitis, associated with the presence of anti-neurophil cytoplasmic antibodies with a cytoplasmic staining pattern (c-ANCA). It is characterized by necrotizing granulomas, usually affecting th...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2018.02.009

    authors: Wang JC,Leader BA,Crane RA,Koch BL,Smith MM,Ishman SL

    更新日期:2018-04-01 00:00:00

  • A re-audit of paediatric ENT services in England and Wales.

    abstract:OBJECTIVES:ENT has a high paediatric workload. National recommendations for provision of paediatric surgical services are provided by three key documents produced by the Department of Health and Royal Colleges of Surgeons and Anaesthetists. This second cycle audit assesses the current state of paediatric services in EN...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2013.10.012

    authors: Pabla L,Finn P,Blackmore KJ,Bosman DA

    更新日期:2014-01-01 00:00:00

  • Primary mandibular distraction for management of nocturnal desaturations secondary to temporomandibular joint (TMJ) ankylosis.

    abstract:OBJECTIVES:Mandibular advancement is a proven method in the management of obstructive sleep apnoea syndrome (OSAS) which may manifest as sleep disturbances with nocturnal desaturations during sleep (NDS). The purpose of this study is to evaluate the role of primary osteo-distraction prior to ankylosis release in pediat...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2007.11.015

    authors: Anantanarayanan P,Narayanan V,Manikandhan R,Kumar D

    更新日期:2008-03-01 00:00:00

  • Oral squamous cell carcinoma in children; review of an unusual entity.

    abstract::Most commonly, squamous cell carcinoma (SCC) of the oral cavity presents during the fifth and sixth decades of life. Less than 4% of these cancers occur in patients younger than 40 years of age. Only a small sample of this subgroup exists of pediatric patients (< or =20 years), making oral SCC in children an extremely...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章,评审

    doi:10.1016/j.ijporl.2007.09.006

    authors: Stolk-Liefferink SA,Dumans AG,van der Meij EH,Knegt PP,van der Wal KG

    更新日期:2008-01-01 00:00:00

  • The role of C.T. scans in managing the orbital complications of ethmoiditis.

    abstract::Thirty-three cases of ethmoidities with orbital complications were reviewed to determine the accuracy of clinical diagnosis and the benefit of CT scans in planning treatment. Patients were classified according to the Schramm et al. 1982 criteria of orbital involvement with ethmoiditis: periorbital cellulitis with chem...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/0165-5876(88)90062-6

    authors: Gutowski WM,Mulbury PE,Hengerer AS,Kido DK

    更新日期:1988-05-01 00:00:00

  • Acute otitis media and mastoiditis following cochlear implantation.

    abstract:OBJECTIVE:To examine the incidence of acute otitis media (AOM) and mastoiditis in children after cochlear implantation (CI) and to evaluate the role of mastoidectomy in decreasing the rate of AOM in implanted children by comparing two surgical techniques: the Posterior tympanotomy approach (MPTA, with mastoidectomy) an...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2005.10.001

    authors: Migirov L,Yakirevitch A,Henkin Y,Kaplan-Neeman R,Kronenberg J

    更新日期:2006-05-01 00:00:00

  • An unusual case of rhabdomyosarcoma presenting as orbital apex syndrome.

    abstract:PRECIS:A 12-year-old female presented with symptoms and signs of orbital apex syndrome (OAS), secondary to stage IV alveolar rhabdomyosarcoma (RMS) originating in the sphenoid and ethmoid sinuses. OBJECTIVE:To present a case of alveolar rhabdomyosarcoma, unusual in its presentation as orbital apex syndrome and also it...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章,评审

    doi:10.1016/j.ijporl.2004.07.018

    authors: Machleder DJ,Banik R,Rosenberg RB,Parikh SR

    更新日期:2005-02-01 00:00:00

  • Clinically silent subdural hemorrhage causes bilateral vocal fold paralysis in newborn infant.

    abstract::Bilateral congenital vocal fold paralysis (BVFP) may result from multiple etiologies or remain idiopathic when no real cause can be identified. If obstructive dyspnea is significant and requires urgent stabilization of the airway, then intubation is performed first and an MRI of the brain is conducted to rule out an A...

    journal_title:International journal of pediatric otorhinolaryngology

    pub_type: 杂志文章

    doi:10.1016/j.ijporl.2012.07.014

    authors: Alshammari J,Monnier Y,Monnier P

    更新日期:2012-10-01 00:00:00